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ritzbit
11-29-2009, 01:04 PM
I have an appointment tomorrow at Childrens. Worried as usual. especially becuz I havent been feeling the best for about a month now. Weird things I havent had problems with before like the sores on my head and lack of hair in places... I've been going down on my prednisone and Im afraid she'll make me take more again or something since Im feeling crappy. And Im kinda worried about this headache I've had for like 2 weeks straight. =(

Bonita
11-29-2009, 01:29 PM
All my best wishes are with you for your appointment tommorow. It might be the lowering of the dose of predisone. Love and prayers Bonita

Bonita
11-29-2009, 01:30 PM
All my best wishes are with you for your appointment tommorow. It might be the lowering of the dose of predisone. Love and prayers Bonita

We are never alone with this diease and the people on this web site. We are here for each other.

Saysusie
11-29-2009, 07:44 PM
We will be here for you after your appointment. I know that you are worried and just visualize all of us there with you, holding your hand and giving you strength!
Please let us know how your appointment goes!

Peace and Blessings
Namaste
Saysusie

Samo
11-29-2009, 07:54 PM
Hey there...
know that good vibes are being sent your way. I cannot speak to the sores or lack of hair but I can say that I have had headaches that have lasted from one to two weeks. Those really do a number on me. Hang in there!! Samo

ritzbit
11-30-2009, 06:15 AM
Thanks you guys. I'll let you know how the appointment goes

abbasgirl
11-30-2009, 10:41 AM
Sending ((((hugs)))) and waiting to hear about your appt.

Angel Oliver
11-30-2009, 10:46 AM
Goodluck Riz and i hope its more positive and they help you more than you are expecting.Thinking of you.

Love
Amanda.xxxx

magistramarla
11-30-2009, 10:57 AM
Ritzbit,
We're all waiting to hear about your appointment today. I sure hope that the doc has some ideas that will help you.
Hugs,
Marla

ritzbit
11-30-2009, 05:09 PM
She pretty much acted like I needed more sleep and kept asking if I was depressed. And Im not. Soo that made me angry. I feel like she does nothing for me everytime I go there. Also there was some protein in my urine. Which I've never had before. But you know its all just sleep related. I just need more sleep. Whatever. She makes me angry. I like the resident doctor so much more than my actual doctor. She always seems alot more concerned with things and actually checks out my complaints other than my actual doctor. gggggrrrrrrrrrrrr

magistramarla
11-30-2009, 09:52 PM
Many of us have had to try two or three rheumys before we found the right one. Is it possible for you to try another rheumy? Is that resident far enough along in his/her career to take you on as a patient?
Honestly, how can that doctor blame scalp sores and thinning hair on lack of sleep/depression? Hasn't she been clued in on symptoms of lupus? Sometimes, those docs just make me mad!
Marla

abbasgirl
12-01-2009, 08:05 AM
Oh Ritzbit...I'm sorry it went like that. See if you can talk to the res. doc and just set up your appts with that one instead. This other doctor is getting paid to do practically nothing and you don't need your doctor visits to be stressful sweetie. Going to the doctor should be something you look forward to for help. (((((Hugs)))))

ritzbit
12-01-2009, 01:59 PM
Im not sure if the resident can have patients yet. I'll ask next time I go. Becuz shes wonderful. And she asks all these questions and makes suggestions of things and makes me think that their probably going to actually do something. And then my doctor comes in and asks her to tell her what all I said is wrong. And then barely looks at me. And then asks if we've had problems with depression in my family and my mom said no but that I used to be depressed. Like 5 years ago though. And then she just said to do what I've been doing and to take this stupid pill to help me sleep. I seriously went in and listed off like almost 10 complaints from the past month and thats all she said to do. And exercise. Becuz she's yells at me everytime Im there to exercise. And I explain to her everytime that I dont really have time to exercise very much. Grr. I've been in a very bad mood for the past few days. and this isnt helping.

magistramarla
12-01-2009, 07:20 PM
I had an orthopedic surgeon who wouldn't listen to me about the pain that I still felt after surgery and instead harped on exercise and losing twenty pounds.
I will never see him again.
Now my rheumy thinks that I might have degenerative disc disease, so at least she realizes that my pain is real.
Please try to see another doctor, Ritz.
Hugs,
Marla

abbasgirl
12-02-2009, 08:41 AM
The res. doc sounds wonderful! I'd beg and plead to see that one instead and just hope to goodness someone asks me why...he he he. Oh pretty please, someone just ask me.

