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debbie-b
06-06-2009, 08:14 PM
For a couple of weeks now I have something going on with my fingers on my right hand. It goes like this, I wake up in the middle of the night, because my fingers hurt real bad. When I wake up in the morning, my fingers are so swollen, that I can not make a fist, I can't open my hand or close it. My fingers look like sausages. It is the middle and the ringfinger that hurts the most. After about three hours the swelling will go down somewhat, that is when the weird sensation starts, my middle and ringfinger feel like they are hot, from the inside, not hot to touch. It almost feels like they are thawing out from being frozen. I have a needle sticking pain in them. It hurts so bad.
My question is, could it be scleroderma? I can't get into the docs office until next week. I do have lupus and RA, but this pain is different from the RA pain.
Does anybody else have these kind of symptoms?

Debbie

AyahsClan
06-06-2009, 09:15 PM
For a couple of weeks now I have something going on with my fingers on my right hand. It goes like this, I wake up in the middle of the night, because my fingers hurt real bad. When I wake up in the morning, my fingers are so swollen, that I can not make a fist, I can't open my hand or close it. My fingers look like sausages. It is the middle and the ringfinger that hurts the most. After about three hours the swelling will go down somewhat, that is when the weird sensation starts, my middle and ringfinger feel like they are hot, from the inside, not hot to touch. It almost feels like they are thawing out from being frozen. I have a needle sticking pain in them. It hurts so bad.
My question is, could it be scleroderma? I can't get into the docs office until next week. I do have lupus and RA, but this pain is different from the RA pain.
Does anybody else have these kind of symptoms?

Debbie

Hi Debbie. Just wanted to let you know I am thinking about you and what you are going through with this. I don't have any idea what it is and have had swelling and pain issues in my hands but nothing as extreme as what you are going through.

Hope the doctor knows and can get you some relief right away.

Delphinia981
06-06-2009, 09:25 PM
Hi Debbie,

I have SLE and RA as well, and had this happen a few weeks ago. My rheumy told me to take two extra-strength Tylenol on top of my usual Clinoril (I'm maxed out on the doseage for that), and that helped significantly...along with ice, rest, and elevation.

Hoping you find relief soon...

debbie-b
06-07-2009, 05:46 AM
Thank you Ayah and Carrie,

I also have SLE and RA, I am taking the the max. of NSAIDS and it still doesn't help. As I am sitting here, my fingers are throbbing and when I let my arm dangle, the pain gets less, elavating it makes it worse. I also have to go to work today, with this pain.

Debbie

Pearl
06-07-2009, 07:12 AM
Debbie -

So sorry for your suffering. I just wanted to tell you I am thinking about you. Take care. Hope you get some relief very soon.

Jana

Angel Oliver
06-07-2009, 12:55 PM
Oh im sorry to hear about this.Call your doctor for advice and lots of help.Dont know whether its the same as me but recently ive had....:-

Fat fingers
Fat face
Fat legs
Swellings on leg muscles
numbness in arms n hands n fingers
Fat rib cage

Doctor gave me meds and diagnosed me with Fibromyalgia.....just a thought...but ask the Doc he knows best...and may not be what i have...who knows? The Doctor!!!!

Hope you ease soon and im sending you gentle hugs
love
Angel.xxxxxx

Stacy
06-17-2009, 10:02 PM
For a couple of weeks now I have something going on with my fingers on my right hand. It goes like this, I wake up in the middle of the night, because my fingers hurt real bad. When I wake up in the morning, my fingers are so swollen, that I can not make a fist, I can't open my hand or close it. My fingers look like sausages. It is the middle and the ringfinger that hurts the most. After about three hours the swelling will go down somewhat, that is when the weird sensation starts, my middle and ringfinger feel like they are hot, from the inside, not hot to touch. It almost feels like they are thawing out from being frozen. I have a needle sticking pain in them. It hurts so bad.
My question is, could it be scleroderma? I can't get into the docs office until next week. I do have lupus and RA, but this pain is different from the RA pain.
Does anybody else have these kind of symptoms?

Debbie

Oh wow, this sounds so familiar to what I'm going through however both my hands are now involved. Are you noticing any changes in color in your hands?

