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wrightrs
04-28-2009, 12:15 PM
I've been having a problem especially when I first wake up, my skin is cold and clammy and moist. This is the best way I can describe it. Also my heart has been racing. Then there something else that happens. Every once in a while I feel like I blackout briefly. I go to my PCP tomorrow. And next week to my rheumy. Please pray That I get some answers.

Rastagirl
04-28-2009, 01:53 PM
That doesn't sound good Becky....I've had the cold clammy skin, but not with racing heart....and blackout periods. That's something that definitely needs checking out. Good to know you're seeing your doctor tomorrow. Take it easy till then. If your heart is still racing and you black out anymore, I'd suggest calling your PCP today and see what he says. He may want you to head to the ER.

I'll be praying for you...sending you hugs of caring concern.... :hug:

Fondly,

Lori :cool2:

wrightrs
04-28-2009, 02:43 PM
That doesn't sound good Becky....I've had the cold clammy skin, but not with racing heart....and blackout periods. That's something that definitely needs checking out. Good to know you're seeing your doctor tomorrow. Take it easy till then. If your heart is still racing and you black out anymore, I'd suggest calling your PCP today and see what he says. He may want you to head to the ER.

I'll be praying for you...sending you hugs of caring concern.... :hug:

Fondly,

Lori :cool2:


Thanks Lori that is so sweet. I dread telling the doctor tomorrow because, I don't want to end up in the hospital. I was hopeing this would just go away. So haven't done any thing. Their are several things that could be causing this. I have PH, DVT, Sleep apnea, heart problem. :hug:

Rastagirl
04-28-2009, 02:56 PM
I totally understand the not wanting to tell the doc cuz you'll end up in the hospital. Been there....done that...many times. I can't count how many times I'd sit on the end of my bed crying and telling my husband I don't want to call the doctor...I'm just going to end up in the hospital...the last place on earth I wanna be. That's one of the things that I hated most about this illness...all the damn things that could end me up in the hospital. Hospital's suck, except for the 'getting you better part'. That's where I've had some of my lonliest moments with Lupus....after all your family and friends go home...and you're stuck there feeling awful.

I'll say a prayer for you....hopefully this will be something they can fix outside the hospital.

Hang in there and try not to stress yourself too much. I know....easier said than done. But you don't need to be flaring on top of this. Rest today and save up some energy for the doctor visit tomorrow.

Sending you a bunch more hugs >>>>>>> :hug:

Lori :heart:

MicRoMediC
04-28-2009, 04:33 PM
I agree with Rastagirl. I know you're praying it's nothing but it could be something. You only have one heart, take care of it! It's definitely good you're going to your PCP but if it continues tonight and if you're that worried about it, GO TO THE ER! Thoughts and prayers are with you. I hope everything goes well and it's nothing.

wrightrs
04-28-2009, 05:06 PM
I totally understand the not wanting to tell the doc cuz you'll end up in the hospital. Been there....done that...many times. I can't count how many times I'd sit on the end of my bed crying and telling my husband I don't want to call the doctor...I'm just going to end up in the hospital...the last place on earth I wanna be. That's one of the things that I hated most about this illness...all the damn things that could end me up in the hospital. Hospital's suck, except for the 'getting you better part'. That's where I've had some of my loneliest moments with Lupus....after all your family and friends go home...and you're stuck there feeling awful.

I'll say a prayer for you....hopefully this will be something they can fix outside the hospital.

Hang in there and try not to stress yourself too much. I know....easier said than done. But you don't need to be flaring on top of this. Rest today and save up some energy for the doctor visit tomorrow.

Sending you a bunch more hugs >>>>>>> :hug:

Lori :heart:


Thanks for you prayers, I'll try not to stress about it. I'll try to wait and see what happens tomorrow. One thing thats keeping my mind of of it right now is. I can't find my ins. card. Just got a new one last month and don't know where I put it.

:hug::hug:

wrightrs
04-28-2009, 05:19 PM
I agree with Rastagirl. I know you're praying it's nothing but it could be something. You only have one heart, take care of it! It's definitely good you're going to your PCP but if it continues tonight and if you're that worried about it, GO TO THE ER! Thoughts and prayers are with you. I hope everything goes well and it's nothing.


