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Em
12-27-2008, 06:52 PM
Im a Mum to 2 boys aged nearly 10yrs and 6yrs.
My SLE was diagnosed shortly after having my youngest.
My partner and I would like to try for a baby (my 2 sons are from prev marriage) and wanted some advice.
My lupus consultant (Prof Graham Hughes) has given us the green light as it were but i wanted to hear from anyone really on any aspect of it, any advice greatly appreciated.
Many Thanks,
Em

sits_inthe_corner
12-28-2008, 04:01 AM
hi Em :)


My sister had 5 miscarriges before she was diagnosed, once she was diagnosed our family doctor sent her to the women's clinic where she had a team of specialists guiding her.

She now has two healthy teen age boys and she is doing very well herself. As you know lupus is very different for each person. The most important thing is to have good medical support.

Furrydog
12-28-2008, 03:00 PM
Lupus is quite a spectrum isn't it?

Depends on whether or not you have antiphospholid antibodies or not, whether or not you are on meds ?


Some meds you shouldn't get pregnant on e.g. methotrexate.

Some are fine.

But good luck anyway. Prof Hughes is like the Godfather of lupus so if he says it is ok, it should be. You probably go to the same unit as I do the Louise Cootes one? :D

jaideni
12-29-2008, 11:06 PM
Just make sure you get excellent prenatal care. I would like to suggest that once you become pregnant that you go to your doctor more than that once a month that is the norm. I was pregnant before I found out about the lupus and I was quite sick lost alot of weight but the baby was fine but because of the weight loss I was going to the doctor atleast once a week from the time I found out I was pregnant but that was because of the weight loss. I suddenly developed eclampsia, which if I wasnt going to the doctor as much as I was, could have been life threatening for my baby and myself. My bp while I was in the hospital was so high that the machines stop reading it last good reading was225/127 and they were shocked that I wasnt seizing or stroking. Anyway my point is that I think a lupus patient should see the ob/gyn more often maybe not as much as me but get those vitals checked often because the situation can change really fast. Hope you do have your baby and that things go well. BTW I did have a healthy baby she was just underweight at 9weeks arly that was truly a blessing and she came home three weeks later and has grown up to be a quite annoying but smart little girl. :lol: Have a great holiday season

Saysusie
12-31-2008, 09:08 AM
Here are some articles that you can read concerning Lupus and pregnancy:

http://www.hopkins-arthritis.org/arthritis-info/lupus/lupus-in-pregnancy.html

http://www.lupus.org/webmodules/webarticlesnet/templates/new_aboutaffects.aspx?articleid=79&zoneid=17

http://lupus.webmd.com/guide/pregnancy-lupus

http://www.storknet.com/complications/miscmaternal/lupus.htm

http://emedicine.medscape.com/article/335055-overview

I hope that these are helpful. Please let us know if you need more information.

Peace and Blessings
Saysusie