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Delphinia981
08-11-2009, 07:26 PM
Since my DX, my hubby really wants me to try and get on disability. Am I just setting myself up for failure? Does anyone have any good stories about it? Seems all I ever hear is bad stuff!!! :hissyfit:

jcg196
08-11-2009, 09:23 PM
Hi Carrie,

I am going thru disability right now. My appointment is Aug 26th however, I do already have a lawyer ready just incase. I learned that from loosing my long term disability from my job...i wasnt prepared at all and I couldn't find a good lawyer in time. If you have any questions about it let me know. I just pray it goes well...my husband and I need the money.

Take care!

neL:cute:

gina
08-12-2009, 05:20 AM
So you file first, than get a lawyer or have the lawyer help you file. my friends want me to file also for it. but i am afraid of being turn down since i am still working although its harder some days than others and i am making mistakes all the time just not sure if its something to do right now.

rob
08-12-2009, 12:05 PM
I have been on full disability since 2004. I would not be able to make ends meet without it. Although you do not need a lawyer to file for you, it would be wise to have someone with some decent organizational or clerical skills to help you with it.

I have never been good with paperwork, so I had my father, who is retired law enforcement help me make sure I crossed all the T's and dotted all the I's. He also went with me to all of my various interviews and appointments, and spoke for me on the really bad brain fog/flare days. In all, it took around 10 months to go from first applying, to recieving my first paynment. The amount I recieve is substantial, and it was well worth my time and effort to pursue this route.

I will most likely be on full disability for the rest of my life. Even if SLE was cured tomorrow, there's the MS. Anyway, I had no problems being approved, and at the time, SLE was the only diagnosis I had.

Rob

leaann
08-17-2009, 11:45 AM
Well, I am in the process of disability right now in fact just got my letter telling me that I was not disable... according to them or the way they way it sound as it I did not word it right on there forms... If had been worded correctly could have received it... now I have to file an appeal...

What gets me is the fact that they sent me to there dr who said I was disable and stood a 95% chance of getting it...but yet I was turned down...

somethings got to give.... i understand a lawyer can help btu my problem is I can't afford to give a lawyer any money even if it came out of my disability...

good luck to all who are trying... on my way to file my appeal

Hillbillie
04-28-2010, 09:30 PM
I like you hated to admit to myself and everyone else that I am disabled... I have loved working and being around other people. At my husband's suggestion I did file for SS disability. I was so nervous but the woman that helped me was super nice. Everyone told me if I was denied to appeal. Anyway I did get declined tho they said that they did find definate imparement that I could possibly work part time. They evidently don't live in the same world as I do... no one around here is going to hire a broke down old woman who may or may not be able to get to work, may or more likely may not be able to stay at work adn who's mind is fogged up so she don't know her name!!! I did send in an appeal for reconsideratin and am waiting the decision. I have not had a lawyer up to this point but have decided if they deny me again, I will get one. I have not had the results that I had hoped for but people within the SS office and the doctor they sent me to were super nice. I can say that I don't have a horror story to tell you. Just do what you can, file everything ON TIME and learn to be patient and wait. I first filed in Sept... filed for reconsideration in the last of Jan this year and am waiting....Everyone says it is a process... I say its a slow process... so I'm waiting but my advice is to file now... it takes a long time and its hard financially to wait for theiir decision. You can't get it till you try!...

Faith
04-30-2010, 02:46 PM
I filed and have been denied. Next is the hearing in front of the judge and I have been told I will more than likely be denied because I am under 50 and I work part-time.

The reality of SSDI is not what the average person thinks. I was told I will be denied a final time. They expect that everyone has money to not work and that it is a choice to work or not. They don't care how foggy you are or how much pain you are in or how often you call in sick. If you are working 1 hour per day; you are able to work in their eyes. If I was NOT working, chances would be much higher but I would also not be able to afford meds, dr's visits or a roof over my head. What a choice!! Unfortunately, I don't have a fairy godmother to take care of me during the 2-3 year process. Also, I have an attorney who will not appeal if I am denied. I have multiple health issues; doesn't matter how many because either you are working or not.

It's sad.

Faith

laura.shella
04-30-2010, 07:51 PM
I applied for disability in february 2008. I had started working part-time because of the issues associated with lupus. I was denied twice. (it seems this is always the case) Then I got a lawyer and I had my hearing on Wednesday. They didnt even go through all the questions. The judge said she didnt need anymore info. I was finally approved. I worked part time for about a year after filing. It showed that I tried to continue working. My major problem was the cognitive issues associated with lupus. I had a lot of documentation of that in my medical records. They also sent me to a disability psychologist and she mentioned my cognitive issues in her report. Hope this helps. Laura

pbrandie
05-07-2010, 08:11 AM
Ive been on disability since 2003. I was 23 when I got it! I did not use a lawyer. I first applied in 2000. Then recieved all the back pay. Which was excited but didnt even pay all the bills still. I felt that way especially just graduating from college. But There are programs where you can still work some and get your check. I did this for years because it made me feel worthy. BUT I realized IN my case. I would work til I got sick then take time off. Until two years ago I just gave it all a break and made home a job. Which is one anyway. Samanthas 13 and Stevens (hubby) 31 They both need alot of taking care of. AND Im healthier. I just found Stuff to do that made me feel good. I volunteer at Sams school,fundraise for Lupus, And have a very clean house. Keep your head up! And think positve. But if you truley feel your not ready then dont be!

Life is all In how you interpret it

scubagramplit
05-09-2010, 07:37 PM
Rob, were you still working at the time? I am the sole provider for my family and it really gets me down during a flare worying about how to support them.

I have been on full disability since 2004. I would not be able to make ends meet without it. Although you do not need a lawyer to file for you, it would be wise to have someone with some decent organizational or clerical skills to help you with it.

I have never been good with paperwork, so I had my father, who is retired law enforcement help me make sure I crossed all the T's and dotted all the I's. He also went with me to all of my various interviews and appointments, and spoke for me on the really bad brain fog/flare days. In all, it took around 10 months to go from first applying, to recieving my first paynment. The amount I recieve is substantial, and it was well worth my time and effort to pursue this route.

I will most likely be on full disability for the rest of my life. Even if SLE was cured tomorrow, there's the MS. Anyway, I had no problems being approved, and at the time, SLE was the only diagnosis I had.

Rob

Faith
05-12-2010, 02:41 PM
Thank you Laura and pbrandie. I am ready but the system is not ready according to their rules. It really needs to be reworked and not based on age or if you are working for one hour per day. I found out I am not going to have a part-time job next school year so the employer is encouraging me to apply for a 6 hour position that I cannot physicall or cognitively work. I am struggling to work 3 hours per day; no way can I work 6 hours. It's very frustrating and the idea that I can find another 3 hour position with modifications and rest breaks altering sitting and standing every 10 mins is very unlikely.

Any other suggestions?

Faith