View Full Version : what r the symptoms of kidney involvement?

06-22-2009, 08:57 AM
will you get lower back pain or painful urination or any symptoms if lupus attacks your kidneys?

06-22-2009, 09:21 AM
when i get lower back pain and pain during urination, i have and uti, you need to go to doctors right away and get tested.

06-22-2009, 10:02 AM
There are 4 stages of kidney disease caused by Lupus, I have stage 1. I did not have any symptoms other than protein in the urine which is how I found out there was involvement. I agree with gina, sounds like UTI and I would seek medical attention before it gets worse.

06-22-2009, 07:33 PM
I have to go monthly for urine and BP tests, as apparently, according to my rheumy, kidney involvment is pretty much 'silent'? i think thats what he said...so the signs are protein in urine, and a sudden spike in BP..

06-23-2009, 06:43 AM
according to my nephrologist, kidney nephritis (lupus in the kidneys) does not include any pain....the only symptom is protein and blood in the urine.

i get a lot of pain in my siadic nerve (lower side of back) from fibromyalgia and lupus. Fibromyalgia pain is very specific to the spot and feels like fire or pressure at that point....

06-23-2009, 09:15 AM
Is there something you can take for lupus affecting your kidneys. i have protein in urine on every test and a trace of blood since 2005. going to urologist on friday should i be seeing a kidney dr. instead?

06-23-2009, 10:35 AM
I would suggest asking your rhuemy. Has your rhuemy ran the 24 hour urine test on you? They give you a gigantic container and everytime you have to use the restroom, it gets dumped into the container. There are many meds used to control Lupus nephritis (kidneys).

Usually if it's over (I think) 500 then there's something to worry about. I had the same thing, fortunately they changed my BP med to lisinopril and that helped control the amount of protein in my urine. Do you take blood pressure meds? Might want to check with your primary if you do.

I hope you find out something soon.

Take care,


06-23-2009, 03:36 PM
OMG Gina PLEASE go to your primary to get referred to a specialist for your kidneys. Those are symptoms of kidney complications for sure. This is crucial, do it ASAP. Good Luck!!!!XXXXXXXXXX

06-23-2009, 04:25 PM
i gina, i first went to a urologist, and then when my kidneys tested as borderline functional, i was sent to a nephrologist (kidney dr.) He took more tests and did the 24 hour urine test.....he determined that we did not need to do anything at this time, but we are watching my labs very closely.

It is my understanding that the urologist is for the bladder and urinary tract, and that the nephrologist is for the kidney....I agree with lucky7 in that you need to contact your dr. and get into a specialist who can check on your kidneys.

06-24-2009, 07:46 AM
Thanks ladies, i go to urologist friday and will get a reference for kidney doc. does it ever end with all these specialist. i was worried about kidney stone now i have to worry more i guess i shouldn't of put it off so much. my primary has wanted me to go since jan. to urologist i guess that who would send me to kidney dr. we will see on friday.

as always thanks for careing and being there.

06-24-2009, 10:18 AM
Hi Gina!!!! Nope it NEVER ends! My list of specialists KEEPS growing just when i think i cant add anymore!!!! :wacko: IM glad to hear that you have an appt Fri!!! Yeah, get that referral, even if it isnt detrimental as of yet ,why take that chance.:no: GOOD LUCK!!!!

06-24-2009, 11:41 AM
hi gina,

i keep a list of my drs. on my frig....there is no way for me to keep up with all of them.

glad you are seeing the urologist on friday, be sure to let us know what happens.

06-24-2009, 11:46 AM
Yeah me too Phyllis! I cant ever remember when another dr asks "now what dr are you seeing for THIS?" I need to take a picture of my fridge to take with me to every appt!!! Kind of like "where's Waldo", except it will be "where's Jeannette's specialist for .........." :wacko:

06-24-2009, 11:58 AM
oh, when the drs. ask me which specialist i am seeing, i just stare at them in total ignorance....i have lost track. Fortunately, all of my drs. are within one hospital system, so all of information is in their database....they can click on their computer, and there i am and all of my drs. are listed....this is one time that i am thankful for the new world of electronics.

06-24-2009, 12:01 PM
Hey, thats GREAT!!!! I have just a couple in the same system, so im stareing at them with a blank stare QUITE OFTEN!!! LOL:laugh:

06-24-2009, 12:29 PM
i also solved the specialist overload problem by listing all of my drs. on the back of the medication card that i carry in my wallet. The problem is that sometimes i forget about the medical card and still sit there with a stare on my face.

06-24-2009, 12:37 PM
LOL Phyllis, I just LOVE YOU!!!! You put a big ole smile on this here face of mine!!!!!!:biglaugh:

06-25-2009, 05:32 AM
Do the list ever end. now its another list i have to keep. i have crs real bad as it is with this disease. what a long train ride i wish one day could get off for a month or two. so i will go to docs friday make appointment with rhemy today so i can get in takes so long for appointment. let you guys know what they say. thanks for careing if it weren't for this site i think i go insane or curl up in ball and cry all day long.
sending eveyone hugs

06-25-2009, 01:49 PM
AWWWW Gina, We are HERE to unroll you from that ball if need be my friend!!!!! Boy do you speak the truth though! There are times when my friends on this site come through for me in BIG ways more than they will EVER know!:yes: THANK YOU to ALL of YOU, YOU are GOOD PEOPLE:cute:

06-25-2009, 02:27 PM
hi gina,

don't worry, if you need to roll up in a ball, you go ahead....we will be here to help you We will help you get your legs back under you and your feet back on the ground.

hang in there, hopefully things will settle down a little. Once i got through all of the specialists, and they all checked their own stuff, my doc appointment calendar has reduced. it will get better, i promise.