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NoodleMom
02-03-2009, 12:55 PM
I went to the GI doc today. He told me that all of my stomach issues are due to the diabetes. I have never heard of this before. Have you ever heard of this correlation.

I am absolutely flabbergasted.

K

BonusMom
02-03-2009, 01:17 PM
If I recall, about 1/3 of patients who have been diagnosed with gastroparesis (slow motility of the stomach) are diabetic (due to a damaged vagus nerve). Post-surgical/post-viral accounts for 1/3 of gastroparesis patients and idiopathic patients are the remaining 1/3.

Since being diagnosed with SLE and Sjogren's a couple of months ago, I have often wondered if those that are being considered as having "idiopathic" gastroparesis developed it as a result of or in conjunction with an autoimmune disease :idea:

My tummy symptoms began in 2006. I've had increasingly painful feet for the last few years and dry mouth..........forever. Hard to say what symptoms came first-autoimmune or gastroparesis related.

sits_inthe_corner
02-03-2009, 01:32 PM
Gentle hugs to ya NoodleMom

Is your GI sending you to a specialist? Is it possible to ask for a second opinion. That sounds like a reasonable request to me, under the cercumstances.

Oluwa
02-03-2009, 01:42 PM
Hey Kasey...

Did your GI doctor do an upper endoscopy and lower? I remember you mentioning emptying too fast....

I too was emptying too fast. diagnosed at the ER....

Then too slow when my food was getting stuck in my esophagus and then when it fell in, it rotted in my tummy for 12 hours plus....tests revealed I had H. Pylori. Was treated with the big gun antibiotics. H. Pylori is a big instigator for stomach problems...

I also had a Barium X-ray Test which showed I had a slow moving tummy. Prescribed Reglan so my stomach would contract more. I take at my evening feeding.

I also had my esophagus dilated to stop my food from getting hung up...

I have Gerdie..GERD. I took Protonix for two years...as of late I discontinued it, by myself. Determining if I had an allergic reaction to it, bout of hives, rash and what nots. And I am doing quite well without it. For the first time in years with my tummy feels okay. A little pain, ache not burning in my esophagus now and then...

And no gluten...has helped too...

Enjoy your afternoon, Kasey..
Hugs.
Love,
Oluwa

NoodleMom
02-04-2009, 06:14 PM
I had an upper and lower GI a year ago. This doctor wants to do an upper GI to see if there is food in my stomach after fasting 12-24 hours. He says that if I do then all the stomach issues are diabetes related. He said that I need to have better control with my diabetes. He asked if My diabetes was under control. I said that I have been having some troubles with them being high. I never gave him any numbers. He then after I listed off everything that has been going on with my tummy troubles and my bowels says all this is due to my diabetes and the fact that it is not in good control. My sugars run in the upper 100s with an occasional 200+ to low 300s. The 300s are very rare. My pre meal sugars are 140 to 160. A little high but not terrible.

I had a stricture like you did Oluwa. They stretched it out last year. This doc says he will do the same. He then told my HubbyMan to remind him the morning I have this done to also take biopsys of the lining of my stomach.I also have gastritis, GERDs, IBS, watery diahreha, nausea, severe gut pain, vomiting, no appetite, food intolerances and probably other things I forget right now.
We are going to make an appt. with the endocrinologist. I have just been seeing my reg. doc for it since we moved. We are also going for a second opinion. Dont know who or where.

I am taking protonix for my belly pain. I take two tabs a day. It does help. I discovered the hard way that it is helpin. I had to go over a weekend without it because we forgot to call it in. Needed a doctors approval or something. Maybe we didnt have the $. I dont know. Whatever it was we wont do that again.
My rheumy started me on Imuran, flexeril and a spit pill.
The spit pill works wonders for my dry mouth. The flexeril I take before bed and I sleep well with nicely relaxed muscles. Im not real sure what the Imuran is to do but I have been feeling better. I did the dishes today and did some laundry also. I have been in bed pretty much since before Christmas I guess. As of last week each day I do feel better than the day before. It is the stool crap (pun intended) and gut issues that are frustrating right now. I have been dealing with this since the beginning of October. I have also lost 37lbs. Oh and the doc gave me a steroid shot right in my butt. A friend said to me when I told her, You dont have a butt anymore. She is right we had to buy one of those cushy eggshell type pads for the bed cuz my kiester hurts sitting on the bed.

