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mnjodette
09-24-2008, 07:43 AM
I've had a real roller coaster flare going on the past few weeks - started gradually, but it's beating me up pretty good from time to time. Joint pain has been increasing steadily for months now, but it would sometimes be absent. Not any longer....hurts all the #$*&$^& time now. Some days really bad...other's just a dull ache. Chest heaviness, fatigue, feverish....just plain crummy. I see a new rheumy on Oct. 1st. Have a page of questions and concerns. I was off prednisone - but started taking 5mg again just to see if it helps the pain. I don't really have anything else to take for pain and I hate to load up on NSAIDs. So disappointing....I thought I was doing better......rats. :cry: :cry:

Jody

Saysusie
09-24-2008, 09:00 AM
Oh Mnjodette, I'm so sorry to hear that you are still dealing with this and that now, the pain is continual.
I have to say that, everything that you described has been exactly what I've been feeling for the past month! The exception, the pain has been a bit bearable. However, the other symptoms have left me debilitated and unable to function.
Here's hoping that we both get some relief soon. Take care of yourself and I hope that the Prednisone starts helping!

Peace and Blessings
Saysusie

Oluwa
09-24-2008, 09:14 AM
Why hello their Jody..shoot it has been a long time, hasn't. Hugs...

I've been trying a little bit to catch up on everyone...a post here..one over there. Not much though..

Sorry to hear of your roller coaster ride. With our experience in that ride we'd think holding on till tomorrow is enough. Sometimes just holding on isn't enough. Maybe give the NSAIDS a whirl..

The 5mg roid hasn't helped? Head hug...

I hope you can wait til the 1st. Mine RoomBA is the on 2nd or the 3rd. Done for the year. Ah, maybe one more before the New Year, so I don't have to start the year off with appointments.

I've notice, while my Mum-in-law was here I was off schedule with my medicine dosing times, my usual eats and the foods I usually avoid and I feel such a difference inside, outside...for the worse. Has anything changed for you for those days you felt worse compared to the times you felt the pain was absent?

I ate greasy foods, starches..salty...all out of my norm. Less H20. I feel it everywhere, in my joints, skin...dry eyes...so check out your routine, possible, eh?

I feel bad with you about your disappointments, I pray relief will be there next week. Answers to your questions...answers to you pain if it can't be today, right now.

Minnesota cooling off fast? Here it has..cold for the SE. Low 60's at night and mid 70's by day. I am enjoying it...heading to the UP for the reds, yellows and oranges leaves. Hope they will be hanging on till we arrive the end of next month....

And thank you for you words on the thread where I mentioned cancer...I am doing alright, actually pretty good in spirit about that. No since in dribbling over it when I can learn, grow from it.

I've pondered, when I use the expression this is the path we were meant to walk. The plan... I've though about it a lot lately. I don't think it is the pain, the hardship, the diseases that is the path, but how we grow spiritually from it. Our human spirit...

I remember a post I replied to not so long ago...they said they wonder what they done..bad carma to get such a disease. It isn't bad carma I thought afterwards, but a opportunity to grow...turn the kaleidoscope. View ourselves, our heart, our priorities, our families differently. Blossom some more. A opportunity to be different that just what is, mainstream...branch off I thought. I want to be that roaming creek.

Just stand in the shower....let the water ease your pain, even if it during the time you are getting wet. For me it breaks up the pain, even it is just till the hot water tank runs out...try it. And sauve some lotion of while still wet....may just to the trick to get through this day...

Hugs..
Love ya,
Oluwa

Pretti in Pink
09-24-2008, 05:30 PM
Mnjodette,

I'm sorry to hear you are having such a hard time and will keep you in my prayers.

Oluwa,

You are such a pillar of strength and encouragment. No matter what you are going thru you still seem to manage th elift others spirit and encourage them. I hope you feel that love reciprocated. Hang in there, as you always do.

cherie
09-25-2008, 03:50 AM
Hugs to you i do hope things get better for you soon.

sits_inthe_corner
09-25-2008, 01:26 PM
Awww Jody,

hugs dolly...throw a thick blanket in the dryer for a bit then wrap your self up in it and have a nap.

Hope your feeling better soon.

Oluwa
09-26-2008, 09:13 AM
Jody Jody Jody Jody...

Are you still in the shower? You'll prune up.

Wondering how you are...concerned, worried. Sending you hugs... tight head hugs. A g-r-r-r- feel good head hug.

Love,
Oluwa

mnjodette
09-26-2008, 11:05 AM
I'm here....thank you ALL for your kind words. I've been trying to work a few hours each day, so by the time I get home I'm just too exhausted to do anything. Haven't had the energy to pick up the laptop. Today, I'm home. Hubby is teaching; quiet day on the deck - maybe a load of laundy (hubby carries them up and down...bless him!) Nothing stressful.

Saysusie thank you for your warm thoughts. I'm sorry you're experiencing a bad patch, too. Today is a bit better for me...weather cooperating - I'm home, pampering "me." Joints thanking me for that! Here's hoping we both get some relief very soon. Be good to yourself, Saysusie.

Oluwa It HAS been a long while. You're probably right...it's not the disease that's the journey. It's what we learn from it. The things that matter become more precious. When I let myself get too busy, the illness comes back to bite me...but I also forget what I've learned. Slowwww down I tell myself! I know you're anxious to hear the second opinion. I'm anxious for you, Oluwa. No, it's not cool here yet (a bit at night.) In fact, I'm sitting on my deck and it's about 72 degrees, sunny, breezy. The colors are wonderful - some trees like fire; some the color of fresh lemons and limes and some still dark green. Nothing prettier. I'm relaxing - listening to my body today. It does make a difference when I'm careful about sun, stress, too much physical activity, the wrong food. So easy to be careless. Sending hugs back to you.... (PIP is right...you are such a source of comfort to everyone....we love you!)

SITC I like the idea of the blanket in the dryer! That would feel soooo good. My son's girlfriend bought me this 'wrap' that you heat up in the microwave. I haven't used it yet, but next time my fingers, wrists and elbows hurt enough to make me cry, I'm going to give it a go. Thanks for the 'warm' suggestion! What's new with you, SITC? How are you feeling? I've been reading posts, but not replying too much. I have a hard time remembering what I read. Duh!

PIP, thank you for the prayers...we can all use those, huh? How are you? I feel like I've been so out of touch..good to hear from you.

sits_inthe_corner
09-26-2008, 12:47 PM
Over all, not bad.

Mostly trying to stay healthy. I've company coming for a visit so I want to be able to take them around and wine N dine them.

If I can just keep hubby and myself out of trouble for one week. He's worrying me...I'm gonna be watching him like a hawk :shock:

mnjodette
09-27-2008, 11:11 AM
Cherie, thanks for the kind words. I'm impatiently waiting to feel better!

SITC, just don't let your husband pick you up...from the floor, a chair...anything! :roll: :lol:

Jody

rob
09-27-2008, 12:01 PM
Hey there Jody,

Doing any better today? At least tolerable I hope. Patiently waiting for a roller coaster flare to end is an ongoing thing for me too. We've got quite a nor'easter storm over the central coast today, which means it's parked over my house pretty much. I was bummed yesterday because it was sunny and 70, and I felt like death warmed over and couldn't enjoy it. At least today the weather matches how I feel. Hope you start feeling better soon. Talk to you later.

Rob

mnjodette
09-27-2008, 06:46 PM
Thanks, Rob. Resting, resting, resting....that's the name of the game, isn't it? It was gorgeous here yesterday, too...got up to 85. Amazing for late September. Today? Cool, damp, cloudy. Fits me, too. Hope we're both better soon, Rob.

Jody

Oluwa
09-29-2008, 03:18 PM
Hi you, Jody..

Still resting, bed sores yet? The other day I slept like Sleeping Beauty...the action, not the look. All day, all night after several antihistamines...Z-z--z-z- and felt refresh, well refreshed and itchy the next day...

Hope this week is better than the last. Planning on working a few hours each day this week too?

Thinking of you,,,hugs.
Love,
Oluwa

mnjodette
09-29-2008, 04:35 PM
Hi, Oluwa. Sunday was a bit better; actually got outside a little; hubby and I did a little yard work; picked some apples from one of our young trees. Made a big pot of spaghetti (hubby's favorite.) That was about all I had in me, but it was good to be productive and enjoy a bit of the day. I did work a few hours today. Very tired tonight, but pain is tolerable.

How are you doing, Oluwa? Did you have a good day?

Jody

beautifulbeluga
09-30-2008, 10:05 AM
Mnjodette:

I am so sorry to hear that you are fighting a "flare", and having so many issues and pain as a result of it. Here's hoping soon it will be over. I know how discouraging it can be when it seems like we "just can't get our health to cooperate". I too have been miserable, in the past several months and am praying that things will settle soon.

I have been noticing on the posts that many of us are presently struggling with exacerbated symptoms. I wonder how much the sun of summer contributes to this for all of us. I for one am glad to see the fall roll around even if that means winter is around the corner and I know I will be freezing my ass off soon enough in our Canadian winter. I so used to love the sun, now I am thankful when it is gone, at least the very hot days.

Keep your chin up, as my mother used to say and sending you lots of warm thoughts, positive energy and gentle hugs.

sits_inthe_corner
09-30-2008, 10:16 AM
I'd rather hide in the shadows and enjoy the warmth of summer. I'm in canada as well, on the east coast.

The cold and the damp seep deep in to my bones and joints. I'm craving spring already :lol:

Oluwa
09-30-2008, 10:39 AM
Hi you, Jody....How is Tuesday, today? Sleep well?

I am having a so, so day..a just, no thrill of a day..living, being domestic. Bored.

Went to the PCP as a walk in this A.M., to have him take a look-n-see at my hinder, elbows and back. He concluded eczema...prescribed ammonium lactate lotion. I think what he says is eczema is different than what I have pictured in my mind..surely it doesn't look like the eczema I had while I resided on Oahu...

So we negotiated, if no relief I get a free doctor's visit, but I will pay for the biopsy. He felt there was no need to do a punch out but would be happy to take a chunk of my skin if I wanted him too....

Transparent apples? The thin yellow crisp ones? My favorite. My father and us kids would go joy riding, road hunting and would pluck apples from trees along the road side. Dig into the glove box for the shaker of salt...and wash it down with Mellow Yellow pop.

I have the yawnies...nap time...hope today has been a good day for you. Tata...

Hugs.
Love,
Oluwa

mnjodette
10-01-2008, 06:17 PM
Thanks, Beautifulbeluga. Sorry you're suffering, too. It does seem like there are many of us hurting right now. Or, maybe it takes us all in it's grip by turns. I'm hoping to turn a corner soon. Saw a new rheumy today and she has some ideas to help me manage.

I hope today was a good one for you.

Jody