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coltsfan
11-18-2008, 05:56 PM
Can anyone give me a better description of what the mouth sores are like? All I can find online is usually painless. Are they similar to the sore that is left when you accidently bite your cheek?

KathyW1958
11-18-2008, 06:07 PM
Hi Robyn,
I get the mouth ulcers on the roof of my mouth and on the inside of my cheeks and on the gums. Some times they are sore and sometimes they are not. They start out looking like a bright red spot and then they turn into an ulcer. I also get them in the back of my throat and in my nose. I hope that this helps. They don't look like a bite spot, just a spot that ulcers and then heals up.

Hugs,
Kathy

Saysusie
11-18-2008, 09:57 PM
One of the commonest symptoms of lupus is that of mouth ulcers. Ulcers are deep breaks in the skin, affecting all layers of the skin. Oral ulcers can occur in the gums, on the roof of the mouth or on the inside of the lips. They often occur during flare-ups (along with joint pains, rashes and hair loss). Fortunately for most people the mouth ulcers settles when the flare settles, although stress and tiredness can make them worse.
If the mouth ulcers become an ongoing problem there are simple treatments available such as antiseptic mouth washes and sometimes steroid lozenges or paste.
Sometimes the nose can also be affected in the same way and vaseline cream, steroid paste or a nasal spray can be used to treat the ulcers.
Very rarely nose or mouth ulcers can be more severe. If these can not be treated with the methods above, then there are more specialist drugs available.
Plaquenil is often prescribed to help with mouth ulcers, skin rashes, & other cutaneous manifestations of Lupus. Plaquenil takes a while to work, so in the meantime, it is important to have good oral hygeine. Keeping teeth properly brushed and flossed, and also giving up smoking, is very important for people with lupus. If your mouth is very sore, then try using a soft toothbrush and an antiseptic mouthwash, such as Corsadyl or Difflam.

Hope this is helpful :P
Peace and Blessings
Saysusie

sick n tired
11-18-2008, 11:23 PM
I get oral and nasal ulcers...they look like normal ulcers but sometimes they don't hurt. I have both kinds, though.

justdave
11-20-2008, 03:50 PM
This makes me wonder..

I have for the longest time, have gotten mouth blisters of sorts. They are not ulcers or even close to them.

The best I can describe them is a blood blister on the inside of my mouth without the dark color. They don't hurt or anything and don't get very big, if I use a sterile pin, there is only clear fluid inside. I get them on the inside of my lip and insides of my cheek.

This is totally differnt than the ulcers I hear Lupis causess, do you think they might be related. They are very random and most times I do not have them, but every once in a while out of no where they show up.

odd.;..

sits_inthe_corner
11-20-2008, 03:57 PM
Hi justdave

Has your doctor ever taken a swab of one of these sores for testing? If not, the next time you have one get in to see your doc and have it tested.

When I have sores I use a liquid called fletcher's Liquide Sour-Mouth Medicine. I know, it sounds like something a snake oil sales man would have :lol: but it does work.

Because the sores are in the mouth, the liquid would wash away pretty quickly. So there is a past, I cant find the tube at the moment to give you the name. But it should be in the same area that the Fletchers is in. I put that over top after I've put the fletcher's on.

Healths the sores up quickly and actually makes them feel better as soon as I use it.

Hope this helps.

sick n tired
11-20-2008, 08:33 PM
Snake oil salesman....LOL Actually, sitc, it does sound like that...i don't think I have seen that...is it over the counter?
All the same, it sounds like it tastes perfectly awful. :silly: :)

sits_inthe_corner
11-21-2008, 10:20 AM
Yes you can buy it right off the shelf. I use a Q-tip to dab it on.

Right now I'm coming up with sores on my rib cage :shock: . I have a perscription cream to use for that.

Guy's cover your eyes....

My bra sits right on one of the sore sites :P OUCH.

sick n tired
11-21-2008, 12:12 PM
Oh SITC, that must be very uncomfortable. How do you keep the bra from rubbing the sores?

So does the mouth meds taste as bad as it sounds? I am going to see if we can get it here in Texas, or possible on the net.

sits_inthe_corner
11-21-2008, 03:08 PM
Yep sick n tired

I dab the liquid on then there's a paste that you buy to put over tender parts of your mouth. I put than on after I put the fletches stuff on. That way I dont have to taist it :lol:

KathyW1958
11-21-2008, 03:25 PM
Hi,
I use Zilactin B on my mouth sores. It seems to help and if they are real bad the doctor perscribes a steroid solution for me to swish and spit and that tastes terrible but it works. I can not remember the name off hand.

Hugs,
Kathy

sick n tired
11-21-2008, 07:12 PM
So the paste doesn't taste bad just the other stuff..oh well if it works...whatever..sometimes the burning is awful and I don't want to eat anything.

sits_inthe_corner
11-22-2008, 02:12 AM
Well, the paste doesn't taste bad, :lol: but it is is VERY thick and gloopy.

The combnation of the two seem to heal the sores up quickly and protect the area from being bumped or aggrivated.

I get the same way you do. My mouth is so sore I don't want to eat or even dring liquid. When you have this stuff on I use a straw to dring with.

When you eat, you do need to reapply it. With in 24 hrs my mouth is feeling much much much better and is healed up completely with in 2 days. Till the next out break.


By the way...what toothpaste do you use?

I can NOT use any colgate products...they bring on mouth sores for me. If you do use colgate, try switching your brand.

sits_inthe_corner
11-22-2008, 03:00 AM
I found the protective gloopy stuff I use.

It's called orabase. It has no taste, but it is VERY thick. I also think it helps to dry out the sore. Dab it on, don't rub it. It's sort of gritty in texture but it does a wonderful job of protecting the site.

sick n tired
11-22-2008, 09:50 AM
Hey sitc,

I use crest, but it really burns...that minty fresh stuff burns like mad...makes me not even want to brush...ooooh...just call me dragon breath :lol: :lol:
No I do brush, it just hurts..I didn't think about the toothpaste causing the sores...duh Karen...oh well my brain seems to go on hiatus often.. :shock:

Mommyof1
11-22-2008, 11:40 AM
Hi there. I have not been diagnosed yet but saw a rheumy nov 12th who pretty much said im double jointed which can cause more discomfort than the average person and he cant find anything wrong with me. Anyway, its been 3 weeks ago now I bit the inside of my mouth and got a painful ulcer that lasted about 2 weeks. Then I bit my mouth again in a different spot and got another painful one. But I also got a painful one under my tongue on the back of my gum. The other ones were on the inside of my cheeks. They are going away after a week and a half but my dr had to give me Lidocaine to numb it because its in a bad spot so it hurts terribly to eat or brush my teeth. I also have two spots on my top lip that look just like the ulcers I get but they are all white with no redness and are painless. I have had them for over 2 months now since I first noticed them. I was just wondering if these could be like the lupus mouth ulcers? Theres also two other spots one on either side of my cheeks in the middle right next to some of my top teeth that are just spots...dont look like ulcers but are like red spots and around them theres purple looking skin like you can see veins or something. Im not sure what all that is but has anyone ever experienced anything like this before? They have been there as long as the other 2 painless ulcers have. Input would be very welcome! Thanks and hope you all find remedies for these nasty things that can hurt tremendously sometimes. So annoying!

P.S. I find Listerine or antiseptic mouth wash with alcohol in it helps them heal quicker although it burns badly when you rinse with it. Other than that and the Lidocaine I was prescribed Ive not tried anything else but would love to try some of your remedies you have listed here :)

lotusblossom
11-30-2008, 07:24 PM
I get sores in my mouth and in my nose. The mouth sores can be on the inside of my cheeks, inside my lips, on my gums and especially the roof of my mouth. Salt aggravates them and can actually cause them to appear a couple of hours after I eat something salty. I don't care for salt, so no problem there. While I have the sores (often), I can't eat anything hard or sharp. My sores are almost always painful. They also can cause me to talk with a lisp because of some swelling. Sometimes in an effort to avoid the sores, I bite my lip or my tongue. It's one of those symptoms that I've learned to live with, cause it's not the worst. I usually get sores in my nose when I'm super upset or anxious, like my daughter's wedding. Lovely, eh? :roll: