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deedee
03-29-2005, 10:12 AM
I'm new to the site. I am from Pennsylvania. I have had discoid lupus for 13yrs. I have "the rashes", arthritis, depression at times, and tiredness. There are not many members here with discoid lupus but those who do you are not alone. My heart goes out to everyone with SLE!

redmel
04-01-2005, 06:30 AM
:)

Just want to say hello and i hope you are wqell and happy today
I am Melody I am 47 and live in England I was diagnosed with sle 5 years ago and I hate it.
Good days are far and few between bad days but we have to soldier on.
FDo you work ? I work full time which doesn't help as I get so tired and ache so much.

Hope to hear from you

take care from

Melody :)

amybeth
04-05-2005, 05:43 PM
Hi, my name is amy. I am 35 just taken off hydroxychlor. I have been diagnosed with sle for 4 years now. Iam a mom, work full time and am always tired. How do you guys work fulltime, exercise be a mom, or dad? HELP!! :)

Saysusie
04-05-2005, 08:10 PM
Hi and Welcome DeeDee, Amybeth and Melody!!

DeeDee, I am originally from Pennsylvania (Pittsburgh). Where are you in PA?

AMYBETH: Many of us are just barely hanging on being parents, employees, spouses!!! We look for support in places like this forum and just do the best that we can. It is not easy for any of us and I think that we should all be commended for doing what we do!! Whatever you are doing, if you are doing it while living with LUPUS, then you are to be commended also!!

Peace and Blessings
Saysusie