View Full Version : my body feels like it is made of lead

08-31-2005, 06:13 AM
This morning I woke up and my body seriously felty like it was made of lead. My brain was in full speed, but my body was in slow motion. Has anyone else felt like this? Is there anything I can do?

08-31-2005, 06:39 AM
erinnlee, I feel like this on most mornings. It's so hard to describe to others what a huge ordeal it is to get out of bed every morning and do the normal things like taking a shower. I literally have to force my body against its will to get out of bed. My body is screaming at me to stay in bed and I somehow have to will it it to get up. I have a lot of times where my body feels like lead or that my muscles don't want to do what I tell them to do. Sometimes walking up my stairs can be an almost impossible mission. I wish I knew something that did help. Maybe someone else will have some ideas.

08-31-2005, 02:31 PM
I used to have that heavy feeling all the time... That was mostly because I was carrying around 85lbs of extra water weight, I have decided... Now, the feeling isn't so much heaviness, but, I still get the same "how am I gonna move?" feeling a lot of the time, which I thought would go away with the water... But, nooooooo...

09-05-2005, 08:52 PM
Hi, I am currently doing something different and it's been working. I've been taking 5mgs of Prednisone a day, I went on a diet (started to read Jorge Cruises "The Three Hour Diet") so I'm actually eating all the time and as you know with prednisone, that's all you feel like doing and I currently lost 10 pounds in a month. I am also taking DHEA and a multivitamin. I also take an ambien at night so that I am forced to get 8 hours sleep at night.

09-07-2005, 10:08 AM

i feel like that too. It never occurred to me to ask anyone though or to post it. Sometimes I felt I was perhaps being overly paranoid. Sometimes I don't feel like I know which way is up anymore b/c people I hang out with don't understand how I feel. This week, I have actually felt like that twice. I was extremely late to work yesterday b/c of it. I was awake, but could not open my eyes. My muscles felt like heavy sludge. I literally had to hold my right knee to help me climb out of bed. I have my days. Today was not one of those days - thank god. I'm already on 10 mg.s of prednisone and plaquinil; my days just vary. I take it easy on the days of extreme tiredness or sluggishness. Describing it isn't very easy, but I'm sure you know what I mean. Thanks for posting that - i thought it was just me. :D

09-07-2005, 03:26 PM
Tell me about it! I'm walking around the house tonight like I'm a 90 year old woman, holding onto walls incase my body collapses under me. Mad!

09-10-2005, 04:36 PM
I hear ya too.....

Today I went full tilt, shopping, running all over town, practically dancing in the streets I felt so energetic!

Then about 5:30 I hit the wall. Had about 90 pounds of lead land on my body and I can barely move. So I'm parked in my recliner, with a laptop. Thank heaven it is a SMALL laptop!

I think it is all part of the lupus, if I monitor my energy, I can make it last a day - but if I over do it, I pay.

I take plaquenil, but not the DHEA or the prednisone. My doc and I talked about DHEA and we decided I shouldn't try it at this point. Bt the other herbs, spices and vitamins I take seem to help a bit as well.

09-20-2005, 11:18 AM
what's DHEA?

I'm meeting with myspecialist tomorrow to discuss recent stuff (hair loss, weight gain, energy loss, stress and depression).

Right now I'm only on HQC (hydroxychloroquinine), but my ob/gyn suggested I amsk him if he'll wean me off of it for pregnancy.... I'm a little scared to go off it, especially when I'm having symptoms again.

No luck on the weight loss, I'm just too tired and achy. I know I have to get off my but, but it's really hard to find the energy nowdays.

10-16-2005, 10:23 AM
yeah i have that same problem with my brain being in full speed but my body not. It seems like my brain is spinning. That's why I don't want to be here anymore. I can't take it anymore. So I totally understand where you are coming from. :(

10-17-2005, 05:15 AM
I can soooo relate to this one. Actually this weekend I spent most of it in bed. But have you seen that commercial on TV where the woman is sitting still but her mind is just flying? I think it's a commercial for Adult ADD or something. That's how I feel sometimes, like my mind is just flying 90 to nothing and my body is MAYBE going 1. It's awful and everything feels so incredibly heavy. :( I do take a B12 every morning and it seems to help with the energy thing a little bit but when everything feels weighed down, that pill don't help either. I have been on the plaquenil (400 mg a day) for almost 2 weeks. Can't really tell the difference yet, other than the lights KILLING my eyes. Hopefully your dr can help you out and you feel better soon. {{HUG}} Just know you are not in this alone, we are here to listen and talk if you need it.