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View Full Version : Hi everybody 24 yo male here with SLE



doministic
01-26-2009, 01:10 PM
Hi everybody let me introduce myself...I'm 24 yo male diagnosed this last year with lupus (systemic?) I am 1 of two male lupus patients currently being treated by my rheumatologist. My story is quite long and I'm sure a lot of all of you have similar stories...

I had been infected with ebstein barr virus about 2 years ago and I kept getting sick cyclically about every 4 weeks for an entire year. My doctor thinks that EBV may have caused me to get the disease but he isn't 100% sure. All of my lupus symptoms have been very atypical compared to what people normally experience. I don't experience any hair problems, skin problems, or memory issues. My problems have all been in my blood (hematological). Very low white blood counts, low platelets, highly anemic, palpitations, and joint pains and soreness.

My doctor threw me on plaquenil which has worked wonders for me and has pretty much restored me to full health...I am so thankful for this. This disease is terrible...I am a full time pharmacy student so I heare all about these diseases. It definitely changes your prospective when you get one yourself! I find that it helps me to remain positive about our challenges and to take things day by day. I am excited to be a part of this community and hope to bring something to the table for everyone.

Oluwa
01-26-2009, 02:52 PM
Hi Doministic...

We are excited to have you...welcoming you with a warm hug.

I am so glad Plaquenil is doing your body wonders...it is a great drug. It pulled me up and out when I was a painful crumble mess.

Be well, keep well.
Hugs,
Oluwa

KathyW1958
01-26-2009, 03:03 PM
Hi Doministic,
Welcome to the site. I am glad that you found this site. There are a lot of wonderful folks that come in here. There are some male members as well. One of the moderators is male. Rob is wonderful and has a wealth of information from the male perspective of this rotten illness.

I am glad that you are doing pretty good. Hopefully one day they will have a cure for this illness. Please keep posting.

Hugs,
Kathy

cptnblah
01-26-2009, 03:21 PM
Hello doministic!

I am also a male, 43yrs, that was d/x with Lupus among others. I have never heard of that virus but it does not sound nice. I am also new here and I have already found that there are quite a few good people here.

I hope to talk more later as I have to go do my meds and go to bed.

iseedeadmonkeys
01-26-2009, 03:34 PM
Nice to meet you :D

nice to see there are more men with lupus joining this forum, not for me obviously but for Rob:D ermmm thats not excactly how that sounds either

AHEM il move on now...................:D

xx

Spanglishqueen
01-26-2009, 05:06 PM
Welcome :!: I just found this site yesterday and everyone here is totally amazing. You will feel welcome in 3.2.1....Did you feel it?!?! :D

mountaindreamer
01-26-2009, 05:45 PM
hi doministic

welcome to the forum. I am sorry that you are experiencing the challenge of learning what you have, what treatment is available, and what you are going to do about your life.

anyway, we are all here for each other, so welcome and i look forward to walking with you through this process.

share a smile today,

sits_inthe_corner
01-26-2009, 06:01 PM
Welcome doministic

Glad you found us.

As you can tell this is a very warm and friendly site. Lot's of good folks.

Angel Oliver
01-27-2009, 11:13 AM
Hello and welcome :)

Sending you gentle hugs .

Love
Angel.xx

Saysusie
01-28-2009, 12:34 PM
Hello and Welcome to our family :lol: I am so glad that you are here and I know that you will find answers, support, understanding and comfort here!

Peace and Blessings
Saysusie

Rastagirl
01-28-2009, 02:42 PM
Hi Doministic

Just wanted to add my welcome to the bunch. :)

You are so right about 'staying positive'. That can be a definite boost to the immune system, and that's something we all can use in our battle.

And one day at time. That's about the only way one can take on something as life-changing as this and keep one's sanity.

Glad you found us..........

Fondly,

Lori :P