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rob
10-06-2008, 01:08 PM
Hi everyone,

I'm getting a strange new ringing in my ears, and I'm wondering if anyone else has had this. Now, I've had a permanent ringing in my right ear from a hand grenade that exploded a few feet away from me a few years ago. It's constant, and does not change in pitch or volume. Lately though, I get a sudden sensation like when you get water in your ear, or wear earplugs. In about 10 seconds most sound goes away and I get a low pitched ring. It lasts for a few minutes, to over an hour at times. It varies from ear to ear.

I don't know if it's something from my previous ear injury manifesting itself, or if it's related to my SLE, or MS. I see my neuro and my new rheumo in a couple of weeks. Until then I'm trying to get some ideas on this so I can be on my game when I see my Dr's. Thanks everyone!

sits_inthe_corner
10-06-2008, 05:29 PM
Hugs Rob,

I've had occational ringing. For me it usually lasts a couple of days then goes away for a bit. But I know it will return.

The sound of peoples cell phones ringing hits me the wrong way. Verberates in my ear and I'll have the ringing sound for quite awhile after wards. Have I mentioned I detest cell phones :P

Hope you get some answers soo.

Dont they have a devise that helps with the constant ringing. I thought there was a ear piece that emits a fequencey that over rides the ringing?

rob
10-08-2008, 06:23 AM
I get that too SITC. Certain sounds, like a phone ringing makes my eardrums feel like someone is beating on them like a drum. It's not only irritating, it hurts. I've been reading about various ear problems, like tinnitus, which I already have. Don't know if this new thing is from lupus, ms, or my close encounter with that "firecracker". Rheumo will probably refer me to another specialist. I just want it gone. Grrrr.

Oluwa
10-08-2008, 06:43 AM
Hi Rob..

Radio frequency?

No rings, no bells in my ear...just the ding dong, wake up...who am I ones...

My sister has the ringing, she keeps noise, music low, TV on to help minimize the ringing so it blends in with the other noise....

I've read medicine can cause the ring my bell, have you researched your drugs' side effects?

How annoying, eh? Hope your doctor can provide relief...

Hump Day ..Wednesday..have a happy one.
Love,
Oluwa

Jesse
10-09-2008, 01:52 PM
I've had reactivie tinnitus (gets louder when in a noisy environment) since I went suddenly deaf in my left ear about nine years ago. But now I've started getting a low ringing that comes and goes in my hearing ear. The rheum. thinks it's from the disease process. I thought it might be from the Plaquenil, which can cause ringing, but he disagrees. I've seen two ENTs and a neurologist and none of them could help me. Like you, I really don't know for sure what's causing it, so I'm just hoping my meds keep the disease under control and hope I don't go deaf in the right ear too. BTW, the left ear deafness may have been caused by a virus or from autoimmune inner ear disease. No one really knows. That's whats so scary.

I'd be very interested to hear what your specialists have to say.

Saysusie
10-10-2008, 08:01 AM
Rob;
I have constant ringing....it never ceases. I have to put a movie in my portable DVD player with headphones and the sound turned very low, each night so that I can get to sleep. I do this EVERY SINGLE NIGHT :? Somehow, the sound of the movies distracts me from the ringing in my ears and I am able to sleep.
My ringing is a low-pitched sound, like a very low roar. I've never discussed it with my doctor as I've lived with it for so long, I figure it's just a part of me. .... oh well :roll: I do not have high blood pressure, so I've never been too concerned about it.
I hope you find some relief from yours! If you talk to your doctor about it, let me know what he says.

Peace and Blessings
Saysusie

sick n tired
10-10-2008, 10:35 PM
Hey Rob,

Like Saysusie, I also have a constant ringing in my ears. My doc thought that it was Plaquenil, but I have been off for a few months and the ringing is just as bad. It can be very irritating, at best.

sits_inthe_corner
10-11-2008, 01:52 AM
:shock: oh great...plaquenil can cause this?

I cant say that it's been worse since I've been on the plaquenil...but it has been more frequent.

This has been going on for a couple of years, for me.

sick n tired
10-11-2008, 06:06 AM
I can't say when the ringing started...I just really started noticing it last year. That was about the time that I was dx'd and found out that everything wasn't all in my head or a desparate need for attention. :roll:

Anyway, I learned to tell my doc everything even though it sounded trivial. I used to think that it was allergies or sinus, but it never goes away. He, as I said, thought it could be caused by the plaquenil so we decided to get off of it. Now, my hair is falling out by the handfulls, I am back to feeling the same since last year, and the ringing is my constant companion.

:lol: On the bright side...It could be worse...it could be voices that we are hearing hearing... :lol:

Jesse
10-11-2008, 06:12 AM
I felt certain it was the Plaquenil and when I asked my RD how he could be so certain it wasn't, he said because every time he took a patient off it to try and stop the ringing, the ringing continued. Still, I had to see for myself and I tried to just cut back to one 200 mg. pill per day instead of two, but in just two days the pain was coming back big time. I tried that twice with the same result so I really never got a chance to find out for sure if the ringing would stop if I stopped Plaqu. I guess I never will know. For now I assume the RD is right and the rignign is from the disease process.

There is a good support forum for people with tinnitus (ringing) that I can't remember the site of right now (brain fog ya know) but if you Google "tinnitus" it will come up. They are a good group of people and I learned that there are many things other than drugs or lupus that can cause ringing.

jaideni
10-11-2008, 11:36 AM
I have it too. Very annoying. Mine my seems to get louder when I lay my head on either side so it definetly affects my sleepy time. Like SNT said :lol: Atleast its not voices :!:

NoodleMom
10-11-2008, 01:29 PM
rob, Ive had that for years, even b/4 my diagnosis.

rob
10-11-2008, 01:41 PM
Thanks for all the input everyone. I've been making a mental list of all the things I've done to mess up my hearing, and it's a wonder I don't have more hearing loss than I already have. Test firing guns for a living, being a gunner on a tank for six years in the Army, and too many rock concerts have all taken their toll. My usual ringing is getting louder, and this new low pitch ring is happening alot more now. I hope it's not the Plaquenil causing this, because I'd hate to think about dealing with my flares without it. It's driving me nuts, so I'm anxious to see my Neurologist on Tuesday. I hope he can help, or give me another specialist who can help me ASAP. I'll let you all know what I find out.

sits_inthe_corner
10-11-2008, 02:29 PM
hugs rob and good luck.

Back ground nose does seem to help. Having the tv on or the radio low in the back ground....I think it distracts the ear :lol:

Jesse
10-11-2008, 05:56 PM
The only thing my ENT could offer for this new ringing was an anti-depressant which he said helps with tinnitus. I guess it makes it so you still hear it but you just don't care. I didn't want another drug so I just learned to live with it. It's amazing how we can adjust to changes in our health and life. You'll probably get to the point where you hardly notice it any more.

rob
10-11-2008, 06:06 PM
It's funny, I noticed lately that I hear the ringing more because I don't run this small electric fan that I have on when it's warm out. Weather is getting colder, so I turned it off. It would seem the sound of the fan blocked out alot of the ringing. I'll have to run it, but point it away or something. Don't need the cool air circulating anymore. but the sound sure helps. I don't want another drug either Jesse, especially an anti-depressant as I've had some bad experiences with them in the past. I'm going to sleep with the radio on really low now, and it might help too.

sits_inthe_corner
10-12-2008, 02:12 AM
You could record the sound of the fan to play so you are not blowing cold air all over the house. :lol:

I use one of those "nature" cd's for background noise. Mind you some times that gets on my nerves :lol: