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tabathabroaden
12-29-2009, 10:05 PM
Hi, my name is Tabatha. I was diagnosed with Lupus in 2002. I am 39 years old and frustrated. Ihave seen several docs and rhuemys, but I have no solid answers to all of my questions and fears. This is hard for me because I dont know what to say. I would just like to hear from others that may be experiencing the same things I am. I have also recently over the past two years or so,been diagnosed with fibro and a small anuerysm on the right side of my head. I am afraid and although I have a very supportive family, I am alone.

Angel Oliver
12-30-2009, 04:28 AM
Welcome to the forum, but believe me you are NOT alone.Im sorry this is short but i'll be back soon to write a loger thread,but many here do identify me also!! Im sorry you are going through this,but you will soon hear from members who will help you and give you the courage you need to cope.Just hang in there we all understand.

Lots of love
Amanda.xx

debbie-b
12-30-2009, 05:02 AM
Hi Tabatha,

Welcome to the forum.
I was diagnosed with Lupus SLE about three years ago. I have finally come to terms with it.
This site has helped me alot. There is always somebody here to answer questions or concerns. It is a very good support system.
I have a very helpful, supportive, loving husband, but he does not really understand, what I am going through. When I come to WHL though, everybody understands. This has been very helpful to me.
Hopefully, it will help you as well.

Debbie

tabathabroaden
12-30-2009, 03:38 PM
Thank you so much, this is almost the relief I was looking for...I too have a very supportive husband, but he really doesnt know what to do or say. Im glad I will be able to share my experiences with people who understand and not talk to me like I am crazy or first answer to my concerns is well, just loose some weight! That would be great if that were the only problem. Thanks again, and I look forward to sharing with all of you!

puzzled
12-30-2009, 04:22 PM
Hi Tabatha sorry you are having a hard time getting solid answers from your doctors. It's rather frustrating dealing with the medical profession sometimes. I guess so many people including husbands and doctors will never understand until they are going through exactly the same thing. I have found that reading posts on this forum is extremely helpful as it makes me realize i am not alone in experiencing such horrible symptoms x

kim,l
12-30-2009, 05:26 PM
Hi tabatha welcome to the sight you are not alone we are here to help i have a very supportive husband but i still do not think he knows the full extent of what i go through on a day to day basis . I have had doctors telling me it was in my head or that i just need to lose weight this disease is so hard to get doctors to listen to you it frustrates me alot but i have found talking to my friends on this site have helped anytime you just want to chat i will be here to listen hugs kim l

BonusMom
12-30-2009, 08:44 PM
Welcome, Tabatha!

This is a great group of people who also felt alone prior to finding one another. It makes no difference how loving our families are because unless they also suffer from SLE, they just don't understand.

Make yourself at home and don't hesitate to ask questions or vent your spleen.

Numpty
01-05-2010, 06:48 AM
Hello Tabatha and Welcome to the forums!

Its great to hear that you have a supportive husband and that you've finally found this big lupus family here! You'll find all the answers you're looking for here and even more to questions you never thought to ask!

This is the best bunch of people you could ask for and I look forward to seeing your posts around the forums!

Claire
x

Saysusie
01-05-2010, 09:53 AM
Hi Tabatha;
Welcome to our family where, I'm sure you've discovered, you are most certainly not alone. Lupus is a very difficult disease to pin down as it is not the same for any two persons. Also, the disease can change in us; symptoms that we have today can disappear only to be replaced by new symptoms tomorrow and/or they can worsen overnight and a new crop of symptoms can appear out of nowhere.
Because this is such an unpredictable disease, it is very difficult for doctors to give us a straight answer about anything. Everything is a theory, tests are run as a process of elimination, and then it is anyone's guess what will happen to us next. It is frustrating and frightening all at the same time. The only thing that is normal is that fact that there is NOTHING NORMAL about the disease. That is what we all have in common, the unanswered questions and the unpredictability.
So, we are all here for one another to help each other navigate through the thick mire of unknowns. We will give you the best answers that we can, research information for you, and provide you with understanding, comfort and support. You have come to the right place and we are so happy that you are here!
Again....welcome!

Peace and Blessings
Namaste
Saysusie

abbasgirl
01-05-2010, 11:22 AM
Tabatha...(((((Hugs)))) As you can see, you're no longer alone. People here know what you're going through. Life is going to get better. Pull up a chair and make yourself comfortable at the family table.

mountaindreamer
01-05-2010, 07:07 PM
hi tabatha

well, i hop you no longer feel like you are alone....your new family of the sky is here, and our doors are always open.

as saysusie said, because lupus is so individual and syptoms are intermittent, it is very hard for drs. to give absolute answers to questions. My dr. basically helps me treat whatever symptoms i am experiencing. I keep a journal, and we go over each item at my visits. I leave with a handful of prescriptions to fill for specific symptoms if they return. Some scripts i never have to fill, but i have them if needed.

I learn so much from membership in this group. I take this knowledge with me to my appointments, and my dr. and i can focus on getting me some relief.

this is a great forum, and we welcome you with open arms.

MicRoMediC
01-06-2010, 08:00 AM
You aren't alone as you can see. When times are tough I get on here and am very active in posting. Sadly, I don't get on here as much when I'm feeling great. I'm sure there are other members like this and I'm not alone on that....
Anyway, welcome to the forum. Feel free to post any questions, complaints or comments and there will be plenty of responses. Best of luck to you.
Thoughts and prayers always.
Micromedic