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scubagramplit
12-20-2009, 10:14 AM
Any body in the northern california area have any good information on a good lupus dr? I am having trouble finding one. Thanks for any suggestions. Jim.

Faith
12-27-2009, 11:36 PM
Hello Jim,

I saw your post about a dr. in Northern California. The only doctor that I know of is in Sacramento. It is Kenneth Wiesner MD. I hope this helps.

Take care,

Faith

scubagramplit
12-28-2009, 07:28 AM
Thank you faith. I am getting a referal from my new cardiologist for a rheumy here in Chico, we will see how this guy works out, a bit of a shorter drive for me, however I did drive to Sacramento yesterday and I was surprised it only took about an hour and fifteen minutes. I will definetly keep this in mind. Thanks again and God bless. JIm.

rob
12-28-2009, 09:37 AM
Hi Jim,

I think Saysusie has a pretty good handle on what's available in California for Rheumotologists. When she gets back from vacation, I'll bring this thread to her attention to see if she can help.

Rob

Faith
12-31-2009, 05:01 PM
You are very welcome Jim.

I currently drive 2 hours to Los Angeles because the quality of care far exceeds the quality of care in Central California as well as the pain and discomfort of the drive. My rheumy in Los Angeles is the one whom made the recommendation of the doctor in Sacramento. I hope you find someone local; if not you only have an hour's drive to a specialist.

I wish you luck, many blessings, and a Happy New Year!

God Bless,

Faith

dolocot
03-06-2010, 01:59 AM
Hi Faith,

I was catching up on some reading and saw your post. I had very bad luck with the doctor in chico. Do you know if Dr. Kenneth Wiesner is a good one? Sorry for the question, am having bad luck with doctors lately.

Dolocot

scubagramplit
03-06-2010, 08:38 AM
Dolocot, what dr. did you try in Chico? Just out of curiousity. I live in Durham, 5 min. from Chico. I have tried to get a dr. in Chico but have had no luck, I took that as a sign that I wasn't supposed to have one in Chico.

Faith
03-06-2010, 11:15 AM
Hi Dolocot & Jim,

I had asked a well known rheumy for an aquaintance of mine and he had suggested Dr. Weisner. You may want to google him and place grades after his name. I did that and found several comments on other rhuemys which gave me a feel for those who took their time and were graded high and those that were not. I can't remember the website address with the grades. I have no further info on him whatsoever. Another area to check is rhuematology.org as it lists rhuemys by state and breaks it down by city. They are all board certified. I would try it and it you don't care for him; try someone else. I know it's very frustrating. I am in the same process. Once you find one you like, takes his time and understands, it will all be worth it.

Please keep us posted on your apptmt. I am not sure how far Monterey is but there is another doc by the name of Dr. S. Suh. I am not sure what the distance is from Chico to Monterey. Hang in there.

Faith

Faith
03-06-2010, 11:30 AM
I am so sorry. I just googled chico and monterey . . . too far away from each other. I wouldn't drive it. I hope this helps. I have no info on any of these doctors except they are board certified.

Looked up rhuematology.org and here are the docs listed in Chico

Joseph A. Chiapella, MD
Member Type: ACR Fellow Member
Enloe Medical Center
1531 Esplanade
Chico, CA 95926
Ofc: 530-896-7455

Harchetan S. Sandhu, MD
Member Type: ACR Fellow Member
1488 East Ave
Chico, CA 95926
Ofc: 530-342-1310

A few docs in SACTO (not enough room to list all):

SRichard H. White, MD
Member Type: ACR Fellow Member
Dept of General Medicine
Univ of Calif-Davis Med Ctr
4150 V St Ste 2400
Sacramento, CA 95817
Ofc: 916-734-7004
Fax: 916-734-2732
Time Spent: Patient Care, Teaching, Research-Clinical
Disciplines: Internal Medicine, Adult Rheumatology
acto:

Douglas E. Roberts, MD
Member Type: ACR Fellow Member
500 University Ave Ste 230
Sacramento, CA 95825
Ofc: 916-565-1989
Fax: 916-646-4036
Time Spent: Patient Care, Research-Clinical
Disciplines: Adult Rheumatology


