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Danica01
02-12-2009, 10:26 AM
Has anyone taken or is taking Cymbalta :?: The doctor just put me on it today. For a week I am to take 30mg in the morning and then increase to 60mg after that. She wanted to put me on Plaquenil but I had a horrible skin reaction to it so that is out of the question............it sure did help the joint pain :( She took me off of flexiril and amitriptyline. So, in the morning I am taking theophylline for my asthma, lisinopril for BP, folic acid, cymbalta and celebrex. At night I am on lyrica, tramidol, lybrel, folic acid and bactrim. Every Monday I take .6cc of methotrexate, it used to be .7cc but she dropped it a bit :) Just wonder if anyone has any advice on all of it :wink:

Danica01
02-12-2009, 11:07 AM
I also wanted to let you all no that cymbalta was originally used for depression. They have found that these drugs also affect two parts of the brain......these two parts of the brain are how we receive and process pain. It actually helps to dull the nerve endings so that the pain is less and we are able to be more comfortable. The doctor said it could take up to three weeks for it to start working with the neuropathy. I will keep you updated on how it works for me! By the way my doctor said that someone with our disease should keep a symptom journal that includes our symptoms and even our reactions to medications. I have my little pad of paper right next to me in bed so I can record good days and the bad days so we can see if there is a pattern anywhere! Hey, it is worth a try isn't it :?: :wink:

Saysusie
02-12-2009, 11:23 AM
Yes it is. I know that more & more doctors are trying to move away from muscle relaxers to treat Fibromyalgia. I've heard good things about Cymbalta, but have not used it myself. I'm glad to hear that it is working for you. :lol:

Peace and Blessings
Saysusie

Danica01
02-12-2009, 12:03 PM
I will keep you updated :D Do you know why they are moving away from muscle relaxers?????

Danica01
02-15-2009, 11:18 AM
I am feeling sooooooo sick on this medicine! I feel like I live in a constant state of nausea. It comes in waves, I figure that is because it is extended release. Tim is only home for a few days until he leaves for quite a while and I hate feeling like this with him home. I feel like I am slipping into a state of yucky sadness. I just don't know what to do. I know I can't stop taking it or it will never have a chance to work......

Volte
02-15-2009, 04:43 PM
At least she took you off amitriptyline, but Cymbalta and Ultram (tramadol) are contraindicated. There is a new black box warning on Cymbalta about this, so you may just want to pay extra attention for any side effects. You can do this, but you just have to be very aware as you titrate up with the Cymbalta. Ask me how I know. ;) That was a fun birthday- let me tell you.

http://chronicfatigue.about.com/b/2006/10/15/new-warning-on-cymbalta-label.htm

Danica01
02-15-2009, 06:07 PM
I can only imagine! I actually called my doctor today because it is just too much. I can not do this for another 3 weeks. This is just not going to be the one for me. I am still feeling sooo sick but Rastagirl has really held my hand through this one. Are you still on it?????

Volte
02-15-2009, 07:36 PM
I had severe serotonin syndrome. I had seizures on it (Cymbalta, Elavil, Tramadol). I was hospitalized and kept unconscious while they flushed the medication from my system with high doses of Valium and Benadryl.

I don't doubt the value of Cymbalta for pain management in cases of Lupus, Fibro, nerve pain conditions, etc... but, the amounts of doctors doing off label and contraindicated prescribing makes me nervous!

Danica01
02-15-2009, 08:26 PM
Thank you so much for that article. I am not taking it anymore. Period. I was taking Tramadol every night, 2 of them and was getting ready for tonight's dose when I was stopped and will not take it again until the cymbalta is out of my system. I was never even warned about this. My pharmacy is great with things like this but these were samples and my pharmacy did not know. From now on I will not take samples from my doctor to save money that way there is a bit of checking from another end of things. Thank you so much. I do not think this is what I was going through but I would have continued on it and even increased my dose after Tim had left for work and I would have been alone. Tim and I always work as a team when it comes to my meds. Any time a new one is introduced he watches for changes that may not be normal. This was not normal and was miserable. I am so happy you are ok and I will be too!

