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View Full Version : A Doctor realises i was right and WAS in pain!



Angel Oliver
04-22-2009, 11:47 AM
Well this morning went to the chest clinic.Breathing bit lower than it should be,but the Doctor wanted to change my meds.I told them to leave it a few months as i have just got the breathing and Asthma attacks under control,so i will be reviewed again in 6 months.

Then this afternoon,went to another hospital.This time its the big one.My results of the MRI on the Jaw.
Now let me tell you,ive never seen a Doctor change his whole attitude towards me in my life.But what joy i felt,when he realised after checking the scan....YES I WAS IN PAIN!!!
His whole attitude changed and he treated and spoke to me in a not so cocky attitude. Turns out i need surgery and NOW! Ive been in so much pain as you all know since Christmas.The one hospital on Boxing day, drugged me up and kicked me out saying i needed a Dentist.
I need surgery as my disc in my jaw has moved and its not in the right place.So my Jaw joint has flooded with water. He needs to manipulate my jaw back to where it should be,then inject steriods into both sides of the jaw joint.He also wants me to try a new drug to help with imflamation and pain.Its not yet approved by the nice guidelines as its so new,but he asked if i want it.To be honest ive been in so much pain i'll try anything.We'll discuss it on the day and i can change my mind.But he knows what he's doing,so im sure he would'nt put me at risk.
I have to cotinue with all the pain meds and he said the pain in my neck n swelling should hopefully then calm down or even go away.
I'll only be in a day,but i thought he'd say in the next few months.NO WAY...he said its urgent and wants me to have it done in a week or 2.
Oh the joy im going to have when the complaints panel hear about this.They just left me sat in my nightclothes,drugged up and in so much pain and said see a dentist,cause they could'nt be bothered.Im even more angry with them now.
I am terrified but wont think about it until i get the phone call.They'll just call any day then im in the next day. I know i'll not be able to eat or talk properly....so im getting in all my chocolate while i can :)

So glad i now know.He also asked if all my other joints were troubling me...YESSSSSSSSSSSSSSSSSSSS IVE BEEN TELLING DOCTORS THIS FOR YEARS!!!!!!!! So now...lets hope./..this may mean the M.E Doctor may believe me now.
Thats it you see.....if you have depression and anxiety...everything after that diagnosis is ''its all in your head''.And how wrong they were!!!
I felt like doing this as i walked out today.......>:nana::moon:but i was good and didnt :)

Love and relief
Angel.xxxxxxx

wrightrs
04-22-2009, 12:27 PM
I'm so glad you finally got your answers. And after your surgery you will be pain free. I'm glad they are also listening to your other concerns. Wish doctors wasn't such a pain!!!!

rob
04-22-2009, 12:28 PM
I'm sorry you need to go in for surgery, but I sure am glad you know what the problem is, and that you are finally be taken seriously. It's going to be scary, but I'll bet you'll feel so much better after it's done. You know I flirted with a problem like yours last year. I've had bad tmj problems. Thankfully it's calmed down. Just remember, you stared down the MRI machine and won, so you can handle this too. I'm just glad you have an answer and a solution.

Rob

Angel Oliver
04-22-2009, 12:44 PM
Hi wrights and Rob,

Thanks for your replies. Yes im so glad i know now.He said he would'nt know for sure until he manipulates my jaw, the complete problem.I did this without pain killers at Christmas 3 times,so am so glad i'll be asleep. I am worried though that after....im in more pain.He did tell me they used to open up the jaw and operate that way.But now they dont as th ligaments are different in your jaw to the rest you have in your body.Aint got a clue what he was saying,but just nodded lol. So hes manipulating the jaw,then injecting meds into the both sides of my jaw.It took 2 months really last time just to be able to yawn.He told me today DONT YAWN :) He said it will lock.So what have i been doing all night? Yes...saying the word yawn and yawning...allot.
The Chronic fatigue doctor who diagnosed me with Lupus is in this same hospital.He seemed focused on my joints in my body.So im hoping he speaks to that Doctor so he then will also take me serious.
What you have to do hey to prove you hurt!
Anyway, hope you both are ok today and have coped with another day just fine.Thanks so much for your support.
love
Angel.xxxxxxxx

wrightrs
04-22-2009, 05:39 PM
Thanks Angel, I need a Chronic Fatigue doctor. I wonder if we have them here.

Hope your doctors will listen to you!!! Your off to a better start!!! So sorry you can't yawn. That would be hard. Are any of your meds helping with the pain!!!

mountaindreamer
04-22-2009, 05:41 PM
outstanding, Angel

hopefully this all means that you will be treated differently (with the respect that you deserve) by these drs. and their staff. Sounds like you at least have this M.E. who is sympathetic to your situation, so maybe he can be your team leader....why don't you try asking him if he will help you get past the bad treatment elsewhere....i bet you don't have to worry about him having a bad attitude anymore...sounds like he is now on your side.

sorry you have to go through surgery....i am mostly afraid of the pain afterward myself...

hope you are having another good night's sleep....you have certainly earned it.

froggal
04-22-2009, 11:24 PM
Oh Angel what a relief that must be to just know that you can look the doc in the face and say "I told you so!" I am so happy that they are figuring this out! God bless you. You have been thru SO much. Hang in there sweetie, Relief is coming, I just know it!

Rastagirl
04-22-2009, 11:39 PM
Oh Angel...I'm so happy to read this post! How happy you must be that they've finally figured out what's been causing you such pain. I'm just so sorry that it's taken this much stress and suffering, and miserable doctor appointments, for you to reach this point.

But now they'll be able to provide some relief. I know that surgery...any surgery...is frightening, but it's going to be so much better when they can do this while you're asleep. I had a surgery on my vocal cords once, and the ENT injected both of my vocal cords with Cortisone and it helped me a huge amount, with pain and inflammation. It was amazing.

And remember that after the surgery is over, they'll take good care of you and make sure you have proper pain meds to stay on top of the pain. And that's what you need to remember to do...something I've learned going through all my different surgeries, is that you'll feel so much better recovering if you make sure to use your pain meds the right way and take them as often as the doctor prescribes, right on schedule, so the pain doesn't have a chance to come back full force, at least at first, for the first few days following the surgery. And just make sure you follow all their instructions, like resting and if they tell you to use ice packs on your jaw, or sleep with your head elevated, whatever it is they tell you to do, be sure you follow their instructions. I've found with surgeries that I recover so much quicker when I follow their instructions to a T.

I'm looking forward to the day when you can tell us that your jaw pain is so much better and you can finally eat properly again...and yawn...and sing...and yell at the neighbors (oh, wait, that's me) :) ...scratch the neighbor yelling. :veryhappy:

You just take good care of yourself now and get ready for this surgery that is going to make things much better for you. Try your best to get what sleep you can over the days leading up to the surgery, and stay on top of the breathing and asthma issues so that doesn't affect you having surgery.

I'll be praying for a sense of peace for you concerning the upcoming surgery....and waiting for the day when you can tell us how wonderful you're feeling.

Hugs n all that good stuff...cuz you're our Angel!

Love,

Lori :heart:

Pretti in Pink
04-23-2009, 05:55 AM
Relief is on the way... thank GOD!

gina
04-23-2009, 06:08 AM
Angel, i am so happy for you to know you were right. makes you feel great i know.

if you get sick from being put to sleep they have a drug you can get before being put to sleep so you won't get sick. i get it all the time nothing like being dopey and getting sick so i learn the first time and never take a chance.

lets us know when you go so we can keep you in our thoughts.
:laugh:

Oluwa
04-23-2009, 06:22 AM
Well, where have been..I miss so many posts. I must not be doing something right or something is missing....

A.O....What a bitter sweet ending, beginning...I am so elated you found the care you need. It is so hard, being in pain and agony and feeling like is it really all in my head...frustrating to say the least. That in itself is so mind bending that it creates anxieties, depression. I am so sorry you had to go through all that stuff to get to point B...care. Shame how we have to arm wrestle the doctors for care...like it is costing them something out of their own pockets...

Girl...keep up the courage...face your fears and they will unravel. Be relentless, persistence even when you feel beaten...

It is hard not to think about days gone past, the anger...but those feeling only consume us, time wasted....time that we will never get back.

I am so happy you are finally being heard....head hugs.

Love,
Oluwa

Saysusie
04-23-2009, 06:24 AM
Angel;
I am so so happy that your doctor finally came around and that, hopefully, you will be treated for these symptoms! I'm sorry to hear that you need surgery, but hopefully it will resolve some issues also.
It is so wonderful to FINALLY have a doctor who believes you!!

Peace and Blessings
Namaste
Saysusie

wrightrs
04-23-2009, 06:51 AM
Angel, hope you don't mind the bold print but this help me see. I can't hardly see the fine print and my eyes are getting tired.

Hope your meds are helping you feel better til you get your surgery. Hope you had a good night sleep and feel rested. So you can enjoy your yard and pets fresh air.

Angel Oliver
04-23-2009, 11:03 AM
Oh thanks so much for such lovely posts. It feels so good to know i wasnt doing it for attention and now they can help me.I have found though since having depression and anxiety....this must be flashing in bright lights at the top of my medical records....therefore everything and anything must be down to that.And its not and so very unfair of them to assume this.
Just waiting for the call now,so eating a good supply of chocolate as i might not be able to open my jaw wide enough.....how cruel that was at christmas.Not now though...eating an easter egg and mini egg...mmmmmmmm what pain.mmmmmmm:)

Oluwa
04-23-2009, 12:07 PM
Are your toes curling while you eat you chocolate, girl? Mine does when I do...

A.O. I could go to my local drug store and see if they have any seasonal Christmas candy still on sale...the 75% off stuff...

Enjoy the chocolate. I have been monitoring my intake...I am eating none...ugh. I ate my quota for the summer...when I am ready to hibernate for the winter I will put on my winter fat with chocolate. Sees candies...oh, such wonderful hand dipped chocolates. My friend keeps saying he is going to send me 5 pounds for my birthday..

He would sabotage my diet..I have no control, only when it is out of sight...

Happier days are ahead for you...pain relief is on its way...

Much Love,
Oluwa

Angel Oliver
04-23-2009, 12:48 PM
Mmmm Oluwa yes i do like my chocolate.But i too need to loose a few tyres ive accumulated over the past weeks.I think chocolate is my anti depressant mmmmm except its so tasty. Good luck for you Oluwa staying away from it.I can do it,i miss it but i'll start soon.I think when i go in hospital thats my que.Need to get back to 9 n arf stone again to feel comfy.
Hey but Oluwa,you are allowed the odd chocolate,does you good as well you know!So when your friend comes with choccys eat one or two!!!
Yes one of many problems finally sorted.So next i need body relief from pain.Lets hope the rheumi listens to my jaw specialist,as he knows i have a problem now.Hope you are having a good day and pain free.Over n out~~~

lucky7
04-23-2009, 01:55 PM
AWWWWWW, Its BITTERSWEET my dear Angel! Yes something IS wrong, so IN YOUR FACE DOCTORS!!! LOL Sorry you have to get surgery, poor thing! It is nice though when you can say "TOLD YOU SO, HAHAHA"! :banana:Pleas keep us informed and im here for you as you well know!
:cute:

Angel Oliver
04-23-2009, 01:59 PM
A part of me was waiting for him to say...'no all is clear on the mri' but he didnt.Im worried but also glad...cause i know my body and it HURTS! :):yikes:

lucky7
04-23-2009, 02:01 PM
They always say Amanda, WE KNOW OUR BODIES BEST so we HAVE to listen when its screaming out to us:yikes:

Angel Oliver
04-23-2009, 04:03 PM
Oh that:yikes::yikes::yikes: makes me chuckle so much......its me! :)

mountaindreamer
04-23-2009, 06:00 PM
hi angel,

I hope you are sleeping now. But, i do hope your day was light on your pain and discomfort...sounds like the chocolate was working.

even if the depression and anxiety are at the top of your chart, the most recent stuff is at the bottom...and that is all that matters. This is just proof that when you first started with the drs., their first impression was that stuff.....the latest entries in your records prove that they were wrong....so it supports your complaint about your treatment.....so there you go, girl. you did a great job so keep patting yourself on the back and just smirk at the records.