Dana J. Miller-Blair, MD
Member Type: ACR Fellow Member
Internal Medicine-Rheumatology
The Permanente Medical Group
6600 Bruceville Road
Sacramento, CA 95823
Ofc: 916-688-2330
Fax: 916-688-6147
Time Spent: Patient Care, Teaching, Research-Clinical
Disciplines: Adult Rheumatology, Internal Medicine


Carolyn F. Dennehey, MD
Member Type: ACR Fellow Member
1020 29th St Ste 270
Sacramento, CA 95816
Ofc: 916-455-3700
Time Spent: Patient Care, Teaching, Research-Clinical
Disciplines: Adult Rheumatology, Other

dolocot
03-06-2010, 02:02 PM
Faith,
Thank you for all of your input. Unfortunately Dr. Chiapella in Chico has left. He was very good from what I hear. The other Doctor is the one I had trouble with. I will certainly look into the list you gave and try a doctor in sacramento. I was doing pretty well and all of the sudden all my symptoms came back 2 months ago and have been getting progressively worse. I guess it is time to bite the bullet and try to get someone to listen to me. My labs do not say I have lupus but then all my symptoms do not fall anywhere else. I have had 4 different diagnosis and am very confused about what may be going on with me. Sorry to unload. Again thank you.

dolocot

dolocot
03-06-2010, 02:14 PM
Scubagramplit,

I saw Dr. Harchetan Sandu. I personally did not get along with him. I have heard mixed comments, both positive and negative, for him so it is hard to tell. I would say to at least give him a try and see what you think. For some reason this doctor and I just did not communicate well. Could be me, could be him, I don't know. Hey you live pretty close to me, I live in Yankee Hill. Anyways good luck.

scubagramplit
03-06-2010, 11:20 PM
Dolocot, I go to see my dr. in Medford Oregon on Monday, will actually leave tomorrow aroung noon, But, from what I here I am going to see if he will give me a referral to dr. wiesner in Sac. I was seeing a dr. in Redding but like you were saying we did not hit it off very well. At first I thought he would be good but then it got to trying to tapper me off prednisone and by the time I got down to 14mg I got to the point to where I could not function any more and started missing days from work, called him up and told him about it, he had some blood tests done and told me there was no sigh of lupus activity and to continue the tapper, at that point I said good buy, I am not going to go back to where I am sitting in a chair slobbering on myself and not being able to function so I went back to my previous dr. in Medford, he does know lupus.
Enough of that, I saw on your profile that you like to sew and knit, my beloved wife loves to quilt, sew and knit. I checked out the map and as you said we are not too far from each other. Maybe some time we will have to meet up and have lunch and meet the family. It lookes like on your profile that you are a nurse? I work at Northwest Lineman College in Oroville as a training instructor. Take care and look forward to chatting with you. Jim

Faith
03-07-2010, 01:44 AM
Dolocot,

You are more than welcome anytime. That is what we are all here for is a sounding board and to support each other. A long time ago, I put together a binder of all labs; I would suggest you get copies of all your labs and do the same in case you try several different doctors. Hang in there; you just need to find one really good doctor who will listen to you and then you are set. Many on the board have gone through what you are going thru so don't give up; be more persistent. I would also check out from the local library the book Lupus for Patients and Families by Dr. Wallace or it can be found on Amazon. Read up on it and take it with you along with a list of questions when you have a new visit in Sacto. Sometimes we have to educate a little unfortunately.

I am very sorry your symptoms are progressively worse, and I hope you get some relief soon. What are your symptoms and labs say? Also, certain specialty labs like ANA, ESR, C3, C4, RF should be run through a specialty lab in Los Angeles by the name of RDL which stands for Rhuematology Diagnostics Laboratories. This will make a diference as well although you would need to verify with your insurance it is covered and the rheumy that you see that they work with them. If you do not have insurance, the doctor may order a non-insurance panel which runs $80 versus $500 cash. I hope this helps out. I would definately check into Weisner as well.

Keep us posted and hang in there; one day at a time.

Take care & God Bless,

Faith