Volte
02-16-2009, 12:40 PM
I am REALLY glad you are okay! The reason I am alive today is because some kind soul butt in on the internet and told me my med combination was unsafe! I just want to promote awareness as some doctors don't even know of this black box warning on Cymbalta and continue to prescribe two, three, FOUR contraindicated medications to patients!

mountaindreamer
02-16-2009, 05:04 PM
hi danica01,

just wanted to tell you how happy I am that you were able to get good information from the knowledgeable people on this forum. I had a dr. to tell me about a popular med for fibromyalgia. I asked my pcp, she checked, and said NO....it was not compatible with my heart med.

Again, good drs. are absolutely necessary. A team is only as good as the sum of its members. I had issues with my pcp when I first saw her. I called her office manager with my concerns, and was told by a compassionate person that the dr. was especially good as a patient advocate. Realizing how important advocacy is, I decided that I would try to work past the personal insult and give her another chance. We met again, discussed the offensive event, got past it, and now she is one of my best advocates. After all, this is our health, not our feelings, and it is so important to find a good fit with a dr....even if that means staying with them and working through side issues. The problem seems to be that some maniacs continue to think this is in "our heads".

I read so many posts from members who appear to be stuck with some of the most non-profressional drs. that I have heard of. I wonder if maybe we should take a family member with us to the appointment. This would serve as validation of our problems, and as a person who can account for the horrendous behavior of the dr. If the dr. thinks that "a sane person" is observing their behavior, maybe they would behave themselves. Just a thought.....

I wish you the best Danica.....don't give up on yourself.

share a smile today,
phyllis

NoodleMom
02-16-2009, 05:17 PM
I am on Cymbalta. I was originally taking it for depression. I was on 60mg. When I was diagnosed with Lupus my Doc told me about how lupus helps with pain so he bumped me to 90mg and then 120mg. !20mg works best for me.

K

Danica01
02-20-2009, 12:08 AM
Thank you for your kind words! I have missed you all so much!!!! Today is the fist day in 8 days that I have not thrown up all day. The doctor finally called me back after 4 days of leaving her messages. She said that is was probably an infection in the lining of my stomach. I laughed at her and said that is funny because none of this started before the new meds and now that I finally stopped and have it out of my system things are looking up. She then said it was a virus and I told her last time a doctor told me it was a virus I ended up having surgery 10 days later.

Good doctors are so important and I had an amazing team until my insurance changed and now I feel like I am left to pick up the pieces with all the new ones. Tim want me to give her a try and tell her exactly how I feel and to not be all nice about it if I am really bothered. I know I need to be more forceful and to remember that I am my own advocate and make sure I feel that I am getting the care I need. I am just so upset about this past week and everything that happened.

I won't ever give up, I promise you! I will keep my head up and keep trying until something fits again!

Thank you so much for everything. You have really made a difference through all of this!



hi danica01,

just wanted to tell you how happy I am that you were able to get good information from the knowledgeable people on this forum. I had a dr. to tell me about a popular med for fibromyalgia. I asked my pcp, she checked, and said NO....it was not compatible with my heart med.

Again, good drs. are absolutely necessary. A team is only as good as the sum of its members. I had issues with my pcp when I first saw her. I called her office manager with my concerns, and was told by a compassionate person that the dr. was especially good as a patient advocate. Realizing how important advocacy is, I decided that I would try to work past the personal insult and give her another chance. We met again, discussed the offensive event, got past it, and now she is one of my best advocates. After all, this is our health, not our feelings, and it is so important to find a good fit with a dr....even if that means staying with them and working through side issues. The problem seems to be that some maniacs continue to think this is in "our heads".

