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f3r613
12-28-2002, 12:20 AM
Heared somthing weird a few days ago and don't know whether to jump for joy or be angry, just heared my consultant is publishing a medical paper which has my name stamped all over it, aparantly im a somwhat unique lupus case in that the organs damaged by the lupus (namely my kidneys) actually regenerated themselfs of there own accord and they are looking for a gene in my system that fights the lupus, good news you might think but the fact i heared this information second hand off a friend of a family member makes me real angry as i have not been told or consulted on this at all, i relised my consultant was keeping somthing form me the last time i saw him and now i know what, i feel like a guinipig that has been kept in the dark and never relised he was a guinipig, i feel like im here suffering and my consultant is furthering his career at my expense, now if this research can help all you out there that suffer as i do then im glad, but to have it kept secret from me. I would at least like some input into this process, also i know that he knows that i use canbis to ease my syptoms, well i have a suspicion he thinks this is accidental but i know for a fact i can ease my syptoms by using a minmal amount , and have been experimenting with dosage so i can function normally without getting too stoned that i cant function, if MY research and experimentation in trying to live as normal a life as i can manage will help then so be it, but i have a sneaky susppicion that my consultant is going to say i did it by accident and take all the credit for noticing this(the secrecy around this whole thing makes me beleive this). ARRRGGGG what am i gonna do. Sorry about the rant.

Lee
P.S. I do not condone ANYONE to use illigal drugs and do this at my own risk, after all i cant just sit back and do nothing to eliviate these madening symptoms.

stjames13
12-28-2002, 04:59 AM
CALL A LAWYER if you did not sign a release he;s gonna owe you some BIG BUCKS!!!!!

stjames

personally I would be glad my kidneys were working as mine are beginning to create stones every week now...DAM they hurt

stjames

Saysusie
12-28-2002, 08:04 AM
f3r613;
Have you seen the report? Is your name indeed used in the report? If the answers to these questions are "yes", then do as St. James suggested - Call a lawyer and take the report with you! I am not sure what the legalities for name and case usage are for medical research purposes. They probably differ from the laws surrounded name usage in journalism or non-fiction! But, you should find out! I would imagine that even a doctor who has written a case study has to provide verification of that case (which would be you). Otherwise, how could anyone beleive his story. For example, this whole "cloned" baby thing - that doctor is going to have to provide the proof (ie - the baby) and will need permission to do so.
I am happy about the refunctioning of your kidneys - at least you have that blessing!
Take Care Of Yourself
Saysusie

f3r613
12-28-2002, 08:42 AM
Yeah i will do as you suggest first i have to get a poie of this report which might be difficult as, as fr a si know it has only been released internally within the univercity hospitle but i will try to obtain a copy asap, thanks for the advice

Lee