View Full Version : Lupus Stories

12-22-2009, 03:01 PM
Hi everyone,
My name is Emma. I lost my mother to lupus in June 2003. Her name was Leslie and she used to be very active on these forums under the name SweetPea. In her honor I have spent the last 6 years raising funds for lupus. Today I am a writer. I write both fiction and non-fiction books for PublishAmerica. I am about to undertake the largest and most important fundraising job to date. I am writing a book about lupus. This book will not be another book that just details the symptoms and treatments of lupus. It will features my mother's story as well as stories of so many others who either suffer from or have lost their battle with lupus. The book will be titled SweetPea, Stories of Lupus. This will be a non-profit book. I will not make a dime off of the book. All money made will go to the Lupus Foundation. I am seeking those who either knew my mother and would be willing a say a few words about her for the book or who would like to tell their own stories of lupus. If you would like to take part please message me.
You do not have to have writing experiance to tell your story. I would willing write your story for you in your own words.

Thank you and God Bless

12-22-2009, 05:07 PM
God Bless you for doing such a service to those who have these dieases and for the ones who lost the battle with theirs. I have only had lupus and myositis for 3 years and not much time to establish the ravages it does to you but i am sure there are many others who have. My grandaughters boyfriend who is only 26 is really crippled up with rheumatoid arthritis and my grandsons girlfriend has a very bad case of chrons diease and she is 24. Good luck with your endevor Bonita

12-22-2009, 09:03 PM
hi emma,

wow, what a very special daughter your mother raised. Sounds like her magic has been transferred to you. Congrats on your book, i can't wait to read it.

I did not know your mom, so i can't share anything there. Also, i was only diagnosed about 2 years ago, after struggling for over 13 years before treatment began. I can't see where my story would warrant a part of your book, but if i can do anything to help, please feel free to let me know.

best of luck to you,

12-23-2009, 01:33 AM
Hi Emma,
I only joined the forum a few months ago, so I never met your mom. What I can say though, is that she was very special to have you. I'm sorry to hear she lost her battle, but your helping her and everyone else. Thank you. I don't know if I can contribute to your book since the doctors only continue guessing, but I've had Lupus since I was 3 (I'm 18 now) and I was the youngest case at All Children's Hospital in Florida. I don't warrent a place since all of my ANA tests came out negative (the doctors didn't know much about lupus and never told me the 'score' of the testing) but maybe someone here is in the same boat and you can get their story. If by chance you are interested, just message me. I'll be happy to help.

Good luck on your book, and I can't wait to read it.

12-23-2009, 06:57 AM
Hi Emma. I'm fairly new here and never had the blessing of knowing your mom. I wish I had. Writing a book is a wonderful way to honor her. Wow!

I hope you find her friends and all the stories you need. There are plenty of experiences here to use in your book. I'm still living under the suspicion of lupus and sjogren's with no firm dx yet.

12-23-2009, 04:19 PM
What a wonderful tribute to your mother.

12-23-2009, 05:36 PM
Hi Emma,
I agree with the others who have commented - you are doing a lovely thing in honor of your mother. I also didn't know her, since I've been diagnosed with Mixed Connective Tissue Disease in the past three years.
I'm a former teacher, and as such, I can write fairly well, so I would be willing to contibute if it would help. Feel free to PM me.