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ashleybaby715
01-17-2010, 12:37 PM
soo im kind of upset because i haven't been able to get on here in a while!
but i've been so preoccupied with my schools musical! so much fun, but soo much hard work! but it'll be worth it in the end!

i just wanted to sayy that on January 12th...it was on my one year ''lupaversery''
everyone looked at me like i was crazy, asking 'whats there to celebrate?''
but i look at, how far i've come in a year. i've made such BIG improvements since last year, so i feel that is a HUGE thing to celebrate :D

i can't believe its already been a year!

Saysusie
01-17-2010, 12:42 PM
Ashley;
Yes you have come a long way. I remember when you first joined our group and how you were affected by your diagnosis. So, I am right there with you wishing you a happy Lupaversary! You've overcome much, learned a lot, and made decisions about your health and your life! Many congratulations:laugh:

Peace and Blessings
Namaste
Saysusie

Leksie
01-17-2010, 03:00 PM
Yes! Happy Luaversary! and may all your next ones be inactive...

DrinkofWtr
01-17-2010, 04:21 PM
I just can't celebrate lupaversaries, but I am glad that you can.

Bonita
01-17-2010, 04:46 PM
Every day we are alive is a day to celebrate so you have a good one. Glad to hear you are doing well in school lots of luck. Love Bonita

magistramarla
01-17-2010, 08:10 PM
Atta girl, Ashley!
Keep up the good attitude and keep participating in school the way that you are. I think that you will be a success in life, despite the Lupus. A good attitude will help you so much. Who knows? You're so young, medicine may have defeated Lupus by the time you're my age.
Marla

BonusMom
01-17-2010, 08:24 PM
I thought I was the only one who "celebrated" the one year lupaversary. Like you, I was happy (or maybe relieved) to know why I had all of the symptoms that I did and it wasn't all in my head.

So glad you're staying optimistic and keeping busy. Take good care of yourself and good luck with the musical-I'm sure you'll be fabulous!

wolfwhisper
01-17-2010, 09:56 PM
I am happy that you have celebrated a 'lupeversary'. I was really young when I was diagnosed, and don't know the exact date. You must have come a very long way to be happy to see how far you've come. Congrats on making your first year, and don't forget to celebrate again, and remember every obsticle that was in your way. It makes the celebration much more exciting. Thanks for posting this. I'm excited for you! lol.

abbasgirl
01-18-2010, 10:50 AM
Hi Ashley... what kind of musical? So glad you're having fun.

Happy Lupaversary!

rob
01-18-2010, 11:59 AM
soo im kind of upset because i haven't been able to get on here in a while!
but i've been so preoccupied with my schools musical! so much fun, but soo much hard work! but it'll be worth it in the end!

i just wanted to sayy that on January 12th...it was on my one year ''lupaversery''
everyone looked at me like i was crazy, asking 'whats there to celebrate?''
but i look at, how far i've come in a year. i've made such BIG improvements since last year, so i feel that is a HUGE thing to celebrate :D

i can't believe its already been a year!

Ashley,

You have indeed come far in this past year. And since when is it a bad thing to celebrate something rather than sitting around angry and bitter all the time? Those who look at you like you are crazy, should instead, follow your example.

I say good for you!

Rob

ashleybaby715
01-18-2010, 03:21 PM
this is why i love everyone on here ! :)
you all understand where im coming from!!!

and yess im never one to sit around and be upset with myself and my diagnosis. i've made the best of it so far, and made sure to spread awareness of lupus and what it's all about.

oh and i will definetly continue to be involved in my school as much as i can, seeing as how its my last year.
i have to make the best of it.
our musical this year is- Once on This Island
its sooo much fun! but very high energy and full of dancing and singing, so thank god my arthritis isn't too bad, and my lungs are alot better then they used to be, cuz i'd probably pass out from not getting enough air!!

kducks
01-18-2010, 05:31 PM
I celebrate my lupieversary kind of too. I'm hitting 17 years of living with the wolf next month and can't believe it's been so long already. I'm proud of the fact that I have exceeded expectations orignally given to me by my doctors. They all said I would never work or lead a "normal" life but guess what I've been doing both for years! I have been working and off disability since 2005(well off of work last six months but start a new job Wednesday!). I think every year we are still here and living is reason to celebrate especially those of us with the extra challenge of living with Lupus. Just try to remember, your doctor isn't always right YOU know your abilities better than anyone. Happy Lupaversary! :071:

Kim

ashleybaby715
01-19-2010, 10:46 AM
yesss i know ! see my doctors actually told me that i would be able to live a normal life, and im glad that i have soo far met those expectations, if not exceeded them !
i just don't want to let something like having lupus affect what i have in the future and in the present.

i never will let lupus stop me from doing anything that i want to do.

rob
01-19-2010, 11:44 AM
I celebrate my lupieversary kind of too. I'm hitting 17 years of living with the wolf next month and can't believe it's been so long already. I'm proud of the fact that I have exceeded expectations orignally given to me by my doctors. They all said I would never work or lead a "normal" life but guess what I've been doing both for years! I have been working and off disability since 2005(well off of work last six months but start a new job Wednesday!). I think every year we are still here and living is reason to celebrate especially those of us with the extra challenge of living with Lupus. Just try to remember, your doctor isn't always right YOU know your abilities better than anyone. Happy Lupaversary! :071:

Kim

Stories like yours, really give me hope.

Rob

Nonna
01-19-2010, 12:11 PM
First Happy Lupaversary!! I'm still counting weeks. 6 of them for me. Congratulations, I like your spirit.
I also like wolfwhisper's quote:
Mother Teresa's "I know the Lord doesn't give me more than I can handle, I just wish He didn't trust me so much"
I look at that every day; it's taped to the bottom of my monitor.

Nonna

"Live, Enjoy and Be glad of Life!

kducks
01-19-2010, 01:56 PM
Stories like yours, really give me hope.

Rob

Aww thanks Rob. I was dx at the age of 17 and really thought my life was over. I've since learned it is anything but. I wasn't able to go to school and stuff right away like my classmates but I got to it eventually. I hope you and everyone here can find peace with this disease like I have.

Kim

mountaindreamer
01-19-2010, 03:30 PM
Hi Ashley,

WOW oh wow...I think back one year when this precious but very frightened young girl joined our family....Now, after all of the trials that you faced, and the adjustments that you made, here you are, a beautiful young lady. You have truly come a long way, and it has been a difficult path, but you stayed focused and keep stepping forward. Congratulations to you.

lucky7
01-20-2010, 02:10 PM
WOO HOO to Ashley!!!!!!!!! WE LOVE HAVING YOU ON BOARD!!!!!!!! You have a GREAT SPIRIT for all you've been through sweetie!!! XXXOOO

ashleybaby715
01-20-2010, 04:38 PM
aw mountaindreamer :] that was sooo sweet :]

and im not gonna lie, when i first joined this site, i was scared because i seen how quickly having lupus affected my life. and how quickly it put everything i was doing to a halt.
but now i look back and see how i really haven't let it stop me from what i wanted to do, if anything having lupus motivates me to do more then i probably would have prior to my diagnosis. !