07-16-2009, 11:32 AM
There really isn't a better word to describe stuff then ugh sometimes huh? I'm in ugh right now. I have been having pain in my left shoulder/neck/arm for three days now. At first I was brushing it off as nothing but now it is starting to worry me. I've been living in non-lupie land for a while now, able to do 'normal' things realitively pain free the past few years. The exception was during my divorce last year and I had a few little flares from all the stress. This pain is really my first bad pain in a long time. You know the kind. I like to call it Lupie pain, not the run of the mill I slept wrong and have a kink in my neck. It's the take your breath away when you lay down because somehow it makes it better to not breath for a bit until the rush of pain passes. I've been a bad Lupie, I haven't seen my doctor in a few months now. I had a appointment back in May but I completely forgot about it. I had just rescheduled it for next week when all this started happening. I just called a little while ago to see if my doc wants new labs before I come in since my last ones were a few months ago. Ugh, I guess I got used to not being so Lupie anymore. 16 years of living with this disease and I can still get thrown for a loop I guess. I really don't want to come out of "medically controlled" land. I've been working full time for over 3 years now with no problems. It's easy to act like nothing is wrong with you when all you have to do is take a pill or two a day to keep things stable. I've always had neck/shoulder pain off and on still but it is nothing compared to what I used to have. Sorry, I know so many of you have things so much worse then I do but I just needed to vent for a little bit to people who understand. My boyfriend is awesome but he worries whenever I have a little ache here or there so I really didn't want to lay this on him. I'm taking a wait and see approach. Let's see what my labs say and we'll go from there. Thanks for listening!