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Danica01
06-20-2009, 01:44 AM
Hi everyone!!!!It is been a long time but finally I am somewhere where I can settle in and work on the computer. I have been dealing with an issue over the last few months and it is driving me crazy............HOT FLASHES!!!!!!!!!!! I just turned 30 and my doctors do not think it is early menopause but at the same time I am worried it is! I hate it! I will get so hot that I drip sweat but the weird thing is that at that exact same time I have goose bumps! What is that all about???? I was thinking it could be my Methotrexate but I am not sure and the doctors do not seem to have any answers for me. It is very uncomfortable and even embarrassing when I am out in public.

Can anyone shed light on what might be going on and what I can do about it?????

Thanks,

Sweaty Danica

magistramarla
06-20-2009, 07:39 PM
Danica,
I've been having those hot flashes for the past couple of years. I'm 51, so I really thought that it WAS menopause. However, the docs said that it is not, so I'm guessing that it is yet another fun aspect of the wonderful world of autoimmune disorders.
I usually feel it at night, so I often disturb both my sleep and my husband's sleep. I wake up sweaty in the middle of the night and throw the covers onto him, and he promptly wraps up in them. An hour or so later, I wake up again - freezing and with goose bumps. Then I have to fight with the snoring mummy to get some covers back.
This happens nearly every night, so it really affects our sleep.
Marla

Danica01
06-20-2009, 11:28 PM
You are soooooo right....it affects my sleep too! Ok, I have a funny story to tell you. At night when I am really hot I will take off my clothes and I won't remember doing it in the morning! I would wake up and see my pjs lying on the floor and wondered what happened!!!! So, a few years ago I went to Thanksgiving dinner at my boyfriends parent's home. This was the first time I met them and my biggest fear wasn't if they liked me.....I was afraid I would take off my clothes in the middle of the night!!!!!!!!!!!! It was so stressful but thankfully I was clothed the entire time :-)

Angel Oliver
06-21-2009, 07:10 AM
Hi Danica,

I dont have the hot flushes so bad in the day,but sometimes it does happen,but like you at night no matter what the weather thats when i have the worst heat.I wake up soaking,even on the coldest nights.Im 39. But no sooner have i moved the bed covers n eventually nod off to sleep...im cold.Covers go back on....then im so hot again. Yet feet are always like blocks of ice lol.

love
Amanda.xxx

mountaindreamer
06-21-2009, 10:49 AM
let me add to this thread about the dreaded "hot flashes". I went through early menapause at the age of 31. I am not 56 and now suffer with only night sweats like the rest of you. I go from sweating to cold.

However, there is a definite difference between these sweats and menapausal hot flashes. The hot flashes that i had when going through menapause were so intense, they were like drowing in my own body heat. When struck with these, i would desperately come out of clothes or anything else that was causing me to feel like i was drowning. It truly is a desperate feeling that requires immediate adjustment.

the night sweats that i get with lupus, are just that, i wake up sweating and remove covers, them have to put back on a little later....but, i do not get that desperate feeling like with "hot flashes".

hope this helps you determine which is going on with you.

DANICA::::::thanks for my first laugh....i can completely relate to your fear of waking up at "momma's" house with your pajamas on the floor.....oooops, "let me explain". ha ha ha

Danica01
06-22-2009, 02:20 AM
let me add to this thread about the dreaded "hot flashes". I went through early menapause at the age of 31. I am not 56 and now suffer with only night sweats like the rest of you. I go from sweating to cold.

However, there is a definite difference between these sweats and menapausal hot flashes. The hot flashes that i had when going through menapause were so intense, they were like drowing in my own body heat. When struck with these, i would desperately come out of clothes or anything else that was causing me to feel like i was drowning. It truly is a desperate feeling that requires immediate adjustment.

the night sweats that i get with lupus, are just that, i wake up sweating and remove covers, them have to put back on a little later....but, i do not get that desperate feeling like with "hot flashes".

hope this helps you determine which is going on with you.