I read so many posts from members who appear to be stuck with some of the most non-profressional drs. that I have heard of. I wonder if maybe we should take a family member with us to the appointment. This would serve as validation of our problems, and as a person who can account for the horrendous behavior of the dr. If the dr. thinks that "a sane person" is observing their behavior, maybe they would behave themselves. Just a thought.....

I wish you the best Danica.....don't give up on yourself.

share a smile today,
phyllis

mountaindreamer
02-20-2009, 05:56 AM
good morning Danica,

I am so glad that Tim is active in your health. See if he can go with you to the dr. It is impossible for us not to become emotional because we are in so much pain, sleep deprived, upset stomach, etc.....list goes on. I wish people did not have to change drs. in the middle of their care, this just complicates our situation.

best of luck....keep us posted....hope dr. will help with your tummy issues.

phyllis

Lizza
02-20-2009, 01:46 PM
I was put on Cymbalta at my last appointment (60mg./day) and it mad me feel like a crazy person! I stopped taking it after a few weeks because I was feeling depressed and waking up in the middle of the night crying about nothing really. I was taking the time released ones at night and the entire next day I felt like a zombie. I just couldn't get out of my fog. I was also taking gabapentin (a drug for nerve pain) which those two things did nothing good for me. I have since stopped both. I am back on my ultram which doesn't do much but I guess it's better than nothing. Best wishes

mountaindreamer
02-20-2009, 02:51 PM
hi lizza,

i too tried cymbalta, drove me crazy, took myself off after a very short period. I don't blame you. Also, I took ultram for a while, and it just did not help with flares...you might want to ask for something stronger for you to use during flares.

phyllis

Danica01
02-20-2009, 10:12 PM
I am so sorry about your hard time! You are not alone.....it made me sick, zombie like and feel completely not like myself. I know it works for some people but it just did not work for us. It is really tough trying and having the medicine fail and just having to wait until it is out of our systems. I also took the time release ones and everything felt like waves through the entire 24 hours......I was just so sick and so sad!



I was put on Cymbalta at my last appointment (60mg./day) and it mad me feel like a crazy person! I stopped taking it after a few weeks because I was feeling depressed and waking up in the middle of the night crying about nothing really. I was taking the time released ones at night and the entire next day I felt like a zombie. I just couldn't get out of my fog. I was also taking gabapentin (a drug for nerve pain) which those two things did nothing good for me. I have since stopped both. I am back on my ultram which doesn't do much but I guess it's better than nothing. Best wishes

Danica01
02-20-2009, 10:18 PM
Good evening my Phyllis!

Another day with food in my belly and feel I am getting stronger more and more! It is so hard switching doctors. I loved my last one and she had been with me for over 6 years. I was comfy with her and she knew me and everything I went through. I miss her so much and feel like my whole team has been uprooted and will never be the same. Tim will be at the next appointment. I know he has plenty to say and he will not hold it back and he will make sure all of our concerns are addressed. Oh, I just want someone to help with being comfy in day to day life.......is that to much for ask to ask???!!!! :-)



good morning Danica,

I am so glad that Tim is active in your health. See if he can go with you to the dr. It is impossible for us not to become emotional because we are in so much pain, sleep deprived, upset stomach, etc.....list goes on. I wish people did not have to change drs. in the middle of their care, this just complicates our situation.

best of luck....keep us posted....hope dr. will help with your tummy issues.

phyllis

mountaindreamer
02-21-2009, 12:54 AM
you are so right,

it is the day to day discomfort that weighs me down too. I get so tired of trying to figure out what i feel like cooking....i wish i had someone to just cook something and bring it to me. Even deciding what clothes to put on can be trying. ha ha ha

i have never really thought about the day to day angle...could make for some fun posts.

Danica01
02-21-2009, 07:09 PM
I agree!!!! I think we all need a personal assistant.....one to cook for us, dress us and run our errands for us!!!!! Life would be so much easier to enjoy this way!!!!