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tiggerlishus - Heidi
07-26-2009, 03:14 PM
a friend of mine brought this poem to my attention wrote by some who also has lupus it touch my heart and thought you guys would love it as much as i do so here it is called lupus and me

a friend brought this poem to my attention wrote by some one else
who suffers from lupus and touched me and explained it sooo well i wanted to share with you all!!

Endless doctor visits,
with countless blood tests.
Everyday needing to nap,
cause my body has to rest.

There seems to be no end,
to the pain I must endure.
Falling asleep with tears in my eyes,
hoping someday for a cure.

Bones that feel like they're crushing.
headaches every day.
Muscles that feel so weak,
will it ever go away?

Some days its an effort,
to just get out of bed.
Its hard to do simple things,
with the pounding in my head.

Then there's all those medications,
so I don't get worse.
But some have awful side-effects,
that intensify my curse!

Its like a vicious circle,
and I can't find my way out.
I'm stuck inside my Lupus,
screaming a silent shout!

And all those "mean-well" people,
who say, "But you look so good!"
Sometimes I want to say to them,
"I'd let you feel it if I could!"

Many people mistakenly think,
"If you look good, life must be fine."
But that simply isn't the truth,
just try for one day to live mine!

They think because I laugh and smile,
everything seems alright.
Now, if I always cried and screamed,
wouldn't they run away in fright?

Lupus isn't a disease,
that's always visible to the eyes.
What taking place to my body,
is mostly all inside.

dassar RN
07-26-2009, 03:32 PM
Thanks for sharing that with us. The poem says it all!!:yes:

Dassar

Spanglishqueen
07-26-2009, 05:21 PM
Very nice poem! Thank you for sharing.

tiggerlishus - Heidi
07-27-2009, 04:41 AM
thats ok i thought peeps would like this xxxx

iseedeadmonkeys
07-27-2009, 04:42 AM
yay!!

Thanx for posting it on here, i thought the lupe poem would be nice for whl too to share

love ya gal

ISDM
xxx

tiggerlishus - Heidi
07-27-2009, 04:43 AM
yay!!

Thanx for posting it on here, i thought the lupe poem would be nice for whl too to share

love ya gal

ISDM
xxx

thanks ok i like to share now who would like my oink oink flu!!!!

Rastagirl
07-27-2009, 11:07 AM
Thanks....I'll take the poem...... :yes:

....I will, however, pass on the flu, TYVM :nah:

:)

Thanks for sharing this, Heidi!

:cool2: Lori

abbasgirl
07-27-2009, 01:19 PM
wow... very well put!

wrightrs
07-27-2009, 03:05 PM
a friend of mine brought this poem to my attention wrote by some who also has lupus it touch my heart and thought you guys would love it as much as i do so here it is called lupus and me

a friend brought this poem to my attention wrote by some one else
who suffers from lupus and touched me and explained it sooo well i wanted to share with you all!!

Endless doctor visits,
with countless blood tests.
Everyday needing to nap,
cause my body has to rest.

There seems to be no end,
to the pain I must endure.
Falling asleep with tears in my eyes,
hoping someday for a cure.

Bones that feel like they're crushing.
headaches every day.
Muscles that feel so weak,
will it ever go away?

Some days its an effort,
to just get out of bed.
Its hard to do simple things,
with the pounding in my head.

Then there's all those medications,
so I don't get worse.
But some have awful side-effects,
that intensify my curse!

Its like a vicious circle,
and I can't find my way out.
I'm stuck inside my Lupus,
screaming a silent shout!

And all those "mean-well" people,
who say, "But you look so good!"
Sometimes I want to say to them,
"I'd let you feel it if I could!"

Many people mistakenly think,
"If you look good, life must be fine."
But that simply isn't the truth,
just try for one day to live mine!

They think because I laugh and smile,
everything seems alright.
Now, if I always cried and screamed,
wouldn't they run away in fright?

Lupus isn't a disease,
that's always visible to the eyes.
What taking place to my body,
is mostly all inside.


A friend of mine from Charlotte wrote this. She Goes to Lupus Piedmont in Charlotte. She posted this on facebook. It's really getting around. See it other places too !!! I loved this when I first read it. I will tell how everybody likes it here !!!

tiggerlishus - Heidi
07-28-2009, 05:34 AM
thanks yer a friend of mine sent it to me on fb and thought it need pride of place on here as well!!! it is a beautiful poem soo well written and beautifully put xx

Bonita
07-28-2009, 07:29 AM
says it all and so true just because you appear normal you are screaming inside Bonita

leaann
07-28-2009, 08:18 AM
I think the poem is nice, I think what I will do is print it out, put it on some postcards and when my friends make stupid remarks I will hand it to them...

thanks again

crmj1183
07-28-2009, 09:30 AM
Thx Heidi


That was a really good poem :yes:


Chriss

tiggerlishus - Heidi
07-28-2009, 11:16 AM
I think the poem is nice, I think what I will do is print it out, put it on some postcards and when my friends make stupid remarks I will hand it to them...

thanks again

what a great idea i was thinking of printing it off sticking it on loo door so anyone that comes round reads it!!

Danica01
07-28-2009, 02:47 PM
Thank you. It brought tears to my eyes. It really said it all.

lucky7
07-29-2009, 03:58 PM
wow, talk about the nail on the head! Thank you :yes:for that!

wrightrs
08-04-2009, 07:43 PM
My friend's Amy Scruggs Poem is still showing up everywhere. It's all over facebook now. I told her she should publish this.