DANICA::::::thanks for my first laugh....i can completely relate to your fear of waking up at "momma's" house with your pajamas on the floor.....oooops, "let me explain". ha ha ha

I have to be honest with you....I worry about early menopause. I have read that Methotrexate can lead to it. My doctor says that it is not happening but I really wish she would do the lab work just to rule it out. My hot flashes are unbearable. I actually feel like my skin is hot underneath and just radiates to the surface. If I do not take care of it right away, the heat makes me feel so sick. I will have to remove clothes and sprinkle water on me and sit in front of the fan until it goes away. Most of the time I can feel it starting on my earlobes or face. I even turn really red! I always think that if you touched me you would be able to feel the heat, like when you have a really bad sunburn, but no, you can't except sweat:-( I had them really bad when I went to visit my family and even my dad asked if I thought I was going through "the change". I am 30 and with all the meds I take I am sure it is a possibility.........

After explaining the hot flashes a little more.....what do you make of it???????? I want to have kids over the next few years and right now I am afraid I am going through menopause. Thank for listening :hug:

mountaindreamer
06-22-2009, 07:23 AM
hi danica,

i do know that the drs. can run the blood work to determine where you are in the menapausal cycle. It was really rare, but i did go through menapause when i was 30 or 31....not really sure.

your hot flashes certainly sound like more than just night sweats. this is what i remember about my hot flashes....everything would feel normal, then without warning, i would get so hot that it became an emergency, and i had to get out of clothes and in front of fans or air conditioning. It was like i was drowning and needed immediate relief. It was like my insides just burst into flames, and was "unbearable".

your symptoms certainly sound like they are serious enough to warrant lab work.....you should stand your ground, and insist that necessary tests be done. Do you have an ob/gyn dr.? Maybe you could get more cooperation from him/her about these tests. I would definitely pursue this, because you can come off of the mtx if there is indication that your body is changing.

stay strong, believe in yourself, and we will be here to stand by your side.

purple_butterfly
06-22-2009, 08:05 AM
I have the hot flashes as well. My docs have chalked it up to the massive edema I have but I have noticed that my periods are different now as well, lasting much longer than before and much heavier. I am 38 and was told that menopause is right around the corner.
Like you, I have a hot flash but my hands and feet are a block of ice. If I am at work, i take an ice pack from the triage area and put it under my scrub top till I cool off.

mortifiedat52
06-22-2009, 09:01 AM
i also have lupus hot flashes, but i'm 52 and have menopausal hot flashes, too.. the menopausal hot flashes are less frequent but more intense...

so i go hot, cold, hot, cold, REALLY HOT, cold, hot, cold, hot, cold and so on....

gina
06-22-2009, 09:19 AM
I am 41 and get the night sweats also. my doc said it was part of the lupus. wake up in middle nite soaking wet, later on wake up freezing. very seldom does this happen durning the day if it does my face and chest sweat real bad an as fast as it comes it leaves. your not alone out there.

Bonita
06-22-2009, 09:38 AM
Me too i am either very cold or very hot and i am 61 and through menopause because i had and early hystorectomy. I think it is just another present from the lupus fairy. Bonita

magistramarla
06-22-2009, 01:19 PM
You are soooooo right....it affects my sleep too! Ok, I have a funny story to tell you. At night when I am really hot I will take off my clothes and I won't remember doing it in the morning! I would wake up and see my pjs lying on the floor and wondered what happened!!!! So, a few years ago I went to Thanksgiving dinner at my boyfriends parent's home. This was the first time I met them and my biggest fear wasn't if they liked me.....I was afraid I would take off my clothes in the middle of the night!!!!!!!!!!!! It was so stressful but thankfully I was clothed the entire time :-)

PJs? What PJs??? Never wear 'em!!! I still get too hot at night!
Marla

Danica01
06-23-2009, 05:38 PM
Thank you everyone!!!! Your advice has been helpful and your stories have made me laugh!!!!!! :-)

Rastagirl
06-23-2009, 09:54 PM
Boy...isn't this a fun thread....I sat here sweating just reading about you guys.

