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View Full Version : How Common is thyroid problems in Lupus?



wrightrs
04-17-2009, 02:49 PM
I have a thyroid problem. I was wondering if others here have it too, what type? and how it effect Lupus?

ssingh
04-17-2009, 03:19 PM
I have hypothyroid. My TSH was 6.86

wrightrs
04-17-2009, 10:18 PM
Do you take synthroid? My Endo doctor was the one that sent me to the

Ruemy because she thought I had lupus. So if it wasn't for her who knows

when I would have known about my lupus. After I went to my ruemy and got

my lupus diagnosis. Went back to Endo she told me she would need to keep a

eye on my thyroid now. Because she thought the lupus was going to cause

me thyroid problems. And about six months later My thyroid was off. So I was

wondering if others have this to because when I talk to others with lupus

they say don't have thyroid, or they never been checked.

Wish I still had this Endo she left to be a stay at home Mom.

Rastagirl
04-17-2009, 10:53 PM
Hi Wrightrs...

Actually there are quite a few members here with Lupus that have thyroid conditions as well.

My father has Hashimoto's disease, and I've seen quite a few members with that diagnosis in their signature line. And if I'm understanding correctly, thyroid conditions run in the auto-immune family. So I believe that's how they are connected with Lupus.

My doctor just checked my thyroid function, because I was having some odd symptoms, but my levels were fine.

Sorry you lost a great Endo doctor...I've had a few of my doctors decide to stay at home with their kids. That's a wonderful thing for their family, but not so good for those of us that need the 'great' doctors.

Hope this helps.....

Lori :cool2:

wrightrs
04-18-2009, 12:01 AM
Thanks Lori, Both my mother, sister and niece have thyroid problems. I sometimes wonder if my niece has lupus also. She has a lot symptoms. I keep telling my sister to have her checked

mountaindreamer
04-18-2009, 07:36 AM
hi becky,

yes, i have thyroid issues, and have been diagnosed with auto immune thyroiditis. My thyroid will get inflamed and swell, but the bood tests come back normal. My rheumy says this is common, and could be lupus attacking the tissues around the thyroid....we watch very closely, but so far no problems.

ssingh
04-18-2009, 10:39 AM
yes, I do take synthroid 50 mcg and one more thing my testosterone was on the low side as well.

wrightrs
04-18-2009, 02:14 PM
So Sorry Phyllis, Mine swells to at times!!! Glad they keep a eye on it!!! Cause thyroid causes a lot problems too!!! I can't really tell if it bothers me or not. Cause I don't know if when I feel bad if its thyroid or lupus. But my sister gets real sick from her thyroid at times.

brandichi
04-18-2009, 07:43 PM
I have thyroid issues too. I was diagnosed with Hashimoto's and was put on Armor, a low dose. They also found a goiter on one side. However, soon after they did the biopsy of the goiter, they retested me (blood test) and found my levels totally normal. No Hashimoto's. So they took me off Armor and I have to go back in June so they can check the goiter after one year. I still feel cold all the time, and I thought that was thyroid related, but maybe not.

wrightrs
04-19-2009, 12:12 AM
I'm glad your thyroid is better now!!! Not sure if thyroid makes you cold or not. But a lot of people with lupus has renaulds and that causes cold hands and feet.

SuperGiv
04-19-2009, 03:59 AM
I've recently started having thyroid problems, a few weeks ago I got a massive lump in my neck, and went GP and its my thyroid so seeing a specialist next week to find out exactly what it is. However, I'm not sure if mine is lupus related as I have a family history of thryoid problems.

Ria0331
04-19-2009, 03:11 PM
Back in january of 08 I went to see a ob/gyn and she did a thyroid test on me and it came back slightly off. Then my regular doc at that time did the same test and it came back fine. Now after taking real high doses of prednisone i have to watch my sugar levels cause prednisone can cause diabeties and its working toward it in my body.

BadFlareDay
04-19-2009, 03:15 PM
My thyroid is full of goiters. I went through testing to make sure they weren't cancerous and it came back normal. They continue to grow, and I've put off having them removed.

Faith
04-19-2009, 03:24 PM
I have had hypothyroid for 21 years. It is part of the auto-immune disorders. Ironically, my Mom has it too.

My thyroid fluctuates a lot and have to run labs every 3 months. I started at 150mcg, the highest was 200mcg and now I am at 175-187mcg. I wish it would find a constant and stay. lol.

Faith

ssingh
04-19-2009, 03:37 PM
Is TSH is the best test to determine thyroid problem?>

wrightrs
04-19-2009, 03:52 PM
So sorry so many people have this. Sometime wonder how many of my symptoms come thyroid or lupus!!!

Faith
04-19-2009, 04:00 PM
Ssing,

There are three labs. T3, T4, and TSH. Make sure they are all ran.

Faith

AyahsClan
04-19-2009, 04:42 PM
I had an enlarged thyroid as a child, then diagnosed with Hashimoto's in 1985 at age 25. Mother had it too, had her thyroid removed. I been on levothroid since 85. Numbers change, levels change, meds change over the years. I wonder, since researchers found mutated genetic DNA that causes the immune system to overreact, if it caused the tyroid problems, then thyroid malfunctions cause all sorts of other problems. I did recently start taking a natural thyroid supplement that has helped my energy levels but we'll see how it works in the long run.

Eating sea vegetables or taking safe levels of iodine can't hurt.

wrightrs
04-19-2009, 06:19 PM
Ayahsclan, Do you still take the levothroid with the natural sup.

AyahsClan
04-19-2009, 06:50 PM
Ayahsclan, Do you still take the levothroid with the natural sup.

Oh yes, I don't think there is any way to ever get off prescription thyroid replacement meds. The best we can do is research and hope we are taking the best available replacement meds for our particular condition. Some do better on Armour thyroid which is made from pigs so I never tried it since I am a vegetarian.

You have to be very careful with modern day snake oil salesmen. The supplements I'm on are not meant to replace rx meds, just help the body cope with the imbalance better.

wrightrs
04-19-2009, 07:39 PM
Ayansclan, Sorry didn't remember that let just blame it on fog. Yes there are a lot of snake oil salesman and they prey on people with lupus. I ran a cross a few. Especially on the Internet. Thanks

wrightrs
04-20-2009, 01:05 PM
Thyroid Resources

http://www.altsupportthyroid.org/
(http://www.altsupportthyroid.org/)

http://www.thyroidmanager.org/

http://www.thyroid.org

http://www.hormone.org/thyroid/

http://depts.washington.edu/physdx/thyroid/index.html

http://the-thyroid-society.org

http://mentalhealth.com/mag1/p51-thyr.html

http://thyroid-fed.org/

AyahsClan
04-20-2009, 06:33 PM
Ayansclan, Sorry didn't remember that let just blame it on fog. Yes there are a lot of snake oil salesman and they prey on people with lupus. I ran a cross a few. Especially on the Internet. Thanks
No sorries, I just would never want to mislead anyone as I have been mislead through the years. Thanks for the links, I really should do an overhaul on my thyroid and see a real endo. It all gets so complicated. Every year the GP does a basic thyroid check and adjusts my meds if need be.

The ingredients in this one supplement are; B6, Folate, B12, Iodine, Zinc, Selenium, Irish moss, kelp, l-tyrosine, guggul and ashwagandha. I think it is helping.

I'll tell you something stupid I did many years ago. I got into Macrobiotics, which can be a balanced diet but I took it pretty far. There was a method to "heal" the thyroid in which I laid a ginger plaster on my throat. I stopped my thyroid meds, did the diet and the plasters, and lo and behold I was right back where I started, a non functioning thyroid. ...lol...I can chuckle about it now. I have tried everything.

wrightrs
04-20-2009, 09:37 PM
Ayanclan, Thanks I will look in to these. I need to find a new endocrinologist since; I lost the one I liked I haven't been happy. I also have issues with other glands that need to be checked. This new doctor doesn't check anything but my thyroid.

I take multi-vit, calcium, (omaga 3-6-9 glucosamine and chondroitin for my joints)

I have another link that's real good. I'll try to put it up tomorrow.

Yvette
04-20-2009, 10:01 PM
well i also had that question but then i had to get it out of my mind and i was sent to a ENT and they gave me a throat ultrasound and everythikng came out fine but i was really scared because my mom has thyroid problems since she was young and she has always had the doctor check for it . but thank god i dont have it not yet . and hopefully never. have you ever had a ultrasound done?

AyahsClan
04-21-2009, 05:45 AM
Back in the day (when dinosaurs roamed the earth) UCLA had me drink radiated iodine as a child and then a giant cone shaped machine was put over my neck. They had already put marks all over my neck with a pen that washed off after pictures were taken.

I can't remember but it seems like I did have a scan of some sort as an adult. I have been very lax about medical care for quite awhile. Yvette, I wouldn't worry. Because your mom had thyroid problems does not mean you will too, just something to keep an eye on.

wrightrs
04-21-2009, 02:28 PM
well i also had that question but then i had to get it out of my mind and i was sent to a ENT and they gave me a throat ultrasound and everythikng came out fine but i was really scared because my mom has thyroid problems since she was young and she has always had the doctor check for it . but thank god i dont have it not yet . and hopefully never. have you ever had a ultrasound done?


I've never had a throat ultrasound, but had a lot of other types of ultrasounds. Glad it was OK. Hope you never have a problem.

wrightrs
04-21-2009, 02:35 PM
Back in the day (when dinosaurs roamed the earth) UCLA had me drink radiated iodine as a child and then a giant cone shaped machine was put over my neck. They had already put marks all over my neck with a pen that washed off after pictures were taken.

I can't remember but it seems like I did have a scan of some sort as an adult. I have been very lax about medical care for quite awhile. Yvette, I wouldn't worry. Because your mom had thyroid problems does not mean you will too, just something to keep an eye on.

My Mother-in-law had the radiated iodine years before I knew her. Do they still do that. Hope you don't have that anymore.

AyahsClan
04-21-2009, 10:39 PM
My Mother-in-law had the radiated iodine years before I knew her. Do they still do that. Hope you don't have that anymore.

Gosh I sure hope not. They did that to me many times. My mom stopped taking me after they had done it so many times with students taking notes she felt I was being used. who knows what effect it had on me.

wrightrs
04-22-2009, 10:29 AM
Gosh I sure hope not. They did that to me many times. My mom stopped taking me after they had done it so many times with students taking notes she felt I was being used. who knows what effect it had on me.

Do you have many side effects from taking that so young. And so many times!!!