Thanks I hope it nothing too. It may just be something from the bug I had last week. It's just so strange. And I noticed that my ankles are swollen too. But they do swell at times and take a diuretic for that.

wrightrs
04-30-2009, 01:21 AM
Went to Doctor he wants me to do some of the heart test again. I told him I wanted to avoid the test because of cost.So he did some blood work. I'm suppose to call back next week.

gina
04-30-2009, 04:35 AM
I will add you to my list of nightly prayers.
I hope you get some answers, i know it stinks not knowing. i only wake up sometimes being sweaty just around back of neck, and everywhere else dry and sometimes cold. but i think yours sounds different.:flowers1:

Oluwa
04-30-2009, 05:44 AM
Becky...

Anti-inflammatories are one possibility of edema, prednisone too or it could heart or kidney involvement. For me, I notice it is the drugs.

Also when taking diuretics...I take Lasix, a loop diurectic that releases the sodium in my blood...do you supplement with a prescription of potassium. Taking diuretics can cause heart racing and palpitations...dizziness, lightheadedess. Did your doctor look into that or do your see any correlation between the two, drug and symptom?

Hope you find the cause and it is easy to fix...

Hugs.
Love,
Oluwa

wrightrs
04-30-2009, 02:12 PM
Becky...

Anti-inflammatories are one possibility of edema, prednisone too or it could heart or kidney involvement. For me, I notice it is the drugs.

Also when taking diuretics...I take Lasix, a loop diuretic that releases the sodium in my blood...do you supplement with a prescription of potassium. Taking diuretics can cause heart racing and palpitations...dizziness, lightheadedness. Did your doctor look into that or do your see any correlation between the two, drug and symptom?

Hope you find the cause and it is easy to fix...

Hugs.
Love,
Oluwa


I take lasix and potassium also. It could be related to that. I think he is checking that with my labs but not sure. I have heart problem's. I have been wondering about my kidney's for a while. Because I have foam in my urine. My labs show protein. But when I do the 24 hour test. It comes back normal. My doctor tell me my kidneys are fine. I would like to see a Nephrologist. But been unable to get a referral. My doctor asked me if I change any meds. I chaged 1 med a few month ago. I was taking naproxen and changed to mobic. I'm going to change back to naproxen because mobic hasn't helped with joint pain all.

I am going to volunteer at the walk for lupus in Charlotte on Saturday because I can't walk. My husbands walking. I hope I make it though that day since I'm not feeling well.

Thank so much. and hugs back.:laugh:

wrightrs
04-30-2009, 02:17 PM
I will add you to my list of nightly prayers.
I hope you get some answers, i know it stinks not knowing. i only wake up sometimes being sweaty just around back of neck, and everywhere else dry and sometimes cold. but i think yours sounds different.:flowers1:


Thanks so much for your prayers. That is so sweet of you. hugs:yes:

wrightrs
05-01-2009, 12:30 AM
Thanks so much

Angel Oliver
05-01-2009, 02:21 AM
Hi Becky,

How you feeling today? Hope you are ok.xxxxxxxxxxxxxxxxx

gina
05-01-2009, 05:47 AM
Have you seen a urilogist? maybe the doc will give you referral for them. my doc making me go to one, i have protein in urnine every test, now have kidney stone since jan. hasn't past. going to do labs again next week to see if folic acid is up since taking pills. go to uri in june cause of money. you should push your doc for a referral will make your mind at ease, tell he shouldn't care if you go you just want a peace of mind.
good luck have great day:yes:

wrightrs
05-01-2009, 09:19 AM
Have you seen a urilogist? maybe the doc will give you referral for them. my doc making me go to one, i have protein in urnine every test, now have kidney stone since jan. hasn't past. going to do labs again next week to see if folic acid is up since taking pills. go to uri in june cause of money. you should push your doc for a referral will make your mind at ease, tell he shouldn't care if you go you just want a peace of mind.
good luck have great day:yes:


Yes I have a urologist. But I get so frustrated going there because I make a appointment with the Dr., and when I get there I never see a Dr. They always have a Physician Assistant see me. I've been there serval times. And never seen the Doctor yet. I've even told them I wanted to see the doctor when I made my app. But got there and still didn't see the doctor. I think I might go to my Mother Urol but it's a long ways off. Thank so much. hugs

wrightrs
05-01-2009, 09:34 AM
Hi Becky,

How you feeling today? Hope you are ok.xxxxxxxxxxxxxxxxx


I still have problems. I hope I find out something from my labs. I have to take Cheddar to the vet Saturday for his shots. Then at 3:30 tomorrow, I go to the lupus walk. I'm not walking because I can't walk. I'm volunteering. My husbands going to walk. I had been looking forward to It. But now don't feel like it. But going to go anyway.