Someone turn a fan on in here....better yet, air conditioning!

http://blogs.smh.com.au/lifestyle/renovationnation/fan.jpg

Here you go, ladies..... :cute:

:cool2: Lori

gina
06-24-2009, 07:41 AM
Thanks needed that:yes:

lucky7
06-24-2009, 11:06 AM
Phew, FEEL that nice breeze!!!!! Thanks Lori, what a friend, ALWAYS there when you need her!!! Fan and all!!!!!:laugh:

Hey Phyllis, did your dr BELIEVE you were going through menopause at 31? I ask because i have had symptoms for a bit now but (of course) my dr said "Jeannette, no way, you are too young". Yeah, well, my mother and grandmother BOTH went through it in their 30s B****, so take that! LOL I dont see her anymore either, i LOVE my new gyno though!:yes: What do i need to ask for to be done to figure this out? Thanks!!!

kducks
06-24-2009, 11:22 AM
I had the hot sweaty flashes when I was really sick too. Definitely not menopause in my case, I was 19 at the time. I would be so hot dripping sweat one minute, then freezing cold so chilled my teeth were chattering the next. My doctor's never really had a explaination for it, one only said it was probably from the Lupus and my body trying to "sweat" my illness out kind of thing. They stopped completely for me once I had my Lupus more under control, but I do still tend to run hot in my body temp it seems. When everyone is asking if it is cold, it never is for me. I have to sleep without pj's too and usually with my feet sticking out the bottom of the covers so I can cool down. My boyfriend calls me his little furnace sometimes. :laugh:

lucky7
06-24-2009, 11:42 AM
AWWWWW, his little furnace!!!! HOW FRIGIN CUTE!!!!!!! :cute: Yeah, im all over the place these days, hot, cold, sweating a river, you name it my body does it!!!! LOL It doesnt even matter what the weathers doing either, my body does a 180 on me and does the opposite of course!:wacko:

Danica01
06-25-2009, 08:34 PM
I fist want to say..............I LOVE THE FAN!!!!!!!!!!!!!!!! I can feel it all the way in Arizona!!!!! I wanted to tell you all that I went to the doctor today and he does agree, these hot flashes are not the normal night sweats that come with Lupus. These are a lot more intense and more disruptive. I am 30 and there is a very strong possibility that I am starting the long journey through the change of life :-( Along with that test, we are checking everything because if my body is going through this we now have to watch my bone density, my cholesterol and so on...........I really never thought I would be going through all of this at my age. I still want to wait a few years before I have kids. I am not ready today and will not be ready tomorrow. Lets top it off now................some of you remember my surgery last December around Christmas. I had cysts removed off of my ovaries, well, it looks like those may be back tooooooooooooooooo!!!!!!!!!!!!! Ob boy, will it ever end :wacko: Oh well. Tomorrow starts a long day of tests and I better eat a snack late because no food until the afternoon!!!!!!!!!!! I do have to drink a lot before I go in for my ultrasound.......what if I drink tooooooooooooo much and pee on the tech, oooooops!!!!!!!!!!! That would be a funny story:-) I will let you know how everything goes and we should have some answers early next week!!!!!!!!

Danica
:grouphug:

SandyR
06-25-2009, 09:26 PM
every day I learn something new on here. I never thought to associate my night sweats with my autoimmune issues. Makes sense, but I never thought of it. I also tend to randomly flash, but for me, the random flashes seem more associated with my IBS since I will often have an intense stomach ache almost immediately after the flash and then I am freezing cold until my stomach settles down. The night sweats is something I had only had during times of sickness in earlier years, but it now seems to be almost a nightly occurance. Your story is funny, but recognizable since I have done the sleeping-strip tease too and woke up cold, naked and confused! :embarrassed: sometimes I even find the bedding or pillows on the floor too!

lucky7
06-27-2009, 03:37 PM
Hey Danica, maybe the tech will Deserve some pee splashed their way!!!! LOL:laugh: If their like MOST drs they DESERVE it!!! LOL

Danica01
06-27-2009, 10:27 PM
Hey Danica, maybe the tech will Deserve some pee splashed their way!!!! LOL:laugh: If their like MOST drs they DESERVE it!!! LOL

