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Monique89
05-28-2009, 11:10 PM
Someone tell me that the blood testing dies down a little?
I think i have had at least 2 blood tests a week for the last 2 months! And i have such shoddy veins that it takes them over 30 minutes to get any blood out of me half the time!!
My haematologist is getting the tests for my platelet levels, my rheumatologist has given me 2 in the last 2 weeks for lupus tests i think.
Also the appointments!! I feel like i have no life because im in another appointment every 2nd day!
Wayyyy too busy!

kim,l
05-29-2009, 01:58 AM
i am sorry monique you are having such a bad time with blood tests i have bad veins to so i know how you feel its hard enough having this disease without spending so much time at doctors hopefully once they get your medication right you won,t have as many appointments i to have to have regular blood tests my rhuemotologist in sydney says they need to keep an eye on my levels but really its for our own good i hope you feel much better soon just remember where all here for you to talk and vent your frustrations many warm hugs kim l

gina
05-29-2009, 04:39 AM
I feel your pain, my veins collapse and they re stick me all the time. i got my doctor now to order all the test at once so i have to go once, they take like eight viles but i rather do that than go back and forth, and ask your hemo. doc to tell your other doc. what test he wants and you can do those also. its worth a shot:laugh:

Grime
05-29-2009, 07:39 AM
Yesterday I had finally got the VA to put all my appointments on the same day. Well the major blood test with Hemo about my low white cell count and falling 2.4 was canceled by someone. So I made a wasted 200 mile one way trip. They still don't know how to treat me. My rehumy did tell me that we should move one county over. That way I can go to civilian doctors at VA expense. He said that with the VA system and being free you are getting just what you are paying for. When its free its worth nothing.

I spent 10 hours yesterday with doctors and labs with no answers. Gotta go back on June 23.

Margie26
05-29-2009, 07:40 AM
I feel for you Monique, because it's the same story each time I need to have blood tests done!

It takes more than 30 min. because the blood sips in each tube.

It is a nightmare when they need to search for other veins when the one collaps on a big needle.

I so totally understand what you're going through.

Big Hugs,

Margie

gina
05-29-2009, 08:37 AM
that stinks that you drive all that way to have it canceled, did they call you to confirm appointments, i always call the day before i went to appointment once and they said it was canceled but no one told me. but your experience was much worse than mine. sorry you had to got through that long ride for nothing.

Rastagirl
05-29-2009, 11:28 AM
I've been having the blood draws for 27 years now, and have always had the struggles with veins that are hard to find, or veins that collapse. I just got plain tired of going through the painful blood draws that take forever to get just a little blood and cause me to be stuck too many times. I have pretty small veins.

Something I've learned over the years that works well is to ask them to use the Pediatric blood draw needles. I believe they're called Butterfly needles. They go in very easy and my veins never collapse. The only downside is they can take a bit longer for the blood draw because they can only go so fast. But it's worth it to me if they don't have to stick me multiple times. I've just learned to ask for them to be used, and then sit patiently for however long it takes to fill the vials. I have much less bruising afterwards too, and they don't hurt as much when the needle is in your vein. I used to be in agonizing pain whenever the tech would even move the needle a tiny bit while in my vein. When they use the small Pediatric ones, you don't feel the movement at all.

Just thought I'd put this out there for those that have painful, frustrating blood draws....in hopes of saving you years of miserable visits to the lab.

Another thing that helps with the blood flow during blood draws, is to make sure you are very well hydrated starting a few days before your draw. Makes things flow better.

Also a good thing to consider is to alternate arms, or whatever site they are normally drawing from. When I first was diagnosed and had tons of blood draws, I always used my left arm, because I'm right handed. After a few years of this, I started getting a lot of scarring on that side. So now I have them move around to different sites.

Hope this helps.... :veryhappy:

:cool2: Lori

mountaindreamer
05-29-2009, 07:45 PM
hi monique,

this is a tough time for you. When i was first diagnosed, my dr. sent me to a specialist for every organ that we were concerned about. I thought i was going to go crazy, because everywhere i went, they each wanted their own blood work drawn. I looked like a stuck pig.

Lori is right, ask that they use the butterfly needle when drawing blood, and drink plenty of water starting two days prior to going in to dr.

Now that everything has been checked, and my rheumy has me on some new treatments, my dr. schedule is subsiding and life is settling down. so, hang in there, it will slow down very soon.

good luck to you.

mountaindreamer
05-29-2009, 07:47 PM
grime,

i know several people have been worried about you and your va visit....i wish you would start a new thread with this report, so that it won't be missed by anyone.

i am so so so sorry about your trip....you deserve a break...

are you considering a move to the next county? would you still be close to your boating buddies? Lisa deserves her margarita nights.

Monique89
05-30-2009, 01:07 AM
Thanks guys...it is just all so busy at the moment...
The butterfly needles dont really help, my problem is they cant actually find a vein to start with. Usually once they actually get the needle into a vein, it doesnt normally collapse...
I have another blood test monday, appt with haematologist tues, rheumatologist 23rd june, haemy again 24th june...hmmmmm something like that...oh and GP on 19th june...lol

Oluwa
05-30-2009, 05:47 AM
Monique...I don't know of the specific draw name..but they use the veins on the top of my hands. Maybe that might be an option for you...

And yes, keep yourself well hydrated...

Love,
O.

Monique89
05-30-2009, 08:50 PM
Hi Oluwa :)
They usuallu do use the vein on my right hand, the problem is, they cant get enough blood out of it when they need to do bigger tests....
Funny the hydration thing, they used to tell me 'oh you dont drink enough', when i always did. One day, i drank so much water it wasnt funny, and they still couldnt find them. At last they believed me when i said its not because of dehydration! lol
Thanks everyone, im feeling better today. I think the prednisolone is majorly altering my moods, im so up and down at the moment...

Rastagirl
05-30-2009, 09:11 PM
Hi Oluwa :)
They usuallu do use the vein on my right hand, the problem is, they cant get enough blood out of it when they need to do bigger tests....
Funny the hydration thing, they used to tell me 'oh you dont drink enough', when i always did. One day, i drank so much water it wasnt funny, and they still couldnt find them. At last they believed me when i said its not because of dehydration! lol
Thanks everyone, im feeling better today. I think the prednisolone is majorly altering my moods, im so up and down at the moment...

Yep....Prednisolone will do that for sure. Pretty frustrating....I hate the rollercoaster...up one minute....down the next....hey were heading back up again.

Sorry you're going through this, Monique. One of those times you've just got to roll with the punches....or the moods in this case.

Sending you understanding, been there, done that...HUGS :hug:

I have been on steroids for years....I guess you might call me the Steroid Queen. I'm pretty sure I could write a book on the subject. :) Not that anyone would want to read it, though. It would be full of bitchin' and moanin'.

Fondly,

:cool2: Lori

Pk
06-03-2009, 03:46 PM
You can ask your doctors to coordinate blood draws. If one wants to draw blood and you know you have upcoming appointments. Ask for the order and get them done through your PCP's office. That way the PCP can coordinate who needs what ...and will get a copy themself and know what is going on with you. (because while specialists are supposed to let PCP's know what is going on, they tend to either leave off pertinent information or just not do it)

Allow your PCP to act as a gatekeeper.

mountaindreamer
06-03-2009, 08:39 PM
hi pk,

thanks for the great information....hope you are doing ok.

abbasgirl
06-03-2009, 10:43 PM
You can ask your doctors to coordinate blood draws. If one wants to draw blood and you know you have upcoming appointments. Ask for the order and get them done through your PCP's office. That way the PCP can coordinate who needs what ...and will get a copy themself and know what is going on with you. (because while specialists are supposed to let PCP's know what is going on, they tend to either leave off pertinent information or just not do it)

Allow your PCP to act as a gatekeeper.


That is such a great idea!

Monique89
06-03-2009, 11:17 PM
Just one question...what is a PCP?

mountaindreamer
06-04-2009, 05:01 AM
pcp is primary care physician.

Monique89
06-04-2009, 09:32 PM
ahh ok, so what we just call a GP (general practitioner)...
Different names for the same thing in different places hey...