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smokerscat94
01-08-2010, 08:17 PM
had a scary but interesting day! I was sitting here at my computer and walked out to the livingroom which is like just a few feet, and my body instantly swelled up like a balloon. I obviously was freaked out, my hubby who used to be an EMT for years was all calm and collective and said, Honey I think I need to take you... to the ER now. I am kind of panicing as my throat was starting to close on me. I had pretty bad adema in my legs, they felt heavy. My face blew up like a balloon, I had three chins.. I was freaked out. Jim took me to ER adn they admitted me right away started IV Benadryl and Solumedrol. My throat started to relax and the panic was over. Thing is I hadn't eaten or drank anything for several hours prior to this. just water. i am still pretty swollen in the face, stomach and legs, but I am hoping there we be some noticeable swelling decrease by tomorrow. That was really scary!!! The worst of it is I have no idea what caused it. The Dr said I will probably never know either. After we got home my hubby called my Rheumy and my primary and let them know what was going on. Also my primary to find a different prophylatic for my migraines. he put me on nortriptyline. I sure hope this one works!!! keeping figers crossed!! I will update toorrow and let u all know how the swelling is.

Bonita
01-09-2010, 09:47 AM
Glad to hear that you cmae through this okay and there was someone who was knowedgable about what was going on. That can be scary i know 2 of my kids had anaphlatic schock and i would not wish that on anyone. Take care bonita

Angel Oliver
01-09-2010, 01:55 PM
Wow im glad you got help quick and i hope you feel a little better now.Scary that you dont know what started it off.I experienced it with meds twice, my legs and arms and 17 chins appeared :) But when the throat starts to close its panic stations.So glad you are ok and got the help.
Love
Amanda.xxxxx

SandyR
01-09-2010, 03:02 PM
Jeez - I am so glad to hear you had someone who reacted with calm cool experience with you. I probably would have freaked out too. Hope you are feeling better now.

debbie-b
01-09-2010, 03:18 PM
Oh, how scary. I am glad your husband was there to take care of you.
Hope you'll find out what caused it.
Take care of yourself.

Debbie

smokerscat94
01-10-2010, 02:50 AM
Thank you all for your replies! i am better today the swelling is still taking a while to go down. It is much better than yesterday though. The adema in my legs seems to be gone. I sure would like to know what the heck caused all that. Anyway I am doing ok. I was really freaked out at the time beleive me!

Angel Oliver
01-10-2010, 05:27 AM
Glad you are getting better.Was you eating something or changed a moisturiser or dyed your hair lately? xxxx

abbasgirl
01-10-2010, 10:12 AM
SC...has your doctor ever found you to have a c1q deficiency? I'm wondering if you are experiencing symptoms of hereditary angioedema.

abbasgirl
01-10-2010, 11:16 AM
At this link, http://www.umm.edu/altmed/articles/angioedema-000011.htm , it says this...
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Sometimes the cause is unknown. An angioedema reaction (AAE in particular) may be caused by allergies to foods, dyes, or pollen, or certain medications. Foods that commonly cause allergies include shellfish, dairy, and nuts. Drugs that often spark allergic reactions include nonsteroidal anti-inflammatory drugs (NSAIDs, such as ibuprofen), blood pressure medications, aspirin, and antibiotics. Conditions such as leukemia, Hodgkin's disease, and connective tissue disorders (such as lupus) may also trigger angioedema.
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I don't understand all the causes very well, but from what I've been trying to learn about this, lupus does something to the system causing a deficiency of C1q, which causes the edema. It's rare but it does occur because of different reasons, however one of the culprits that can also cause it is lupus. Here's a link to an article with more information...http://www.bcm.edu/oto/grand/52694.html I've never had the swelling but experience hives and a C1q deficiency was found in my blood...the rheumy at the time thought HAE was causing all of my symptoms although she couldn't explain much to me. She admitted she knew very little about it because it is a rare condition. I got in touch with HAE.org and learned more about it. I hope you never experience that again, SC...I'm praying for you. (((((Hugs))))

capncrunch
01-10-2010, 02:07 PM
im glad you are getting better, but i never knew that someone could swell up so fast from allergies, learning newer things everyday lol

DrinkofWtr
01-10-2010, 03:01 PM
It's scary to have an allergic reaction. I have had that happen with my eyes where they will swell shut. I put ice on them and over a couple of days they go down. I think mine was a reaction to a cosmetic.

smokerscat94
01-11-2010, 02:06 AM
I haven't changed anything no new soaps, foods, drinks , nothing. I can't figure out what caused it. which really kind of freaks me out! The only thing I was drinking before it happened was water. I have had hives before and never figured out what caused it. But this was really scary. It all happen so fast and so sudden without any kind of warning. I really hope that never happens again.

abbasgirl
01-11-2010, 01:32 PM
That's happened to me but with hives...couldn't find the source of the reaction. Whether or not the deficiency or lupus caused the hives is still a mystery. But please ask about the doc about complement deficiencies. If you have HAE, that's a super serious problem, but there is treatment for it. While digging for info on it I read experiences that were the same over and over...how it just came on suddenly with no known cause. I read that a few patients said it always happened to them when they exercised for some reason. HAE can also happen internally...there was a story about it on Medical Mysteries, I think that was the name of the show, about a patient who had internal HAE.

BonusMom
01-11-2010, 02:47 PM
That's just crazy, smokerscat! I don't have any known allergies, thankfully, but I cannot imagine such a sudden sweilling and can understand your concern. I hope you are able to identify what triggered the reaction and avoid it in the future.

pandagirl
01-11-2010, 05:22 PM
When I was aprox age 38 I developed allergies to things I had eaten my entire life...I had a severe allergic reaction in the allergists office to a skin test! It can happen at any time...it doesn't have to be exactly after you ingest something either. It could be hours or days. It could be environmental or a pet? I truly believe it was the beginning of the Lup for me..too many weird things began to happen. Glad your okay..I hope they gave you an epi pen!!!

smokerscat94
01-12-2010, 12:52 PM
hi andrea,

Yes I have an epi pen as I am allergic to honey bees. I have absolutely no clue what caused it and I have been racking my brain tying to figure it out. Thank you all for your input and support!