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View Full Version : To Everyone in Pain and Suffering Today....



Rastagirl
02-20-2009, 09:01 PM
I just wanted to let you know that I care, and I'm thinking about you today. I know there are plenty of people, some that post here often and some that we never hear from, that are suffering in pain today, and I wanted to tell you I am truly sorry.

I am sorry that you are hurting so much. Sometimes almost more than you can bear. I am sorry that you have to live with this and every day face the difficulties. And I'm not just talking about the physical pains, I mean the emotional ones, too. The ache of being so lonely you could cry. Of, perhaps, feeling all alone, even when there are people in the room right next to you. I'm sorry you suffer because no one understands you. I'm sorry that sometimes it hurts so bad, you just wish it would end. I understand all of the heartache and anguish that goes with this rotten disease, and I wish I could 'wish it away for you'.

Please know that when I first joined this forum last April I was unbelievably overwhelmed with the number of people all around the world that are in the same boat as I am. Every day it seemed another person would appear and cry out for someone to understand them. Someone to listen. And we are in all corners of the world. Why does the world not listen to us, pay attention to us?

I do want to share one observation I have made about those with Lupus. In all my encounters with those that have Lupus, one thing stands out. I have noticed that every single one of them is a kind, compassionate caring person that does not deserve this. Every single one of them! I'm not sure why, but I guess mean people are somehow exempt.

If you are reading this, where ever you are in the world today, please know that even though I might not know your name, or anything about you, I am still thinking about you and sending you gentle, caring hugs. Not the kind you can feel, but the kind that come from my heart straight to yours.

Please keep your head up high, hold on to a strong, fighting spirit in your heart, and never let Lupus win! I don't intend to.

If you read this and want to join the forum, please do so and feel free to send me a private message if you want to 'talk'. I'll be here for you.

Fondly,

Lori :)

sick n tired
02-20-2009, 09:31 PM
How sweet, of you Lori...thanks for this post it is like walking outside in the spring just after a rain. :-)

mountaindreamer
02-21-2009, 12:35 AM
thanks so much Lori. Your timing and words were perfect.

phyllis

cherokee993
02-21-2009, 10:15 AM
Thanks I really needed to hear/read that today. I'm sick and that is making my body hurt and I need to call my physician for a refill (but of course its the weekend LOL). So its so nice to hear something positive and loving.

And you are right everyone here seems to be nice and caring and sweet. So I guess mean people do get exempt from the big L. Guess we were just meant to be stronger!

((HUGS))

Angel Oliver
02-21-2009, 11:34 AM
Ah Lori,

So nice :)

Love n hugs
Angel.xxx

Rastagirl
02-21-2009, 11:36 AM
sick n tired...mountaindreamer....cherokee...

You're welcome. I've been meaning to post this for the past few days, but couldn't quite figure out how to say it.....last night it just sorta fell into place.

My heart just opened and the words spilled out....

Hugs...Lori :)

Rastagirl
02-21-2009, 01:41 PM
Love n Hugs back to ya Angel.....

Lori :)

mountaindreamer
02-22-2009, 10:10 AM
hi lori,

love the avatar
phyllis

Rastagirl
02-22-2009, 05:58 PM
Thanks mountain...

Pink Floyd's my all time #1 band.....

I have to share a story with you....

A few years ago, I was driving along a country road near my house....it's the back way I take to the Cosctco I shop at. I'd driven the road many times over a 4 year period and always noticed this kind of ugly, grey barn as you crested a hill. One day, I crested the hill and someone had painted the entire side of the barn with the 'Dark Side of the Moon' symbol. It was so amazing! Huge! And unbelievably colorful. I was so wowed I nearly drove off the side of the road. It just made me feel so good all that day, so that night I thought "I'm driving out there tomorrow and take some pictures of it."

Next day, I jump in my truck and head out there. When I crested the hill, I nearly cried. The barn owner was just finishing painting over it and restoring his barn to an ugly grey. I coudn't believe it....I was devastated! When I thought about it, I realized someone must have gotten tired of seeing that ugly barn day after day and come in the night and painted it. So, of course, the barn owner had every right to paint over it. I certainly don't condone trespassing or painting someone's property....but couldn't he have left it up just a little while longer?? :)

Rock on....

Lori :)

Saysusie
02-23-2009, 11:41 AM
Lori;
That was very sweet, caring and thoughtful. Thank You So Much :-)

Peace and Blessings
Saysusie

Rastagirl
02-24-2009, 12:22 AM
Your welcome, Saysusie....

Sometimes all we have to offer others in their suffering, especially in a world this big, are words of understanding and compassion. I've been trying to make my words count....

My hope is that they will bring comfort and hope where they are most needed.

Most fondly,

Lori :)

Saysusie
02-24-2009, 11:01 AM
You are so right and sometimes, just that kind thought and act of caring is just what someone needs. I am glad that you posted it because I've come back to your post several times already! :-)

Peace and Blessings
Saysusie

Rastagirl
03-05-2009, 09:45 PM
If nobody minds, I thought I'd bring this thread back up for anyone new, to the site and to Lupus, that may need some comforting.

Too often, I find it overwhelming to read about all those suffering and living in pain day after day. I wish I could help lighten your burden and hold your hand so you won't feel all alone.

I say a prayer for each of you out there...'May a day come soon when your pain eases and some gladness returns to your heart'.

Fondly,

Lori :)

mountaindreamer
03-06-2009, 06:30 AM
hi lori,

thanks so much for bringing back this thread. I, like other oldies ( and i do mean in age) here, just ache for all of the young people i meet on this forum who are struggling with the debilitation of lupus. I know that i had it when i was young, but i don't remember the day to day issues that we face while going to school, dating, raising children, etc. that goes along with youth.

I so wish that I could take this away from them, lock it away, and let them live a life full of experiences, fun, and growing. For some reason, I feel it is ok that someone my age deal with it, but it is such an injustice for this illness to ruin these young lives.

Oh yeah, Pink Floyd has always been my #2 band. I grew up in the days of the Beatles, and John Lennon just rocked my world. then came along Pink Floyd, and my admiration for them has lasted all of these years. I guess the man with the barn did not realize the work of art that had been shared with him....that is a shame. I would much rather live in a world of Pink Floyd color than in a world of a faded gray barn.

hope you have a great day,
phyllis

Angel Oliver
03-06-2009, 06:55 AM
Oh Lori,

You are such a thoughtful and lovely soul.Thank you. This thread is lovely.

love
Angel.xxx