It cant get much worse can it?

Kasey

BonusMom
02-04-2009, 09:58 PM
Initially, I had an endoscopy that showed gastritis (but no undigested food in the tummy) and a colonoscopy that showed ulcers. I continued to vomit after eating just a few bites. Finally, the gastroenterologist ordered a gastric emptying scan which revealed slow motility. When the "standard" meds didn't work or rendered me incapacitated, I sought help from a motility specialist-a GI who specializes in digestive issues. He ran additional tests that showed that my stomach was no longer stretching to accommodate food and the pylorus was really tight. I even had a botox injection (still have some wrinkles tho ;). I definitely think, especially with your being diabetic, that a second opinion with a GI is warranted. Take care.

NoodleMom
02-05-2009, 05:53 AM
BonusMom it is interesting all the tests they can run now isnt it? Are your stomach issues doing a bit better then?

Kasey

iseedeadmonkeys
02-05-2009, 05:56 AM
What does GI stand for?

ISDM
x

rob
02-05-2009, 06:20 AM
What does GI stand for?

ISDM
x

G.I. stands for Gastro-Intestinal.

iseedeadmonkeys
02-05-2009, 08:35 AM
Thankyou Rob :D

Saysusie
02-05-2009, 09:17 AM
NoodleMom;
I posted a reply to your question in "Lupus Medications". I am so sorry that you are suffering so. You and Oluwa have been dealing with so many issues for so long!
Let me know if I was helpful in my response. If not, or if you need more, please do not hesitate to ask me anything!

Peace and Blessings
Saysusie

BonusMom
02-05-2009, 09:23 AM
BonusMom it is interesting all the tests they can run now isnt it? Are your stomach issues doing a bit better then?



My digestive issues are not too troublesome right now. The vomiting has lessened to just a few times per week vs. after every meal (except when I eat my beloved mashed spuds with gravy :cry: ). I previously described them to my family as "flares", getting one or two per year that last a few months. Now that I have been diagnosed with AI issues, I wonder if the tummy "flares" are connected to AI "flares?" I was only diagnosed in December with SLE and Sjogren's, so I don't really know that I've had a "true" AI flare. I have sore feet, fatigue, brain fog and dry mouth on a daily basis, so I don't know if I could identify what a true flare is.

Diabetics with gastroparesis have a particularly rough time of it since diet and nutrition are the mainstays of good diabetes control. If you're vomiting all the time or "just" nauseous and can't eat, your blood sugars are all over the place. The diet that's promoted for easy digestion "white is right", ie white flour, white rice, etc., no fiber or fat, is a diabetics nightmare!

Gastroparesis, like SLE, Sjogren's, etc. are all chronic illnesses that can't be cured. If determined to be a candidate, one can have a pacemaker surgically placed in the stomach to stimulate contractions (like a heart pacemaker). The pacer may not cure you, but can lessen the amount of vomiting episodes and help with nausea.

I'm still in the denial stage about the SLE because although I have positive labs and meet the criteria, I've not been impacted like so many of you (thank you, God!). No malar rash on my face (just an ankle), no kidney issues. I am truly thankful, but still question the diagnosis.

Does SLE progressively worsen or do people stay relatively the same as when they are initially diagnosed? What I mean, is that if I don't have kidney involvement now or the typical rash, would I likely develop them (or any other symptom that I've not yet experienced) at a later time?

