View Full Version : Lupus Lung
Does any one have this:
Your lungs fee like they're going to explode when you yawn or laugh?
Does any one else's Lupus affect their lungs?
11-24-2008, 09:11 PM
My Lupus started off in the lungs with Pleural Effusion...
It was hard to breath, shortness of breath, pain when lying down on back or side and pain when taking deep breaths..
I do get pain sometimes when yawning or laughing, but I was told that it is scrartissue from the Pleural Effusion I had.
Now, I recently went into the hospital and got admitted with blood clots in my left lung... and am now taking anticoagulants to prevent more clots...
ahh i see do the docs know what's causing the blood clots?
11-25-2008, 01:12 PM
No, they say that it is one of those things that Lupus can do to you, just like the joint pains and the rashes... :(
Is it possible that the effusions can reoccur again?
11-25-2008, 05:28 PM
FYI - Information About How Lupus Affects The Lungs From LFA:
While lupus can affect the lungs in many ways, pleuritis (pleurisy) is the most common pulmonary manifestation.
The pleura is a membrane that covers the outside of the lung and the inside of the chest cavity. It produces a small amount of fluid to lubricate the space between the lung and the chest wall. As lupus activity generates immune complexes, they initiate an inflammatory response at this membrane, a condition called pleuritis.
Symptoms of pleuritis
severe, often sharp, stabbing pain that may be pinpointed to a specific area or areas of the chest.
sometimes the pain is made worse by taking a deep breath, coughing, sneezing, or laughing.
Sometimes an excessive amount of fluid builds up in the pleural space between the lung and the chest wall. This is called a pleural effusion and occurs less often then pleuritis.
Diagnosing pleural effusion
If the effusion is large enough, it can be seen on a chest x-ray. Since infection or conditions other than lupus can cause pleural effusions, the physician may need to take a sample of the fluid and perform tests to help determine its cause.
Treating pleural effusion
Pleural effusions will usually respond to these medications:
non-steroidal anti-inflammatory drugs (NSAIDs)
Pleural effusions also may clear by themselves with time.
Pneumonitis is inflammation within the lung tissue. Infection is the most common cause of pneumonitis in people with lupus. Bacteria, virus, or fungi are organisms that can cause infection in the lung. Sometimes pneumonitis may occur without infection and is then called non-infectious pneumonitis.
Symptoms of pneumonitis
shortness of breath
Since both forms of pneumonitis have the same symptoms, the patient is assumed to have an infection until proven otherwise. The diagnosis of pneumonitis requires:
sputum (mucus coughed up from the lungs) tests
To determine if infection is the cause of the pneumonitis the physician may also need to perform:
a bronchoscopy (a visual inspection of the inside of the lungs)
a lung biopsy (examination of a tissue sample).
Treatment initially includes a course of antibiotics. If laboratory and other diagnostic tests show no proof of infection, then the diagnosis is likely lupus pneumonitis.
This non-infectious pneumonitis is treated with high doses of corticosteroids. Immunosuppressive drugs such as Imuran (azathioprine) may be added if the inflammation is not controlled with corticosteroids.
Peace and Blessings
Ahh ok Thanks for the info. But is it possible though that an effusion can occur more than once?
11-26-2008, 09:51 AM
Yes... it happened to me... although the 2nd wasn't as bad as the first...
With the 1st they took out 3+ litres of fluid through a tube into my back.
With the 2nd they didn't do anything.. it was little enough that my body re-absorbed it.
11-26-2008, 11:15 AM
My Dad has always had problems with his lungs and has gotten pneumonia several times during his life. He has lupus and has had it since he was in his teens. He is 88 now.
11-27-2008, 10:55 AM
I get pleurisy every so often with my lupus. A deep breath, sneeze, anything like that feels like it is going to kill me!!
When I was in the hospital earlier this year they gave me a breathing exerciser... it's a little plastic thing that you blow into and you work on your deep breathing and control. It actually really helps a lot!
I looked online and it looks like you can buy them for as cheap as $10, but your doc can probably just give you one. I think the actual name for them is "incentive spirometer".
Ahhh this Lupus is very complicated. You think you've figured it out, then it throws something new at you.
11-28-2008, 09:09 AM
This is exactly the way that Lupus is unfortunately, when you think you are doing great it jumps right up and bites ya.