The rheumy says that I have developed raynaud's phenomenon. It wakes me up in the night with tingling and pain, the best way I can explain it is that it reminds me of when your hands "fall asleep" but the pain and tingling is almost double. If I try to elevate my hands, the pain seems to get worse. I find myself hanging my arms over the side of my bed to make the pain and tingling stop, but then of course the swelling gets worse, which in turn causes more pain (nice vicious cycle). It makes it a nightly game of tossing and turning in search of some position that provides temporary relief just to get some sleep :wacko:

debbie-b
06-18-2009, 05:31 AM
Oh wow, this sounds so familiar to what I'm going through however both my hands are now involved. Are you noticing any changes in color in your hands?

The rheumy says that I have developed raynaud's phenomenon. It wakes me up in the night with tingling and pain, the best way I can explain it is that it reminds me of when your hands "fall asleep" but the pain and tingling is almost double. If I try to elevate my hands, the pain seems to get worse. I find myself hanging my arms over the side of my bed to make the pain and tingling stop, but then of course the swelling gets worse, which in turn causes more pain (nice vicious cycle). It makes it a nightly game of tossing and turning in search of some position that provides temporary relief just to get some sleep :wacko:

Hi Stacy,

Reading this, is like you have described my nights. This is exactly how my nights go, I too let my arms hang over the side of the bed, that is the only way to get some relief. My doc also thinks that I have raynauds.

Debbie

rob
06-18-2009, 06:22 AM
Debbie,

Have you found any answers or gotten some relief from this? I have had this happen before, and the pain/swelling responded fairly well to Naproxen, but you mentioned that Nsaid's didn't help you. I also get that deep burning pain in my forearms and shins, but I don't get the swelling. Lupus is just weird. I hope you are doing OK.

Rob

debbie-b
06-18-2009, 06:36 AM
Debbie,

Have you found any answers or gotten some relief from this? I have had this happen before, and the pain/swelling responded fairly well to Naproxen, but you mentioned that Nsaid's didn't help you. I also get that deep burning pain in my forearms and shins, but I don't get the swelling. Lupus is just weird. I hope you are doing OK.

Rob

No, I have not gotten any relief, it is still going on. It now even happends when I am driving, but if I let my arm hang down, it relieves the pain and the numbness. The doc gave me Lidocain, for circulation, it does not help. The funny thing is Lidocain is also prescribed for hemorrhoids, lol.

Debbie

Stacy
06-18-2009, 03:40 PM
Hi Stacy,

Reading this, is like you have described my nights. This is exactly how my nights go, I too let my arms hang over the side of the bed, that is the only way to get some relief. My doc also thinks that I have raynauds.

Debbie

I'm so sorry to hear what you're going through :hug:. Sounds like we are in the same boat with regards to this. I completely understand how you're feeling. I too, have the numbness tingling happen almost at anytime, including while driving. It can be so frustrating, but my biggest stressing point is the interrupted sleep, nightly. Just keep your chin up, and hopefully you and your doc will be able to help you with easing this symptom.

ritzbit
06-18-2009, 06:06 PM
If you do have raynauds is yours caused when you get cold? Mine is. When my hands get really swollen and sore instead of putting ice on it I run my hands under hot water for 5 min or so and that helps me. I take Naproxen and that helps somewhat so that they dont hurt so much. I know how much it sucks. I hope you find some relief.

awestleap
06-19-2009, 03:39 PM
Oh yeah! That's me too! Started when I was in my twenties, when driving or doing anything excessive with my hands would cause them to go numb. How I found about my lupus was when I went to see a doctor about my hands. My pointer fingers gets so sore that I can't rotate it in the knuckle socket. My fingers are sooo stiff and swollen in the morning that it takes hours before I can make a complete fist. The worst part is the pain. I have the most excruciating pain between my knuckles and in the center of my palm. Some days I have noticed that I will just quit using my right hand. I think the main reason that just one hand hurt so much is because of use. I am right handed and use it a lot more than the left. When I use the left more, the pain occurs there.

cupcakelove982
06-19-2009, 07:31 PM
Debbie,
First off, I'd like to say that I'll keep you in my prayers. And I also go thru a lot of what you're going thru myself. It depends on your medication dosages. Sometimes, but not always, it helps to soak in a tub of hot water with eucalyptus to help calm and sooth. I realize it's painful to the touch, sometimes my fingers and toes get blue-purple coloring when i'm cold. Heat normally helps. As for the tingling, my doc always said even tho i may be in a bit of pain, try and massage or move around. I do hope some of this helps.
~Bridgette

