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red246
07-05-2009, 05:24 PM
Any suggestions on what to do for the dizzy sensation? World is not spinning, just me & my brain! Some days are worse than others, but it doesn't matter whether I'm walking or sitting. Had CAT scan done last week at ER - normal. I'm amazed that they even found my brain! :laugh: It's just really annoying! I don't even trust myself to drive when it's acting up. :nah:

mountaindreamer
07-05-2009, 05:45 PM
hi lauren,

wow, you must really be suffering with these dizzy spells. I have experienced times where i was nervous about driving, but not because of dizzy spells. I experience these spells especially when i am in a flare, but you must really be getting hit hard by them....so sorry and i hope you get some relief.

red246
07-05-2009, 08:44 PM
Phyllis,
Yeah, they have been pretty bad lately. I don't know whether I'm coming or going lately. On the one hand the Meth. seems to be helping, overall energy level has increased - but still hurting, dizzy, sob, etc..... I guess I'm still just trying to find my new "normal", unless I'm just in one big, long continuous flare - UGH!
Oh well, going to go sit back in hubby's recliner & finish watching Little House on the Prarie! Have a good night!

crmj1183
07-05-2009, 08:56 PM
Lauren,* ****** It's called "vertigo" I get it sometimes... it feels like you're dizzy and the ground is moving or spinning kinda???? Yeah, I get that sometimes its such a drag :(I hope you feel better, there really isnt anything they can give you for it either :(But this too will pass. Sorry you're going through those dizzy spells.



Chriss

red246
07-06-2009, 05:52 AM
Chriss,
Sorry you get it too. My ground isn't spinning though, my head is. It's like everything else is completely normal except inside my head. But then again, that kinda goes right along with everything else, cuz don't ya know "It's all in your head!" :laugh: Sorry, that's mine & hubby's joke since all the docs basically kept saying that for so long!

gina
07-06-2009, 06:27 AM
My aunt has vertigo you should get check out. she takes meds and has to sleep with her face on the left side she says that helps when waking up with it.

go to drs. to see if its that
good luck:laugh:

crmj1183
07-06-2009, 07:07 AM
Lauren,Yeah its kinda hard to explain its definitely a weird feeling.

lucky7
07-07-2009, 03:39 PM
I get the dizziness too!:wacko: I have had it on and off since i was 6. It sucks pretty much! :yes: I have always had to just wait it out, sometimes for 2-3 days at a time! UGH!! I have noticed though for me anyways, that i need to stay away from ANY sugar or sweets in general or it makes it WORSE. Just a little tidbit of info, maybe it will help!!:cute:

Danica01
07-07-2009, 06:30 PM
I used to suffer from vertigo and the doctor had to finally give me something. It really helped but made me very tired. I had it so bad, you know that feeling you get when you get off the elevator, as if the floor is falling out from underneath you?????? I had that all the time and it made me feel so sick. Here is a website on vertigo.....hopefully it will help and hopefully it well help you put together some questions for your doctor:

http://www.emedicinehealth.com/vertigo/article_em.htm

Good luck and keep us posted. I am sending you gentle hugs and thoughts of you keeping your feet on the ground tonight :cute:

Tammy1962
05-01-2012, 07:09 AM
Vertigo v. dizziness or Vertigo and dizziness.

From reading through these post, I see two different symptoms and I have experienced both.

Mountaindreamer said "I have experienced times where i was nervous about driving" Thanks for sharing that tidbit. I wasn't sure if that symptom was SLE Lupus related or simply an anxiety attack.

Vertigo on the other hand is often described as 'dizziness', but my experience it is more of an off balance feeling when mild. When severe it is the most debilitating symptom I have ever experienced.

Good to know both are part of the autoimmune package.

Cobra said "unless I'm just in one big, long continuous flare - UGH!" In twenty years, I have never went into remission, but my symptoms have improved. Sort of like a never ending roller coaster ride, with highs and lows.

theLword
05-01-2012, 11:02 AM
Chriss,
Sorry you get it too. My ground isn't spinning though, my head is. It's like everything else is completely normal except inside my head. But then again, that kinda goes right along with everything else, cuz don't ya know "It's all in your head!" :laugh: Sorry, that's mine & hubby's joke since all the docs basically kept saying that for so long!


I typed up an entire response and of course I accidentally deleted it. Ergh.

I work in a hospital and have access to uptodate.com (which I recommend to anyone who has access). It provides a user friendly description of diseases, etc as well as an in-dept description.

So regarding vertigo.. it's explained as a symptom not a diagnosis. As I have experienced, it manifests itself in two different ways. You either feel like you're moving (like in your head haa) or as if the environment around you is moving. I have had both and they are equally as bad. So there's also something called Migrainous Vertigo, which is vertigo in association with migraines.

I have posted in the other topic forum regarding Vertigo, but I think there is a link with Autoimmune Inner Ear Disease. Probably worth seeing an ENT doctor especially because Vertigo can be very debilitating.

Melodyroseak
05-01-2012, 05:55 PM
Just 1 week ago I went to my neuro dr. and he told me I had Movement Disorder. Said that here isn't much that could be done with it. It caused dizziness and went I would take my blood pressure when that happebed it was always low. Like 77/46 or lower. Or my body temp drops too 96 at times to. I have 3 specialist, my Rhumatoligist, Nueroligist and my Oerhopedic Dr. And before I will allow them to be part of my team, they ALL must send reports if each visit and confir with him.