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pandagirl
08-21-2009, 03:55 PM
Ailment of the week.....muscle twitching, which is pretty new for me. It will happen for a few weeks then stop. It is mostly in my legs...not painful but very annoying. I notice it in my dominant arm too...I use the mouse all day!! I was noticing just at night when I would go to bed, I'm sure because I was still it was more noticable. Now I have noticed during the day too.:skeptical:any takers?

Angel Oliver
08-21-2009, 03:59 PM
:) ME!

At night if i sleep..emphasis on the if there, i can just be drifting off n BANG...my leg twitches so bad it wakes me with a fright.Oh it so annoys me as then i have to start again to try n sleep.My left arm or fingers twitch at night too.In the day its the scary eye twitch lol...or the eybrow will pulsate like im a alien.
So i am right with you and will watch this thread as i want it to stop.Oh sometimes i get the Elvis look when my top lip joins in lol.

Hope you find the answer to this mystery n me too.

Love
Amanda.
The Twitcher! xxxxx

rob
08-21-2009, 04:03 PM
Well,

I have muscle twitches pretty much all the time on the right side of my body, but mine are caused by what's called de-myelinization caused by Multiple Sclerosis, and I don't think that's what your problem is. My Neurologist has told me before that SLE can cause inflammation in nerve pathways and it can cause nerve related problems such as muscles twitching. It's a form or neuropathy but I can't remember the exact term. From what I know, it's only temporary like most odd symptoms you get during a flare. You haven't really lived until you've had a twitchy eyelid for a day. All the ladies think I'm winking/flirting when it happens.

Rob

rob
08-21-2009, 04:07 PM
:) ME!

At night if i sleep..emphasis on the if there, i can just be drifting off n BANG...my leg twitches so bad it wakes me with a fright.Oh it so annoys me as then i have to start again to try n sleep.My left arm or fingers twitch at night too.In the day its the scary eye twitch lol...or the eybrow will pulsate like im a alien.
So i am right with you and will watch this thread as i want it to stop.Oh sometimes i get the Elvis look when my top lip joins in lol.

Hope you find the answer to this mystery n me too.

Love
Amanda.
The Twitcher! xxxxx

I get that lip twitch too, but mine looks more like the "Billy Idol Sneer"! You being a Brit, you have to know what that is!

pandagirl
08-21-2009, 04:09 PM
thanks so much for the reply...thought I was crazy..or have MS...my mind starts to think scary things when something new starts :( I know negative thinking is bad but nobody gets the 'weird' stuff unless you experience it!!

pandagirl
08-21-2009, 04:12 PM
Oh Rob...but I have...several years ago I had an impinged nerve in my neck and my eye twitched uncontrollably for 6 months at least!! I couldn't take it anymore and my Dr. didn't know why....once I had surgery to my neck the twitch went away, after they told me 'it couldn't be from the neck'!!! lolol.. I showed them.

Angel Oliver
08-21-2009, 04:14 PM
Rob,

Oh yes Billy Idol was fab.Not seen him since the 80's..oh brings back good dancing memories...''more more more' :)

Panda girl,

Its understandable to worry.Ive been diagnosed n undiagnosed i swear i think i have everything...then think is it all in my mind? Well no...cause ive swollen knees n elbows n swollen chin which is horrid .So you keep coming here n post,cause between us we are all learning and it helps us relax then knowing others experience it and what it isnt.xxxxxxxx

rob
08-21-2009, 04:15 PM
Andrea,

I didn't want to scare you, or give you something else to worry about by mentioning MS. I really don't think that's what's going on with you. That's funny about your eye, glad you got it fixed!

magistramarla
08-21-2009, 05:54 PM
My legs twitch, too - especially at night. Also, my feet and toes are cold and numb most of the time. I was told that it is called peripheral neuropathy. None of the docs that I've seen have wanted to commit to it being a symptom of lupus, but I think that it is related.
Sometimes, my laptop will suddenly jump when my leg twitches under it. This gets really interesting when there is also a cat on my lap!
Marla

kim,l
08-22-2009, 12:51 AM
hi yes i have muscle twitches when i am in a severe flare my husband says it is like i am flapping my wings my arms twitch and jerk severly so does my legs and i also have the eye twitching so you are not alone be well soon kim l

debbie-b
08-22-2009, 06:25 PM
Andrea,

I like the intro, : Ailment of the week; sounds like me,lol.
I am with you on that, I get twitches on my legs, arms and on my eyelids, very annoying.

Debbie

scarby
08-23-2009, 01:11 AM
I got told by my dr that it was due to my anti-depressants

pandagirl
08-26-2009, 05:57 PM
Scarby...I think some Docs make it up as they go..I had the twitches long before the Elavil...but it sounds good..lol :laugh:

scarby
08-26-2009, 09:37 PM
lol i think so too. I was on anti-d's for awhile last year but then stopped for a while and then the muscle twitches. I never know when to believe doctors anymore

debbie-b
08-27-2009, 04:42 AM
I got told by my dr that it was due to my anti-depressants

Bull, I am not on any anti- depressants and twitch and spasm too.

Debbie

crmj1183
08-27-2009, 04:52 AM
Pandagirl,

I too, am a twitcher. I typically get it in my arms and hands where Im shaking lke a crackhead. It may just be a lupus thing. I dont get all the time but sometimes.

Chriss

wolfwhisper
08-27-2009, 05:51 PM
Not sure if I have the same thing, but sometimes I get major twitches through my torso before I fall asleep. It feels like your falling off a cliff or something. I actually hope that it is what ever you guys have, because so far the only other person that I know that gets the same feeling is my mom. I don't believe that this is all psychological, and I'm on anti-depressents too, but I'm taking Lexapro. I also don't know when to trust my doctors. I think that's the hardest part. I want to believe that it's all in my mind, but why would we want to hurt ourselves or keep ourselves up all night?:skeptical:

Spanglishqueen
08-27-2009, 06:13 PM
Oh yeah I get them in my leg its so annoying. It feels like I'm at the doctor's and they are testing my reflex because sometimes I will kick :tongue2:

rob
08-27-2009, 08:40 PM
Oh yeah I get them in my leg its so annoying. It feels like I'm at the doctor's and they are testing my reflex because sometimes I will kick :tongue2:

Come on now Brenda, admit it. This is actually your secret roller derby weapon. An automatic kick, it sounds lethal!:yes:

scarby
08-27-2009, 11:03 PM
I've had nights where my whole body jerks - quite scary

pandagirl
08-28-2009, 06:13 AM
Wolfwhisper..why would you WANT to believe 'it's all in your head'? That would just quantify all the MD's who don't believe us.:unsure:

kim,l
08-28-2009, 05:06 PM
its not in your head also when i first started twitching extremely bad i was not on anti depressants this seems to be a major reply from doctors when they can,t figure out whats wrong with you i spents 5 months in a rehabilation unit learning to walk without support because i had extreme flare up last year and they could not find out what was wrong with me told me it was in my head an i had drug seeking behaviours because i asked for something for pain it took my local doctor getting a bloodtest to find out i had lupus so trust your own instincts you are the only one who knows whats going on in your body and don,t give upasking questions and fighting for answers be well many hugs kim l

Spanglishqueen
08-28-2009, 09:40 PM
Come on now Brenda, admit it. This is actually your secret roller derby weapon. An automatic kick, it sounds lethal!:yes:
You know Rob that is a great weapon I should learn to use my twitches for good :laugh: