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DreaminDutch
06-02-2009, 06:47 PM
First off I'm new here and I would just like to start by expressing my gratitude for this site. Just be reading some posts I can tell that there are many compassionate, understanding people here. Yay!!!
So anyway...I have a specific question so I won't bore you with my illness history and details...hopefully someone can help me. I do have s.l.e. and have been experiencing urinary problems off and on for several years. Protien in my urine sporadically, sometimes having to go every 20 minutes during the night. A urology appt. confirmed blockage at one point. Now my recent blood work came back with a eGSR of 59. My creatinine and bun are within normal range but both have been steadily and consistently rising throughout the past several blood tests. Now my doctor's office called and said the blood work was normal. I'm confused because the sheet clearly shows a low reading and considering my past symptoms I would think that this would warrant further investigation. Am I being over reactive? I have had difficulty in the past with this particular doctor and his talent for making me feel invalidated. Does anyone have any advice for me? Am I being a hypochondriac?
Thanks for being here everyone! You're like bright stars in a dark night!

adl011
06-02-2009, 06:51 PM
I would recommend getting a copy of your lab results and getting a second opinion. If you are worried, then it does warrant further investigation, if only to ease your mind. You are validated in asking for further testing because you have had trouble in the past. I hope this makes you feel better. I don't know much about those lab results per se, but someone will more than likely help you with that part. :)
I hope you feel better soon!

~Amanda

mountaindreamer
06-02-2009, 08:09 PM
hi dreamindutch,

welcome to our circle of friends....we are always here, and always ready to help whenever possible.

protein in your urine, frequent night peeing....you should make an appointment with a nephrologist...this is the dr. that specializes in the kidneys, and should be able to help determine if you have lupus nephritis (lupus of the kidneys). Lupus nephritis can be treated, so don't be scared.

i am sure others with much more knowledge about lab reports will be along to give you more information and hopefully reduce some of your worries.

welcome again...glad you are here.

DreaminDutch
06-02-2009, 08:20 PM
Thanks Mountaindreamer, just your words of support and warm welcome are enough to lighten my heart!

Pearl
06-03-2009, 04:42 AM
I just wanted to say "howdy" and welcome you to the forum. You've been given some great advice already. When in doubt, get a second opinion (and a third or fourth if necessary). Your kidneys are not something to play around with. Get all the info you need to make an informed decision about your own healthcare.

Best to you,

Jana

gina
06-03-2009, 06:07 AM
welcome, i agree with mountiandreamer, and i would also change doctors you have enough on your plate to have a doctor that makes you feel that way.
have a great day

rob
06-03-2009, 07:50 AM
Hi DreaminDutch,

I'm Rob, I was diagnosed with SLE five years ago. I'm not very good at interpreting the numbers of test results, so I won't go there. But I will say that I DO NOT think you are a hypochondriac, nor do I think you are being paranoid. Never be afraid to seek a second, even a third opinion from another Dr./Specialist. And never let someone make you feel bad or invalidated for paying attention to your own body and seeking help if you think something is not right. Anyway, welcome to our group, please make yourself at home!

Rob

Bonita
06-03-2009, 08:26 AM
I also have had problems with recurrent bladder infections and i will see my rhuematologist tommorow for a reg visit and i think i have another one. I also have had blood and protien in my urine but have not been sent to another doctor as of yet. I just want to say welcome because i am fairly new to this site and have found everyone very kind and helpfull. I have had lupus and myocitis for almost two years and i get copies of every kind of test ordered and when i was in the hospital i got a copy of everything for the 11 days i was in. Then i look up the things i don't understand and have questions the next doctor visit. Hope you get the answers you need God Bless Bonita

Rastagirl
06-03-2009, 09:49 AM
Hello DreaminDutch... :wavey:

Just wanted to welcome you as well. I'll agree with the others, especially Rob. You're not a hypochondriac or paranoid. With Lupus, we can easily feel that way with all the random symptoms it throws our way. But it's important to stay tuned in to what's going on with our bodies, so we stay on top of things...catch them before they cause damage or escalate.

Trust your instincts and the fact that you know yourself and your body better than anyone....you're the one living in it every day. It's when you pay attention to things going on with your body, ask questions, educate yourself....that you will best be able to have conversations with your healthcare providers and work as a team to keep you the healthiest possible.

Always keep in mind that our vital organs...kidneys, lungs, heart, etc....are the ones we must pay the closest attention to.

Keep searching for your answers, from this doctor....or others, if this one does not satisfy you.

I'm glad you've joined our group....looking forward to learning with you...from you.

Fondly,

:cool2: Lori

DreaminDutch
06-03-2009, 11:26 AM
Thanks for the words of support, I feel like I just got a great big hug!! It is a lonely disease and to be somewhere where I feel understood is medicine in it's self.
Hey Lori...did you get the quote on the bottom of your posts from Aragorn in The Lord of the Rings? I love that quote!
Thanks again you guys!

rob
06-03-2009, 12:19 PM
Thanks for the words of support, I feel like I just got a great big hug!! It is a lonely disease and to be somewhere where I feel understood is medicine in it's self.
Hey Lori...did you get the quote on the bottom of your posts from Aragorn in The Lord of the Rings? I love that quote!
Thanks again you guys!

Looks like we have another Lord of the Rings fan!
I always liked a quote from the end of The Fellowship of the Ring.

The actor Sean Bean's character is mortally wounded and tells Aragorn-

"I would have followed you my Brother, my Captain, my King..." Awesome stuff!

Angel Oliver
06-03-2009, 12:37 PM
Hey hello and welcome.Im sorry im not very knowledgeable about this....but i too live on the loo at night...pee pee pee....i can go up to 15 times a night.But last night was'nt so bad.I dont drink much at night either....but 1 sip of water can have me peeing for hours :)
Dont you worry.....get a copy of the results...then maybe someone will be able to help you here or just ask the doc to explain it properly to you and you tell him your confusion.We here understand Doctors.....some are born with no compassion.....yet some are fab! Hope you are ok when you get the answer.
love
Angel.xxxxx

DreaminDutch
06-04-2009, 06:37 AM
Rob I love that line from Borimir! I could see the movies 1000 times and still cry like a baby during that scene. They chose wonderful actors to play most of the characters. It's exciting to meet fellow L.O.T.R. fans that have lupus too. Common ground=more comfort.
Have a great day everyone!!!