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mountaindreamer
12-24-2008, 10:22 AM
Hi everyone,

First let me wish each and every one of you a very merry christmas. hope all is well with each of you.

It is christmas eve, and my pcp called this morning to tell me that the excrutiating pain that I had last week that broke through the Medrol injection, appears to be my kidneys.

She said the blood work (sorry, I did not get the exact test information) shows my kidneys are borderline nonfunctioning.

I go in February to get a kidney ultrasound, and then I don't know what.

My question to my friends here is, what does this mean, what tests am i faced with, and what are the treatment options/effects.

I quess I just want to learn as much as I can, and I know this is where I can do this.....

Thanks to all of you, and again, merry christmas.

Phyllis

Angel Oliver
12-24-2008, 12:13 PM
Hi Mountain dreamer,

I can not help you on advice, but just to let you know you are in my thoughts. xxxx

Love
Angel.xx

hatlady
12-24-2008, 01:42 PM
Hello MountainDreamer -

I too can't answer your questions. Did your doc put you on a special diet to help your kidneys? Waiting until February says one of two things to me....either it isn't so bad it is an emergency, or you have a dreadfully slow PCP! I'm betting on the former...

Many hugs, and hopefully someone with more knowledge on kidney functions will be able to chime in.

rob
12-24-2008, 02:20 PM
Hi Phyllis,

Saysusie is our resident walking encyclopedia of Lupus and it's various manifestations and symptoms. As she's away for a few days, I'm going to try to steer you towards the info you need. Go to the website http://www.lupus.org where you will see a box on the top left of the page for doing a search. Type in Lupus Nephritis, or Kidney Involvement, and you should find some extensive information that will help you. I was going to just transcribe it here directly for you, but there's alot of info and the old fingers are kinda stiff today.

From my knowledge of the subject, I know that about 1/3 of the people diagnosed with SLE will have some sort of kidney involvement at some point. Blood work to check your kidney function can vary from visit to visit, one time looking normal, and a month later showing signs of impaired function. That makes sense in that your Dr. does not want to do anything immediately. If function is impaired, a wait and see approach does make sense, as a sampling of blood needs to be taken over an extended period of time to really get a baseline to work from. I know that's not what you want ot hear. Wait and see can be stressful to say the least.

Check out the link, and you'll find some solid facts and some answers to your questions. The good part, is that you sound as though you are only at a point where close monitoring is required, and there is no immediate danger. Of course, if you notice any changes that concern you, contact your Dr. immediately. Many of us are hesitant to talk to our Dr's and Rheumo's because we are afraid of being "the boy or girl who cried wolf". I say you are better off safe than sorry. If something changes, and you feel the need to talk to the Dr. then you should do it ASAP. I think the info on lupus.org will ease some of your worries. I hope you have a Merry Christmas.

Rob

mountaindreamer
12-25-2008, 06:14 AM
Merry christmas Rob, and everyone.

thanks for your informatie reply. I will return to lupus.org and do further research. We have suspected kidney involvement, but i am just getting to the specialists. When my pcp called, she did not know that i already had the kidney ultrasound scheduled. i see her again in january. but, I can call my urologist tomorrow, and tell her the report from my pcp. She may want to hurry things up.

so far, i feel fortunate about my team of drs. I am stubborn enough, and have fought this for so many years without a diagnosis, I don't get rattled by drs. any more. I have no problem going back in if need be.

My pcp did not say anything about a diet, she said i was not to take any anti-inflammatory medication over the counter or prescription. Since I am alergic to NSAIDS i don't take anyway.

share a smile today,
phyllis

p.s. sorry your fingers are being non-cooperative. hope they are better today.

mountaindreamer
12-25-2008, 09:21 AM
Rob, thanks for reminding about lupus.org. I went there, and read 5 pages of very valuable information.

I will call my Urologist tomorrow, tell her about the call from my pcp, and let her decide if we should wait until feb. for the next test.

hope you are having a good day,
Phyllis

Danica01
12-25-2008, 11:53 PM
Oh mountaindreamer :cry: I am thinking of you right now and asking Santa to take back all my presents and to give your kidneys a good bill of health :cry: I have not had to deal with kidney's at this point and pray that I will not have to. I want you to know that I am thinking of you and sending warm wishes your way. If you need to talk about anything, I am here now and will be through all of this. Let me know if there is anything I can do for you. I am giving you a gentle hug in my mind and I hope you are feeling a bit better tonight than you have been :angel:

With lots of love,

Danica

:x-mas: