View Full Version : Been working on finding a doctor and i have succeded
04-06-2009, 09:14 AM
HI all i have been gone for a while... Seems as if I had put my life on hold untiil I could find me a Rhumy well I have finally found one and I go to see him on the 15th, I have to drive 3 hours but hey it will be worth it. Now I have my health records along with test results and I have been doing some research but I am still dumb founded to the results and what they mean or may repersent. I do know that there are alot of people on here whom have been researching lupus for sometime now and know way more then I do so if someone can help me to understand some of these test results please please help me.
04-06-2009, 09:20 AM
sorry that you have not been around for awhile, but soooo happy that you found a rheumy...i agree, the trip will be worth it.
i am certainly not the expert on the various tests and what the results mean. i rheumy runs them, but we don't really discuss too much because there is so much variance in the reports.
i am sure others will be around to help....also, there is some good information on the lupus foundation website. also, go to
this is a report with specific blood tests and what it measures.
04-06-2009, 09:20 AM
I had been looking for you wondering how you have been...Wonderful to read you...
I friendship invited you a bit ago....so you could find your way to the new site...I see you found us...
I will go over the results with you...which ones....post them or PM me with them.
Oh, also if you could, tell which lab performed the test...
04-06-2009, 09:28 AM
ok first off there is ANTI-SSA 3+
then ANTI SSB 3+
ANTI-SM 4+ okay those three showed up last year and here are some that were on recent ones as well ANA Postive Homogemeous pattern observed white blood cell count low potassium high and also chloride high
labs were done at AMerican Esoteric Laboratiers
04-06-2009, 11:55 AM
Glad that you found a rheumy. I understand it's a long drive, but it'll be well worth it if the two of you "click". My rheumy is some 2 hours--each way--and I am comfortable with that.
Best of luck. THis will be one April 15th that you won't be dreading!
04-06-2009, 02:30 PM
Anti-Sm is an immunoglobulin specific against Sm, a ribonucleoprotein found in the cell nucleus. This test is highly specific for SLE; it is rarely found in patients with other rheumatic diseases. However, only 30 percent of patients with SLE have a positive anti-Sm test.
I haven't found anything with the + single digit results from any labs sites online. Was it highlighted or checked as if flagged with a check, asterisk indicating a positive results?
Anti-Ro(SSA) and Anti-La(SSB)
These immunoglobulins, commonly found together, are specific against RNA proteins. Anti-Ro is found in 30 percent of SLE patients and 70 percent of patients with primary Sjögren’s syndrome. Anti-La is found in 15 percent of people with lupus and 60 percent of patients with primary Sjögren’s syndrome. Anti-Ro is highly associated with photosensitivity; both are associated with neonatal lupus.
A +3 from the several labs, unfortunately American Esoteric didn't give their ranges...but a +2 or higher is usually an indication of sjogrens.
The pattern of the ANA test can give information about the type of autoimmune disease present and the appropriate treatment program. A homogenous pattern appears as total nuclear fluorescence and is common in people with systemic lupus.
With high potassium, high chloride it seems your electrolytes are out of balance...
High potassium can be from something as little as eating too many bananas to infection to having kidney disease.
injury to tissue
High Chloride aka hyperchloremia may be from....
Loss of body fluids from prolonged vomiting, diarrhea, sweating or high fever (dehydration).
High levels of blood sodium.
Kidney failure, or kidney disorders
Diabetes insipidus or diabetic coma
Drugs such as: androgens, corticosteroids, estrogens, and certain diuretics...
A low white blood cell count usually is caused by one of the following:
Viral infections that disrupt bone marrow function
Congenital disorders characterized by diminished bone marrow function
Cancer or other diseases that damage bone marrow
Autoimmune disorders that destroy white blood cells or bone marrow cells
Overwhelming infections that use up white blood cells faster than they can be produced
Drugs that destroy white blood cells or damage bone marrow
Having Lupus these test fluctuate in numbers often...negative to positive, high to low...and doesn't necessarily mean, cancer or the like...
And time when it is just slightly above, or slightly below doctors consider it just a fluctuation...but it it is on a steady decline or incline I have found out, is when they intervene and run further tests..and begin a treatment regimen.
Hope this helped and not confused...
04-06-2009, 02:45 PM
AWWWW, im happy for you that you found a dr youre excited about! WOO HOO!:banana: Those are hard to come across! As you well know! I also wanted to say that you definately will get answers to your questions from Oluwa! Shes our "book of knowledge" around here! Go Oluwa!:headbang:You Rock!!!!!!
Heck, I'd crawl across the Sahara with no water both ways just to see a decent Rheumotologist. Try to keep an open mind, and hope that he is a good one. If he is, ask him if he makes long distance house-calls.
