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tdeyne
10-31-2004, 04:11 PM
does anyone know if exercise makes lupus pain worse? i'm afraid to start a regular exercise program for fear it will make my already achy muscles ache more...but on the complete other hand, i've heard from some people that exercise is extremely important for lupus patients and that it will probably help my muscle aches. and we all know of course that's it's excellent to for weight loss....soooo..what to do?? HELLLP!! :cry:

Saysusie
11-02-2004, 12:43 PM
Hi tdeyne:
Yes, exercise is very important for us lupies. If you are concerned about aerobic and/or weight bearing exercise, try starting with some mild yoga positions. The stretches are really helpful for the joint aches and pains. Go very easily and slowly at first, but keep at it.
I find that doing some type of exercise every day has been very helpful. If your pain is such that you are concerned about standing exercises, then start out on a chair or even on the floor. But, YES..DO SOME TYPE OF EXERCISE ON A REGULAR BASIS!! Strengthening you heart and improving your circulation works wonders for so many diseases!!

Best Of Luck
Saysusie

CK
11-05-2004, 04:15 PM
I have found exercise to be very helpful in regaining my strength and overall health. When I was at my peak of lupus activity, I stuck with yoga and water aerobics. I was the youngest person in the water aerobics class, but I did not care. It felt wonderful & the ladies treated me like a granddaughter! As I grew healthier, I started swimming. Now I have graduated to step classes, and I am going to start running again. I thought I would never be able to bend my knees again. But I started doing some weight training & I believe that has helped. Today, I knelt down to tie my 6 year-old's shoe. I have not been able to do that in a year!

Good luck to you!

Missy
11-11-2004, 10:59 PM
That's awesome, CK! Hope the return to running goes well. I always admire runners, because I just can't imagine enjoying running!

I also do Yoga and find that it has helped me immensely, probably more mentally than physically, even! I'm glad you posted because I was just feeling like I need to go back to the gym, just to do some mild weights. I know that's good for my bones, taking Prednisone. I think I'll stay away from aerobics, as I'm having a hard time keeping weight on right now. I also walk the dog a lot (well, more in the summer - luckily she's old). I think I got discouraged at the gym last year because I was comparing it to when I exercised and how I felt pre-Lupus. So, I'd feel guilty when I didn't feel up to going, etc. I think I know better now and know the value of listening to my body - Yoga taught me that.

Missy

Klaire
04-21-2005, 02:12 PM
Hi there, im a newbie so you'll have to bear with me.. :roll:

im 17 and i find that if i exercise, even sometimes walking, then the day after
im swollen and i feel heavy and achey. i cant stand yoga (sorry u yoga fans!) and swimming is quite good but im so ashamed of my steroid body that i dont want to give the public night mares after seeing me in my cossie! ne1 any suggestions of light exercises?

thanks klaire. :P

erinnlee
08-30-2005, 06:32 AM
I do a little treamill at a mediumpace (20-30 minutes a day) and light weights. I find that stretching really helps, and sometimes I'll just sitdown with a magazione, orin front of the TV and stretch for an hour. It helps me sleep better too.

hippimom2
08-30-2005, 06:49 AM
I've really struggled with the exercise thing. I used to be a long distance runner, but have been unable to run for over a year. That was a huge loss to me. A lot of exercises I've tried make me feel worse. Like others have said, any type of exercise in the water is good. I recently joined Curves and found that I usually tollerate that pretty well.

SoleSinger
08-30-2005, 07:58 AM
I have been trying to exercise regularly, but, I find that my energy is so depleted by the end of my regular work day that if I want to do anything else (cook, clean, GO anywhere) exercise is almost out of the question. Or if I have enough energy TO do anything, it isn't for very long.

Does anyone know what I can do to keep some kind of regular beneficial exercise routine that won't completely drain my energy?

ClaireMacl
08-30-2005, 04:02 PM
My fatigue is so bad that I find five minutes excercising leaves me floored, literally, I sit on the sofa and fall asleep after! I'm trying to think of ways around it, yeah, maybe as Missy suggested, I may try yoga, that might help :)

erinnlee
08-31-2005, 06:11 AM
the thing i like most about yoga is that you get a good workout and a small nap is built in at the end! no one minds if you fall asleep because it is so relaxing!

catlady4520
09-25-2005, 09:15 PM
I did exercise quite a bit up until a couple weeks ago...in a really bad flare right now. I did the exercise bike...on low...and the treadmill when I felt up to it. I've been reading about various exercises such as yoga or some stretching to help ease the joint pain. Got bursitis in one hip so alot of weight bearing exercise is tough. Going to strive to do some exercise every night to see if it helps!

Saysusie
09-26-2005, 06:55 AM
To Klaire and others:
For those who cannot do any kind of strenuous exercise, I have heard that doing Pilates (beginner's version - floor work only!) and very light beginner's yoga (floor work) have been successful. Like I mentioned in my earlier post, even doing mild forms of exercise while sitting in a chair can be beneficial (leg lifts, ankle flexes, using canned goods as hand weights and doing tricep and bicep workouts, etc. etc.). Even just doing those mild forms of exercise will add benefits.
Klaire - I swim laps in the summer and I find that the ladies and I who do that care nothing about how we look in our swimming suits. We are there for a purpose, to try to stay as healthy as we can! We have caps on our heads, sunscreen on our noses, goggles on our faces, plugs in our ears, fins on our feet, T-shirts to protect us from the sun while in the water, etc. etc. We laugh that we each look like some type of sea creature - but we are doing what we need to do in order to maintain our health. So, you will find that there are very few who are judging your body and those who are judging it are not worth the time and effort that you give to them by even considering what they think. They are obviously the ones with issues - not you. So, dive into the water and do aerobics or swim laps. You are the one who matters - not them!
Peace and Blessings
Saysusie

montice
10-23-2005, 10:34 AM
I use the walk away the pounds exercise tapes for six weeks until I was comfortable enough to go to a gym to exercise. Using these types, by Leslie Sansome, allowed me to get my body moving and lose weight at the same time. I also watched my food intake my calories, fat and sodium.

I now go to the gym 3-4 times a week and walk, run, and strenght train. I still need to lose about 30 - 40 lbs, but I feel great. GL

Ouisch
10-23-2005, 11:16 PM
I agree, some sort of exercise is highly recommended. There was a time, when I was first dx'd, that I could still manage 30 minutes on the treadmill and six miles on my bike in the evenings. Of course, I was much younger then. :lol: I've found a wonderful yoga show on PBS ("Stretch with Priscilla") that I tape every day. It has very gentle stretches that are good for keeping the joints fluid and in working order. I also try to get out and walk at least 30 minutes per day. Sometimes I feel it the next morning, and other times I don't. But overall it's better if you can deal with the minor aches and pains to keep up some sort of cardio-vascular exercise.