Danica01
06-20-2009, 02:01 AM
That was one of my first symptoms when I got sick! It is horrible and I hate how it wakes me up in the middle of the night. I also have it happen when I am driving or just wen I am doing other activities. I am right handed and it is so hard to even work with my hands when this happen. I really feel for you and I wish that I had some advice to make it go away but I have had it over the last eight years and still have to deal with it almost on a daily basis. Keep us posted.....I am very interested to hear what your doctor recommends. Good luck!!!!!

debbie-b
06-20-2009, 04:12 AM
Thanks guys, for your well wishes. All my doc. said was to keep my hands warm, but the problem is, the pain happends even though my hands are warm, they are always warm now, that the weather is warm. Like I said, he gave me a cream for circulation, but it does not help. I wake up 3- 4 times a night, because of the pain. Well I guess, I have to wait to see what my new rheumy has to say, my appointment is for August 17th,ugh. I am frustrated and in pain.

Debbie

mountaindreamer
06-20-2009, 05:07 AM
hi debbie,

first, let me apologize for just now responding to your initial post....i don't know where these things hide from me, but they do, and i often find threads several days after the initial post.

second, i know exactly what you mean about the hands...sometimes mine hurt so bad that i can't turn a door knob, operate the mouse on my computer, or even hold the steering wheel to drive my car. My hands feel like they are burning from the inside, and the pain just makes me miserable. My hands will also turn red, and looks like a below-the-skin rash...so weird.

My rheumy of many years says it is the lupus and she really does not know how to help. Even the drs. at the Mayo did not know what they could do for me.....so frustrating.

My theory is that the lupus and or the fibromyalgia are attacking the small tissue in the hands, because it is like i can feel those little b------- eating away at my body.....

so sorry you are experiencing this, i wish we had answers, but i have not been able to find any for years.

debbie-b
06-20-2009, 10:56 AM
hi debbie,

first, let me apologize for just now responding to your initial post....i don't know where these things hide from me, but they do, and i often find threads several days after the initial post.

second, i know exactly what you mean about the hands...sometimes mine hurt so bad that i can't turn a door knob, operate the mouse on my computer, or even hold the steering wheel to drive my car. My hands feel like they are burning from the inside, and the pain just makes me miserable. My hands will also turn red, and looks like a below-the-skin rash...so weird.

My rheumy of many years says it is the lupus and she really does not know how to help. Even the drs. at the Mayo did not know what they could do for me.....so frustrating.

My theory is that the lupus and or the fibromyalgia are attacking the small tissue in the hands, because it is like i can feel those little b------- eating away at my body.....

so sorry you are experiencing this, i wish we had answers, but i have not been able to find any for years.

Thank you too, Phyllis,

That is exactly what it feels like, like tissue pain, sometimes burning, sometimes throbbing and sometimes like hundreds of needles. I have kind of figured, it was the lupus. Our "friend lupus" seems to think of something new to hit us with all the time. I hate that guy.lol

Debbie

debbie-b
07-20-2009, 08:24 AM
I can't believe I posted this over a month ago and here I am, still in pain. The last few days, I have developed something else in that hand. With some movements, I get this sensation and pain, that feels like when you pull a rubberband and let it go and it snaps you, kind of like an electrical shock, in the palm of my hand.
By the way, my new rheumy's office called and canceled the appointment, because this doc does not acceppt my insurance. Now I have to start looking all over again. Living in a smaller town has it's benefits, but not when it comes to finding a good specialist. We have very few and they are so booked out.

Debbie

Danica01
07-20-2009, 01:08 PM
I bet you are not only frustrated with your hand but also with your doctors. Just when you think you found one.....they call and cancel! I do have a question for you......does you insurance have a website???? I ask because normally they offer some services that can help you find a doctor that accepts their policies. It is a lot of work for us to do and can be emotionally exhausting! I really hope you not only find a doctor soon but are also able to finally get some relief from the constant pain you have been having. Good luck and I am thinking about you! I am sending you lots of gentle hugs to help you get through this :hug:

debbie-b
07-20-2009, 02:11 PM
Thanks Danica,

I have never even thought about going on the web site, but I will now, that might help.

Debbie