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sits_inthe_corner
11-14-2008, 06:01 PM
I know somewhere on this board we talking about skin on the hands and fingers cracking and bleeding....

Usually mine break out in itchy little water blisters first.

But today :shock: the cracks just appeared out of no where. I've been pounding really good moisterizers to my hands for weeks now and the skin seems to be in good condition. Half way through the day poof...they're a mess :?

KathyW1958
11-14-2008, 06:10 PM
Hi SITC,
I have pompholyx eczema on my hands and feet and that is what you may have too. They also call it Dishydrotic Eczema. They believe that it is an auto-immune situation. They do not know for sure what causes it. My Rheumatologist put me on Imuran and that helps this problem a lot. I will post a picture and see if you think that this is what it looks like ok.

Here is the picture:

http://i299.photobucket.com/albums/mm284/KathyW1958/pompholyx2-s1.jpg

or does it look like this picture?

http://i299.photobucket.com/albums/mm284/KathyW1958/pom-fing-s1.jpg

Hugs,
Kathy[/img]

Oluwa
11-14-2008, 07:15 PM
SITC..

I think it was me that mentioned Neutrogena, Norwegian Formula for chapped hands...white tube, in a box at Wal-Mart....

What I am using now as a moisturizer cream for my drying steroid-ized skin is Cerave. Only found behind the pharmacy counter.

Love,
Oluwa

sits_inthe_corner
11-15-2008, 03:21 AM
OMG Kathy

That's it exactly! It's very surreal to see my rash on someone elses hands as I have never known any one else to suffer with this.

I'm printing this off to take to my doctor, thank you so much for posting this.

Thank you Oluwa, I have heard of Neutrogena but have never tried it. I'll pick some up today and see how that goes.

Kathy, my main trigger for the out breaks has always been citrus fruit, oranges, lemons, grapefuite, lime. Also if I have too much of other fruits or veggies that are high in acid content. Like tomatoes or (yes) even carrots.

It's a fine line between not enough and too much.

When I was little, my sister would fill my bed up with oranges :P if it even touched my skin my hands would break out severly.

Funny, my mother sent me for allergy tests, came back showing me not to be allergic to citrus fruit....now I know why. Thanks again.

KathyW1958
11-15-2008, 04:48 AM
Hi SITC,
I agree with you about the acid in the citrus fruits and oh boy tomatos big time. I refuse to cut up a tomato or a potato for the same reason. I think that you should maybe ask your doctor abut trying you on Dapsone or Imuran to put a halt to this situation. This condition is known as Dishydrotic or Pompholyx Eczema. They do not know what causes it, but it is believed to be an auto-immune disorder. There is no cure. For me I tried the Neutragena cream and it did not work for me. I was on Dapsone for a year and it worked beautifully until my doctor altered the dosage and then for whatever reason my body totally rejected it. How sad that was. He then stopped the Dapsone and put me right on Imuran and that has done wonders for me. My hands are completely clear. I also have this condition on my feet on the bottems of my feet and the toes. It has helped to clear that, but I get light outbreaks on my feet so it is manageable. Please do ask your doctor about these two drugs that I have mentioned and yes do show him the pictures.

Hugs,
Kathy

sits_inthe_corner
11-15-2008, 06:20 AM
Good grief,

the hands are bad enough, I can't imagine having that on my feet! How do you stand it?

When I was in elementary school my hands would crack and bleed while I was trying to take notes in class....it was horribly embarrising. All my scribblers had blood all over the pages.

My mother used to put this green translucent cream on my hands and tape baggies over them when I went to sleep at night. She was desperate to help me.

Of course it didn't work :lol:

I'm tempted to scarf down an orange or two ... then go into the doctor...she's little miss "I have to see it to believe it"

And I will ask about the Dapsone and Imuran.

Thanks again.

I told my husband about this post. I'm so happy to finally have an answer.

I find the same thing with potatoes, but it depends on how many I have to peel and cut.

If I'm just cooking for two or three it's not a problem.

Christmas dinner or thanks giving dinner...it's a huge problem.

KathyW1958
11-15-2008, 06:42 AM
Hi SITC,
I hear you about getting blood on your school papers that happened to me too. I was forced to leave school in my senior year. The Principal kicked me out if you can believe that. The Principal told me that sores and blisters on my hands posed a health risk to the faculty, staff and students and that I had to leave. I told him that I was repeatedly going to see a Dermatologist and the doctor was as sorry as he could be, but he was the only one that accepted medicaid. He did tell me that there was no cure and that it was not contagious. I tried to tell the Principal that and he would not listen and threatened to call the police if I did not leave. I ended up getting my GED. I had no family support what so ever, so what else could I do? This hand and foot rash (Dishydrotic Eczema) also delayed me in getting diagnosed with Lupus, because the doctors would see that and say oh that is the problem and they would not even test me for Lupus until the Lupus damned near killed me when I was 36 and started attacking my heart muscle.

I have an idea, right before you go to the doctor like say about a day or two beforehand take a tomato and an orange and rub that juice all over your hands and eat a bunch of it, so that you cause a serious flare and then maybe she will listen to you. When do you see her again? Let me know what she says ok.

Hugs,
Kathy

sits_inthe_corner
11-15-2008, 11:29 AM
:lol: I don't see the rheumy untill the first week of Februaury.

But depending on what happens with my friends the ovaries, I may be in to see my family doctor soon.

:shock: it's a shame that the dermatologist didn't give you a hand written note and follow through with a phone call to the school saying that you were not contagious.

I used to work with special needs children and we would tell our parents straight up, that their child was more than welcome back with a note from the doctor letting us know when they were no longer infectous. (mostly that was for impatago...not sure of the spelling)

Hats off to you for getting your GED! Congrats on not giving up.

One thing that I found very odd. I went to Spain two yrs ago....and let me tell you they love their lemons over there. They put it in just about everything.

I thought what the heck....and ate and drank everything....and NO out break....at all.

Two months after I was home, I decided to push things. I went to the store and bought a lemon and put it in with some shrimp that I was bbqing with some garlic.

:shock: POOF went my fingers and hands.

KathyW1958
11-15-2008, 11:50 AM
Hi SITC,
I think that that is strange too. I don't know what to think about that with the lemons.

That idiot doctor I had when I was in high school only cared about the money coming from the medicaid payment and he refused to write me a letter. Believe me I tried to get him too. What is sad is that I did very well in school and I was in all honor regence classes. Well when I took the GED, the Albany State University sent me a letter and told me that I had scored so high on it that I could enroll in their college and qualify for any program that they offered. I was so totally fed up with school that I opted not to do it. Oh well.

Hugs,
Kathy

Oluwa
11-17-2008, 11:11 AM
Ouch, you two, Kathy and SITC..that rash must be awful, looks like it...especially being on the parts that you use the most..hands and feet.

I couldn't handle it on my hands..my trunk, I am/was having a hard time dealing with...

SITC, could it be from the coating they put on the lemons sometimes to keep them fresher longer. Here is the USA, maybe not in Spain... they wax and lube many fruits and vegetables, including lemons, grapefruits and oranges. Maybe you are allergic to beeswax, lubes or resin they use...

If labeling is required in Canada, check the label on the lemons if it has been coated...

It's Monday..Happy day you two..
Hugs,
Oluwa

KathyW1958
11-17-2008, 11:54 AM
Hi Oluwa,
Happy Monday to you too. I don't get that serious of an outbreak anymore due to the medications that I am on and have been on for years. I still get outbreaks on my feet every now and then and it is bed for sure. I am unable to work due to this problems amongst the problems with my spine. I believe that Lupus does exacerbate this condition in a very big nasty way.

SITC I sure hope that you can be put on medication for this nasty rash.

Hugs,
Kathy

Oluwa
11-17-2008, 12:12 PM
SITC...don't wait till February. Can your see your PCP? A dermatologist soon...help could be just a day or two away...

My dermatologist, I am so grateful too..I've been using Clobex cream, a new super potent steroid cream and it is nipping my rash in the bud. I hope in three weeks time, when I am off it it doesn't make another appearance...

I tried two other prescribed steroid creams, and nadda. Just turned my skin brown and aggravated it more.

Kathy, I am glad the Imuran is working...DDD, SLE and toss in the rash is maddening hey? I also have DDD, stenosis...underwent two lumbar back surgeries and one cervical spine.

How is the disc replacement? Working? My lumbar was a failure and in my neck..it is okay. It locks up. I have cadaver bone and hardware installed.


Love,
Oluwa

KathyW1958
11-17-2008, 12:54 PM
Hi Oluwa,
I had the disc replacement with a resin disc. I wish they would have used a cadaver disc, but they opted with the resin disc instread. I guess due to the insureance. They never gave me a reason. The DDD sucks doesn't it. I also have a clip somehow in my spine. The S1 disc completely fused as the disc was completely flat. They opted not to do anything about that. I still have horrible sciatic nerve pain all the time if I stand for very long and at night. It makes me mad, because the surgeon told me that this operation would take care of that problem and it has not. I have pain all up and down my spine all the time. I also have Ankylosing Spondylitis and severe arthritis in the spine and the hips along with the DDD, Scoliosis and Stenosis. It is pretty bad. The surgeon told me that I have severe arthritis in my spine. What is sad is I have a very hard time standing up from a sitting position. I mean it is unreal big time and embarrassing when you are sitting in the waiting room at the doctors office and they call you back and you can not get up without assistance. Everyone stares at you and it is depressing big time. I guess I will do ok but this really scares me and makes me wonder if I am going to lose my ability to walk. I am sorry to complain, but I am just scared and worried big time about this situation.

Hugs,
Kathy

sits_inthe_corner
11-17-2008, 05:40 PM
I've been getting that rash since I was a little girl. I dont think the chemicals they used today were even around that long ago :lol:

My hands aren't bad right now. Just cracking in a few places...I've learned for the most part to control my diet as far as acid levels go.

It's rare for me to have a sever outbreak anymore, mostly because I control it.

I love oranges, when I was little I'd waite for mom and dad to go to sleeps and I'd sneak in to the kitchen and have an orange.

I wasn't a very bright child :lol: ... by morning my hands would look like the picture that kathy posted.

As if mom wouldn't notice. LOL

Oluwa
11-18-2008, 02:56 PM
SITC..

I hope the cracks heal soon, especially in this cold weather. Here we are having frost each morning. 30 degrees and by day 45 -50. Cold for us in the south.

Did you find the cream I mentioned. Creams like that I guess seal moisture in, prevents drying, loosing moisture...

In my quest for a remedy for my rash, I learned lots..such as avoid lotion. And as little as a bit of Vaseline can be your best friend.

And apply within 3 minutes of being wet..any cream.



Kathy...


I wonder why your surgeon would say it would take care of your sciatica. No back surgery is a guarantee, more often than not it is never the same. Hard to recreate God's work. Very few are 'successful'. Doable, but not successful.

I have sciatica, worse after surgery. Resulted from either scar tissue build up, or the surgeon nick my nerve I was told...

But since your surgery was last December, though almost a year, really that isn't too long ago....the nerve could still be healing. Depends on the where the pinch was and for how long. I was told it takes about a month to heal 1/8" of damage but I read it was an inch a month...so, who knows.

I know when I had carpal tunnel surgery, it took 18 months before my feelings returned to my fingers which the surgeon predicted by the 1/8" per month scale. During that time I was prescribed magnesium and B-complex to aid in the repair...

Though they say it takes about 18 months to recover from back surgery, my experience and others who had the same, say it is more like 5 years to determine how much recovery you will make...

Have you been going to physical therapy...that is important and to do the exercise at home too.

Have you talked to your neurosurgeon about this ongoing sciatic pain or your physical therapist?

Hugs,
Love,
Oluwa

KathyW1958
11-18-2008, 03:37 PM
Hi Oluwa,
I mentioned this to the Neurosurgeon on my followup and he told me that the ct scan looked great and that that would diminish with time. I hope that he is right. I know the pain is nearly unbearable at times. I guess if it does not get any better I will bring it up with the Rheumatologist next month when I go back in for my regular visit with him and see what he says. What makes me so mad is that I can not get disability. I asked my Rheumatologist about the possibility and he told me that you have to be half dead to get it. He refuses to help me get it. I don't know what to do at this point, because there is no way that I can work and that is depressing big time. Do you know if my doctor has to approve of it or what ever for me to get it? Any advice on that?

Hugs,
Kathy

Oluwa
11-18-2008, 03:57 PM
Kathy..

I know very little about disability, except to relay my sister's experience with applying. Hire an attorney. There is a cap on his fees. If you're denied benefits he does not collect a fee. If approved he will receive the payment from the backpay of benefits..the date you applied...

An Attorney or Representative for a disability case is allowed to receive 25% of a Claimant's past due benefits. So, if a Claimant receives a back payment of $10,000.00, a representative will receive $2,500.00 as the fee.

The maximum fee amount an attorney or representative can receive, however, regardless of how much the Claimant receives in past due benefits, is $5,300.00.

I did a quickie search, maybe the links below will yield some answers for you on the chances of being approved and the process. It isn't the official www.ssa.gov sites though, below........

Your doctor doesn't approve it per se..your records, his notes will help or hinder your case...

With that in mind, if need be I am sure a lawyer will be able to find a doctor that could assist..

Hope this helps..
Love,
Oluwa

http://www.disabilitysecrets.com/reference-pages-11.html

http://www.disabilitysecrets.com/degenerative-disc-diseases-social-security-disability.html

KathyW1958
11-18-2008, 06:33 PM
Hi Oluwa,
Thank you so much for your answer to my post. I am going to try to get SSDI again as I feel that I most definitely should qualify. I will get my records from the Neurosurgeon as well as the Rheumatologist at some point this week. Please pray for me that I can get it.

Hugs,
Kathy

Oluwa
11-21-2008, 12:02 AM
You're welcome Kathy...

I will say a pray for you...
Love,
O.

sits_inthe_corner
11-25-2008, 05:47 PM
I mentioned on another post that my rheumy's office called with an appointment for me tomorrow. I'm going to mention the popholyx eczema, hopeful I'll get more than a blank look from her.

I also have to remember to mention the psoriac arthritis....gawd it would be nice to have some of this confirmed on way or another.

The specialist who told me about the psoriac arthritis didn't even lay a finger on me. He just looked at my toe nails and spit out his diagnosis.

sits_inthe_corner
02-03-2009, 05:19 PM
:shock: I ment to mention that my doctor all but yawned when I told her about the psoriac arthritis and the pompholyx eczema.

Gawd ... what does a girl have to do in order to get some answers.

dhyanayoga
02-05-2009, 03:29 PM
I wasn't sure whether or not these blistery rashes were just another lupus symptom. They started on my face with a major flare up in 1990, but moved down my arms and have been on my hands since then. One year I thought I'd pick myself up and go to massage school..... because of the lotion used, my hands were cracked and bleeding the whole time till I discovered that I am not allergic to coconut oil.

sits_inthe_corner
02-05-2009, 04:52 PM
Ouchers dhyanayoga

Sorry to hear that. Sounds exactly like my reaction to citrus. Where you able to finish your course?