View Full Version : how long have you had Lupus?

03-09-2009, 06:30 AM
I was just curious how long every1 has been diagnosed with Lupus, and then how long do you think you had it before diagnoses? I've been diagnosed 2years, but think I have had it for 8 or more years.

03-09-2009, 06:32 AM
Good question that...
I was diagnosed in 2007 but have had symptoms since I was 12 I think.....

Angel Oliver
03-09-2009, 06:33 AM
Hi I have been sick since 2004.....but think it actually started very slowly in 2001. Not 100% convinced yet what i have.I know though i have Lethologica big time though lol :) (bad memory n forgetfulness)

03-09-2009, 07:56 AM
i was told had it in 2005, had symptoms for at least 15 years the docs always said it was this and that. until got real sick and than they decided it was lupus all the long, after blood test came back.

03-09-2009, 10:29 AM
Hi, I have had all the symptoms of Lupus since 2001 but i wasnt treated with Plaquenil and aspirin untill 2007 !
I was only diagnosed in September just gone:hissyfit:

Lov Sarah x

03-10-2009, 11:34 AM
I am so sorry it took so long, for all of us to get correctly diagnosed, and I pray to God we all get the cure to this thing soon!:yes:

03-10-2009, 01:10 PM
I was diagnosed with SLE just over five years ago, and with MS just about 1 year ago. I'm sure I had SLE long before the diagnosis though. Like so many of us, I spent many years dealing with seemingly unrelated symptoms and health problems before the pieces of the puzzle fell into place. I believe I had Lupus for around ten years before it was discovered.

03-10-2009, 01:34 PM
I've been in my ongoing battle for 27 years........diagnosed back when I was 18.

I was diagnosed by my family doc that had seen me all my life...he ran the right tests...I tested positive the first time....entered the diagnosis in my chart and never had anyone question it after that. Made it pretty simple in dealing with all the docs that followed.

Wish a diagnosis was that simple for everyone.

Lori :grin69:

tiggerlishus - Heidi
03-10-2009, 01:43 PM
Iwas diagnosed 5 1/2 years ago 3rd of oct 2002 lupus awareness month funny enough!! but as it seem with every one else i have alot longer, its hard to say when as i have always been ill on and off since a baby, to the point where as baby i had to have a spinaltap cause of dehydration and was always getting ill at sick at school joint-muscle pain and god i have been able to sleep for ever always tired but i have also found out my sister has fybromyalgia and mild lupus systems, my mum has fybromyalgia, i have great aunt on mums side has fybromyalgia, i have two uncle with thyrod problems too and on my dads side i am only just getting to know about them as they live in usa and i live in uk and i have found out i have a cousin with lupus! soo there was always going to be ahigh chance i was going to have something!! lol soo that my long winded story!!

03-10-2009, 02:50 PM
I have had Lupus they believe since 1963 when I was just 5 years old, but did not get diagnosed until I was 36 years old thanks to the doctors not listening to me and treating me like a dang hypochondriac. The Lupus nearly killed me before they finally diagnosed me with Lupus, SLE type. It started affecting my heart and kidneys and lungs etc. It was not good at all. I am 50 years old now. I was officially diagnosed in 1996 or something like that. It seems like a long time ago though. I also have several other auto-immunes.


03-10-2009, 03:08 PM
I was diagnosed in 1999, but my first symptoms arose in 1972 (skin rash when in sun). My Rheumatologist says I have actually had SLE since 1972.

03-10-2009, 04:23 PM
Sixteen months:grumpy::hissyfit:

03-10-2009, 06:26 PM
I was diagnosed in 1985 with Hashimotos Thyroiditus - autoimmune with a positive A&A. We thought that was the beginning and the end of it but by late 1980's it was diagnosed as lupus, so about 24 years from when it all began.

03-10-2009, 08:43 PM
I was diagnosed in 1993 by my pediatrician when I was 17.

Mary Jane
03-10-2009, 11:12 PM
I was diagnosed 2 1/2 years ago...But beleive I've had it for at least 14 years or more. My first pregnance ended in a still born birth, and before that I had a miscarriage. My doctors beleive I could have had it for many years. Lupus really sucks!:nana:

03-12-2009, 11:27 AM
I see from the poll that, so far, I am the only person who has lived with this disease for more than 10 years (24 yrs to be exact). Maybe I'll make myself the poster child for longevity with a chronic disease :cute:

Peace and Blessings

tiggerlishus - Heidi
03-12-2009, 12:05 PM
Hehe most deff Saysusie you would make great poster child !!!!! :D

sick n tired
03-12-2009, 01:18 PM
Like most on this list...I have had it much longer than diagnosed. Diagnosed in Oct. 2007...Have had it I and doc believes now since 1989....

03-12-2009, 04:38 PM
Hi everyone,

(I'm very new - just joined and I'm trying to find my way around) :cute:
I was diagnosed in November 2006, but I think I had it in 1999 when the doctors gave me a ton of different creams for "rosacea", and when I couldn't stay awake past 9:00 in the evening, among other symptoms. And in 2004 I had gallbladder surgery and I had some complications which I realize now were related to lupus.

03-16-2009, 04:27 PM
i was diagnosed January 12th, 2009 with SLE. so im definetly new to all of this. lol


03-16-2009, 04:35 PM
I see from the poll that, so far, I am the only person who has lived with this disease for more than 10 years (24 yrs to be exact). Maybe I'll make myself the poster child for longevity with a chronic disease :cute:

Peace and Blessings

Nope not alone, I'm right behind you with 16 years under my belt and counting. :laugh:

03-16-2009, 05:44 PM
I was diagnosed in 1997. I was always tired years before that.