AyahsClan
05-02-2009, 02:06 PM
Just wanted to pop in to tell you I have been following this. I feel so bad that you can't have the tests you need.

Praying for you,

wrightrs
05-08-2009, 09:51 AM
Got real sick last night. It was Gorey so I won't go into details. My joints hurt worse then they ever have. Still having the heart,blackout problem. and clamminess. I'm also very swollen I was thinking about going to ER. Then my husband called he was upset, because they had a meeting at his job today. They told them they was cutting every body's pay at the company. That comes as a shock because at the first of the week we were talking about how things had picked up. So when my husband called, I couldn't tell how bad I'm feeling. He has enough to worry about. I'm really sacred and hurting. I can't go to ER or have test things are really tight

Sorry to unload on everybody like this. I just do a lot of fun stuff on my computer to try to keep my mind off of everything.

Please pray for me because that's all I have to count on right now.

wrightrs
05-08-2009, 09:59 AM
Got real sick last night. It was Gorey, so I won't go into details. My joints hurt worse then they ever have. Still having the heart,blackout problem. and clamminess. I'm also swelling a lot. Laying in bed to keep my feet up. I was thinking about going to ER. Then by husband called he was upset, because they had a meeting at his job today. They told them they was cutting every body's pay at the company. That comes as a shock because at the first of the week we were talking about how things had picked up. So when my husband called, I couldn't tell how bad I'm feeling. He has enough to worry about. I'm really sacred and hurting. I can't go to ER or have test, things are really tight

Sorry to unload on everybody like this. I just do a lot of fun stuff on my computer to try to keep my mind off of everything.
.
Please pray for me because that's all I have to count on right now.

Saysusie
05-09-2009, 09:54 AM
I am so sorry that you are having these difficulties that sound so serious. Are you sure that you don't want to go to the ER? I'm sure if you discussed it with your husband that he would understand.
Whatever you decide, please know that we are with you and you are in our prayers!

Peace and Blessings
Namaste
Saysusie

wrightrs
05-09-2009, 09:26 PM
Just wanted to pop in to tell you I have been following this. I feel so bad that you can't have the tests you need.

Praying for you,


Thanks, your right about blip too. I does help. Keep your mind off of old Lupie.

wrightrs
05-09-2009, 09:49 PM
I am so sorry that you are having these difficulties that sound so serious. Are you sure that you don't want to go to the ER? I'm sure if you discussed it with your husband that he would understand.
Whatever you decide, please know that we are with you and you are in our prayers!

Peace and Blessings
Namaste
Saysusie



I have talked to my husband about it a little now. He thinks I need to do something. I go rheumy Tuesday. I will try to hold til then. My PCP wants me to stop coffee. I had stopped it for a year. But started back. I needed more energy. But It's bad for my heart. Thank so much for your prayer. It means so
much.

Saysusie
05-10-2009, 07:59 AM
Please let us know how your app't on Tuesday goes. I am glad that you decided to discuss this with your husband.

Take Care and keep us posted!

Peace and Blessings
Namaste
Saysusie

wrightrs
05-13-2009, 07:23 AM
So frustrated. My rheumy didn't listen to me at all at my appointment yesterday. I kept trying to tell him how bad I was feeling. He paid no attention. He was only in there 3 mins. I don't think he liked it my PCP changed me back to Naproxen. I was taking mobic. I told him I felt better when I took naproxen. I tried to tell him. I had a lot of foam in my urine. I also tried telling him about my heart and my skin feeling clammy. I tried to tell how I hurt all over. I think he got mad at me, because I have aways had my appointments every 3 months and he told me to come back in a year. I'm going to look for another rheumy. But I feed bad about It, because he was the one that diagnosed my lupus. I feel awful today. My going to try to rest and relax today.

