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View Full Version : are these symptoms a sign of incoming Lupus?



sealife
12-02-2008, 07:50 AM
I am a woman, soon in my 38 ys and since 3 years now have been suffering from symptoms and conditions that doctors have not been able to identify with a specific disease. When I have found this great Forum, I thought that maybe you could help me in telling me if Lupus could be one possible cause for my status. I am going to a specialist in Dec. but so far I have always walked out quite disappointed and frustrated..:( Please help me!

here is my story..
I have been healthy until Sept 2005, when entered in emergencies for a strong colic attack in the liver area, diagnosed as a viral gastroenteritis. I had similar less intense colic attacks in Nov and Dec 2005, but all tests excluded a liver disease.

After that period, I started having various conditions and symptoms which accompany my body up to now:

March 2006 up to now - urticaria rashes (bad hives, general itching, morning itching on palms and soles with lentil red spots a bit tender on pressures). After various blood screening and a hive biopsy, was diagnosed with chronic urticaria (i.e; no causes defined).
- I also have from time to time transitory, red, hot oedemas around joints (especially knees, elbows, and wrists), accompanied by muscular pain similar to rheumatic pain.
- other constant sympotms: fatigue, sleeping problems

In the last year I started feeling in addition a sense of confusion, dizziness (but not vertigo), lack of concentration memory gaps, trouble thinking (as my brain wasin the water and my thoughts were slowed down) as well as hearing problem (30% loss on both hears and tinnitus).

Obviously, during these years I have run many, many blood and urine tests, with almost constant results:

Since 2005, had always ESR double the upper value limit and high eosinophyles (two-three times the upper value limit).
Since 2006, reactive protein C almost double than limit.
IgM also a bit raised

Until 2007 all the tests for anticoagulant lupus and protein electrophoresis as were negative, but last October (2008) I repeated once more the blood screening: besides the usual raised values (only slightly higher than past recorded values) of ESR, Proteic C, IgM and eosinophyles, for the first time I had positive 1/100 ANA, with speckeled aspect + antibodies anti DNA native and ++ antibodies anti histones.

I apologize for the long email, I hope you don't get bored.. :? but I have been visiting so many doctors so far without much help...each specialist (rhumatologist, dermatologists, etc) was just thinking in his/her own field, taking into account only some symptoms..

thanks!

KathyW1958
12-02-2008, 09:03 AM
Hi Sealife,

Welcome to the site. I think your symptoms do sound like it could bSe Lupus with Sjogrens overlap. I mean by the speckle pattern ANA. Have they run a test to see if you have any SSA and SSB antibodies which is seen in Sjogrens. Do you have a problem with dry mouth and dry eyes?
Sjogrens can also affect the ears and the gastro-intestinal tract. I think that you need to list all of your symptoms and past symptoms and also get any or all of your medical records and lab work done on you and take them with you to the doctor. You should also take a person with you so that you not forget anything and they can be a source of support. I hope that you get some answers.

There will be others that come in here that may have more information for you.

Hugs,
Kathy

sealife
12-02-2008, 09:29 AM
Hi Kathy,

many thanks for your prompt reply and your suggestions, I do have also dry eyes and sometimes dry mouth but as I am also allergic (dust, acars, plants etc ) I never took them much into account. I have not done the antibody tests for Sjongren (I actually did not know this disease..will look up soon on Wiki!), but I will tell the specialist.

again, grazie!!

KathyW1958
12-02-2008, 10:01 AM
Hi Grazie,
I was also thinking that due to the elevated Eosinophyls that you could also have an allergic reaction to something. I hope that they do test you for Sjogrens Syndrome. I did not know that I had this and had not heard of this illness until I got diagnosed with SLE Lupus and the Rheumatologist told me that I also have Sjogrens. They treat Sjogrens the same way that they treat Lupus basically. They perscribe Plaquenil for both of these illnesses. The thing that is different with the Sjogrens is that they may perscribe Restasis drops for your eyes and different solutions for your mouth to aid in the dry mouth problems. I hope that this information helps you.

Hugs,
Kathy