I hate when the depression theory comes up with doctors. I've heard that one too and that it could cause some of my pain. Zeesh...there's no way depression could cause pain like this, or rashes, or sores on my head, or.....yada yada yada.

Sounds like the doc just wants to get things done and I hate doctors like that... they should put revolving doors on the front of their buildings. Grrr.:grumpy: They also could move things along faster if they put in conveyor belts too and be ready to tee off right after lunch every day. What has happened to the experience of visiting doctors? Used to be you'd go in and have more time than this to talk and go over things. One poster here said it very well, I can't remember who, sorry...but it's waiting 3-6 months to spend 10 minutes with them...that was hitting it right on the head. It's ridiculous and a patient shouldn't have to raise a little heck to get more time and demand better treatment. Is it just me or is going to the doctor these days way different than it used to be? I'm 40 and been going off and on all my life so... I remember treatment being better than this and easier to find.

I was advised to exercise too...and despite the pain, I kept it up...and I feel so much worse now. Nearly three months of this now and I'm miserable. All I have for pain is 5 mg oxy and imitrex...and it just doesn't cut it. If they want me to exercise, they're gonna have to treat me with something better. Plbtttt! I am so extra physically miserable now! Listen to your body sweetie...you're the one in it and suffering and know it best. If you exercise, choose the right kind too. I'm down to nothing but short walks every day...weather permitting. It's something though.

I am so gripey today...does it show? :cute:

ritzbit
12-02-2009, 07:24 PM
I dont know. Im just so frustrated anymore. Last night the weirdest thing happened. I all of the sudden was just sooooooo AWAKE. Like weirdly awake like dancing and singing and flippin out about everything. And I cleaned for no reason and couldnt stop for like 4 or 5 hours. It was weird. I was not myself at all. My friends all thought I was on drugs and I was like what the hell you know I dont do that. It was just so weird. I have just felt so weird lately. I dont feel like me =( Im everywhere. Tryin to keep up with school and tryin to see my boyfriend too much and there are a handfull of problems there too. Its just been a really bad last couple of weeks.

Samo
12-02-2009, 08:42 PM
Ritzbit,

As Marla said, sometimes you need to try multiple doctors to find the one that will listen and work with you. Trying out doctors is an exhausting mission but when you find the right one, it will be well worth it.

One time, over a period of two months, my ankle had so much inflammation it was very swollen. My general doctor said I "definitely" had a break or fracture, EVEN THOUGH I explained that I had not twisted my ankle or fallen. I went to an ortho doctor, they took an x-ray, did not see anything but said it was probably a hairline fracture and I got a cast. Needless to say, I was not in the state of mind to stand up to my general doctor.

Hang in there, you will find the doctor for you.
Samo

ritzbit
12-03-2009, 06:29 PM
I dont know where to look for a new doctor

magistramarla
12-03-2009, 08:48 PM
Do you have a primary care doctor? He/she is the one that you see for colds, flu, etc. They usually have a list of specialists that they can recommend, so I would ask that doctor for a suggestion for a new rheumy.
If nothing else, look in the Yellow Pages under Physicians/specialists/rheumatologists and just start calling offices.
Hope this helps!
Marla

abbasgirl
12-04-2009, 08:20 AM
Ritz...sending you ((((Hugs))))

The less you have to worry about, the better. I'm glad Christmas break is coming...schedule a lot of "you" time...pamper yourself and take it very easy. I know it stinks to rest sometimes because there's a lot going on, lots to do, and it being the holidays there tends to be extra everything...but it's so important you get the rest you need and relax from stress. Marla's suggestions are spot on... let your pcp help you find another doctor or you can look online for any doctor reviews. Type a doc's name into google and reviews and see what pops up. Sometimes you can find a good doctor that way. I'm praying you find a very caring doctor.

ritzbit
12-04-2009, 10:39 AM
I assume that my doctor will suggest to stay at childrens and I dont know how many other rheumys they have there. I guess I'll ask.

I stayed home from school today. I just dont even feel like doing anything this week. I've had a cold plus a million other things making me feel crappy. Im getting a little behind in school

abbasgirl
12-05-2009, 02:49 PM
Don't sweat about getting behind in school right now. You can catch up. Just take it easy. If your doctor replies with that, just ask for another rheumy or one outside of Children's. Be firm.

ritzbit
12-05-2009, 05:22 PM
I have to keep my grades up =/ i dont know if my mom will agree to a new doctor