Angel Oliver
04-25-2009, 07:36 AM
Oh thanks Phyllis and everyone!

I have to go for a Silogram on tuesday....OUCH! They inject all your silava glands with dye and take an xray. I think mine maybe blocked which will explain the pain there.
Then i go to the hospital again for a pre op apointment. Then i have the operation to put my disc back where it should be and crack my jaw back in to place,then inject both jaw joints with fun stuff.So eating all the fine foods as i know....my jaw wont be opening properly for a while.So i can diet during this time.
Like Rob, the dentists or anything to do with my mouth....this is my worst nightmare come true. After all this is done....they will have to refile quite a few teeth,as they have been filed to suit where my jaw is now.When my jaw goes back to where it should be....you will hear over the oceans strange noises....OUCH OUCH EFFIN OUCH....yes it will be me :)

mountaindreamer
04-26-2009, 02:14 PM
hi angel,

has your surgery been scheduled?

Angel Oliver
04-27-2009, 04:58 AM
Hi Phyllis,

Thinking of you and your op and sending you lots of good vibes my friend.Thanks for asking about me.....tomorrow at 1pm i go for a pre op appointment.Then at 3pm i go for a silogram.They have to insert tiny tubes into my silava glands and put dye in then i get an xray to see if any stones or blockages.This could be why the swelling and pain i get. I know after it will start all my pain again though.When i open my mouth for more than a few seconds it all starts.So not looking forward to it.
I then go for my op next Tuesday 5th May. I am a bit worried in case it makes it all worse,but then relieved as it could make it all better. So fingers crossed.
If i go missing....its cause im swelled n in pain,but i'll be fine.But i'll be thinking of you all the way and hoping its all done soon for you and you feel so much better.


love
Amanda.xxxx

wrightrs
04-27-2009, 06:14 AM
Hi Phyllis,

Thinking of you and your op and sending you lots of good vibes my friend.Thanks for asking about me.....tomorrow at 1pm i go for a pre op appointment.Then at 3pm i go for a silogram.They have to insert tiny tubes into my silava glands and put dye in then i get an xray to see if any stones or blockages.This could be why the swelling and pain i get. I know after it will start all my pain again though.When i open my mouth for more than a few seconds it all starts.So not looking forward to it.
I then go for my op next Tuesday 5th May. I am a bit worried in case it makes it all worse,but then relieved as it could make it all better. So fingers crossed.
If i go missing....its cause im swelled n in pain,but i'll be fine.But i'll be thinking of you all the way and hoping its all done soon for you and you feel so much better.


love
Amanda.xxxx





Angel & Phyllis, I will be praying for you both. Hope you both are able to rest. And feeling well.

Angel Oliver
04-27-2009, 08:06 AM
Ah thanks Becky....mines not as important as Phyllis! xxxx

wrightrs
04-27-2009, 09:22 AM
Ah thanks Becky....mines not as important as Phyllis! xxxx




Your important too!!!!!

Angel Oliver
05-03-2009, 03:18 AM
Oh its getting nearer to the op on Tuesday. Keep wondering if i'll be able to eat ok afterwards. So just in case, ive been naughty and eating plenty of chocolate. To be honest i needed an excuse to stop eating as much,so in a way its a blessing.
xxxx

Grime
05-03-2009, 06:15 AM
Angel,
I can't come an visit you during the hospital stay. Rest assure that I am there in spirit acting like the class clown to cheer you up.

Angel Oliver
05-03-2009, 06:21 AM
Ah thanks David.xxxx

mountaindreamer
05-03-2009, 09:07 AM
hi angel,

you will be number one in my heart on tuesday (actually late monday night here). I thank you for everything, and enjoy every minute we share. You enjoy your chocolates, rest after surgery, and be proud of what you have accomplished in just the past few months. Sleep with a giant smile on your face, and we will see you soon.

I was so worried that my surgery would cause my immune system to go crazy, but i am really doing pretty good. Recovery is probably slower than for others, but i am not in bed....and i consider that a good thing.

So, hopefully you will get the same results and can quickly begin to recover, and to ultimately become pain free...hooray, we will have a giant celebration.

Angel Oliver
05-03-2009, 11:39 AM
Oh Thanks Phyllis for your kind words. Im so glad to read you are not bed bound...amazing seen as though you had heart surgery...wow! So happy for you. Think im worried as to begin with i hate the dentist...i have no control once the mouth is open...and it usually hurts.My mind is thinking the worst senario lol....he puts me to sleep.....im wide awake yet look asleep....i can not move to tell them.....they crack my jaw and open the joint and inject.....and i feel it Ahhhhhhhhhhhhhhhhhhhhhhhh. Sometimes i wish i could'nt think :) xx

mountaindreamer
05-03-2009, 03:48 PM
oh angel, no no no

remember, the worst does not have to happen....you tell them before they start that you have a high tolerance to meds because of the lupus meds, then you tell them to make sure you are asleep....they will, cause they don't want you moving while they are working on you.

when the nurses were prepping me for surgery, she asked if i had ever had a cathater...i said yes, and she said she was about to insert one....i told her that i had never been awake when they put it in, so she put me to sleep....when i woke up everything was over....

the medical staff will know if you are out, and i am sure they will take good care of you....remember, they now know that you have been in severe pain.

AyahsClan
05-03-2009, 06:17 PM
Well, where have been..I miss so many posts. I must not be doing something right or something is missing....

A.O....What a bitter sweet ending, beginning...I am so elated you found the care you need. It is so hard, being in pain and agony and feeling like is it really all in my head...frustrating to say the least. That in itself is so mind bending that it creates anxieties, depression. I am so sorry you had to go through all that stuff to get to point B...care. Shame how we have to arm wrestle the doctors for care...like it is costing them something out of their own pockets...

Girl...keep up the courage...face your fears and they will unravel. Be relentless, persistence even when you feel beaten...

It is hard not to think about days gone past, the anger...but those feeling only consume us, time wasted....time that we will never get back.

I am so happy you are finally being heard....head hugs.

Love,
Oluwa

I know me too! I have missed this thread the whole week! I was waiting to find out the results of the MRI all this time lol...

YEAAAAAYYY! I'm so happy they finally are taking you serious and found the problem! Now have to finsh reading this thread I am pages behind.

AyahsClan
05-03-2009, 06:59 PM
{{{{{{{{{{Angel}}}}}}}}}}}

Am sending you thoughts of chocolate kisses and chocolate pudding and chocolate mouse and chocolate truffles and Godiva chocolate liquer and chocolate sauce over chocolate ice cream and hot chocolate and chocolate sorbet and dark chocolate and milk chocolate and white chocolate and German chocolate and a giant chocolate fountain and chocolate bunnies and chocolate fudge that will melt in your sore mouth and chocolate cherries, and chocolate filled cremes, and chocolate cake with 15 layers!

So bittersweet our dear Angel. Happy you have been validated, sorry you will be in hospital for that procedure. It will be so wonderful once you are all healed up!

Love,

Angel Oliver
05-04-2009, 03:52 AM
Ah thanks Phyllis and Ayah.Strange how your mind plays tricks and convinces you of the worst.But all that chocolate talk always makes me feel better.Yes i'll let the nurse know.Thanks for your support as always.xxxxxxx

lucky7
05-04-2009, 01:10 PM
AMANDA, YOU CAN DO IT MY LION!!!!!!!! YOU ARE STRONG!! YOU have PROVEN IT time and again my friend! tHOU SHALT NOT CUT THEMSELVES SHORT!!!! WOO FRIGIN HOO!!!!!!!!!:excited:

Angel Oliver
05-04-2009, 01:13 PM
Oh thanks Jeanette.....stomach keeps turning over like on a rollercoaster :)

AyahsClan
05-04-2009, 01:26 PM
Oh thanks Jeanette.....stomach keeps turning over like on a rollercoaster :)

Oh I hate that feeling! Deep breaths....in through the nose...out through the mouth....

lucky7
05-04-2009, 01:50 PM
Yes, BREATH MY FRIEND BREATH! :cute: Hey, its a proven fact (and ive done it too!) that if you keep your head still and just look up with your eyes it releases indorfins that relax you when you feel stressed! It honestly works too! I do it! Shoot, i have Carl doing it now!!! LOL:laugh:

wrightrs
05-04-2009, 08:32 PM
I'm just seeing this you are in my prayer. Just think about after its all over how easy it will me to eat your chocolates. Hope everything goes smoothly and you will be back soon.

Angel Oliver
05-08-2009, 12:44 PM
Its all over yipeeeeeeeeeeeeee :)

I breathed and starred lol....it worked a little. They left me waiting and stressing for ten hours.
They called me, i put on my gown with my butt cheeks on show to the world lol. Lay on the gerny and they wheeled me what seemed miles. They left me in a room for another hour.
Then the men with hats came in. They wheeled me to another room where 8 men in hats n masks stood staring at me. They didnt look human or have any emotion.Oh except for the anesthetist...who smiled as he remembered i was the mad woman who had begged him to watch for my fingers moving in case the drug didnt send me to sleep....he was so nice. Another man held my hand as he said i was falling asleep....as i frantically told him....im not sleepy and was not asleep......I obviously fell straight to sleep then :)
They manipulated my jaw and injected both jaw joints with steriods and a new drug.
An hour and half later i was awake with a nebuliser and plenty of morphine....so glad it was over. I was in pain,but nothing what i had imagined.The mind hey !
It will take a few days for my swelling to go down and the bruising,but the pain meds are doing a fab job.I carnt open my mouth very wide yet....but i have no trouble in getting a bit of chocolate in it lol....mmmmm. My ears hurt and have to be so itchy.....but they are bruised so will have to wait to be scratched for now.
I seem to be able to open my mouth a little and it does seem a bit straighter....so fingers crossed.Its crunching and creaking but that will settle.
Thanks all of you for your support.You helped me more than you'll ever know.Thank you.
love
Amanda.xxxxxxxxxxxxx

lots of love

wrightrs
05-08-2009, 01:05 PM
Angel, Hope the pain is over soon. So glad you back. I knew you must have been feeling really bad because you haven't been here. Things aren't the same here without you.

Why didn't they give you a bed instead of making you sit in the waiting room so long?

Grime
05-08-2009, 01:05 PM
I've been thinking of you all week. I am so happy everything went great. Now take it easy and heal quickly.

Angel Oliver
05-08-2009, 01:32 PM
Oh thanks David.Hope you and Lisa are keeping ok with Miss froggy. Wrightrs in the UK they make you wait for the fun of it....always forget there is a person inside the patient..they dont care! But so glad its over and im on good meds.xxxxxxxxxThank you.xxxxx

lucky7
05-08-2009, 06:36 PM
SO GLAD you made it through my dear friend:cute: You are always on my mind sweetieXXXXXXXXXXXX

Saysusie
05-09-2009, 09:18 AM
Angel;
Such good news (aside from the procedure and the pain). I am especially happy to hear that you are indulging in chocolate:cute:
I hope that each day gets better and I too hope that the crunching and cracking are gone forever!!

Peace and Blessings
Namaste
Saysusie

Angel Oliver
05-09-2009, 11:47 AM
Oh thanks Saysusie,

And i hope you had a nice break away and feel good and enjoy your weekend.xxxxxxxxxxxxxxxx

rob
05-09-2009, 03:42 PM
I'm so glad this is finally done, and you are doing OK. I left you a visitor message on your page. How are you feeling today? Enjoy those good meds! (and a little chocolate-you've earned it)

Rob

Angel Oliver
05-09-2009, 03:49 PM
Thanks Rob. I have a fruit n nut chocolate bar calling my name now.But its too late so may just taste a little piece...make sure its not gone off hey :) Then save the rest to suck tmrw:yes:. Im doing good thanks.Quite like the swollen look :) x

rob
05-09-2009, 04:24 PM
Is it a Cadbury fruit and nut chocolate bar? We have Cadbuty here and it's my absolute favorite! The roast almond one is good too!

Angel Oliver
05-09-2009, 04:34 PM
OMG YES!!!!! Mmmm whole nut....mmmmm. I have to suck it...then slowly and gently try and crunch the nuts....jaw hurts....but no jaw op will yet stop my chocolate intake. Since they pulled my gold crown out,that was my chewing nut tooth....i forget sometimes and crunch down thinking my crown is still there......OUCH....brings tears to my eyes when i do it. xx

wrightrs
05-09-2009, 09:14 PM
OMG YES!!!!! Mmmm whole nut....mmmmm. I have to suck it...then slowly and gently try and crunch the nuts....jaw hurts....but no jaw op will yet stop my chocolate intake. Since they pulled my gold crown out,that was my chewing nut tooth....i forget sometimes and crunch down thinking my crown is still there......OUCH....brings tears to my eyes when i do it. xx



Angel and Rob you are making me hungry. I don't have any chocolate. But I have my favorite ice cream.

:valentine2::valentine2::valentine2::valentine2:

TobyJug
05-10-2009, 04:14 AM
glad u got a result hun...

chin up.. xxxxxx

Angel Oliver
05-10-2009, 05:05 AM
Thanks TJ and chins swollen :) Looks like i have a huge double chin :)

froggal
05-11-2009, 09:57 AM
Angel, I absolutely think the world of you! You live in so much pain, yet you always have such a fun spirit. I am glad you are finally getting some answers. I just know that things will continue to look up for you. I always include you in my prayers. Thanks for being such a fun person to talk with here!

Angel Oliver
05-11-2009, 01:36 PM
Oh Froggal, i am no different than others here in pain....i just always let people know about it allot :) Thanks for being so kind and caring my friend.Im glad you are back...we missed you.xxxxxxxxx

wrightrs
05-11-2009, 07:16 PM
Angel, Hope your getting better.

Angel Oliver
05-12-2009, 05:23 AM
I am getting better everyday thanks for caring.Hope you are doing good too.xxxxxxxxx

mountaindreamer
05-12-2009, 07:05 AM
angel,

when your jaw feels better, i hope you can smile so big that we can see it accross the ocean. Your confidence is showing, you were not intimidated by the weird looking men in hats and masks, you held hands and went to sleep. now you are awake, you have conquered another obstacle, and you are on the road to feeling better.......hooray for you.

everyday i am thankful for your friendsip.

Angel Oliver
05-12-2009, 11:27 AM
No Phyllis,

Every day im thankful for your friendship and everyone else here.In real life...outside of here....my real friends are too busy to even remember the 'always sick person'...me. Without you id just be lay on my bed...alone and worrying.So im so thankful.

love
Amanda.xxx

lucky7
05-13-2009, 10:30 AM
Yes phyllis, her smile across the ocean!!! I love it!!!:8:

Angel Oliver
05-13-2009, 05:14 PM
When i last saw this man he told me i had |Lupus then told me i hadnt after i had told everyone i had it.I felt like a fake.So today i was prepared for him.Thanks to lovely people here giving me tips what to do and how to act.This is what happened.....

I wore good clothes and looked professional this time...no trainers.Even wore sparkly lipgloss lol.
I walked in and was gobsmacked as he apologised about our last appointment and what he put me through.But i kept my head and began to speak....and speak....and speak until he HEARD all my ailments and All what i wanted HELP with.He had no chance of stopping my mouth once it was going...sore jaw or not...I DID IT!!!
HE LISTENED TO ME!!!!!!!

At this moment i wont say what he thinks as ive done that once before...so will now wait for the bloods to come back with whatever is up with me or not.
I will say that lately ive had allot of trouble with me little legs n feet.Such bad cramp it makes me scream.Hes put me on anti angina pills to do something...expand the vessels,veins to stop me cramping.I may have swollen ankles when i wake....but i have to try them...anything to stop the cramps ive been getting.

So....i feel and actually left his room smiling.It didnt last as the nurse couldnt find a vein and prodded me again....vampire lol.

So,good clothes,lipgloss and non stop talking very fast...gets you far.He had no time this time to tell me he doesnt read 'lists' till friday lol......i made sure of it.

So thanks Phyllis,Rob,Lori,Jeanette,Wrights,Cheryl v,and all of you here who keeps giving me guts to keep fighting the men in white coats.
It used to be Angel -0 Doctors 10
Now its Angel-5 Doctors 5. So im going the right direction now.


lots of love and thanks to you all.
Angel.xxxxxxxxxxxxxxxxxxxxxxxx

mountaindreamer
05-13-2009, 07:39 PM
ok angel,

you have painted another picture in my mind:

"good clothes, sparkly lipgloss, fast talking, and gobsmacked."

i can't help it, this is definitely my laugh for the day.

It might be tied at angel 5 and drs. 5, but not for long....you are moving on and will never look back....hope you are sleeping with a smile on your face.

Angel Oliver
05-14-2009, 04:23 AM
OH Phyllis,

Sleep was awful in fact hardly any.That pill he gave me.....oh my legs are hurting bad....feel sore to touch,hurt like they will explode.Heart doing funny things....breathless....head gonna pop.
I was so positive about this as well.But im not taking another one....my body isnt liking it at all.Hurts to walk today....so im gonna rest but keeps legs moving...bicycle in the air if i can.....or not.What a reaction a small pill can do only 5mg as well...Amlodipine.NOT FOR ME!!
But im still feeling good in my head....im still winning!!
Hope the beach is lovely fr you today and you enjoy yourself with JIm.You enjoy!!!!

love
Amanda.xxxx

Angel Oliver
05-15-2009, 12:05 PM
Talking about me again..:)

Turns out ive had an allergic reaction to the pill.Swollen legs,knees bigger than me nearly lol...rash...head weird...heart doing sumersalts....and can you believe it set off my jaw Ahhhhhhhhhhh :) Oh and sexy water filled elbows as well corrrrrrr lol. Oh you have to laugh.Im sweating like theres no tomorrow.BUT got my magic pills now to counteract it...oh and a chocolate bar....sickness or no sickness..chocolate gets eaten :) Blue feet...blotchy rash..numb toes......go on....dare ya....take me dancing :) xxx

lucky7
05-15-2009, 12:13 PM
Ill still take you dancing Amanda!!! I wanna swirl and twirl with you!!!!! WOO WOO!!!! Round and round we go!!!! LOL:1244: Swelling or no swelling you are still BEAUTIFUL!!!!!!:banana: My banana is doing the BEAUTIFUL ANGEL DANCE!!!!! ANGEL ANGEL ANGEL.........

Angel Oliver
05-15-2009, 12:21 PM
Oh Jeanette you are so funny....but so kind...thanks.xxxx:dance::laughing-at-you:

lucky7
05-15-2009, 12:24 PM
Hey, im just telling it like it is!!!! :cute:

brandichi
05-17-2009, 01:20 PM
Oh Angel, I'm just catching up here after being away for a while. I'm glad the procedure went well, but sorry you've had so many complications. That just isn't right!!!! You've been through so much and you always stay positive - you need a good long period of time now when you aren't in so much pain. I'm sending you lots of good thoughts and hopes for improvement every day.

Good for you for standing up to that doctor - way to go!!!! I'm surprised he apologized - that's pretty rare for a doctor, at least the ones I've known. At least you can eat CHOCOLATE!!!!!

By the way, your Cadbury is LOADS better than the Cadbury we have here in America. I stocked up on British chocolate when I was there last year and there is nothing in the world like it. 'Specially Galaxy bars and Minstrels. Oh and Milky bars for white chocolate. Mmmmmm!!

Angel Oliver
05-18-2009, 10:58 AM
Oh thanks so much.Hope you are keeping well...ive missed you!! Hope your little dog is doing well to!!
I gt a bit too swollen today and rushed to the doctors who was very nice.He told me he was going to get my confidence back in him and his surgery after the crap ive put up with....bad effin attitudes!! He was so thorough...temp...bloods...exam...so good.Felt weird as usually i sit while they do paperwork..this time the focus was ME!!! Im an allergic reaction....so stay clear.I now have a nace....new word for neck n face so swollen they have merged in to one :) God i look sexy.....NOT!!! Got jaw and toothache as well.Feel so sick....i actually carnt eat chocolate now....HOW DARE IT!! So hopefully next time i post i will be small again not swollen and eating chocolate.Mmmmm milky bar:yes:.
Gonna lie down soon...so catch you soon and take care.
love
Amanda.xxxxxxxxx

wrightrs
05-18-2009, 11:51 AM
Oh thanks so much.Hope you are keeping well...ive missed you!! Hope your little dog is doing well to!!
I gt a bit too swollen today and rushed to the doctors who was very nice.He told me he was going to get my confidence back in him and his surgery after the crap ive put up with....bad effin attitudes!! He was so thorough...temp...bloods...exam...so good.Felt weird as usually i sit while they do paperwork..this time the focus was ME!!! Im an allergic reaction....so stay clear.I now have a nace....new word for neck n face so swollen they have merged in to one :) God i look sexy.....NOT!!! Got jaw and toothache as well.Feel so sick....i actually carnt eat chocolate now....HOW DARE IT!! So hopefully next time i post i will be small again not swollen and eating chocolate.Mmmmm milky bar:yes:.
Gonna lie down soon...so catch you soon and take care.
love
Amanda.xxxxxxxxx




You rest, sorry it's taking you so long to heal. Cuddle up with all your pet they are so healing. I'm praying you get better soon.

Angel Oliver
06-01-2009, 11:42 AM
Ok as you know i had a jaw op all was going well.I started getting bad cramps in my legs and feet so i saw my rheumi.He gave me new meds.I had an acute allergic reaction and swelled up,knees,elbows,calves,tops of legs,big fat face n huge neck.I was stopped from taking any more.....but continued to swell.After a few days and conversations with ISDM & Oluwa....i got the courage last week to call my Doctor again.His advice was....''BE BRAVE!''.
Mid last week i started to deflate and thought mmmm maybe he was right.But now im swelling up like a melon and i carnt walk properly...walk like ive pooped ..so sexy.
So this morning i asked my mam to call the doctor.She said its no use he doesnt listen to you.He'll believe you when your in a coffin.I said you know you are right...anger gave me enough adrenalin to call the 'be brave'doc again.Oh i told him so much.I said ...do you think its all in my mind ..the swellings...is that depression and do i still have to be brave.I said (one from ISDM) i want help now and carnt carry on like a beach whale...i carnt even sit on the toilet the swellings hurt and cramp up and contract i WANT HELP NOW! Ahhhhhhhhhh.Guess what? HE HEARD ME!!!
So it turns ut he's confirmed i now have Fibromyalgia so at 5.05pm i took my first pill.So lets see now if i deflate or turn into the hulk AHHHHHHHHHHHHHHHHHHHHHHHH (angels clothes begin to rip) :) xxxx

gina
06-01-2009, 11:46 AM
you have so much going on and keep making jokes, good for yu hope the swelling goes down fast. keep joking lol

Oluwa
06-01-2009, 12:04 PM
A.O.

You know how a balloon does a raspberry when you let the air out...you will sound like that and deflate...

Love,
Oluwa

Saysusie
06-01-2009, 12:19 PM
I am so sorry to hear that you have now joined the Fibromyalgia Club!!! Let me say, from experience, that once the medications do start to work...you will begin to deflate. Unfortunately, it will be almost exactly as Oluwa portrayed it..everytime you move.....GAS ON THE LOOSE!!!!
But, after you are taking the meds for a while,and are having regular, normal BM's.....the gaseousness will subside as well as the bloating!!
I wish you the very best and bid you a sad welcome to our Fibromyalgia Club. Did you know that the two most common symptoms of Fibromyalgia is IBS & TMJ???

Peace and Blessings
Namaste
Saysusie

lucky7
06-01-2009, 01:03 PM
LOL YOU REALLY MADE ME LAUGH Saysusie!!!! Gas on the loose!!!:-)

Angel Oliver
06-01-2009, 01:31 PM
Oh thanks so much everyone for your lovely replies. Hey no i did'nt know that,but ive been telling them for years.....that depression sign just flashes on my forehead when the see me.Wow....maybe now i'll start to ease.As for the other....im full of it and warned everyone about the gases.....rippin em out...but feels so good :) xxxxxxxx (louder n longer than usual im trying to make tunes lmao)

lucky7
06-01-2009, 02:21 PM
HMMMMMM, Name that tune, now thats a game im not quite sure i want to play! LOL:laugh::excited:

Angel Oliver
06-01-2009, 02:29 PM
Hey have a go.....its fun...and i'll get to feel sooooooooooooooo good :)

lucky7
06-01-2009, 02:38 PM
I know Ashleigh could play the game REAL WELL!!! LOL MY girl toots SO MUCH she could be a one girl band!!!!! LOL:laugh: She said she'll play!!! LOL
Its funny cuz around here i dont let the kids pass gas around us so they came up with a "TOOT RUN" they call it. If the urge comes then they leave the room and run around the house till the smell has gone away and they cant bring it back with them! I ALWAYS KNow what they're doing when all of a sudden they run out of the room and i hear their footsteps through the whole house! What a site too i tell ya! The dogs get all excited cuz someones running around so then they have 2 large dogs chasing them as well!!! LOL:laugh-floor: You get some entertainment when you come over to our house thats for sure!!! LOL

Angel Oliver
06-01-2009, 03:10 PM
Sounds like a fab game....great name :) xx

dsunshine
06-01-2009, 04:06 PM
Sorry you having such a tough time with the nace and yes...not being able to eat chocolate sucks to say the least. I hope you get well soon and I am pulling and praying that you find relief soon so you can get the milky chocolate you love!
Hugs!

mountaindreamer
06-01-2009, 08:57 PM
hey angel,

i think you will have to play that game in the privacy of your own home. Name that tune by gaseous angel....maybe go sit in the drs. office and practice.

so very sorry you have dealt with this, but i am glad that you had oluwa and isdm to help you refind the strength to stand up for yourself.

hope you get some good sleep,

Angel Oliver
06-02-2009, 05:16 AM
Oh thanks Phyllis,i was joking i only do it at home....never in public lol. I took the pill last night and had a painful night.I didnt look but knew what was happening.Today im huge.But the strange thing is can now walk a bit better as the swelling behind my leg is going down.So maybe 1 more pill and i'll defalte a bit more.Very spaced out though....feel drunk lol.Nice feeling of calm....so i dont mind.I see the doctor tomrrw so i'll see what he says.The gases are calming down as well lol.I scared Jess with one....so funny.Phyllis you always help me...so thanks so much...just posting here...makes me feel...someone somewhere...knows im alive...makes a big difference.xxxxxxxxxxxxx

mountaindreamer
06-02-2009, 08:55 AM
hey angel,

glad the swelling is going down, hopefully this next pill will help even more. be sure and let us know what the dr. says today.....i think of you every day and hope that you are feeling just a little better.

sometimes feeling drunk and spaced out helps the day go by a little quicker. and sometimes even puts a smile on our face for a few minutes, even if we don't know why we are smiling.

i agree with you, the kindness found here helps me remember that there are people who truly care what happens to me.

wrightrs
06-02-2009, 09:19 AM
Sorry your still having these problems. Hope you feel better when you finish you meds.

When I tell my doc's about my symptoms they never believe me. They just want to blame it on depression. Their first question is always are you still taking you Prozac.

Angel Oliver
06-20-2009, 07:50 AM
Ok its me again.....updating you on my jaw n teeth.

Next tuesday at 11am im being put to sleep and the 2 teeth ive worked hard with the dentist n surgeon to keep are finally being pulled out. Im sad as theyre healthy,but my bite is too far out and they need em out to see if my disc corrects itself once theyre gone.I hope it does....as the next step is a new jaw disc...n i dont want that.Who will eat the chocolate then? I am a bit sad and a bit scared....as im afraid of Dentists even tough mine is so nice.
Now if anyone is free that day n fancy a 45 min sleep.....feel free to take my place....i wont mind :)
The following day i see the rheumi.Now every time ive seen him ive had an allergic reaction of some sort to meds he's given me.....so lets see if this time he helps me and doesnt make me feel worse.

Lots of love
The nearly gummy one :) xxxxx

mountaindreamer
06-21-2009, 10:23 AM
hi angel,

hope you are getting some restful sleep. Dentist on Tuesday and then rheumy the next day.....oh what a week you are facing. Hey, don't worry about eating the chocolate....you can take a bowl of chocolate ice cream, stir it around and around until it becomes creamy, then let is slide down your throat....no chewing necessary. ha ha ha

i will be thinking about you these next few days....hoping for success with dentist, and no side effects from rheumy.

Angel Oliver
06-21-2009, 03:34 PM
You know i never thought of that yipeeeeeeeeee chocolate ice cream it is from now on :) Hey Doctors friday :) OH the joys of a busy life hehehehe.xxx Thanks so much for your kind thoughts.xxxxxxxxxx

mountaindreamer
06-21-2009, 04:24 PM
ok girl, On tuesday and friday....pause for a moment and feel the love i am sending you.

Angel Oliver
06-21-2009, 04:38 PM
Ah thanks so much...i will.xxxxxxxxxxxxx

lucky7
06-22-2009, 04:53 PM
Thinking of you my sweet Amanda!!!!!! XXXXXXXXXXXXXXXX:cute:

SandyR
06-22-2009, 08:46 PM
Amanda,

Good luck today! I would send you a big bowl of chocolate ice cream :yes:, but I am certain it would melt on the way to you :nah: so you will have to buy your own and you can just send me the bill! :)

Sandy

Angel Oliver
06-24-2009, 05:18 PM
HI Everyone,

Thanks so much for the lovely messages.Well i went sat in the chair.....drip went in....drugs were pumped.....OMG...i thought....im usually gone by nowbut i could hear him n see the nurse....turns out ive been put under so often this time my body thinks its normal lol. Horrified i told the Dentist im not asleep ...he giggles telling me dont worry you are relaxed....you are numb (let me tell ya i felt that 12 foot needle going in my gums :))..you are ok he said....thats all i remember...next thing i knew he was tugging n tugging but my teeth wanted to stay.At one point i thought my eyeball was gonna fly across the room lol. Then...i was gone again.....THEN IT WAS OVER!!
It was all fine n i worried so much.Im scared of the dentist men you see.Now i just have face ache....and its fat!!!
Last night i noticed a difference when i lie down and turn over.Usually its so painful,not last night cause they were gone.I know im swollen now and have pain,but i know that will heal soon.Lets hope this is my road to recovery for my jaw.I dont want them to give me a new disc just yet cause that op will hurt.
Ive read my messages n send out lots of love to you all n ive missed you.I have bought a truck load of chocolate ice cream so the bill is on its way lol.(not really) I laughed so much cause someone asked me something....you know who you are....n NO...just stuble at the mo :) I did worry in case they felt it.Its along story n i'll tell you all soon....me n experimenting...not a good combination.
Thanks once again for everyone caring for me,the one who sometimes feels invisible....was lovely to come back too.

Lots of love
Face Ache.xxxxxx

SandyR
06-24-2009, 07:39 PM
http://i172.photobucket.com/albums/w3/foodpron_/Chocolate/chocolateicecream.jpg

Glad to hear you are feeling better! I thought you deserve this! :laugh:

Leksie
06-24-2009, 07:58 PM
Best wishes on a speedy recovery! :wavey:
Natasha

lucky7
06-25-2009, 01:54 PM
WE LOVE YOU AMANDA!!!!! GET WELL SOON!!!!!!!:guitar: Hes singing you a "get well Amanda" song!!! Just pretend its Grizzly Adams!!! LOL WINK WINK!!!!!

Angel Oliver
07-10-2009, 11:49 AM
OMG...how did i miss that bowl of chocolate ice cream..oh what id do to really eat that now....mmmmmm.

Well ive been dealig with BIG FRizz as my straighteners my friend bought me for christmas,broke n burn my hair.I called n asked for the receipt,but she didnt seem to want to look for me,so i left it.Today in the post my boyfriend had bought me a new pair,so hair can be tamed down a bit now lol.So thankful to him.
Ive been dealing with the dark destroyer,depression lately.A mixture of everything going on in my head...
family seem to hate me
friends dont call anymore,
Thinking of Daisy,
Micheal Jackson passing,
Hospital complaint not dealt with properly so getting a solicitor involved,
Benefit agency hounding me,
Doctor appointments never going the way i want mainly for them to help me,(n that look they give you ahhhhhhh)
so exhausted to get out of bed and legs n arms hurting,swollen...wanna chop em off at times lol,
lack of sleep or then too much sleep in the day then gum n jaw n head throb!

Basically feeling sorry for myself yet i carnt seem to snap out of it yet.Want a good routine,but too exhausted.

So thats me so far.....i made an appointment for tuesday for a hair cut n a massage....something to look forward too....yipeeee.xxxxxxxxx

ButterflyRN
07-10-2009, 01:26 PM
That hair cut and massage will help. I had to cancel my massage for tomorrow of course because of the kidney biopsy. I found this great place called massage envy. they have locations all over the US. I pay 59 dollars a month and get an hour long massage. I can upgrade at any time and pay just a little more for a longer massage or I can pay $49 dollars only and get an extra hour massage. I love it!

Sorry to hear that you are feeling down in the dumps! I felt that way last week with everything! I am sending you hugs and I hope that you feel better soon!

Lots of love!

SandyR
07-10-2009, 06:11 PM
Angel,

Sorry to hear that today you are feeling bad. Sometimes all I want to do is yell and scream my head off too while I cry. :hissyfit: All the ice cream in the world doesn't really help with that feeling much, :nah: but if it did, I would happily send you over a whole boatload! :laugh: I can sympathize with you about the depression and exhaustion and frustration. I think the haircut and massage sound great and will really help you to pick up your spirits. It's wonderful of your boyfriend to be so thoughtful to send you that package in the mail. Maybe you can even get some gardening time in this weekend. I know that you always sound so happy when you get to do that.
Sandy

Angel Oliver
07-11-2009, 08:24 AM
Oh thanks so much BFRN n Sandy so kind of you to reply. Believe it or not i actually hate gardening,but the fact im outside n not in my room makes such a nice change.The garden does need grass cutting but i am so exhausted and carnt be bothered.Hopefully as the days go on this will lift and i'll be back on top form.
Yes i know have straight hair n no big HAIR BEAR BUNCH DOO :) Thanks again and i hope you all have a a good weekend, and the biopsy is ok for you too.Hope you book the massage again after though.My massage isnt that expensive,just a half hour french facial then a trim as i burn my hair.I could smell it burning but it wasnt until i saw the smoke i realised it was me :) Yes my boyfriend is very kind.
Lots of love
Amanda.xxxxx

mountaindreamer
07-11-2009, 11:42 AM
hi amanda,

so sorry that things have not turned around for you....maybe the kindness of your boyfriend, and the pleasure of a hair cut and massage will make things turn around.....you know you deserve a break.

this dr. thing is really getting to me. I swear, if there was not an ocean between us, I would be there and we WOULD kick some serious butt. Surely between the two of us we would have enough energy to scare the hell out of a few drs. Then again, we would go to jail and have to sleep on those hard little beds.....

You know, Daisy was your soul mate and she knew just when to comfort you. I hope your time in her garden helps you feel the love she is sending to you. My grandmother told me that Daisy sits with you.

The friends and family attitudes and actions are the hardest to deal with, because these people are in your heart. It makes the heart ache when special people hurt you......i am so sorry.

I know there is more going on with you, but my mind just went bleep and it was gone.

I am in for the day, so if you want to chat, send me a pm.

I am sending you tons of hugs.

Angel Oliver
07-11-2009, 11:52 AM
Ah Phyllis,

Thanks so much for caring and the message.So nice to think she sits with me.I ask to see her often,but maybe nows not the time and shes running with her friends somewhere pain free.
I know i sound like a record thats stuck,always going on a bout the same things.Just when i think ive got the doctors sussed and found the energy to kick ass,another one comes along with a back kick.
I know one day i'll come on here with everything sorted.I know its gonna take time, but just wish i could feel happy inside,instead of total worry n despair.I realise many people are so much worse off than me,but all this for me is my worst....in time i know hopefully it'll get sorted.
How are you today Phyllis? How is Roscoe n your Mum too? Im gonna go fr a lie down in 5 mins,but will wait for your reply.
Thanks so much for this message.What a difference a bit of conversation can make you feel.

Love
Amanda.xxxxxxxx

Angel Oliver
07-15-2009, 10:27 AM
Just to let you know.....today i filled in forms to sennd off to my solicitor re the christmas incident to see if i have a case to bring to them. Also, thanks for all my friends who always pick me up when im down.Sending you all love n hugs.

love
Amanda.xxxxxx

lucky7
07-15-2009, 02:40 PM
Oh Amanda, you ARE NOT A BROKEN RECORD dear friend.:no: YOU cant help that these problems just DONT and WONT go away. WE ALL UNDERSTAND:yes: YOu are HERE for EVERYONE so WE are HERE FOR YOU AS WELL!!!! YOu have the biggest heart that is ALWAYS open when i or anyone else NEEDS it so YOU need and DESERVE the same from those who care for you too!!!!!!!!:cute:

Danica01
07-15-2009, 06:58 PM
I remember when this all started at the end of last year. I remember talking with you through the tough days and just wishing I could be there with you. You just talk to us whenever you need to and we know how much pain and problems this has all been! We are always here for you and if we could, we would show those doctors and hospitals who's boss. Han gin there love and just let it all out :hug:

Angel Oliver
07-16-2009, 04:30 PM
Ah thanks so much everyone.Danica yes i remember you giving me advice with lori, oluwa,jeanette n phyllis n rob.You all helped me do the complaint letter and actually fight to sort out my pain.I did take all your advice so thanks all so much.Im allot further on,3 teeth less,but am on the right healing path now.Just got to make sure it doesnt happen to someone else next christmas,cause it will if i dont fight this.They know they did wrong,even wrote a letter to me putting their foot right in it :) They dont even realise what they write,just shows how unprofessional they are.
Today i had a man here helping me fill in forms for benfits,ah he was so nice.Next step tribunal...stressing out about it,but no harm in trying i suppose,for what i should get anyway.
Im not gonna be on a for a few days,so all of you take care and i'll be thinking of each of you.My friends.

Lots of hugs,thanks and love
Amanda.xxxxxxxxxx

brandichi
07-16-2009, 10:11 PM
You go get 'em, Amanda!!! Try to relax if you can, and remember you're taking all of our love, support, hugs, and best wishes with you. You've already been so strong through everything you've been through, and look how you've triumped over ALL of it!! The MRI, the so-called doctors, the pain, the jaw issues...every time your strength comes shining through, and it will this time too. I agree completely that Daisy is with you, and always will be. Love like that cannot be separated, no matter what. I'll be thinking about you, and looking forward to you coming back soon with lots of good things to share with us. Love and hugs to you. xxx

Angel Oliver
07-21-2009, 03:37 PM
Hi Everyone,

Thanks so much for your lovely little replies,means allot to me. Thanks Brandici i know i carnt spell sorry lol. Hope you are well.
I went to my boyfriends,felt so low lately i was spiraling out of control,needed different scenery. I was only there the weekend.We went to a local carnival,was'nt massive but it was something to keep me occupied.Ive put photos on my profile if you want too see what i got up too lol. On Sunday we met up with fb friends and had lunch.So nice to be outside n in a pub.I was on shandy (lemonade n lager) delish!!
The knees swelled,only a little but caused me so much pain,but i tried to just carry on.The depression....well you go away to escape it....you arrive at the destination....and who is sat waiting for you....yep....it was there. I felt bad saturday cause it was so bad i didnt really talk much lol.Yet i look at the photos....i hide it so well.I hate it!
Im home now,tmrw the jaw appointment....carnt wait till this is overtakes ages there in the que.
I missed you all and hope you are all coping ok.
Lots of love n hugs Amanda.xxxxxxxx

mountaindreamer
07-26-2009, 09:57 PM
hi amanda,

i am so happy that the guy who came to help you fill out your papers was really nice. i hope he was able to help you....and yes, YOU DO DESERVE to receive benefits...you have worked for it and paid your taxes, so you just remember this is your money....you are just getting it back.

glad you were able to get away for a couple of days....just wish the knees would give you a break.

Danica01
07-26-2009, 11:53 PM
I am sorry love that life is full off struggles for you. I think you should be really proud about filing paper work against the hospital after the way they treated you. You are preventing that from happening to another patient and if that patient knew you they would want to thank you themselves. Be proud of what you are doing........it is something to be proud of!

I am also proud of you for filling out some paper work for disabilities. It will be able to help you with this disease.

As for the depression, love, it will come and go. Somedays will be easier than others and you just need to be prepared for this roller coaster ride we are all on! It is hard when it is a down day but that is why we are all here.........we will help lift you up when you are down. We are your family. I am thinking about you and sending you peaceful thoughts and gentle hugs. Keep us posted :hug:

Angel Oliver
07-27-2009, 07:10 AM
Phyllis & Danica, thanks so much...im crying again lol. Ive just seen my nurse and she has helped me allot.We spoke about me me n me.She is going to help me more by sending someone who i will employ but they will pay for.They will pick me up once a week,i just have to pay for a massage when we get to the college.Im not ready for it yet,as the other week when i had a massage i had a panic attack.Think its to do with the last mri.Also,some of my behaviour,depression/anxiety....not looking forward or enjoying stuff..is my defence mechanism....so i expect nothing so dont look forward to anything so im never let down.I never realised it before.
I told her,i need help n soon.Im actually so low at the moment its unbearable,just carnt shake the damn thing off.
I know i'll get there.Just need t sleep at the right times....win the lotto to get my own place...a holiday...lol...oh to dream.
Thanks for reading n replying to me.
Lots of love
Amanda.xxxx

wrightrs
07-27-2009, 04:57 PM
Amanda, Sorry you've been feeling so bad. You have so much to deal with lately. Glad some things are getting done for you. Thank so much for supporting me on fb since I've been to overwhelmed to come here.

mountaindreamer
07-27-2009, 08:16 PM
amanda,

thank goodness for the nurse. sounds like she really cares about you, and also, she believes you....and she has someone coming to help you get to the dr....how wonderful....you deserve a break, so just sit back and enjoy.

I am sorry that you are feeling stressed about the massage....i will try to think of some "words of wisdom" to help you get past this....just remember, your fears are real, you are NOT crazy.

sweetie, if i could, i would be there to help you stand back up....you are such a giving and loving person, i wish each of your days were ones of brightness. I am sending you fresh colorful cyber flowers.

Angel Oliver
07-28-2009, 05:45 AM
Ah thanks Phyllis.She;s not getting someone to get me to the doctors as of confidentiality apparently they are not allowed lol.So this person will take me to do fun stuff just for me,so once a week i have something to look forward too.
Thanks so much.

love Amanda.xxxxxx

mountaindreamer
07-28-2009, 01:31 PM
ooooohhhh how very nice,

doing something just for yourself once a week....that is a nice thing. If a massage is worrying you, have you considered starting out with a facial? It feels really really good, and it might help you to ease into the massage....I have to be careful and get really gentle massages, the deep ones cause me pain....so ease into this.


i wish they could help you get to and from the dr., but i guess the rules won't allow it.

Angel Oliver
07-28-2009, 04:51 PM
Yes i have the french facial, its a facial with a shoulder n neck massage.I dare'nt let em touch my legs as i get cramp lol n i scream...dont want to scare off her customers.I think its her old rickety bed she has.Maybe next time i will ask to sit up a bit then it may be better.
Thanks Phyllis
love Amanda.xxxx

lucky7
07-29-2009, 01:42 PM
OH Amanda!!!! YOU GO GIRL!!!! YOu so deserve it!!!!!! Im So HAPPY for you!!!! Hey, can i come?! LOL :cute:

lucky7
07-29-2009, 01:45 PM
HMMMM, a rickety bed huh? Nope, thats not going to HELP you to relax so i think its a GOOD idea to try another position or another piece of furniture at least! LOL

Angel Oliver
07-31-2009, 05:50 PM
Just to say hello and i think of you all and hope you all are all coping and taking one day at a time.
I have to go for a ct scan in august on my jaw n neck pain. Ive been very low lately,but im coming in here as often as i can to say hi n chat,you all help me.My friend let me down for tmrw i was meeting up for lunch...she got a better offer lol.
Anyway thats it for now.

Love Amanda.xxxxxxx

Oluwa
07-31-2009, 07:16 PM
What could be more lovelier than having lunch with you, Angel...nada. Ah, perhaps a box of chocolates..naw... because I would share it with you.. Definitely her loss...chin up. But not too high you might drown when it rains...

Cheerios..Love ya.
Oluwa

Rastagirl
07-31-2009, 08:51 PM
Hello Angel... :wavey:

I had a lovely chat with you tonight....you always bring my spirits up. Thanks for teaching me the meaning of some British terms. You gave me some outloud belly laughs. And thanks for explaining the problems with the bnp.....British National Party....I appreciate getting the "real" story...not the one we hear in the press. lol

You are a sweetheart and a dear friend and I'm so very happy I've met you. I'll be hoping for a great outcome with your CT coming up.....and for things to get sorted for you very soon. Surely your time is coming....you are long overdue.

Always good to hear an update from you...You are always in my thoughts and prayers.

We are ALL lucky to have you here at WHL!

