View Full Version : New to the website...Not to Lupus
05-29-2009, 12:22 PM
Hi everyone! I'm new to the site but not to Lupus. I first started getting symptoms in 2004 when I developed kidney disease. I was finally officially diagnosed last year. Besides kidney disease and Lupus I also have Sjogrins Disease and Arthritis. I still to this day have not met anyone else who is going through what I go through everyday and that really understands. It's hard to stay positive by myself all the time so I decided to join the website.
Because of the amount of pain I am in I am currently not able to work or to continue my education so it makes things alot harder on myself. But I haven't given up yet! I am looking forward to meeting and talking to all of you.
05-29-2009, 01:08 PM
And a very big welcome to you! I am so glad you joined us as having noone to talk to is very stressful.We will all help you always.Ask anything.What one member doesnt know the next one will.I so understand being unable to work,socialise,go out...the lot.When you get so sick.....pain takes over....so make sure you take all the pain killers given to you like me....does help,but makes you sleepy in the day....and many members here suffer with insomnia,so sometimes can feel like no escape.So we meet up in the social groups...have fun,chat.Just click on community then social group.Hope we can make a difference to your life.Everyone here suffer allot,but we all help each other and chat about everything.So welcome!!
lots of love
05-29-2009, 02:26 PM
Thank you so much..you have absolutely no idea how much that means to me!
05-29-2009, 02:49 PM
Welcome to the site and I have to say you have come to the right place for understanding on what you go through. Everyone on here is supportive and will chime in on anything you wish to talk about. I do hope your pain subsides as that is the worse to deal with along with everything else in life.
I'm Rob, and I was diagnosed with SLE five years ago. I think you'll find a bunch of understanding folks here, as well as some excellent advice on living with this thing called Lupus. It already sounds like you have a great attitude going despite it all. That's a huge step in the right direction. Welcome to our group. Please make yourself at home here!
05-29-2009, 05:26 PM
So glad you found us. There is always kind word and a listening ear on this forum. And there is always someone who understands exactly what you are going through. Don't be a stranger. When you need to get away from it all, play some games on the arcade.
I am sorry for your struggles. I will pray tomorrow finds you feeling better.
05-29-2009, 05:31 PM
welcome to our family of the sky. you will find so many people here who know exactly what you are going through. You will always find a sympathetic ear, and whenever possible, we will help you educate yourself on life with lupus.
Ask any questions, and join in on any threads...i look forward to learning more about you.
05-29-2009, 05:34 PM
Thank you so much for the warm welcome. I try to stay as positive as possible and as you know thats hard with all of SLE's ups and downs but as time goes on
and flares subside I remember why I don't give up..life is beautiful...I am very excited to have actually found somewhere that I can talk to people who go through the same things I do and that I am truly not alone in this & I do look forward to getting to know more about you & your illness.
05-29-2009, 05:37 PM
Thank you so much Pearl & Dreamer it feels really good to know you guys care and I too will pray for both of your health. I look forward to getting to know you both better & to get to play some games!
05-29-2009, 07:49 PM
Good for you for having a good outlook. I know all-too well the costs of having Lupus...I haven't worked in three years. I miss my job so much! Some days I can barely take care of my little girl...but I just give life the finger and go ahead with my business. I always hope for the best, because I've been through the worst! Let's tame the wolf!
Can't wait to get to know you, too!!
05-30-2009, 08:46 AM
Hello and welcome K:yes:
I am Saysusie, the Moderator/Administrator of this site which, as you've seen, is filled with the most caring, understanding, and helpful people in the world (since our members span the globe).
We truly understand about how the pain & illness can cause us to not be able to work or attend school. Many of us have been in that situation ourselves. So, it is good that you've chosen to join a support group to be amongst others who truly understand and who can offer you advice, information, support and comfort.
I have lived with Lupus since 1985 and was also diagnosed with Fibromyalgia approximately 5 years ago. I also suffer from Raynaud's Syndrome as well as other co-existing illnesses. It is not at all uncommon for persons with one auto-immune disease (such as Lupus) to develop two or more other auto-immune diseases:grumpy:. Most of us here are suffering from more than one overlapping auto-immune disease. So, we can provide you with personal experience as well as information!
I am glad that you are here with us and I hope that you will decide to stay for a while, make new friends and learn a lot about living with Lupus.
Peace and Blessings