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brandichi
10-05-2009, 11:03 AM
Is this a lupus thing or a Cheryl-is-weird thing???? For the last week or so, I've had problems after drinking my usual glass of milk in the morning with breakfast. I have to get to the restroom QUICKLY, and have bloating/pain for most of the day. The only other possibility is I've had a cold for over a week, but it's mostly just been sneezing, runny nose, headache, and sore throat, not involving stomach issues. When I was a teenager, I couldn't drink milk, but starting in my 20's, I've had no problem with it.

Have any of you ever had something like this happen? Could it be related to lupus/Sjogren's? I miss my morning milk!!!!!!! :hissyfit:

Angel Oliver
10-05-2009, 01:10 PM
Oh Cheryl,

I hope you feel better soon.Yes i think its Lupus.I also over the last 2 years have become more allergic to food,meds,lotions where before i had no problems.Maybe speak to your doctor about this.I know Dairy products can bloat you sometimes.I hope you get to drink your milk again,bloat free.Just rest and let your doc know.Love to you n Brandi.xxxxxxxxx

mountaindreamer
10-05-2009, 01:26 PM
my system continues to become sensitive to foods, smells, sounds, lights, etc...don't know if it is lupus or mtx, but it is happening.

debbie-b
10-05-2009, 01:31 PM
I don't know, what it is, I have been enjoying milk my entire life and I could eat anything I wanted, I had what I call a " cowstomach".
Now I am having problems with milk, I too get cramps, bloating and diarhea. But also some foods, like fresh fruit, candy or vegetables, will sometimes just tear up my guts. It might be lupus related.

Debbie

brandichi
10-05-2009, 03:12 PM
Ugh, so lupus strikes again. I'm sorry you all are going through it too, but well, at least we can whine about it together. :)

I have my 3 month appt. with my rheumy tomorrow afternoon, so I'll add this to the list of things to ask her about. And she's going to be soooo mad at me!! I went back on Plaquenil after she told me to stop taking it, and I tried but couldn't handle taking Evoxac because I kept falling. I am in so much trouble... :no: :wideeyed:

Angel Oliver
10-05-2009, 04:23 PM
Cheryl,

If the Plaquenil is helping you more than the other you do it.She needs to find you a better med to help you.Hope your appointment goes ok.Let me know.

Love n hugs
Amanda.xxxxx

SandyR
10-05-2009, 05:39 PM
I have been lactose intolerant for 12 years. It was pretty much a one-day--I-wasn't and the next day I was kind of thing. Except it took me over a year to connect the dots. One way the doc diagnosed me - put me on a 100% lactose free diet for 2 weeks and then see what happens when you go back to it. He also told me that human beings are, evolutionarily speaking, supposed to be lactose intolerant adults since we are mammals and all other mammals wean off milk in youth. If you are lactose intolerant, take heart, it might only be with certain products (like cheese and not ice cream) and the lactaid pills have come a long way in helping with the dairy.

Saysusie
10-05-2009, 09:28 PM
I discovered my lactose intolerance in pretty much the same way as you and Sandy R. One day I drank a glass of milk and the cramping, bloating, mucous and bathroom run started immediately. I refused to believe that I could no longer drink milk (my favorite beverage) and drank a large glass full the next night with even worse symptoms.
I am not sure if it is Lupus related or not, but it is not unusual for the intolerance to appear over night!
I hope you feel better soon.

Peace and Blessings
Namaste
Saysusie

magistramarla
10-06-2009, 02:28 PM
My second daughter, Hillary, was terribly lactose intolerant as a young child. She did fine on Mommy's milk, but couldn't handle cow's milk. Duh - cow's milk is for cows, right?
She "outgrew" it and was fine with milk and dairy products as a teen and young woman. Now she is 30 and the lactose intolerance re-appeared overnight. She is also having problems with poly-cystic ovarian syndrome and was told that she is pre-diabetic. I think that AI is once again raising its ugly head in our family!
Marla

adl011
10-06-2009, 03:52 PM
I think it's lupus-related too. I only have trouble with milk when I'm in a flare, not just milk though, pretty much ALL dairy. I drink soy milk now all the time, just because you never really know when it's gonna hit you, and it's NOT fun dealing with lactose intolerance issues. I hope you feel better soon. I would recommend you trying soy milk too. It's pretty good, especially the chocolate kind. We even cook with regular soy milk because I would get so sick from it at times. My husband has even learned to like soy milk over cow milk :)

I hope this helps! Have a good week.

~Amanda

brandichi
10-07-2009, 06:23 AM
Amanda, thanks for the suggestion about soy. Unfortunately, soy is a major trigger for my asthma, so I can't have any beyond a small bit of soy sauce in marinades.

I'm amazed at how many of us who have lupus/AI also have lactose intolerance. And how it hits suddenly, as you said, Saysusie. There must be a connection then. And Sandy, interesting point about how we really should be lactose intolerant scientifically.

I saw my rheumy yesterday, and it was a good appointment. She agreed with me on the Plaquenil, saying that I need to listen to my body, and if I feel better on it, she has no problem with me staying on it as long as I keep up my eye exams every 3 months, which I do. She was fine about the Evoxac too, saying that unfortunately, some people just can't handle it, and I must be one of those people.