I will go in with a plan and when it happens I will look as though it was a huge surprise but we will all know the Pee Plan was developed earlier.......hehehehehehehehehe :-) You are right, most do deserve it and I will not feel bad when it happens! I will let you know if any splashing occurs!!!!!!!!! :redface:

WantItGone
06-28-2009, 09:22 AM
I have 'em 2. I went to a gynecologist & asked to be tested for perimenopause due to having symptoms like longer periods, abdominal cramping before my period (something I never experienced until recently), severe pms symptoms (depression & cravings, and hot flashes. She actually said no because I was only 34. I said, "so you don't want to because I'm only 34? You're saying you've never had a patient go through perimenopause @ 34?" She said that she has. ??? So, I left. I'll go to another gyn.

Hopefully the metho isn't causing your hot flashes. I actually stopped taking metho last year because it could cause liver problems. I recently discontinued taking plaquenil & motrin because of the potential side effects. I have an upcoming appt w/a holistic specialist. I'm so sick of all these meds that cause side effects & then we're prescribed another med. Lol. It makes no sense. Until my appointment w/the holistic specialist, I'm getting ready to do a liver/candida/colon/gall bladder/heavy metal/parasite cleanse. Candida is thought to contribute to lupus and fibro.

Sorry I rambled on and on. Lol. I'm just so sick of medications! Thanks for letting me vent.

Danica01
06-28-2009, 09:50 AM
You can vent anytime you want! That is what we are all here for. When my hot flashes started the doctor didn't want to test me because I was only 29 but because they have been going on so long we both agreed that it was time to just look into things to make sure that everything is ok. I think I have read that methotrexate does cause hot flashes in some people and that could be a possibility with my case. If that is the case I will learn to cope with them because the medicine helps me so much. I hate how meds can cause more damage in the long run! I am always getting poked at the doctor to measure one thing or another. I actually have my liver enzymes checked ever month to every two months just to make sure it is functioning ok. I am curious about the holistic doctor and what they say.......keep us posted!!!!!!!!!!

WantItGone
06-28-2009, 12:42 PM
You can vent anytime you want! That is what we are all here for. When my hot flashes started the doctor didn't want to test me because I was only 29 but because they have been going on so long we both agreed that it was time to just look into things to make sure that everything is ok. I think I have read that methotrexate does cause hot flashes in some people and that could be a possibility with my case. If that is the case I will learn to cope with them because the medicine helps me so much. I hate how meds can cause more damage in the long run! I am always getting poked at the doctor to measure one thing or another. I actually have my liver enzymes checked ever month to every two months just to make sure it is functioning ok. I am curious about the holistic doctor and what they say.......keep us posted!!!!!!!!!!

I definitely will Danica. I'm very curious 2 c what he says. I'm sure he'll mention Candida cleanse. Pretty much every person I talk to about homeopathic approaches, always mentions Candida. It's worth a try.

MicRoMediC
06-29-2009, 09:00 AM
Ok, the worst thing happened to me yesterday. I was working, walked into a patients house and was sweating so badly and having such a freaking hot flash. Luckily the patient wasn't dying so I didn't have to work too hard. Mind you it was 103 yesterday with like 50 percent humidity so it was hot, but this was so different than just being hot. Then we ran a fire stand-by for an apartment fire and I got out of the ambulance and had the chills but was physically hot. URG! I was so frustrated by the end of the shift this morning.

Danica01
06-29-2009, 08:57 PM
WantItGone,

I just read through a few books and lots of paper work on Candida. There is actually a blood test that they can do to see if you have this excessive amount of yeast in your system. It was really interesting and it is something I would like to bring up to my doctor the next time I see her. You never know what causes everything and you never know what will really help. Keep me updated on what they say and what advice they give you to treat your Lupus, I am curious!!!!!

