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KathyW1958
11-13-2008, 01:27 PM
Hi all,
I am wondering if everyone with Lupus is told to get the Flu and Pneumonia shots. I got mine today. I got the flu in one arm and the Pneumonia shot in the other arm. What is bad is that I have a cold that has set up in my voice box, but they told me that that should not be a problem. What do you think?

Hugs,
Kathy

Saysusie
11-14-2008, 08:38 AM
There has been a constant and ongoing debate about Flu and Pneumonia shots for Lupus patients. Some doctors advocate the shots because of our compromised immune systems; some doctors warn against the shots because of our compromised immune systems.
Getting the shots has become a personal decision between the Lupus patient and their doctor and is based upon how your particular Lupus reacts to the shot.
The first time that I got a flu and pneumonia shot, I ended up in the hospital with pneumonia! Ten days in the hospital....ugh!
However, now I only get the flu shot and it has helped me each year. Like you, I get symptoms in my voice box for several days, but it eventually goes away.
I would say that your decision to continue to get the shots will depend upon how you react to the ones you've received.

Peace and Blessings
Saysusie

KathyW1958
11-14-2008, 09:15 AM
Hi Saysusie,
I am seriously considering refusing the Pneumonia shot in the future, because my right arm is so sore that it is not even funny and this cold is horrible. The cold started Wednesday and oh it is a bad one for sure. It is especially bad due to the pain of this stinking shot in my right arm. I have a big lump where I got the shot. What is strange is right after I got the shot, my arm started itching bad where I got the shot and I immediately told the nurse, but she did not seem concerned. It does not itch now, but it hurts big time. I just think that this is the last shot I will get for Pneumonia vaccine if this is the way it is going to do me.

I am sorry to hear that you got Pneumonia from the shot. I hope that that does not happen to me.

Saysusie, I am wondering if you experience this where you catch a cold and then when the cold clears up do you go right into a Lupus Flare? This seems to happen to me big time. I mean do you know if this is a common occurrance with those of us with Lupus. Thanks for reading my post and responding.

Hugs,
Kathy

sits_inthe_corner
11-14-2008, 05:48 PM
I've had Pneumonia, but not the shot :lol:

I've just had my second flue shot. It worked well for me last year so I decided to have it again.

I'm paranoid about Pneumonia....having had it makes you vulnerable to catching it again. Makes me nervous, but not nervous enough to get the shot.

My body feels like chemical soup as it is.

KathyW1958
11-14-2008, 06:05 PM
Hi SITC,
I have had Pneumonia a few times in my life and I guess I got the shot as I do not want to experience that situation ever again. My arm is very sore from the shot. I got the Pneumonia shot last year and it did not make my arm this sore, so I don't know if I will ever get this shot again.

Hugs,
Kathy

sits_inthe_corner
11-15-2008, 02:40 AM
Hey Kathy :)

It might have been the person giving you the shot that makes the difference. At my doctor's office there's two nurses. One of them is great, I've never had a problem. The other nurse...well...it's not the actual giving of the shot that hurts.

But I have noticed that she angles the shot differently and it always leaves me sore for the rest of that day.

Next time I'm in I'll as doc about the Pneumonia shot. :( I was in a really bad way when I had that. Mostly it was a bad reaction to the medication I was on.

Ended up at ER on christmas eve in tears cause they were not going to let me go home. The stupid drug made my temperature shoot up to 109 f. Vomiting diahrea ... I was a mess.

They finally listened to me and allowed me to miss my next dose and watched as my temp went down and I steadily improved. I was home before santa came :)

I was 34 yrs old at the time....and I wasn't sure how good I had been, but no lumps of coal :)

KathyW1958
11-15-2008, 04:37 AM
Hi SITC,
I had Pneumonia at the age of 20 and it put me in the hospital for a week. The stupid military should have spotted the Lupus then, but they didn't. I was on active duty at the time. I also had RSV Pneumonia as a baby and nearly died due to that situation. I guess that is why I get the shot to hopefully avoid getting Pneumonia.

Hugs,
Kathy

Saysusie
11-15-2008, 10:26 AM
Hi Kathy;
Sorry I'm so late in answering your question. The answer is YES...BIG TIME!! I either go into a horrible flare after a cold or flu or I have a terrible flare and then come down with a horrible cold or the flu. The worst part is, whichever way it occurs, it is a month or more before I am reasonably recuperated. It is always an awful time for me because the symptoms are so severe and they last so long. I've also noticed that it is getting harder and harder for me to avoid getting sick, flaring up, and being down for weeks to a month. So, I have to be more and more diligent about taking care of myself, staying away from people who are only remotely ill, and avoiding places where germs might spread (like airports, restaurants, etc.) All in all, it is a big P.I.T.A.!!!!!


Peace and Blessings
Saysusie

KathyW1958
11-15-2008, 11:45 AM
Hi Saysusie,
Thank you for answering. I am very worried as I know I will be hit and hit hard after this cold with a damn flare and it sucks. I try to avoid being around anyone that is ill too, but in this case it could not be avoided as I babysit my grandson and he started passing the cold around. He got and then his daddy and then my husband and unfortunately now I have it. I have noticed for years that it is like this with me. I guess I am like you in that respect too and I think that this is the case with all people with Lupus. I will survive.

Hugs,
Kathy

Saysusie
11-18-2008, 12:50 PM
Yes, we will survive...but we are so dangblasted sick in the meantime. My last cold was a gift from my beautiful 11 mo old God Daughter! So, I know what you mean about your grand son. But, it is a chance that I am willing to take because I will not forgo seeing her just to avoid getting sick! I'm sure that you feel the same way :lol:
We will soldier on, and take as many precautions as we can. What else can we do?

Peace and Blessings
Saysusie

sick n tired
11-18-2008, 01:35 PM
I have been told to stay away from anyone who might be sick especially children...That is such a hoot because I still have children at home and I keep my granddaughter 2-3 days a week...years ago my mother-in-law, who was prone to pneumonia was told the same thing...she tried, but she loved her grandkids so much. I tried to keep them away from her if they were ill, or at least call and tell her if she was going to come over.

KathyW1958
11-18-2008, 02:33 PM
Hi sick n tired,
I hear where you are comming from. I refuse to stay away from my little grandson. He is my first grandchild and I think the world of him. You know you can go out into a store and whatever and get exposed to illness from people so you know it is just the way that it is. I know that when I was 35 I got exposed to the Chickenpox which I had never had before and boy did I get a case of it. I got exposed in the Wal-Mart Store and well that caused my Lupus to be severe and led to me finally getting diagnosed. I am getting over the cold now and I will be glad when my voice gets back to normal.

Hugs,
Kathy

sick n tired
11-18-2008, 10:27 PM
Hey Kathy,

I am glad that you are feeling better...hopefully you won't have to be down with a flare after the cold is better.

I have heard and/or take most of the drugs that you list taking but what is Sulindac?

mnjodette
11-25-2008, 04:51 AM
I hear you about the cold season! I've had one; thought it was gone; am sick again (nah...it wasn't gone...just sleeping :roll: ) I've had my flu shot; had a penumonia shot and use enough hand sanitizer at work to eat through my fingers. But, you can only do so much. Since my lupus often presents with pleurisy, I worry about that stuff. Had bronchitis last year...don't want to go there again. If my granddaughter is sick, I just wash my hands a lot and pray for the best - can't stay away from the little cutie!

Jody