PDA

View Full Version : new here but had it for 30 years



richie
04-23-2009, 06:07 PM
hi im a 47 year old man with lupus.Igot it when I was 17.I went to N.I.H. and was the first to try cytoxin.well I guess it knocked it out of my kidneys.and the years that followed I went into remission.i still get tired and I stay out of the sun even though I live in florida.in the last year I developed kerotoderma on my hands and feet.i wonder if anyone else has it and if it really is lupus related.

rob
04-23-2009, 06:56 PM
Hi Richie,

I'm 41 and was diagnosed with SLE five years ago. It's always good to see other men here. we are few and far between. Welcome to our group!

Rob

Saysusie
04-25-2009, 10:19 PM
Hello and Welcome Richie:yes:
I've not heard too much about the connection between Lupus and Kerotoderma. I tried to do some research on the connection and found nothing:grumpy:
Perhaps someone else with the condition will post and be able to give you some information or advice.
In the meantime, I want to make sure that I welcome you to our family and that you know that you are not alone. Also, there is a "Men's forum" here where you can meet and talk with other men who also suffer from Lupus as well as some overlapping diseases! You've already met our moderator, Rob. He is a wealth of information and a very compassionate and understanding member!

Again...Welcome
Peace and Blessings
Namaste
Saysusie

Angel Oliver
04-26-2009, 05:02 AM
Just to say hi and welcome.Sorry im not sure either but just hang in there as im sure someone might know and post here for you soon.

love
Angel.xxxxxxxxx

mountaindreamer
04-26-2009, 01:47 PM
hi richie,

hi and welcome to our little family of the sky. I can't help either with your question, sorry, but i am glad you are here.

Oluwa
05-19-2009, 08:11 PM
Hi Richie....

Welcoming you with a tight hug...

I didn't find much either regarding the connection....

http://lup.sagepub.com/cgi/content/abstract/10/9/650

Look at the table.... http://dermnetnz.org/scaly/acquired-keratoderma.html

This site list different types of keratoderma and what disease, syndromes they associated with....

http://www.answers.com/topic/keratoderma

Keep looking for you wellness and happiness.
Love,
Oluwa

Rastagirl
05-19-2009, 09:01 PM
Hi Richie :wavey:

Just wanted to welcome you....glad you joined us.

I'm Lori...I'm 45 and was diagnosed at age 18. Sounds pretty similar. Sorry to hear you've had to fight this battle with kidney involvement...but definitely happy to hear about your remission. I've been blessed to be in remission for about 15 years.

You'll find plenty of understanding and support from the members here. There's always someone around to help you find answers to your questions and offer encouragement. Make yourself at home.

Fondly,

:cool2: Lori