I know we're all unique, but I'm looking for a generalization here, not exact science :wink:

NoodleMom
02-05-2009, 01:46 PM
BonusMom
Not much time at the moment. I will come back later to answer your questions. There are so many knowlegeable people here maybe one of them will stop by too.

bbl
Kasey

Oluwa
02-09-2009, 11:27 AM
BonusMOm...

The disease is so unpredictable but with drugs and home care we can prevent, manage the symptoms with...

Exercise.
Nourish foods.
Manage stress.
Balance rest and tasks
Take our medication on time, on schedule.
Report any and all changes, symptoms to our doctors.
Educate ourselves about lupus and self-care.
Regular dental care.
Regular eye exams.
Keep our appointments with our Rheumba..the every two months, three months whatever schedule they set up to do your labwork.

And a biggie surround yourself with a support system of family, friends, and health professionals. If the relationship is too strenuous, stressful emotionally, weed it. Stress... It incites inflammation in me...hugely.

When we take one of the above out of the equation we create, at least for me, an imbalance, causes mental and physical stress and my symptoms get exacerbated and new ones pop up. The pain reels me in, and emotionally I become a wreck...then all the symptoms surface or blare. And I get lost in the cycle of IT. In me, it thrives off of stress.

I've read if your symptoms came to life in later years for a woman, 40 plus organ involvement is less likely...but there is always the ifs and buts.

Me..symptoms came and left for about 20 years, rash, pain, tiredness, costochondritis. Wrote them off as to being something else.

Then one day the pain incapacitated me, the fatigued left me feeling like death was settling in, my hair thinned to the point of looking like Biden's hair plugs and the malar rash never left.

Times I thought and verbally ask, with a jokingly smile, but really thought to my husband..are you poisoning me...I watched too many forensic shows. It seemed I would get sick on the weekends. He traveled and came home for the weekends. Must have been more stressful on me then I thought..

Something new in the last 2 - 3 years. I've had protein in my urine. Treated for my very first UTI two years ago..develop GERD, pleurisy, pericarditis. So, in me a bit, of heart, lungs, kidney, stomach and the biggest organ..my skin. Wow, and what a pain it has been lately.

The stomach and skin has been a toughy for me. I too am thankful, as my symptoms could be worst.

After this past cervical spine surgery in 2006, I flared hard for 5 months...and never really recuperated from that flare. I've been in a perpetual flare...

I believe if I didn't do some of things to care for myself, or not try to..I would be worse. So, I do try to follow the list above. I am a work in progress...tweaking and rearranging with many various types of tools.

Be well...Hugs.
Love,
Oluwa

Oluwa
02-09-2009, 02:14 PM
Kasey...

Stomach issues are wearing on the body and mind. Just such a constant nag and the daily physical ongoings of it. Me, I'd rather have a broken leg than digestive issues. We need that nourishment and when it isn't staying in us properly at any stage of the game it affects the machine, with Lupus or not.

Toss Lupus and diabetes in the mix...that is a hard one...head hugs,

Have you had the Barium X-ray test done? That determines the rate at which your stomach digests food too. Costs... is a less expensive way to determine if your stomach is digesting food at a normal rate, I would think...

Are you supplementing with anything, like B12...times that can create a lot of problems from my reads. Too much and too little can cause Gastrointestinal symptoms.

Have you had the blood tests to check the number of red blood cells and to see if your body has enough vitamin B12? Too low can cause diarrhea, appetite loss...

Tested for Crohns?

Did you make an appointment with the Endo today?

I once went without Protonix for 2 months, cripes what pain. The rhuemBA told me to stop taking it as it may interfere with my other drugs. I complied. Wow, what insane pain...the inflammation radiated into my chest, back and neck until the next routine visit.

He said, he never said such a thing. Hummm...I think he was out in the corn. I had no idea it was the GERD that was causing all that pain at first. Back on it, and I was singing again.

Head hugs..hope today is better than the one before..
Love,
Oluwa