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Bonita
08-15-2009, 02:21 PM
I just wanted to share what has been going on with me for the last 3 weeks. I have had 2 er visits and two appointments with my rhumetologist in one week. It started out with the worst uti i have ever had and then proceeded to flare up my lupus. I have been struggling with blood in my urine for awhile now and some times no infectuion but this time a whole lot and pain so i now have and appointment on Monday with a urilogist which i dread to see if i have polopys or cysts or stones. My sed rate was up to 49 and my blood work was poor again and i lost 8 and one half pounds in 5 days. My new miracle diet. I just had to vent because my family is at war with each other and the stress is making things worse. Thanks for all the support. Love Bonita

Spanglishqueen
08-15-2009, 02:25 PM
So sorry to hear all you are going through. I hope you get good news on your appointment and medication to help. :hug: :kiss::hug:

adl011
08-15-2009, 02:25 PM
Bonita,

You should take a nice, long, warm bubble bath...that will help with the stress and pain. I get uti, bladder and kidney infections very frequently. Drink LOTS of water and cranberry juice, and no matter how much you don't want to, your body will love you a lot more if you stay away from anything with caffeine in it. I hope you get some relief soon. I know how bad these things can feel.

~Amanda

Angel Oliver
08-15-2009, 07:41 PM
Bonita,

Sorry to hear how tough its been for you and so hope its good news at the results,goodluck.

Thinking of you
Amanda.xxxxxxx

crmj1183
08-16-2009, 08:49 PM
Bonita,

Im sorry that your in so much pain, I hope you dont have any polyps or anything. I had to go to the urologist before:no:
I hope everything comes back ok, and they get this thing under control, hugs

Chriss

Angel Oliver
08-18-2009, 03:58 AM
How are you? How was the appointment on Monday and are your family a little better now? Hope you are easing and you get a break soon.

love Amanda.xxxxx

mountaindreamer
08-18-2009, 05:50 AM
hi bonita, so sorry about your new trials with lupus.....2 rheumy visits in one week, yuk. I too see a urologist because of blood in my urine. You mentioned pain, my urologist said lupus nephritis was not painful,, and that my pain was probably lupus but not lupus nephritis. He did lots of blood work, sent me home with a 24 hour urine catch container, and now we are just watching my kidneys very closely.....i hope you have good news from your dr.

ButterflyRN
08-18-2009, 07:03 AM
Bonita sorry to hear that you are having a rough time! It's a good thing you are going to see a urologist. As Phyllis mentioned, they watch her kidneys closely. Make sure they do a 24 hour urine on you for protein and creatinine to make sure you are not spilling too much which could be an indication of nephritis. Keep us posted on how your visit to the docs go!

Bonita
08-18-2009, 02:40 PM
i went to the urilogist and was there for almost 3 hours. He really was very nice and he explained a lot of things to me as to why there are so many things going on. On the examination he told me i have a polyp on my urethrera and next visit he is going to scope my bladder to see if i might have a tumor or anything else. My sed rate came back as 49 and my c reactive protien is 4.1 so having the last bad uti it triggered the lupus. Thanks for caring .Bonita

mountaindreamer
08-18-2009, 02:43 PM
i am so glad you found a caring urologist....i really like mine too. It seems to help us feel better just knowing that a dr. cares and is trying to help us. Hope you have a great evening.

Angel Oliver
08-18-2009, 03:30 PM
Oh great news on the visit and he was nice,so glad for you.xxxxxx

ButterflyRN
08-18-2009, 06:14 PM
Glad to hear that your appointment went well!! Keep us posted on how the scope goes! Also glad you found a doctor that you like. They can be hard to come by sometimes...well alot of the time !

abbasgirl
08-20-2009, 09:11 AM
I'm always so happy to hear when one of us finds a good doctor. Awesome!

((((Hugs)))) Bonita!