Love,

:cool2: Lori

p.s. Oluwa's right...it's your friend's loss. :yup::yup:

Angel Oliver
08-01-2009, 11:33 AM
Well she did give me second best of coming to see me next saturday lol. Thanks Oluwa n Lori for the lovely messages. By the way i want you to know i do NOT support the bnp just was explaining to Lori who n what they are as i am in the Uk n she is in USA.
Today, i got up..well lay in bed awake bursting for a wee but felt waaaaaaaaay to heavy n stiff to move.So 2 hours later did get out,got dressed n took the dog Jess for a walk on the field.I sat on a swing in the park in the rain.We looked like drowned rats when we got in...but it was worth it just to be out.When we got back...the sun came out :)
My lymph node jaw pain throbbed all afternoon,so took my pills so its easing at last.
Thanks for being my friends also.

love n hugs
Amanda.xxxx

lucky7
08-01-2009, 06:17 PM
Hello my beautiful Angel! So sorry your "friend" was a booger to you!:no: You and i have had a talk before about that , so just remember its who SHE IS and you cant change her. YOu are BETTER than that dear friend! LOVE YOU!!!:yes:

mountaindreamer
08-02-2009, 02:17 PM
hi angel,

oh, so sorry about the jaw pain....i was hoping that you would be feeling better by now. Are you doing ok with taking the test? if you are anxious, we can pull another group support net to get you through it.

like lori and oluwa said.....this is her loss....if there was not an ocean between us, i would love to spend a sunday afternoon with you....

i know you are so tired of trying to stay strong, and you need a break....hopefully sitting in the rain washed away the dark cloud that is following you around.

Angel Oliver
08-02-2009, 02:23 PM
Hi Phyllis,

Thanks for always helping me n being so caring.Today we had a littl sun,still a bit cold,but me n Jess went to the field for half an hour,she met some fury friends.Still nervous,but she's getting better every time...even had a wee today n a poo....which i picked up in a bag looking like a right idiot retching cause its smelt lol.
Im not too nervous this time round as the nurse said a ct isnt like the mri and isnt so closed in.Have you ever had one? Is she telling me the truth? So far im not thinking that far ahead....so just in case i'll take a diazepam or 2 so i dnt freak out n make a scene again....lol drama queen i am.
Hope you are doing ok today Phyllis and your weekend was a good one. Oh my friend said next saturday,i'll wait n see.

Love n hugs
Amanda.xxxx

mountaindreamer
08-02-2009, 02:28 PM
hi amanda,

yes, i have had a ct scan, and the nurse is correct, it is not like the MRI, in that you don't get all closed in. I just wanted to make sure that you were doing ok with it....it won't hurt to take your diazepam just to help you relax.

i am happy to hear that jesse is getting better....she has had such a tough life, but she is obviously learning to trust you.

glad your friend rescheduled, maybe she had a legitimate reason to cancel for today....

Angel Oliver
08-02-2009, 02:32 PM
Thanks Phyllis. I dont feel as panicked as last time.Yes her reason was someone was taking her to dinner n hotel being paid for.Jess is lovely.Hope Roscoe is well.How was you today?Feeling ok?

LOve Amanda.xxxx

mountaindreamer
08-02-2009, 02:42 PM
well, pooey on her.....she chose a free dinner over dining with you.....this proves that it is not your fault....she is the one that put money before friendship....pooey, pooey, pooey

Angel Oliver
08-02-2009, 02:51 PM
I know ...it hurts...but i move on..come next saturday i'll forget and have a nice time i hope.

Still hope you feel ok today.xxxxxxxx

mountaindreamer
08-02-2009, 02:54 PM
good girl,

don't let her short comings ruin your good time.

wrightrs
08-04-2009, 06:40 PM
Angel I've had several CT scans. I don't mind them at all. I can't do the MRIs. But have no problem with the CT scans. Sorry about your friend. Did she go on a date or something? Hope you have a good time next time. I wish you lived close, we could go to lunch. or a beach trip. It would be fun.

Angel Oliver
08-05-2009, 04:37 AM
Ah thanks....oh what id do to live near a beach,id be there every day to wash away my worries. Thanks so much my friend.

love n hugs
Amanda.xxxx

Rastagirl
08-05-2009, 01:55 PM
BIG BIG HUGS, AMANDA! :grouphug:

Thinking of you today.....with SMILES :veryhappy:

Love ya,

:cool2: Lori

Angel Oliver
08-05-2009, 03:33 PM
Ahhhh thanks so much:yes:xxxxxxxxxxxxxx

Angel Oliver
08-11-2009, 06:48 AM
Well wednesday is rheumi appointment day. Ive so many things to ask and i have to overcome the fear of if he yawns,if he wont listen.I will try my hardest to ask him to help me and change my meds maybe and help stop the pain.Im also going to ask for a copy of blood results as i never knew i could....so here goes.....xxxxxxxxxx

mountaindreamer
08-11-2009, 07:26 AM
wow, amanda, it is hard for me to believe that you are the same lady that i met when we joined this group.....you are so strong now and so sure about yourself , and you confront fear with determination to succeed. I am so happy for you....you deserve drs. respect, and now you know it.

I will be thinking of you today and tomorrow....hope the appointment goes good....If you start to feel scared or nervous....just squeeze your hand, and you will feel my hand holding yours....we will walk together.

Angel Oliver
08-11-2009, 08:02 AM
Phyllis its thanks to you and many members here with you that are all helping me to be stronger,do the right things.Like for example my horrid doctor, i now have a new and nicer one.So thanks so much for always helping me be a tough cookie.I am nervous still and sometimes doctors do still beat me,but each time i try again...one day i'll get it all right n win!!

Love n hugs
Amanda.xxxxxxxx

Jewelz
08-11-2009, 09:00 PM
Hi Angel

Just want you to know that I've got problems with doctors too. They don't believe me or they are rude and OF COURSE they know EVERYTHING and I know nothing.

I'm learning too, to be strong and stand up to them. You are not the only one.

Hugs
Jewelz

abbasgirl
08-11-2009, 10:14 PM
Looking forward to hearing how the appointment went. ((((((HUGS))))))

lucky7
08-12-2009, 12:49 PM
OH my DEAR AMANDA!!!!!! How did it go??????? Did you GRRRRRR at the dr? I HOPE YOU DID!!!!! :cute:

Angel Oliver
08-12-2009, 02:09 PM
The appointment came,i was firm,not nervous,i got my point across,asked about the meds you all told me about,showed him my face rash.I flashed my watered filled knees at him :) and waved my elbows like a chicken. OMG.....he yawned.He is nice,lovely smile,fantastic yawn...great teeth :)He then after 2 minutes of listening tried to say goodbye.....i started again.Even asked for my blood results....i left with nothing.Blood results will be in the post.He felt my huge swollen neck...its like a tyre,well not that bad but it feels like it,he felt something.He mentioned i now could have syrogens,but he will talk next time.I left with a pain patch that i stick on my arm.Oh i have to get it from my doctor,so i have to wait 3 days.
I feel good i was sucessful at all i said.I mentioned plaqunil,he said he thinks it wont help me.
I left.I sat in the waiting room happy i told him all i needed.....but my eyes filled with tears as i realised....another wasted afternoon.Still no answers to lupus,but now a new maybe label.So im not gonna think about it.Just go for my ct scan and sooooooooooooooooo hope for a lotto win to go private.I see him again in 4 weeks as i told him....im hurt so bad,fatigued so bad,swollen and sleep has come to a sudden halt.
In a way it was non productive,but in anther way its a learning curve for me so next time i will get better at talking to doctors,gaining courage and i swear one day.......im gonna get to the bottom of why a healthy girl aged 32 suddenly gets ill......to aged 39 still not knowing whats wrong,well i know a little but not enough to stop the pain.My day will come.!!!!!

Love Amanda.xxxxxxxx

lucky7
08-12-2009, 02:14 PM
Oh Amanda!!! I am SO PROUD of you!!!!!:yes: YOU DID GREAT! Carl said "way to go" to !!!!!!!! Yes, each time you WILL get STRONGER!!!! Keep your mindset babY!!!!:swordfight: Keep fighting the fight! YOU WILL GET THERE!!!!!!!! NEVER lose HOPE!!!!!!! GO AMANDA!!!! RA RA SIS BOOM BA!!!!:fam21:

Angel Oliver
08-12-2009, 02:20 PM
Ahhhh thanks Carl n Jeanette, its the only way to go.You got answers after all this time,so it gives me hope.

Love Amanda.xxxxxxxx

Pearl
08-12-2009, 05:13 PM
My dear Amanda -

I am so proud of you for standing up for yourself!!! :thumbs-up: There is always darkness before the dawn. Hang in there my friend. If you do have sjogrens, there is a possibility the plaquenil may help you. Researchers do not quite fully understand why this drug helps with the physical ailments caused by autoimmune issues such as lupus, but it does work. I am not a doctor, but I can tell you, however, that my own doctor considered the fact that the plaquenil worked for me to be somewhat diagnostic of my lupus. That is to say, if I did not have an autoimmune process like lupus causing some of my ailments, I would have seen no positive effect from the drug. That's not exactly how she put it, but you get the point. Let's do some research on sjogren's treatments and take it to the next appointment. If I was there, I would go with you. Keep insisting that you get treatment until someone listens.

Did I mention they call me the Chihuahua here? Because I grab hold of someone (or something) and don't let go until I get what I want? I may be little, but I am lethal!!! :fighting0061: Ever had a Chihuahua bite you? Then you know what I mean. I'm coming over there if I win the lottery. I'm going to keep fighting with you. DO NOT GIVE UP. RUFF RUFF RUFF!!

Angel Oliver
08-12-2009, 05:56 PM
Ah thanks so very much for this information and kind n funny words.I did wonder but now i know :) Thankfully i have never experienced that bite but i bet its a bad n lol.
Inside for me, today was good cause i questioned every thing he said.He actually looked stupid.He told me Celebrex would take down my water in my knees,under the chin,elbows.I told him thats not right as i am sure id need a water pill for that.He then said celebrex doesnt come in 100mg..well im on 100mg capsule. He said plaqunil wouldnt help me,how does he know if ive never tried it? I know i metioned about what he said i may have the syrgens (sp) but i can guarentee...my next visit....he'll change it all again.I am slowly seeing now,i may actually take all your advice from whl and get another doctor.But lets see what happens in 4 weeks time.
Thanks Pearl, i will learn more about the new illness he 'thinks' i have,so i can again fight back.Even if i walk away with nothing...today i actually sounded like i knew what i was talking about. I will keep fighting even though its so upsetting,frustrating and makes me feel like giving up.Im not gonna give them the satisfaction.I will be known as the nuisance in the doctors quarters :)

Love n hugs n thanks
Amandaxxxxxxxxx

MsHutch
08-12-2009, 06:04 PM
Ah, Amanda, sometimes I think the doctors think we have nothing better to do than go sit in their waiting rooms for our appointments, then listen to them tell us absolutely nothing!!!!!!!!!! And they went to school for this????? Just give us something to explain these pains, etc., right? I waited almost 28 years.

Angel Oliver
08-12-2009, 06:10 PM
Wow such a long time though to go through pain,swelling,hair loss,lock jaw to finally get an answer.There must be an easier way i can find....i must start winking at those young doctors :)

But wow...28 years...i think you'll all be sick of reading this post by then :)xxxxxxx

abbasgirl
08-13-2009, 09:40 AM
I read this last night but couldn't respond till now. I kept coming back to check and see if you had posted about your big day. Hubby and I are sad the doc still acted like a jerk but we were applauding that you took the wheel, sweetie. You handled that very well, Amanda! I had to grow and grow towards taking that wheel and I know it's not easy to do...and at times I do still feel intimidated by the doctors, but it feels so good to have some control over something. So much relies on the doctor's actions...from dxing to treatment... it's nice to have the right to be your own advocate and exercise it. I started learning it years ago when I was so miserable with endometriosis... I told the gynie I was tired of trying all these other treatments that weren't working and I wanted to have a hysterectomy. I had thought it out long and hard and was sure that's what I wanted because that would end the misery. He still kept pushing me to try something else I knew wouldn't work. I finally said "If you won't do it, then I'll just find another doctor who will." He said okay. lol. On the inside I was falling off my chair. I couldn't believe it worked!

If only it were that simple to do now. sigh.

One way or the other, we're all going to get our dx, Amanda. We just have to keep on hanging in there. I think you did great. It's so awful that he yawns! What an ogre he is! All they did was suspect I have Lupus and sjogren's and immediately put me on plaquenil... I don't see what it could hurt to allow you to try it. He's such an @ss.

Angel Oliver
08-13-2009, 11:12 AM
Oh my dear friend thanks to you and your husband for your thoughts and replying to me.
You know something about the doctor i like even though he yawns,i know that sounds odd,i think its his smiley eyes n smile,he makes eye contact,that could be it,but he does look ugly when he yawns but tries to hold it in,i just stare at him more so he knows I CAN SEE YOU KNOW! :)
Today i thought about the appointment you know im thinking maybe its not Lupus,maybe its all in my head? Then i look at myself lay on the bed unable to move stiff,swollen,depressed and ageing as life is carrying on without me.I swear i get off the bed and theres an imprint,like in movies...a black marking of the shape of my body...oh n Jess the dog:)
I was sad to read your story,but yes you are right and i will continue to fight this,stop being so intimidated by doctors.4 weeks before my next appointment.So if anyone has any suggestions,i tried the plaqunil question oh and he said my celebrex will stop the swelling..its not though as i flashed my sexy water filled knees at him? Why post the blood results as well...hey maybe im an alien? If its not Lupus ....he diagnosed me with this at christmas n even said,if the bloods cme back neagtive its still Lupus,then they came back negative...he completely changed. Any advice will help me for my next appointment.
Thanks so much for your lovely message.I hope today for you it is a good one.You always help me to get tougher,so thanks so much.
Gentle hugs
Amanda.xxxxxx

SandyR
08-14-2009, 08:55 PM
Amanda,
I am so proud of you for asking the questions and for sticking to it! Good for you! I know it wasn't easy to do and I know it must have been all that much more frustrating when he acted that way. That doctor on the other hand, I think he needed a good smack upside his head!
If it were me, I would go to the next appt with a big thermos of steaming hot black coffee and when he comes in, I would say, first things first, this is for you. You looked so knackered last I saw you that I wanted to be sure you were wide awake to be able to pay me full attention this time so that, together, we can reach a solution to this problem I am dealing with. I would also make a list of what he said each time you went and show him how inconsistant he has been.
Abbas is right, we will definately get our answers one day. Hopefully soon. Hang in there. The next appointment, it will only be easier for you to be able to stand up to the doc again. I am really proud of you for doing it this time as well!
Sandy

abbasgirl
08-15-2009, 11:19 AM
lol...I love Sandy's idea of the hot coffee. That's wonderful!

My pcp told me that medications can make labs "off" too...so I decided that would be another reason for me to go off the plaquenil. We'll see. lol.

I think it's cruel to tell you that you have lupus, and if you test negative for it again you still do, and then tell you that you don't... that's so crazy. He sounds like that crazy specialist I last saw...she drove me up the wall.

((((((More hugs))))))

Angel Oliver
08-15-2009, 11:30 AM
Oh thanks so much Sandy and my dear Abbasgirl,

You know what,i so do want to take the coffee beans and so do want to ask ask n keep asking,but you know,they do convince you maybe all is well.But then i remind myself, he is the one who said i had Lupus not matter what the bloods say.So what went wrong? I so want to pull him about his yawning,yes i know he is tired,but im the one with the insomnia n i dont yawn..maybe i should take a sock,he yawns,sock goes in and i then say..right now youre gonna help me n listen :) I am taking notes off this page and jottin em down as ive 4 weeks to get prepared for my next visit with him.The answer is staring me in the face when i come and read in here....i need a new rheumi,but as you all know as we do it often,to get a new doctor means starting all over again.Im just gonna try with this one,keep calm,keep tough and keep talking cause im getting weary from these visits,i feel im wasting my time.....but im not giving up as much as i feel so sad inside..im gonna keep fighting!

Thanks so much for your support.
Love
Amanda.xxxxx

Oh i have my patch on today. I dont know whether its my mind,but i think its working a little.My knees are still throbbing and my jaw a little,but i feel something,maybe taking the edge off....give it a few more days i may be feeling even less pain...i will see.
xxxxxxxxxxxxx

abbasgirl
08-15-2009, 11:48 AM
Less pain is wonderful Amanda! I'm hopin and prayin you are pain free, dear.

Sticking a sock in his mouth...lol. You could sit back, roll it up in a ball, and as that mouth opens up to yawn, toss it in and say 2 POINTS for me, YEAH! Or toss in some vitamin c pills. Or maybe something simple like..."doc, am I boring you?" Maybe tell him that's a great way to catch flies.

I hear ya...I hate starting all over again. It's a pain to go over it again and again. There's got to be a better way to find good doctors. You do what you think is best sweetie. You know the situation the best. I hope Dr. Yawn treats you much better next time. (((((hugs)))))

Angel Oliver
08-15-2009, 11:53 AM
:) so funny.Thanks so much .You know ive have a few weird doctors...Dr dead patient,(he told me to leave n come back next week after a patient had died,this was the 3rd time) Dr Clear chest (when actually i had severe asthma n he said im clear lol) and now Doctor Yawn....so funny.Thanks so much.xxxxxxx

mountaindreamer
08-15-2009, 01:41 PM
hi amanda, i am so sorry for just now getting with you....i am so very happy for you....you did a great job, and you are correct, your next visit will be even better. You got it girl....you are the top dog around here, you get the award for bravery.

i think you are making a good choice to try your dr. one more time. You said he smiles with his eyes and he looks you in your eyes....this is a quality that is very important to me when i am dealing with people. So, hopefully he will quit yawning and start trying to help you.

I wonder if the reason that he prescribed Celebrex is because he thinks you have rheumatoid arthritis....this will cause swelling and pain in the joints, and celebrex is a common treatment for RA.

Also, i am so glad to hear that he gave you pain patches. I have known several people who have great results with these.

again, i am sorry for being late responding to your "winner day" at the dr.

Angel Oliver
08-15-2009, 07:37 PM
Phyllis,

Please dont worry its ok. The celebrex actually came from my new gp when i swelled up the other week and he actually saw me at my worst and said yes this is classic Fibromyalgia.When i told the rheumi,he asked my why i was taking them.I get the feeling for some reason my rheumi doesnt believe me,but i am glad the gp saw it and also my face rash. But in saying this,the rheumi did say,just because everything is coming back normal,doesnt mean theyre isnt a problem.So he keeps contradicting himself....time will tell.
Thanks for helping me always.Oh and you enjoy Paul...wow.Let me know how it went...get an autograph!!

Love
Amanda.xxxxxx

Angel Oliver
08-18-2009, 03:26 AM
Ok its me again.The pain patch seems to be working,not totally pain free but i see a difference especially in my neck and jaw.Now my knew problem is i seem to be unable to sleep nearly totally,falling asleep at 5 n 6am with the nitrazepam being taken at about 11pm.Also i feel extremely sick,a fever swarms me,i go dizzy but i have'nt been sick just feel it.Any suggestions? I know its a side effect,but im in less pain so want to keep the itchy patch on :) xxxx

mountaindreamer
08-18-2009, 05:56 AM
good morning, my friend,

pain meds can interrupt peaceful sleep. the patch might be causing your sleeping problems, but it is working on your pain,,,,,another frustration that we face. I called my dr. because of night mares, and she said i should take my pain meds earlier in the day and not at night...she said the pain med could definitely cause the night mares....

hope you are having a good day.

Angel Oliver
08-18-2009, 06:23 AM
Hi Phyllis,

Oh you poor thing,well nightmares n me go together :) i have them often. Hope you change the time and they stop soon.let me know.

Love Amanda.xxxxxx

mountaindreamer
08-18-2009, 06:41 AM
i did quit taking pain meds at night....and i must admit, my night mares have reduced....i guess my dr. was right. I can't take sleeping pills because they cause night mares too....Of course, even the movie "the wizard of oz" causes me to have night mares....i guess i am just a big "scaredy cat" at night.

Angel Oliver
08-18-2009, 03:43 PM
No way you are not a scardy cat, i so understand.I try not to watch any scary films and try not to watch the news as for the nightmares n stuff.Glad you slept with out the nightmares.

Love
Amanda.xxxx

abbasgirl
08-20-2009, 09:14 AM
Oh Phyllis...so sorry you were having scary dreams. You're not a scaredy cat sweetie. You're one of the bravest people I know.

I absolutely hate bad dreams. I've had less ever since my pcp adjusted my meds. I try to avoid watching the news too Amanda... sometimes they don't even give a warning before showing a scary image.

Angel Oliver
08-20-2009, 10:46 AM
Oh Abbasgirl,

Im glad you too dont have them,but i have to say last night i woke every half hour and even had 2 panic attacks and i'll tell you why.

Yesterday i came down to the kitchen where my Mam was asleep in a chair.I looked up above her head there were say about 10 blue bottles,you know the big dirty flies.She woke up and we began to shooo them out and some died quick lol.Didnt like doing it but they were dive bombing us.After the massacre we went and sat outside.After 5 minutes i went back in and then came running out fast :) I swear there was about 30 new big flies everywhere,i locked us out.I knocked next door to see if my neighbour had the same problem but no...nothing.We went back in and again made a clear up and my uncle came to help.
After the clear up again we went upstairs.After half an hour i heard screams.It was so funny,but not.Mam had gone downstairs to check and i swear there were about 50 new huge flies everywhere all over the kitchen,the window,they were humming ''show me the way to go home :) ''.
Again we cleared up.....ok Mam cleared em up as ay this point i was scared.
Later we went down to look and again...more.We decided and the neighbour did as well,that we thing a bird fell down the chimney and died and these flies are feeding on it and now fully grow and want to get free.
We then got black bags and sealed in the fire place.
In the night i had such bad dreams i tell ya,one included a HUGE fly. I was nervous about going downstairs this morning,but was brave and looked slowly. There were 5 flies only,i think they hid during our clear up.So we are going to keep it sealed till monday,then we will hide as my uncles going to sort out the problem.
Im not usually scared of flies but i tell you,when they are all together they dive towards you and some go for the ears,sound so loud.
This was funny,but now i go downstairs with caution :)

I go for my ct scan on Monday as well,so im glad im out of the house lol.

Love n hugs
Amanda
Fly Woman.x

ButterflyRN
08-20-2009, 11:37 AM
Oh, what a story! We had a bunch of big flies like that (not that many) when my mom came once and cooked stuffed cabbage! Flies loved cooked cabbage!

I would have had nightmares too with that many!

Hopefully they don't see any fly images on your CT scan :-)

Angel Oliver
08-20-2009, 11:43 AM
Oh wow really lol.Yes i know if i do im off :) xxxx

mountaindreamer
08-20-2009, 07:54 PM
oh great....why did i read about the giant flies....now i will surely drem of them tonight...ha ha ha

sorry about the flies amanda...thank goodness you got them out.