MicRoMedic,

These darn hot flashes drive me nuts :banghead: They are so uncomfortable and irritating!!!!! I really wish there was something they could do for us. You are right, your body gets all whacked out and you are sooooooo hot when you should be cold and soooooo cold when you should be hot!!!!! It is a never ending battle!!!!! I guess we are going to have to hang in there and hope that some of this heat and humidity goes away sooner than later!!!! I am sending you well wishes in hoped that you will have a cooler day tomorrow :flowers1:


I should find out over the next few days if my body is in fact going through menopause right now. I am crossing my fingers and toes hoping that this is not the case and my dream of having a family someday can someday be a reality!!!! Thank you all for making me smile and keeping me company through this frustrating and emotional time. You all have made me smile and I am blessed because you are all in my life! :grouphug:

magistramarla
06-30-2009, 10:57 AM
MicRoMedic,
I live in the terrible heat of Texas, too. Last night, I couldn't sleep and woke up with the dreaded hot flash. I got to worrying about our air conditioner unit handling this 100+ weather, since I hadn't heard it kick in for a while. It's funny, what bothers me when I can't sleep. After I finally heard the air conditioner, I finally got a bit cooler, and managed to get back to sleep.
I hope that you are holding up well in this terrible heat.
Marla

debbie-b
06-30-2009, 05:38 PM
I am very surprised, to hear all you young people having hot flashes, I have them too, but I am 53. So I was sure it was menopause, now I am not so sure anymore. BTW everybody that lives in Texas, I have lived there for over 20 years, but moved to upsate NY four years ago, because I could not handle the heat anymore,I couldn't breathe, I would stay in the house 9 months out of the year, except for going to work, but I could not do any outside activities. Here in NY I can take walks and enjoy the outside, when my pain lets me.

Debbie

MicRoMediC
07-01-2009, 09:10 AM
Yeah Debbie-I'm jealous. I would love to move out of Texas but unfortunately I don't think my boyfriend will ever consider moving. He comes from a small town and is very close to his family that has always, and will always live here. Urg. We are considering moving further north where it actually gets cooler in the winter rather than down here on the coast...maybe...

magistramarla
07-01-2009, 11:32 AM
Hey Debbie,
My hubby grew up in Pine Bush, NY - in the Catskills. I really love that part of the country and we would live there in a heartbeat if we could. The only reason that we are in Texas is because the AF put us here. Thank goodness, the AF is putting us in CA. for the next 3 years! Unfortunately, the job requires that we come back to Texas for 3 or 4 years after that. Then, we'll plot and plan to leave Texas behind forever - it's just TOO hot for Northerners!
Marla

red246
07-01-2009, 05:45 PM
Well, I'm glad to know I'm not the only one w/the hot flashes! I don't wake up from them though. Then again, I have enough of a problem getting to sleep, so I think there'd have to be an earthquake or tornado to wake me up once I'm out!

I really feel for all of y'all in Texas! Lived there for over half my life, could never go back to that heat now! My boys are down there right now visiting and they are miserable w/the heat. Sending you lots of cool thoughts & ice cream! :cool:

crmj1183
07-01-2009, 06:04 PM
Danica, Ive been having hot flashes since I was 22, lol I think it is just another side of effect of " LIL Miss Lupus" as I like to call it. My doctor did tell me a few years back to be expecting hot flashes. I know ur pain one minute imm cold than the next minute sweat is dripping from my lobes. At work i keep a fan on the top half of my body and a heater by my feet:laugh::laugh::laugh:. Whenpeople ask if im ok I just say yeah Im trying out this new moisturizer. lol

Danica01
07-01-2009, 11:10 PM
Danica, Ive been having hot flashes since I was 22, lol I think it is just another side of effect of " LIL Miss Lupus" as I like to call it. My doctor did tell me a few years back to be expecting hot flashes. I know ur pain one minute imm cold than the next minute sweat is dripping from my lobes. At work i keep a fan on the top half of my body and a heater by my feet:laugh::laugh::laugh:. Whenpeople ask if im ok I just say yeah Im trying out this new moisturizer. lol


That is exactly how I feel!!!!!!!!!! It is pretty miserable and I really hope we figure out what is going on. I am should receive my results tomorrow. I have to be honest with you, I am frightened by the idea of being in menopause and then coming to terms with not ever having my own kids. It will be an emotional call but I still have faith that everything will turn out just right.

Thanks to all of you on this thread.......I will up date the results tomorrow evening!!!!!
Cross your fingers and toes......hehehehehehehehe