Saysusie
05-13-2009, 11:20 AM
I am so sorry, after all that, your appointment went badly and your doctor did not listen to you. So, nothing productive was accomplished.
Yes, I think that it is a good idea for you to find another doctor. But, think about letting this doctor know why you are not satisfied with him. Do you belong to an HMO? If so, there should be some type of member services department where you can make a complaint about your doctor and ask to be transferred to another. He should know how his actions (or lack of actions) have affected you - both physically and emotionally!!!

I wish you the best and I hope that you find a competent, caring doctor.

Peace and Blessings
Namaste
Saysusie

wrightrs
05-13-2009, 02:36 PM
Saysusie, I go to a PPO. I don't have much courage to speck up for myself. But if I'm pushed to a certain point, I will speck up. I guess I going to have to muster up some!!!

wrightrs
05-14-2009, 02:28 PM
I'm going back to doctor in the morning. Angel wrote me messages til I got the courage to call back. Plus everybody here was giving me tips on what to do.

I don't think things are going to go well. He doesn't like it I'm coming back.
He told the person that called me to tell me he didn't think this is Lupus related but he would see me anyway.

So I guess he thinks it's in my head.

:hissyfit::cry2::5::mad3:

Saysusie
05-15-2009, 09:48 AM
How did it go? I wish that I could go to your appointment with you! I have NO PROBLEM talking to doctors (or anyone). I've been known to curse judges out for thinking that they can speak to me like I'm an idiot!! NO ONE has the right to dismiss you, demean you or to be disrespectful to you. Just because a doctor went to school doesn't make him/her any more deserving of respect than a person who has no education at all. Are we all not a part of the human race? Our position or our education does not make us a different species....therefore we are all within our rights to stand up for our rights!
Sorry...I'm ranting! Anyway, please tell us how your appointment went and if he was willing to listen to you and to take you seriously!

Peace and Blessings
Namaste
Saysusie

TobyJug
05-15-2009, 10:07 AM
hope u feeling well soon...

hugs x

abbasgirl
05-15-2009, 10:27 AM
I'm just now catching up and wanted to let you know I'm praying about this situation too and I'm so sorry for what you're going through. I wish we could all go to your appt with you!

I just fired my primary this month and last year I fired two rheumys.

((((HUGS))))

wrightrs
05-17-2009, 11:16 AM
Saysusie,Well a lot has happen now. I was so nervous to go back. I was shaking. I tried to do the things Angel said helped her when she was in the same situation. You could tell he didn't like it I came back.

It was a complete turn a round. He listened to me. Checked out my joints real good. Sent me for more labs. He also sent be for x rays. I had a lot of x rays. I probably glow in the dark now. I Know they x rayed my back, spine and hips. Not sure what else. But he still says he don't think it's lupus related. I think he just says that so he don't have to say he don't know what it is.

I also told you before he told me to come back in a year. Well now I go back in 3 weeks.

I don't have any answers now but at leaset things are going in the right direction. Thanks everybody so much for all your help. I'm so glad I get to come here.Thanks Angel and saysusie, For helping me have the courage, I needed to do this.

Saysusie
05-18-2009, 09:28 AM
Wrightrs;
Bravo to you :thumbs-up:.
I am glad that you went back, that you made him listen and that he is becoming pro-active in your care. Don't back down now, when your results come back, make sure that he explains what each and every one of them means, what the next step in your care will be and what you and he decide about treatment. Also, let him know that each time that you come to see him, you will be coming with your list of symptoms and you list of questions and that you expect him to listen to both and to act on both!

You Go Girl!!! PROUD OF YOU!!!

Peace and Blessings
Namaste
Saysusie

wrightrs
05-18-2009, 10:11 AM
Wrightrs;
Bravo to you :thumbs-up:.
I am glad that you went back, that you made him listen and that he is becoming pro-active in your care. Don't back down now, when your results come back, make sure that he explains what each and every one of them means, what the next step in your care will be and what you and he decide about treatment. Also, let him know that each time that you come to see him, you will be coming with your list of symptoms and you list of questions and that you expect him to listen to both and to act on both!

