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kim,l
08-28-2009, 04:48 PM
sorry have not wrote lately been extremely ill the flu sent me into extreme flare up my body began to shut down again icould not walk or hold on to things was dropping everything was needing help to dress and cut my food the fatigue was so bad could not get out of bed had chest infection and had to have high dosage antibiotics and morphine just to function had rash on face and arms fingers very sore my neck has been aching and have had severe headaches suffered brain fog, need to see neurologist for electric shocks and burning in legs was given cream called zostrix suppose to help but not much also had heart scan it is stable at moment rheumi wants me to see kidney specialist have had blood in urine and very acidic am very bloated today feet are aching having trouble typing and lifting my arms rheumi says i will have to wear masks around people who have flu or other sickness and has advised i stay away from shopping centers and places where there is a lot of people my immune systems is very comprimised he believes it was the flu and the extreme stress that has caused this flare up i really hate how this disease makes you feel mentally and physically i feel so useless sometimes walking stick is no longer working need to have walking frame now and doctor says if continues like this will have to go into wheel chair for awhile am still fighting for transfer because of bath having to stand up and shower i am so exhausted i have to lay down for an hour just to recover and i cry in pain i seem to cry alot lately finally started me on mexotrexate yesterday have to take 10mg once a week for for 2 weeks then increase to 15mg after that also take folic acid as well my medications i also take are cardizem180mg for heart amd cartia aspirin for heart and atacand for bloodpressure and prednisone 10mg and plaquenil 200mg and somac 40mg for stomach morphine for pain valium for depression liptor 40 for cholestrol and thyroxine for my thyroid had to up dosage to 175mg because not functioning properly am on iron tablets because levels extremely low vitamin b 12 have now been told need calcium tablets and vitamin d and c feels like i have my own pharmacy with my medications and stephens and mikaela,s well have to go now need to lay down again inextreme pain and am feeling dizzy my balance has been very bad lately hope all of you have good days my friends thanyou for being there for me over the last few months there have been times when i just wanted to give up but talking to you all have made a difference i thank god every day for you all and this site it has made a huge difference to my life and the way i cope with this disease love and hugs always kim l

Jerzi
08-30-2009, 01:50 PM
Everyone's getting sick lately. =[
Sorry to hear that you haven't been well, lately. I think we can all agree that flare ups (and everything that comes with them) just plain suck.
Usually, I'd write out more, but I'm having issues putting thoughts into words today.

I hope you're feeling better soon, Kim.
<3

mountaindreamer
08-30-2009, 03:07 PM
hi kim,

for some reason, your post was lost somewhere, and i am just finding it for the first time....so sorry you have not received any responses, but i am sure others will be along very soon.

oh, i can only imagine how bad your flare is....with the flu on top of all of the stress you have had, and you need a new home so that you can take a shower without all of the pain.....i am so sorry.

i am glad your dr. started you on methotrexate....it really helped me and i still feel better. I see you are on the pill form....if you have really bad nausea or stomach cramps, you might want to ask your dr. about the shot....it does not hurt your stomach as bad.

i hope you feel better very soon.

Saysusie
08-31-2009, 08:16 PM
Kim;
I am glad to hear from you, but so sorry that you've been going through so much. It seems as if everyone is having horrible flare-ups lately and are dealing with more issues that ever before.
I hope that the Methotrexate helps you and brings you some relief. Please take care of yourself and I am sending you warm hugs of understanding.

Peace and Blessings
Namaste
Saysusie

Bonita
09-13-2009, 12:42 PM
i too have been having flares that are really bad and the insurance company has denied my cell ceph so the doctor is trying again why do they have the say i would gladly trade places with them. Bonita