04-06-2009, 03:02 PM
Im with you on that one Rob! :thumbs-up:Im currently looking for a new one myself along with a new GP!!!! UGH! The two VERY IMPORTANT drs. to have! Sadly enough, im learning that MOST drs SUCK! I just keep on a lookin cuz thats all i can do! Hopefully ill be finding that diamond in the rough here soon!!! :arghh:
04-06-2009, 03:11 PM
My RheumBA...I am thinking , here in my area, he is probably the best as it gets. And that isn't too great...
My PCP ..when I first saw him, very empathetic, listening, attentive, time...but now he is a partner, and with the extra monies he should bring in, his doctoring went to the wayside. All business, move 'em in push 'em out...debit card...swipe...Next!
04-06-2009, 03:20 PM
Well put Aluwa! A little old man in a waiting room sitting next to me one time said "its a damn revolving door around here, how can they truely CARE for you when its like this?" I said "thats why they CANT!" They're all a bunch of clowns worried about lineing their pockets and keeping the drug companies happy so they dont rock that boat of fortune:smilecolros:
04-06-2009, 06:34 PM
thanks for the laugh ROB. hey, maybe the good drs. could have web appointments.
Oluwa, it totally surprises me that you have not found a successful team member from the medical field. It seems to me that you would be the ideal patient, because you are so educated about your illness....you make their jobs easy.
wonder if, as a group, we could somehow get our stories to the various medical schools....surely they would change......yeah right...
makes my soul heavy to hear about your mistreatment.
sick n tired
04-06-2009, 09:34 PM
Good for you that Rheumatologist...that must be a weight off your mind...sometimes I think those of us who have found the good ones should have them cloned of something...I am happy for you to be back, too and be able to find a treatment for your symptoms.
04-06-2009, 09:59 PM
I think I make their job too hard...causing them to work for a living and they dislike it....lol...
04-07-2009, 08:40 AM
i think they must take a course in med school titled "the ego....how to nourish it at the expense of our patients."
There's a poisonous snake, and a rheumotologist both run over in the middle of the road dead. What's the difference between the two?
The snake had skidmarks leading up to it.
04-07-2009, 12:55 PM
ooooooooo Rob, that's a good one.
04-08-2009, 10:30 AM
I wasnt on yesterday so im late replying but OMG you guys are frigin FUNNY!!! :-) I dont feel well so i needed that laugh Rob and Phyllis!!!
04-08-2009, 07:52 PM
thank u all for all tha thougts and yes i am so happy to finally be going to see someone that can possibly help me. and the things that o told me was helpful some confusing but het i can;t learn everything in one day lol. keep praying for me and i will keep u all up date... hope everyone is feeling well
04-09-2009, 06:26 AM
You're welcome....let me know what you would like me to elaborate on regarding the tests....
In summary, your test seem to indicate towards an Autoimmune disease, though just tests are not indicative of particular disease...other things, such as symptoms assist in that diagnose.
Your test may point towards SLE and/or Sjogrens....
Also, your electrolytes seem off... which could be from something as simple as eating too much bananas, from a NSAID ( an anti-inflammatory drug), steroids, diarhea to an infection or start of kidney involvement...
Lab tests have ranges...to determine if the results are negative, equivocal (undetermined, not sure, maybe, maybe not) or positive. Only the lab being used know what their results mean as not all labs use the same range.
Example...we talk about ANA in single digits or ratios. Or the anti (ds) DNA. Some of us the results being 75, as I read recently in someones posts was considered high and positive by their lab. My lab's range says it isn't. Only over 99 is positive.
Does the result sheet you have, post the ranges to the right of the results?
And sometimes too, they may read positive one testing and the next reads normal..there is a +/- error range. If you have any question regarding your results and feel they warrant action, ask to be retested again immediately to see if it is the same...
Does your results change from test to test in your copies you have? Mine do. I believe the tests do not tell the story how we feel....times I am flaring something awful and my test say naw, nothing there. So, for me they are not a good indicator of the activity of my disease. I do feel they are a good indicator of organ involvement, progression.
Ask your doctor why he felt it wasn't significant enough to tell you about these results. If they feel they do not warrant action, they don't tell us about any positive tests. Why? Only they can answer that. That has happened to me many times...in fact, my last test which points to an UTI or the start of kidney involvement or maybe because at my lab they don't do a clean catch.
I decided to leave it and wait for next month test, see the difference and ask my doctor about the last results...
In the future...when you have a test done, and they do not call you back in 2 weeks, call them and ask a copy be sent and to also go over all test with you while on the phone. Or even make an appointment to discuss them...
If they do call with the results, ask if any other tests are positive and also to send you a copy....
Do post if you have any more questions...confused. We want to support you, when you feel your doctors aren't...so ask away....okay...
In my prayers you are..hugs. Enjoy the up coming weekend...