You Go Girl!!! PROUD OF YOU!!!

Peace and Blessings
Namaste
Saysusie



Thanks Saysusie, I'm still nervous from all that. I give them to much power over me. I get so intimidated by them. I need to start keeping a better list also. And be more prepared when I go. Thank for all your help.

Angel Oliver
05-18-2009, 10:36 AM
Oh i knew you could do it...WELL DONE!!!!!

I bet you feel like a weight has been lifted from your shoulders.What a difference it makes when you talk talk talk at them...giving them NO choice but to hear you....so proud of you.And so happy you are now getting the help and appointments sooner.Oh well done my friend.Together...we'll show em!!! So happy for you!!

lots of love
Amanda.xxxxxx

wrightrs
05-18-2009, 10:55 AM
Oh i knew you could do it...WELL DONE!!!!!

I bet you feel like a weight has been lifted from your shoulders.What a difference it makes when you talk talk talk at them...giving them NO choice but to hear you....so proud of you.And so happy you are now getting the help and appointments sooner.Oh well done my friend.Together...we'll show em!!! So happy for you!!

lots of love
Amanda.xxxxxx



Thanks I wouldn't have called if I didn't have you encouraging me. I was so nervous. I didn't think it would go well at all. I had pictures in my mind of him being so rude to me.

;):wink::-):thumbs-up:

Angel Oliver
05-18-2009, 11:02 AM
Like i said...i was too....but a bit of lipgloss and a good professional look and a big non stop mouth did it for me....so why not anyone else.I got so sick...wanted to give up.....i got mad....then even.Now the doctors are listening to both of us and helping us .Well done..im so proud.xxxxxxxxxx

wrightrs
05-18-2009, 11:39 AM
:hissyfit::no::wacko::notworthy:
Like i said...i was too....but a bit of lipgloss and a good professional look and a big non stop mouth did it for me....so why not anyone else.I got so sick...wanted to give up.....i got mad....then even.Now the doctors are listening to both of us and helping us .Well done..im so proud.xxxxxxxxxx


I'm starting to get ready for the next appointment now. He's not going to know what hit him. One of his biggest problems is his good looks. First time I saw him I though. Dr. McSteamy. But his rudeness makes him look ugly to me now. He's not your typical doctor in the looks department and he knows it.
Very arrogant !!!

wrightrs
05-21-2009, 11:39 AM
Still not feeling well but headed to the beach !!!!!
:6::6::6::6:

froggal
05-21-2009, 11:40 PM
Becky have fun at the beach!!! That is my favorite place in the whole entire world!! I hope it makes you feel better!

Saysusie
05-22-2009, 10:33 AM
Enjoy your day at the beach...you deserve to have a fun day just doing what you want to do. Take Care!!:arms:

Peace and Blessings
Namaste
Saysusie

Angel Oliver
05-22-2009, 12:20 PM
Oh how nice......have a fab time at the beach and make some sand castles.

love
Amanda.xxxxxxxx

wrightrs
06-01-2009, 10:59 AM
Thanks everybody. I had a great time at the beach. When we got back Went to niece's wedding. It was so lovely.

Also when I got back had a note from my rheumy. That my x rays showed that I had Arthritis in my spine. I guess that explains all the back pain and popping. He wrote me a prescription for something not sure what it is. I haven't filled it yet. My labs didn't show anything, so I don't have any answers for my other problems. So I going to keep up with my symptoms. I go back to docter soon.

dsunshine
06-01-2009, 04:00 PM
Sorry to hear how you are feeling...I will add you to my prayer list! Feel better soon!

wrightrs
06-02-2009, 08:30 AM
Sorry to hear how you are feeling...I will add you to my prayer list! Feel better soon!

Thanks so much for your prayers !!!!

KATROACH1972
06-02-2009, 09:55 AM
Just wanted to give you {{biggggggggggggggggggggg huggggggggggggggggggg!}}} I am heading to Abilene for vacation tomorow! So I will have try to stay kewl! Have a great day! Friend Kathy

wrightrs
06-04-2009, 01:34 PM
I go back to rheumy tomorrow. I'm so nervous. I hope he will check into my other problems more. I think since he found the spine problem. He will just deal with that and forget the rest. I'm more worried about my other problems.