Angel Oliver
08-21-2009, 06:10 AM
Phyllis,

Please dont dream of em like i did.The fire is sealed to the wall now so nothing can get out.We can see the black bags moving and hear their wings,but we feel bad,but too scared to let em go as they fly to your face.On Monday my uncle will try and remove the seal and get rid of the flies and sort out the corpse at the back of the fire,it has to be a bird thats fell down the chimney,poor thing.These flies have fed well...they are HUGE with clogs on :)

Hope you have a lovely day....think of the ocean and sand and nice foods instead.

love
Amanda.xxxxxxxx

Angel Oliver
08-24-2009, 11:09 AM
Well i went for the CT.The nurse was nice she shown me the machine,as you all know i have claustrapjobia and the last MRI was'nt my finest day,having to escape it n get drugged up to finally have it done :)

So i changed into my sexy show ya butt off gown.She tried to get the drip in,nope no veins in that arms (i hate needles too lol) Ok lets try the other arm.....yes we've found one,let me put some saline in to check....yes alls fine.
I was left for a few minutes.The nurse came back and informed me the Doctor thinks im going to be allergic to the dye and doesnt want to risk it.So today we'll do 1 scan.Then Tuesday night take these steriods then 2 hours before take the next steriods ready for 12pm wed for you other scans.Oh great i thought,so was lead into the room.I seemed fine until...:)

Yip it happened again.As they pressed the button panic city hit they stopped the bed .I gathered my thoughts and it was the longest 5 minutes yet again. I got off later,te nurse asked if i was ok,as my face was blood res the gown was wet and i was dizzy through painc.Oh do i feel silly.Its a dougnut,a huge ring i can see out.I think its the bed going backwards,it freaks me out and im terrified of em now.

So,any suggestions? I know ths must sound so very silly but my head n mind n brain just doesnt seem to like it one bit.I thought of everyone here,i did m breathing,but the over all urge to get up n run was HUGE!

Any suggestions will be really appreciated.

Thanks.
From The Scan phobic :).x

abbasgirl
08-24-2009, 11:28 AM
Oh sweetie...what a nightmare of a problem to have! That would give me awful dreams too! (((((Hugs)))))

Phyllis, you didn't have bad dreams, did you?

Butterfly, thanks for the warning... cabbage isn't often in my home but should it in the future I'm going to be on guard!

We live next to a farm so... wowie, there are large flies around but only a few have gotten in the house since we've moved here and killed instantly with a swatter. Ewwwww. They make such a mess!

I'm so sorry the scan went like that for you Amanda. I know it's awful for you. At my last mri, they put these comfy headphones on me and I got to listen to music...and I focused on that best i could. It was still rough and I think next time I'm to have one done I'll opt for sedation. The noise, feeling closed in, the having to be still and not move...ugh, it's torture for me. The music did help some.

Angel Oliver
08-24-2009, 01:30 PM
Thanks yes i know you can wear headphones,but my scans are on the temporal bones, tambibular n sub n my neck,so my head was locked in this cage thing,so i could'nt have the head phones on.I looked like him from silence of the lambs :) with a nice kiante lol.
Today i was'nt caged in,so i dont know what my problem is at all.
Today my uncle unsealed our fire place.So far no flies.Hoping theyve gone to fly heaven.

Love
Amanda.xxxxxx

abbasgirl
08-24-2009, 01:41 PM
I hope they've gone to fly heaven too. lol. That's a cute way to put it. :cute:

Oh the cage thing wouldn't allow it. Drat!
Maybe someone can come up with something helpful, Amanda. I can't think of anything other than that...and can relate. (((((hugs)))))

I saw a doctor on a tv talk show a couple of months back introducing his new way to scan the head...it was like a bucket you put over the head while sitting up, but your face is out in the open...more like a helmet. It seems like a MUCH better way to have scans done of the head, but I'm bettin' we're in for a long wait to see them in regular use like the mri and ct.

abbasgirl
08-24-2009, 01:47 PM
OH LOOK! This should be mandatory and available at every place!

http://www.wxyz.com/news/local/story/Easing-MRI-Anxiety/vA2SMMM10EG7AlzCj0E-rA.cspx

mountaindreamer
08-24-2009, 01:49 PM
hi amanda....

so sorry you had another attack during your test. I wonder if once the bed started moving, maybe your mind thought you were going back into that MRI machine...so, keep reminding yourself that you are not going into the closed machine, keep telling yourself this over and over.....also, you could pretend that you are actually on a really slow boat that is bringing you to the USA where we will all be waiting for you to arrive....we will have a giant group hug, and then the test will be over.


i will be holding your hand on wednesday at 12:00

Angel Oliver
08-24-2009, 02:07 PM
Oh Abbas that is a good idea and Phyllis yes maybe. For me,once my head is in,i get the urge to sit up but carnt,then all the oxygen is gone suddenley,im very hot,im dizzy,im shouting in my head YOU CAN DO THIS and i have to keep my jaw still,but my teeth are chattering so much it starts off my legs like a lat down irish jig :)
Im not gonna think about it till the day cause the fear will keep me away.I'll just take the steriods,which is good cause ive not been so good with my breathing a bit rattly today,but i thinks its stress.But with the pain patch on i am not allowed to take my secret stash of valium...otherwise id be pill popping right now.

Thanks for helping me yet again over such a silly thing.

Amanda.xxxxxxxx

abbasgirl
08-24-2009, 02:10 PM
Nuh uh...that's not silly at all. It's a very big deal. (((((hugs))))) I like what Phyllis said...yes, picture you're on your way here and we're all waiting to have a big beach party just for you, sweetie.

mountaindreamer
08-24-2009, 02:10 PM
this is not silly.....it is real, but you can do it....remember, you are the bravest member here.

Angel Oliver
08-24-2009, 02:12 PM
I was actually thinking of what Phyllis told me last time,imagined everyone one with me.....i keep repeating it as the panic gets worse.Im just scared of sitting up in a panic have to force myself to stay down :)

Thanks so much Phyllis & Abbas.xxxxxxxxxxxx

abbasgirl
08-24-2009, 02:17 PM
Scared is scared...sometimes nothing works but drugs. I know I've tried to meditate and picture wonderful things. The only thing that has helped me any was listening to the music but I still felt so confined I was near freaking out.

All these years we've been using these things and we're just now coming out with special glasses to wear so we can watch movies???? That took too long and is taking too long happening across the world.

Love you Amanda darlin'!

Angel Oliver
08-24-2009, 02:26 PM
Yes i know you'd think something better could me made in this day n age. Instead,i will continue to look at 'looks' i get ,lie down n shake.lol.
Thanks n love you too.xxxx

pandagirl
08-24-2009, 03:59 PM
Socialized medicine at it's finest....it should be a crime. Beware the great Obama...if he gets his way, we too could be waiting 6 months for a scan/tests or being told if we are 'too old' for treatments that are saved for the 'young'.

Angel Oliver
08-26-2009, 10:59 AM
Hey its bad enough in the UK so i understand.

Well I DID IT!! The nurse was lovely spoke to me all the way and kept moving the table so my head was out on the other side.I felt so much better.The dye was ok i took the steriods,chest did go tight n i went dizzy like a girl,but i got through it thinking of chcocolate and sang 2 back street boys songs then listed in my head all you members....im so glad it over.
I also had my satelite fitted so watching fab programmes of a man falling into a machine n chopping his foot off :) So gonna have a nightmare tonight but its so more ish i carnt switch over...ok think i will now friends is on.
Thanks everyone for your support it helped me allot.

Love n gentle hugs
Amanda.xxxxxxxxx

mountaindreamer
08-26-2009, 01:06 PM
oh amanda,

i do not know of anyone else who has overcome as many walls of fear and panic as you have.....congratulations my friend.....wow...another ugly and loud machine, and you beat it...again.

hope you are enjoying friendsl...you deserve to watch your favorite shows all night. Give jesse and the cats a kiss for me.

Angel Oliver
08-26-2009, 03:24 PM
Thanks so much Phyllis,im still scared but not as much.Yes im a telly addict now.Hope today you are easing and had a better day, i hugged Oliver Soosie n Jess they meowed n a slimey lick from Jess :)
You take care.Sending you love n hugs
Amanda.xxxxxxxxx

abbasgirl
08-27-2009, 10:22 AM
YEAHHHHHH AMANDA!!!!! AWESOME! You go girl!!!

That's wonderful news sweetie!! So glad you had a nice nurse too. That bedside manner can work miracles sometimes!!!

I hope you didn't have nightmares!

So glad you're enjoying the tv... I know I love ours. I have lots of favorites. I can't wait for The Big Bang Theory to come back on next month. Ever watch that? We're a family of nerds so we really appreciate the show. lol. But a lot of people enjoy the uniqueness of it. Their neighbor Penny isn't a nerd and it's funny how she copes with them.

Angel Oliver
08-27-2009, 02:39 PM
Oh thanks so much and no ive never heard of it.But its now official,im addicted to TRUE MOVIES.OMG such sad films but ive watched 4 so far its fab.My new radio volume isnt working properly but they are sending me a new one out on tuesday as it must have a fault.But im happy with em.
Thanks for your support and yes,the nurse helped me allot...a nice change.
Today i saw my nurse,she is encouraging me to tell my rheumi now im not happy with his treatment and im to ask him for a second oppion.I need answers she said.So thats my next big task.So send me the vibes im gonna need some :)

Love n thanks
Amanda.xxxxxxx

mountaindreamer
08-27-2009, 07:00 PM
hi abbasgirl,

i love, love, love the big bang theory.....i heard that the tall one (can't think of his name right now) is up for a emmy award.

genius mixture of characters.

lucky7
08-28-2009, 02:06 PM
Oh my dear dear Amanda!!!!!!!!! Im SO HAPPY FOR YOU!!!! YOU ARE A LION!!!!! GRRRRRRRRR!!!! I KNOW it says you are kong BUT a LION is so much cuter!!!!!!! YOU GO GIRL!!!!!!!! You are doing GREAT ANGEL!!!!!:cute:

SandyR
08-28-2009, 09:22 PM
Hi Amanda! How are you doing today?

Angel Oliver
08-04-2010, 05:18 PM
Ok Sandy....lmao....talk about fog ....only a year later i reply to this lol.Sorry i didnt know you'd posted. Well today had a blood test as i demanded to be tested again for Lupus.Thing is i DONT want it to come back Lupus,but im so not happy with that label of M.E as i feel noone takes it serious and i certainly have other symptoms so i need to know for sure. I go for a CT soon,so waiting for a phone call off doctor to give me the meds to calm me down.I did call the ct place and explained about my claustraphobia,she said yes i have it too and you;ll be ok.Thing is i had one and wasnt ok...just panicked the whole 45 minutes lol.I feel such a wuss...i just have to lie down and have my head in a cage...no problem...it wont kill me....yet im so afraid of them.Im having it cause of the migraines,so had an eye test and they said i had a blind spot.Im not worried.....all my tests come back normal lmao....which yes is good but not when you feel like poo daily...makes you feel like your wasting everyones time.I feel like buying a mic, you know the ones you have at a rally to shout through.Then when i have a doctors appointment i can take it shouting.....I FEEL LIKE POO AGAIN!! Oh how funny but theyd have to listen to me.I know theyre tryoing to help...im just fed up now....but still gonna fight on.
Anyway....Thanks so much for caring to ask me lol.You keep resting.Ive just answered your post and i so ook forward to your sister having her little baby.
Oh also i had a message from Jeanette,Lucky 7.She sends her love to you all.Shes still the same,having problems getting certain tests done...doctors messing her about.Shes not been able to get online due to her arthiritus it hurt s her fingers n elbows.I told her everyone misses her and she send her love to everyone here.She has a little op soon to remove a cyst,so i'll let you know how she gets on when i next hear from her.
Love n gentle hugs everyone
Amanda.xxxxx

P.s Ive had neighbour problems....OMG....let me win that lotto soon lol:)x