View Full Version : I'm Still Here! :)

01-03-2009, 03:43 PM
Hi All,

Sorry I haven't been around for some time, I kinda started to feel like all I did was take, take, take and not give and I am truly sorry for that. It just made me feel like I should just stay away or something. I dunno.

So here is some more taking, I don't have much to give right now as I am very sick and Rob, I know I need to respond to your questions and I have wanted to but things have been crazy in my life, that doesn't excuse not responding and I hope to do so soon so please forgive me for not doing so sooner.

I am at home with a HORRIBLE cold right now and I hate it (who doesn't!) I really don't know where I left off...lets see, well we got custody of my stepson, Gavin. I don't think of him as anything "step" he's just my son and I adore him and I think he likes having a proper mommy.:) He's 14 and in the 8th grade, he's almost 6 feet tall!!! He looks a lot like his dad, who is a very handsome man (I wouldn't settle for anything less!) ;) I tend to call him "little one", I don't know why, he's about a foot taller than me but he's just my litte one, anyway, when I sent family and friends his school picture I thought it would be fun to send them in baby announcements, you know the ones that say the date they arrived, height, weight all that and the cover said "The Little One Has Arrived", how fitting! As most of you know, I had several miscarriages and never got the chance to send out announcements, so that was a real treat for me, it was funny too! :lol: He's doing really well in school, for the first time, he's very smart it's just that no one ever bothered to help him along (we live in Oregon, he lived in Nebraska with his meth addict mom who hid him from us for a VERY long time, we tried to find him and when we did we went for custody, just wanted to put that out there so no one thinks we didn't try to be good parents.) My parents are musicians and I sing a bit, my husband plays drums and my parents got Gavin a Fender so now his our guitar player, we are going to start a family garage band, it should be fun! :) He's a natural at it so he fits in very well with my family. Of course he's a normal 14 year old and I'm constantly on him to pick up after himself, clean his room, etc...but I don't care about that stuff, I just love being a mommy!!! :)

Other than that, I won my disability case, thank goodness!!!!! Things are actually falling into place, for once, I'm always waiting for the other shoe to drop but I should just enjoy what I have and not think about that. Oh, the reason I have a cold (short version) We sent Gavin back to his mom for part of his winter break per the court order and she refused to send him home so we had to fly to Denver last Saturday, spend ALL night trying to find him, found him, slept a few hours and the flew home Sunday night. We are never sending him back AGAIN (even if it means a contempt charge)!!! The FIRST visit and she tries to kidnap him, really that is what she is doing if we have custody, UGH! So we hired an attorney here in Oregon and we are waiting the six months (ends in Feb) to have the case moved to Oregon, because Oregon takes meth use FAR more seriously than Nebraska does. It's not that we don't want him to see that side of his family, it's just that they hid him from us for soooo long and even with a court order she refuses to send him back to us and she plays awful mind games with him, she tells him she will kill herself if he leaves and on his b-day she sent him a pictures of herself crying!!! UGH! I know it's not right to hate a person but I hate her!!! She can do meth until the cows come home, I don't care but I will not put my son in danger by being with her! If the case gets moved out here, we are hoping the judge will at the very least make the visitations supervised and court ordered with random drug tests, what I'm really hoping is that she will lose her parental rights (she soooooooooooo doesn't deserve to be a parent) so that I can adopt him. Think good thoughts for us please. :) Trust me, I'm not over reacting, if you really knew how awful she is and what she put that poor child thru, you'd feel the same way! Oh and that little trip to Denver put me in the hospital too! UGH!

OK, enough venting...since I now have my son and won my disability I am going to focus on my relationship with Jehovah God, be a better mother and wife and the first step in doing all that is doing what the doctors say and try to get as healthy as a person can be with all my many medical conditions. :) I set Ms. Hepburn as my avatar because I've been told that I have the same turned up eyes she has and my name is Holly like the character she played, sans the prostitute aspect of that character. :) However, the one symptom I wouldn't mind having with Lupus is weight loss, I'm a cow, seriously, I don't look like "me" and I want that to change!Anyway, my doctors signed off on Jenny Craig (I have a lifetime membership) and I have an annual pass to do water aerobics and the doctors have my meds straightened out for the most part so here goes, I'm taking my life back from Lupus, it's been kicking my butt for some time and it is sooooooooo over!!! Ok, I know, I will always have it, flares and all, but I've really been letting it get the best of me and I am ready for that to end! :)

Ok, I have to go for now, this cold has me down, it may have won the battle but not the war! ;)

I truly hope all of you are doing well and please feel free to bend my ear when ever you need someone to talk to, you have all given me so much and I really do want to give back.

Take care out there,


01-03-2009, 05:16 PM
Hugs onpointe

Good to see you back on the board! I'm glad you're little one is in a stable home. :D

As for your cold. Ask you're doctor if you can take cold fx, it's expensive but it works and it shouldn't interfer with your other medications. I live on the stuff.

I start taking it if any one around me so much as coughs. Touch wood I've not been sick big time from the cold or the flue in over a year.

01-03-2009, 05:25 PM
Thanks for the tip! I'm glad you haven't had to deal with a cold or the flu, it's the worst! :)

01-04-2009, 02:33 AM
Hope you're feeling better soon :)

01-04-2009, 02:20 PM
Nice to see an 'old friend' posting, Onpointe! Glad about Gavin - I remember how badly you wanted that to happen. And good for you for taking charge of your lupus! I hope 2009 is 'the year' for you - turning new corners and making fresh starts.


01-06-2009, 06:05 PM
Thanks Jody! Yes, I really wanted Gavin to come live with us (always have) and I am sooooo happy to be a mommy! :) He's having some health problems and that's harder for me than all my health issues. He is seeing very good specialists so I hope we can fix whatever is going on. I am very afraid because he's having almost the exact same problems my cousin's little boy is having and he has Downs Syndrom, the doctor is going to test him for that and some other genetic testing. My poor baby, I pray he will just be ok, I just want him to have a "normal" childhood from here on out and feel safe and loved, he doesn't need this. If he does have it, he's on the VERY low end of the spectrum, no physical traits at all. I really just want them to figure out what is wrong so we can be as proactive as possible. I'm just going to make it a matter of prayer and hold his hand through this.

How have you been? I hope you are feeling well! :lol:

Thanks for all your support, I know I haven't been around for some time but you have always and still find a way to cheer me up! :)


01-11-2009, 03:45 PM
Onpointe, I know you'll make the right decisions for Gavin. He's lucky to have a Mom who is looking out for him. As you know only too well, that just isn't always the case.

I'm doing OK - have had some bleak periods and been hiding in a hole sometimes. Right now...OK. I'm re-learning how to manage my illness along with all of the other stuff that life sends our way. I'll find my stride again....and I'm grateful for those good days. They outnumber the bad days, thank God!

Good to hear from you....


01-12-2009, 07:05 PM
It is SO GOOD to see your posts and to hear that you have Gavin and that you won your disability claim!!! Those are all blessings.
I'm sorry to hear about the drama with Gavin's mother, that type of behavior seems to be so typical with persons who abuse substances. I hope that the new attorney is able to help you get a new visitation order!
I, too, have been suffering terribly with a cold. The common cold (to others) is such a set back for us. I tried the "Airborne" and the "Cold FX", while I still ended up very sick....I did not end up in the hospital on intravenous anti-biotics (which usually happens). So, I think that they did help a bit!
I hope you are feeling better soon.
Now, there is no such thing as "taking" too much here. If you are in need, we are here to provide. So, do not stay away because you feel that you are taking too much! That can NEVER happen.
Welcome back and I hope that things continue to work out in your favor.

Peace and Blessings

01-20-2009, 03:51 AM
Thanks Saysusie! :) How have you been feeling? Well I hope!

Well, now we have some new news; it's always something with our family, we call ourselves "the rare family" and for good reason, if there is a "rare" condition out there....chances are one of us will have it! I guess you have have to have a sense of humor about these things, what else can you do! :)

Actually I'm pretty worried, my son Gavin had an MRI last week ( I think I mentioned that he's been having some health problems,) they think he might have a tethered spinal cord, not good! I started researching it and guess what, my husband has FAR more markings and symptoms than my son so it's possible that he has it too! It can be fixed but working on or around the spinal cord is scary to say the least! We are taking our son up to OHSU on Friday to get the results and to meet with the Urologist, plus have some x-rays and other tests ran. THEN on Monday my husband is having his tonsils and adenoids taken out, that's 10 days of recovery, he also needs to have either prolotherapy or surgery on his elbow and knee, and we need to have an MRI done to see about this tethered spinal cord! OH and we all need lots of dental work (not me so much, that's one thing I have that actually works well!) ;) Ok, I'm venting, sorry, I'm just worried about my guys and I'm not in a position to be the bread winner again if something happens, nor do I have the energy to take care of both of them, I mean, I could do it but I'd probably end up in hospital!

Well, no matter what happens, it will be good to just get things taken care of and I'm glad we can do that, there are lots of people in the world that can't get the help they need so I will just shut up now....

How's everyone? Write and let me know, I could use some good news. :lol:

Take care all,


P.S. I'm doing well on J.C., down 5 lbs so far! :)

Angel Oliver
01-20-2009, 04:37 AM

Sending you gentle hugs and love.Hope you feel better soon and im so glad on your good news.