She too is lactose intolerant, and just said to get the Lactaid tablets, and take them with a glass of milk. She told me a really funny story about her experience with this ...she was stopped by a police officer for speeding when she needed DESPERATELY to get to a restroom. He could tell she was honest by the smell in the car, and he ended up escorting her (lights, sirens, and all!) to the nearest gas station! :) So this week I'm off to get Lactaid and start experimenting. I think I'm having withdrawls from milk - V8 and orange juice weren't quite the same this morning!

abbasgirl
10-07-2009, 07:22 AM
Oh Cheryl...so sorry you're doing without your milk. I'm intolerant of a lot of things on my gut but most notorious is milk. Even the lactose free stuff and the tablets. And as it did for others, I too had it hit over night. I have ibs which went into remission, but never with the milk...or ice cream...:hissyfit:

Have you tried the rice milks? I haven't tried those myself yet...I'm just now getting used to soy milks but sometimes it seems like they're a little rich on my gut. I think I may try the rice milk this week now that I have a new med that's helping me out more.

Your rheumy sounds wonderful! Not one I've visited yet has gave a hoot about my tummy issues.

I have a friend that thought she was having the same problems but it turned out it was an infection which was cleared up with medication. I hope your troubles with milk are solved quickly and easily.

Oh and that's an awful but funny way to get out of a ticket...poor woman. lol.

SandyR
10-07-2009, 07:18 PM
Lactaid milk is also good. Tastes exactly like real milk.

Saysusie
10-08-2009, 01:06 PM
Yes it does..I use it all of the time. Also, I eat Tofu ice cream (no cream) as well as Soy Ice Cream..they come in lots of flavors and taste delicious. Also, soy and Tofu cheeses are delicious.
There are many dairy substitutes available where you don't really have to deny yourself anything!

Peace and Blessings
Namaste
Saysusie

BonusMom
10-08-2009, 04:49 PM
When i first started getting ill with gastroparesis, my beloved milk would never stay down and I stopped drinking it. When I thought I was having a better tummy day, I would try a little bit and did ok--some days.

I don't know if it's GP or SLE causing my intolerance but sometimes I do ok and other times I don't. Weird.

SandyR
10-08-2009, 07:10 PM
word of caution with the pills - use 1 at a time with a serving size (actually measured) of what you are eating and STAY AT HOME until you know how it works for you! Lactaid pills did not work for me my first few years with lactose intolerance and I had to completely purge lactose products from my system before weaning back onto them s-l-o-w-l-y. You might also find that you are only intolerant to certain lactose products. For example, my brother can eat ice cream and 1 slice of pizza but more then that or milk is no good for him whereas I can't even eat too much chocolate or cream cheese or sour cream and took a long time to wean myself back onto them.

Saysusie is right - there are lots of yummy dairy free products available. More without soy then before too.

MicRoMediC
10-08-2009, 09:13 PM
have you had your gallbladder out? it sounds like it might be a gallbladder problem...it has a huge involvement of breaking down the fats in fried foods, dairy products, and things of that sort. anyway, something to look into...

abbasgirl
10-09-2009, 04:59 AM
Not to get OT completely, but I just wanted to add to the discussion for anyone interested this website...
http://www.helpforibs.com/

I haven't tried her products but her advice has been a huge help. She has a lot of interesting stuff to read.

Saysusie, or anyone...which brand Tofu ice creams do you think taste the best?

SandyR
10-09-2009, 05:44 PM
Abbas - for me, Ice cream sandwiches is tofutti's cuties & ice cream pints is Soy Dreams.

SandyR
10-09-2009, 06:00 PM
Abbasgirl -
Thanks for sharing that site. It's one I never saw before for IBS. She has some good advice. She also has some products that make a lot of sense but seem a little unnecessary to buy online when you can get them locally - like the teas. Peppermint and chamomile teas (in that order) are my go-to teas that work almost immediately to help settle my stomach. Keeping a high fiber diet also helps me (when not in an IBS flare then it's low or no fiber for a little bit). Two other things I didn't see mentioned on her page that I find helpful are heating pads when crampy and probiotics like a daily acidophilus tablet.

abbasgirl
10-10-2009, 08:53 AM
Abbas - for me, Ice cream sandwiches is tofutti's cuties & ice cream pints is Soy Dreams.

What a cute name for ice cream sammies! I'll look for those.

I think I've had soy dreams before...maybe it was butter pecan? I can't remember.

I tried rice milk yesterday and it's not too bad. I got the vanilla flavored. It was pretty good on my apple jacks this morning. :cute:

That website is so FULL of info. I've referred to her page I don't know how many times now.

SandyR
10-10-2009, 09:46 PM
oh, I agree, she definately has lots of good info. i just don't think you need to buy the stuff on her site. the prices are higher then you would probably pay in your local grocery store. I particulary like the TAZO peppermint tea as it is the most minty and least candycane like to me. :)

Saysusie
10-10-2009, 09:58 PM
Sandy
Tofu Cutties and Soy Dreams are also my favorites. Now they make Tofu Cutties with chocolate (you know I am a chocoholic!).

Peace and Blessings
Namaste
Saysusie

SandyR
10-10-2009, 10:07 PM
oh yes :yes: I do like that flavor, but my favorite is the mint chocolate chip that they started this year. YUMMY! :laugh: