View Full Version : I am so bummed.

10-08-2008, 12:40 PM
I finally got the call back from my doctor saying that I need to see a specialist. After figuring out which specialist I can go to, because of insurance, I called. They cannot get me in until Dec. 2!!!
Is it ok to just take Aleve for the acheys until then? Is there anything else I should do during the wait?

Thanks in advance to everyone.

10-08-2008, 01:08 PM

How are you? Wow, Dec 2, crazy, eh? I remember when the wait was one week, two week..I wait six weeks now...

Aleve is an OTC strength for Naproxen, which many of us has been prescribed for inflammation, pain...

Eat properly, avoid processed foods, sugar, the white foods...Splenda is fine, I was advise by my Dr. My rule, avoid anything is a colorful wrapper.

Exercise..stretch, yoga, walk, swim....what you can tolerate but try to get some each day.

Ensure proper rest. Don't over do it. Break often.

Manage stress.

Sleep a restful night.

Avoid alcohol, caffeine if able of minimize amounts.

Avoid alfalfa sprouts.

And worry not, enjoy each day...

Use ice packs or heat for aches if needed.

...and come chat up here often....

Hope this helps..

Be well,

10-08-2008, 05:47 PM
Thanks Oluwa,
I will try your suggestions.
I couldn't believe it when they told me how long it would be before they could get me in.
The pain doesn't seem to be that intolerable, until I go to bed at night. After a couple of hours, I wake up with my hips and knees throbbing. I will try to take Aleve tonight before I go to bed to see if it helps.
Everyone I have met here is wonderful. You make a scary thing not quite as scary.
Have a wonderful evening,

10-13-2008, 04:54 AM
Hi Robyn..

It's been a few days...finding any relief from the Aleve at night? Trying any cold packs or heating pads?

Just checking in on you, wondering how you are?

Be well I pray.

10-13-2008, 06:24 AM
You must have read my mind. I was just getting ready to post again and tap into all of your experience.
Last night was horrible! No matter what position I try, I can't get comfortable. I think I am going on about 4 hours sleep.
I also suspect that my kidneys may be affected. During my research,
I read one of the books that Saysusie recommended. It said not to use Aleve, it could make kidney function worse. Is that a true statement? I have been taking acetaminophen the past couple of days. Not a lot of relief. THe best thing so far has been a really hot shower right before bed.
I am thinking of calling the rheum. and seeing if they have a cancellation list that I could get on and hopefully get in sooner that Dec.2. Think that will help?

How are you feeling?

10-13-2008, 07:29 AM


I know lack of sleep, little sleep can cause more pain. Have you ever been prescribed sleeping pills? For me, this helps. Maybe you can speak with the doctor about this?

You may have Fibromyalgia too...have you read up on that? Hip being a trigger point, tender point...

Have you tried sleeping inclined a bit on your back to alleviate hip pressure..or on your side with a pillow between your legs?

Do you sit all day...if so, walk about, stretch throughout the day....

Are you able to walk 30 minutes, or ten minutes increments as this can help with joint support building the muscles surrounding the joint.

Aleve should not be taken with severe kidney diseases, nor any NSAIDs or aspirin.

What makes you suspect it is your kidneys? Pain, different color and odor to your urine? Blood in urine? Do you think it could be a UTI? From my understanding kidneys involvement produce little physical symptoms. Bloating, skin looking pale would be few of the signs. Kidney involvement is usually detected through blood and urinalysis testing.

Tylenol is a pain reliever not an anti-inflammatory.

If the warm showers are helping at night...they always rejuvenate me too...maybe try a heat pad or just hot warm compresses while you sleep. Fold a hand towel in half, then again, then fold the ends to met, run it under hot water, squeeze excess water by pressing it against the basin without unfolding. Put on skin and as it cools off, unfold one section and ah warmth again...should be good for 30 minutes.

Do call the doctors., say you can't sleep, the pain is worsening..can they squeeze you in as a walk in, call if a cancellation...

Me..I am doing. Much better since I have the rash under control. Such a minor woe, by it was maddening. Just something like a rash can cause such a tumbling affect. Interrupts the sleep, affects you mentally...then that evolves into pain...crazy how Lupus, one symptom can wreak havoc everywhere..be it a headache, hip pain then grows into sleepless nights, depression, stress...unto flares..egads...

Keep looking for comfort..hope you can get into the doctors..soon...today would be lovely...

Its Monday...Happy day..

10-13-2008, 09:49 AM
Hey Oluwa,
I usually don't have any problems falling asleep. My husband constantly jokes about how quickly I go to sleep. I have a problem staying asleep lately. It seems like if I am in the same position for very long, the pain is stronger. Last night, I used the pillow trick and was able to get some sleep.
I don't know for sure that I have kidney involvement. I just want to err on the side of caution. UTI is probably the thing. I have battled them off and on for years. I think I have another one coming on. But I also have a little lower back discomfort, not the usual bladder feels like it will explode, but you can't pee. Back in March, before I knew about the antibodies, I had blood drawn to get life insurance. I remember that I had an elevated amount of creantine, but I am having a hard time finding my paperwork to be sure.
I will definitely try the warm compresses tonight. Kinda sounds heavenly!
I am glad that you have the rash under control. Hopefully that will lead to some peace and good feeling for a while.
Have a wonderful day, even if it is Monday. I'm thinking of you. All of my new friends. You guys have been wonderfully welcoming.

10-15-2008, 01:00 PM
having to wait until Dec 2nd is a really long time. Is there possibly another specialist you can check with to see if they have any open before then?

10-15-2008, 06:06 PM
I'm sure that there is, but I just don't know who to go to. My brother also has lupus. His doctor is retiring in a couple of months and this is the doc she referred him to. I thought it might be best to go to the same doctor as my brother, kind of keep it all in the family. I am going to call them tomorrow, if they can't move me up, I was thinking of seeing if the doctor that referred me can convince them to move a little faster. Does that sound even remotely possible?

10-20-2008, 09:14 PM
Hey coltsfan :)

I have a lot of trouble with my hips and sleeping also. The pillow is the thing that helps most for me.

I think Oluwa's idea of taking sleeping pills is also really important. I hate to take meds when it isn't necessary, but sometimes taking medication to sleep breaks the cycle of being miserable. It really helps to know you will be able to sleep - not just lay there frustrated as soon as your hips start hurting again.

Also, when you are not getting enough sleep at night, are you able to take a nap for a few hours? Going on four hours of sleep a night - argh.

I definitely agree that having your name put on a waiting list is a good idea. The doctors don't like to have a vacant spot. If you aren't shy, you can also try calling a few times each week about 30 minutes after the office opens. By then, they may have had a cancellation for that day that they would love to fill. In any case, at that point they will find out that you REALLY want to get in soon, and should work harder to get you in.

I hope when you get in, you find out that this Dr. was worth the wait :) I will be happy to send up a prayer for you tonight.

10-21-2008, 04:40 AM
Thanks chrstngrl.

I did get put on the list. Hopefully soon.
The pillow idea has been wonderful. I still don't sleep all the way thru the night, but I do feel more rested when I get up. I don't get anytime to take a nap as I have to go to work each day. :(
Thanks also for the prayer, I will say one for you as well.
I was so impressed by how much better I felt after the pillow, I told a lady that I work with about it. She has arthritis and scoliosis. She also commented on the improvement she felt.

Hope you are feeling well.

10-21-2008, 09:14 AM

I used to have trouble sleeping at night. I used to toss and turn all night, getting only a couple hours of sleep, and waking up feeling more exhausted and more achey. :(

Now whenever I want to fall asleep quickly and have a good restful sleep, I make a cup of hot chamomile tea (is that spelled correct?) with a little bit of honey. It helps me warm up and relax. And in no time, I catch myself yawning. I fall asleep soon afterwards. It works for me, so I think it's worth a try.

I don't like relying on sleeping pills, so thank goodness I found an alternative.

:sleeping: Sweet Dreams :sleeping:

p.s. Let me know if the tea works out for you

10-21-2008, 02:03 PM
Hi Robyn....

Hey...sheesh..I remember reading your post, yeah, that's a good thing...but hummm..why didn't I reply back. I must have got lost in the crowd...

That is so great the pillow idea work...so many of us, so much experience dealing with our ouch-es, one just has to work...happy you found the one. Without sound sleep, life with any pain, Lupus, surgery, toothaches magnifies it ten-fold..at least, eh...

For my sound sleep I use Lunesta. Out like a light for usually 7 -8 hours. Since being on steroids I wake up as though someone yell my name, eyes wide open. Find my way to the bathroom..back in bed..out like a light..weird. Soon my steroids end...my rash has left the skin....

I dread thinking it may return after the last dose will on vacation...

Thinking of you...crossing my fingers your appointment gets moved up to next week...

See you when I get back....


10-21-2008, 02:07 PM
The tea is a GREAT idea! I live in an area with a large asian population, and a lot of co-workers refuse to drink chamomile during the day because it makes them sleepy. Along with the warm coziness of a cup of toasty warm drink - sound fabulous. I'm doing a little V-8 forehead bonk for not thinking of that myself. Thanks buddhabelly :)

10-21-2008, 02:49 PM
:lol: I totally caught myself laughing after that V-8 bonk comment. Thanks "chrstngrl" I needed that. :D

Yes, Chamomile tea is my sleeping pill. :sleeping:

Try it with a little bit of honey.

10-22-2008, 04:50 AM
Great Idea,
I will definitely try the tea. Thanks buddabelly. :)
I will let you know if it works.

11-07-2008, 08:31 AM
Thank you , thank you, thank you.
I tried the chamomile tea and it works wonders. Best night of sleep I have had in a while. Just wanted to let you know that it was great.
I gave some to my friend here at work and she loves it too.
If we could give out gold stars, I would give you a big one.

How are you doing today? It's Friday!!!


11-08-2008, 05:05 PM

:) I'm so glad the camomile tea worked for you. No need to take sleeping pills to get restful sleep. :sleeping: No need to add another prescription to the list of pills we already take.

I'm really happy I got to help you out. Not getting enough sleep seems to make me feel worst in the morning.

Yay! I get a gold star for the day. I feel like I'm in first grade again! Heehee. :wink:

Keep drinking that tea!