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iseedeadmonkeys
10-29-2009, 04:46 AM
Hello all

Just wanted to share with you my bit of good news

I had a long think about getting a second opinion in my lupus needs, My rhumey is really good and very nice, i do like him, but when i go to see him hes only ever intrested in my joint pain, he doesnt help me with the other things ive been experiencing...that comes with the lupe, dont get me wrong i do write a list of stuff and take it to him but thats all it comes to he says yes yes yes lets deal with one thing at a time...aaarrrggghhhh i forget when i go back to see him.

Anyway moving on i went to see my GP today for my drug reveiw..which went well i guess and i asked her if she could transfer me to St Thomas hospital in London they have a centre there that specialises in lupus...woohooo she said she would write to them and let me know, she understands how important it is to me that i get into that hospital and not Addenbrookes in Cambridge as thats a teaching hospital ive had dealings with that place and they are good but i need to see someone who knows and understands what living with lupus is like.

Ive also been told by one of their patients that they have a hotel next to the centre and u can stay there and eat for free, when they need to test etc, as London is a bit of a mission to get to they have ppl traveling all over the world to get help from the centre.

So i will let y'all know when i hear from them in the ~BIG~ decision

Thanx for listening to me
ISDM

Angel Oliver
10-29-2009, 05:08 AM
Oh Jane,

Thats fab news for you. I so hope now you get the help and support you need and feel the benefits of their expertise and i hope its very very soon.Mmmmm free food too hey....yipeeeeeeeeeee!! Goodluck and let us know when you hear anything.

Lots of love
Amanda.xxxx

tiggerlishus - Heidi
10-29-2009, 08:41 AM
woohooo well done jane fingers crossed this has spurred me on to see to do same with mine depending on this appointment on monday!

SandyR
10-29-2009, 08:01 PM
Jane that is terrific news! Congrats on that.

BonusMom
10-29-2009, 08:06 PM
That is GREAT news! Let us know how the appt goes for you.