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TERI A.
04-06-2009, 07:59 PM
rhuemy called to let me know that my ana of 1:640 had doubled within a months time and that he could do a lip biopsy for sjorgens but it probably wouldn't be conclusive. so for now he will just monitor me. I 've got news for him I won't be back. Has any one heard of an ana this high. I have not seen one listed like this. He still says it is not lupus I don't meet the criteria. Red on cheeks (looks like malar to me), positive ana, mouth ulcers, arthritis (he says RA),nosebleeds,swollen ankles,hair falling out,red v on neck,extreme fatigue, recurring illness, dry mouth, just to name a few that I can remember(brain fog). Teri

sick n tired
04-06-2009, 09:13 PM
Ok so you have an ana of 1240 and he is not sure it is conclusive enough for some sort of diagnosis? I agree...perhaps you do need a second opinion.

froggal
04-07-2009, 12:24 AM
Sounds like Lupus to me!!! I am with sick and tired. Go find another doctor!!

TERI A.
04-07-2009, 03:59 AM
Please let me clarify, my ana went from 1:640 to 1:3280, it doubled he said.

TERI A.
04-08-2009, 08:47 PM
I got my blood results today and I was mistaken the titer went from 1:80 to 1:160 and the titer of 1:640 went to 1:1280. Everything else is within normal range on the Lupus panel. What do all of my symptoms mean and where do I go from here?

mountaindreamer
04-09-2009, 05:03 AM
good morning teri,

it is my understanding that 1:1280 is a strong positive. i am not the expert on these lab tests, but this is the way it was explained to me. also, is your reading homogeneous or speckled?

TERI A.
04-09-2009, 05:21 AM
thanks for your reply phyllis, it was speckled.