View Full Version : EEG's and lupus flares
01-25-2009, 12:19 AM
I had an eeg on friday. By that night my face was really red and burning. I also have a rash were a lead was placed on my right cheek. I'm guessing this is from the strobe lights that they used to try and make me have a seizure. I'm also having worse joint pain and fatigue. I slept all day. Well I didn't have a seizure so the tech said I may have to redo it. I don't want to go through this again. Has anyone else had a flare after an eeg?
01-25-2009, 01:01 AM
I'm so sorry you're in a flare and in so much pain........no fun. :cry:
I haven't had an EEG, so don't know if it could trigger a flare. Maybe the stress it caused to your system has triggered one. You should let your doctor know about your reaction to the test, especially if things are still flaring on Monday.
Since I've had Lupus, I've always had very, very sensitve skin and some of the simplest things touching it have caused irritation or rashes. And those leads they use on the medical equipment are usually stuck on with pretty irritating adhesives. Maybe that's what's caused it. You might try using a little Cortisone cream.
Sorry the test wasn't succesful and you've got to go through it again. Sounds like no fun at all!
Sure hope things will calm down for you soon.
01-25-2009, 04:14 AM
I had a EEG a few years ago b4 i was diagnosed with sle,
and i had similar simptoms, they are odd, actually ive had 3 eegs one was ther at the hospital awake with the lights etc, one was sleeping at the hospital and the other was weaaring the damn thing home, it was in the middle of summer and i wore a hoody that covered my whole head just showing my face lol, hmm anyway it did trigger a flare coz within 6 months i was flaring,
01-25-2009, 04:32 AM
Ya its crazy. I had my first one done in 2002 and didn't have any issues. This one made me feel horrible. I slept all day yesterday that's why I'm still up at 4 am here. I took pictures of my red rashy face to show dr. I'm going to have to see him monday.
01-25-2009, 04:50 AM
Oh so sorry to hear you are feeling bad. I am sending you gentle hugs and thinking of you.
01-25-2009, 05:47 AM
Good luck for today Karli
let us know how things go
I had a flare up after an eeg
04-29-2010, 09:34 AM
I also had an EEG two days ago then the follwoing day i had the most massive headaches whcih i had at the beginning of my lupus and then I became grumpy and disagreeable. it was terrible and all the doctors had no idea. it seems no onw knows about this disease.
04-29-2010, 11:34 AM
thanks for pulling this thread back up. I had forgotten about EEG's and flares. I will try to remember this valuable information, but will probably forget again.
and you are correct, it is scary that the medical professionals do not know more about lupus, but they don't and that is why we must rely on ourselves to stay informed. It is not uncommon for me to change a specialist because of their lack of information about auto immune diseases....an uninformed physician can be very damaging to us.