PDA

View Full Version : An Interesting Find



red246
03-24-2009, 08:06 PM
I have experienced shortness of breath for quite a while. Had chest xrays, ekg's, echo, etc... nothing showed up. Still having sob. Currently being treated "as if I have asthma" by pulmo. Hah! Meds don't do crap!

Anyway came across this on a UK lupus site. I haven't heard this before or at least I don't remember reading it - you know how that brain fog goes! :wacko: Anyway, thougth I'd share!

Why do lupus patients become anaemic and what effect does this have?

Anaemia means that there are less red cells (and therefore less haemoglobin to carry oxygen) in the blood than there should he. Low red cell counts and the associated low level of haemoglobin in the blood can result from the effect of antibodies attacking the red cells and causing their destruction, a process called haemolytic anaemia. It is more common though to have anaemia due to poor production of red cells in the hone marrow. This usually occurs as a side-effect of general inflammation in the body due to lupus. Rarely is anaemia caused by drugs but this is possible. Whatever the underlying cause of anaemia, the end result is to cause the person to feel tired (fatigue) in proportion to the loss of red cells (haemoglobin), although there are other (often less well understood) causes of fatigue in lupus. In more severe cases, the person may become short of breath even in the absence of lung disease because there is not enough oxygen in the blood.

Danica01
03-25-2009, 01:30 AM
That is very interesting! I started having the same problem about three years ago and like you I am being treated for severe asthma. It makes you stop and wonder. I wonder if when they do basic lab work they check for anemia? I may ask my doctor to start throwing that in every month! It would be nice to get off all this asthma medication. Let me know what you find out and if you do have anemia. The good thing is anemia is treatable!

debbie-b
03-25-2009, 04:32 AM
I have experienced shortness of breath for quite a while. Had chest xrays, ekg's, echo, etc... nothing showed up. Still having sob. Currently being treated "as if I have asthma" by pulmo. Hah! Meds don't do crap!

Anyway came across this on a UK lupus site. I haven't heard this before or at least I don't remember reading it - you know how that brain fog goes! :wacko: Anyway, thougth I'd share!

Why do lupus patients become anaemic and what effect does this have?

Anaemia means that there are less red cells (and therefore less haemoglobin to carry oxygen) in the blood than there should he. Low red cell counts and the associated low level of haemoglobin in the blood can result from the effect of antibodies attacking the red cells and causing their destruction, a process called haemolytic anaemia. It is more common though to have anaemia due to poor production of red cells in the hone marrow. This usually occurs as a side-effect of general inflammation in the body due to lupus. Rarely is anaemia caused by drugs but this is possible. Whatever the underlying cause of anaemia, the end result is to cause the person to feel tired (fatigue) in proportion to the loss of red cells (haemoglobin), although there are other (often less well understood) causes of fatigue in lupus. In more severe cases, the person may become short of breath even in the absence of lung disease because there is not enough oxygen in the blood.

Hi Lauren,

If you have severe hemolytic anemia, you will know it. I had it in 1979, was 5 months pregnant and my hemoglobin was 2.6, normal during pregnancy is 15. I was very weak, dizzy and heard my heartbeat in my ears. They called it hemolytic crisis, I received 22 bloodtransfusions. I was in intensive care for 6 weeks.

Debbie

mountaindreamer
03-25-2009, 04:38 AM
geeesh debbie,

glad everything turned out ok for you in 1979, hope you don't have problems with this today. very good advice to red-246. so glad that you joined our group.

debbie-b
03-25-2009, 05:04 AM
geeesh debbie,

glad everything turned out ok for you in 1979, hope you don't have problems with this today. very good advice to red-246. so glad that you joined our group.

Everything turned out ok, baby was sick for about six weeks after she was born, probably from the high dose of cortison. Thinking about it today, makes me shiver, I could have gotten AIDS, back then they didn't check the blood products and it was around the time HIV first started. So I was very lucky.

Debbie

sick n tired
03-25-2009, 06:54 AM
hey Lauren,

I agree with Debbie...you will know it if you have it. I, like Debbie had severe anemia with a pregnancy..nearly died. In addition to the anemia when I was pregnant with one of my children, I was severly dehydrated, blood and protein in urine...etc...I also had to have transfusions...I am glad we didn't contract HIV..

red246
03-25-2009, 03:04 PM
Debbie - Wow! Glad everything turned out good. At the worst of my sob, my hemoglobin was very low. Not near as low as yours, don't remember what, but I know it's something that they are keeping an eye on. My rbc, hemoglobin & hematocrit always run borderline low. It was just an interesting find to see that the 2 can correlate.

lucky7
03-26-2009, 01:42 PM
Awww, HI Debbie. I just wanted to say that im glad youre here and OK! What an awful thing for you to have gone through! So sorry. Youre right though, luck was on your side when you didnt end up contracting AIDS back then. HUGSXXXXXX

I also want to say that i have a very hard time breathing more than i dont. Im in the middle of changing my GP so that specialist is in waiting right now. It really concerns me though because i can rule out being anemic since my old GP tested me for that. So i sit and wonder why the heck it is that i CANT breath as well these days. Scary

sick n tired
03-26-2009, 02:42 PM
Hey Lucky,

Do you have any reflux problems like GERD? I believe that can cause problems with the breathing, too...sometimes the esophageal pain can feel like a heart attack.

lucky7
03-26-2009, 03:30 PM
Hi sickntired. Im not sure cuz havent been back to my ENT to talk about my test results yet. They siad we can only get you in in 3 wks! UGH The person who did the tests and the pics of my throat said theres some concern not only for the swelling and the redness but there are two bumps that shouldnt be there. Gee, thanks for the concern from my drs. office, 3 frigin weeks. So, in answer to your question, im not sure.

debbie-b
03-26-2009, 04:28 PM
Hi sickntired. Im not sure cuz havent been back to my ENT to talk about my test results yet. They siad we can only get you in in 3 wks! UGH The person who did the tests and the pics of my throat said theres some concern not only for the swelling and the redness but there are two bumps that shouldnt be there. Gee, thanks for the concern from my drs. office, 3 frigin weeks. So, in answer to your question, im not sure.

Boy I hope you find out something soon, not being able to breath right is very scary.

Debbie

mountaindreamer
03-26-2009, 05:36 PM
hi SNT,

i have a question about the esopha.....pain that you were talking about. i have been experiencing chest pain for quite a long while. plus, recently i have noticed that if i just eat a small amount, the upper part of my stomach hardens and swells. i become very uncomfortable.

does this sound like what you were talking about?

lucky7
03-26-2009, 06:03 PM
OMG Phyllis! Thats EXACTLY what happens to me too!!!! Puffy and hard! My husband and kids hear me say that all the time! Very uncomfortable! Thats what i NEED to have checked out! Im changing my GP so a referral for that specialist is on hold but it happens all the time!