View Full Version : Stuck in limbo...
05-09-2008, 04:09 PM
k here it goes....grab a coffee
My last round of blood work came back with negative for ANA
The "new" rhuemy is NOT the one my family doctor requested for me, and she's NOT happy about it at all. She told me that I would be better served to stay with "stinky face" rhuemy than to go see this new one. She's had alot of complaints about the new one.
I have an appointment on May 28th. So I'll have to scrape up some manners even though I dont feel like it.
Stinky face is not going to check into further testing for lupus for me. She says that studies have shown that plaquenil "can" be helpful to treat osteo arthritis.
My family doctor says she'll continue to monitor my blood work, but she thinks I need to stick with this rhuemy but consider my options.
I'm thinking about asking her to send me to a naturaopath. It might not hurt to have a conversation with one.
I'm very frustrated.
Over all I feel pretty good. My joints are sore but my skin is actually good, my iron levels are back up. I have my swelling under tight controll. I feel no worse and no better than I did before stinky face put me on the plaquenil.
I'm in Canada....and I have to say I feel quite let down by our medical system. Why do we have to beg for appointments with specialists who know what to look for?
I have an appointment on June 9th with a dermatologist, he's supposed to be looking at my toe nails...woohoo.
Maybe I should go sun bathing before my appointment. I'm hoping for a big ol flare so my rashes in all their glory and forget about my stupid toe nail which I dont want him to remove :shock:
One of the lady's I work with up and quit. It's thrown the office in a tail spin. Tension is mounting in there. My boss asked me if I could cancel my doctor's appointment. I said absolutely NOT. It would take me 6 months to another year to get in to see him again.
Off all the cheek! I make all off my appointments and blood lettings outside of office hours. I have one stinky appointment a month from now and he wants me to let it go. Pffft dont think so.
05-09-2008, 04:52 PM
You wanna do the limbo? http://www.mysmiley.net/imgs/smile/party/party0006.gif (http://www.condoroptions.com)
05-09-2008, 09:49 PM
*hugs* That's really crappy. No other way to put it really. That's why my GP isn't sending me anywhere. He doesn't want me stuck in that limbo state. He'll send me to a rhuemy when my blood work comes back with no room for guess for work.
05-10-2008, 01:15 AM
http://smileys.smileycentral.com/cat/3/3_4_8v.gifhttp://plugin.smileycentral.com/http%253A%252F%252Fimgfarm%252Ecom%252Fimages%252F nocache%252Ftr%252Ffw%252Fsmiley%252Fsocial%252Egi f%253Fi%253D3%252F3_4_8v/image.gif (http://plugin.smileycentral.com/http%253A%252F%252Fwww.smileycentral.com%252F%253F partner%253DZSzeb008%255FZNxuk101YYCA%2526i%253D3% 252F3%255F4%255F8v%2526feat%253Dprof/page.html)
I'm more into line dancing hahahahaha.
I love the banana oluwa, thanks for the giggle. Shot coffee out my nose! Dang I've missed you all.
DebbieE....This whole process has taught me to have more faith in my family doctor. I told her the other day (even though we are the same age) she has great mothering skills, she let me strike out on my own ...even though she knew I was headed for trouble, and she welcomed me back with warmth and support when the mean stinky face let me down.
I've learned to give her credit for truly wanting the best for me. I wish I could have the same faith in stinky face but it's just not there.
Sorry you find yourself in the same boat. Here's your paddle...start rowing.
05-10-2008, 04:40 PM
Cancel your appointment?!?! Took a lot of nerve to ask you to do that.
Hey, it's very good to know you have an excellent family doctor. That's worth a lot to someone with the kind of stuff you've got going on. Sure wish you didn't have to see ol' stinky face, though.
I just shivered when you said the demotologist was going to remove your toenail....yikes! I need to have mine looked at, but I just keep avoiding the topic. NO WAY am I having that done!
05-14-2008, 09:42 PM
SITC, need a sugar lump and a splash of cream for those nostrils?
05-17-2008, 10:03 AM
I am sorry you are having all the problems. Why is a dermatologist looking at your toes and not a podiatrist? Why is he removing the nail? It should be a podiatrist! I would ask for a referral and not have the toenail removed yet. That's bizaare.
You shouldn't have to beg for appointments; that's awful.
I am sorry to hear you are having problems with employees at work. That just add extra stress onto you. Not good for your health.
Take care of yourself,
05-17-2008, 01:20 PM
Around here, perhaps you have to be willing to give both kidneys in order to see a podiatrist. I give up on understanding our medical system. The government has mess it up soooo bad I'm surprised my doctor could refer me on to anyone.
I think it's going to be removed because the antibiotic I was on didn't clear it up. And with all the "super bug" hoopdeedo doctors dont want to up the medication incase patients develop a resistance to it. So they are doing other things to try and clear up simple medical issues.
I'm hoping he'll get tired of me whining and just give the pills :)
05-17-2008, 03:04 PM
SITC ...so sorry about the whole toe issue ....seems bizaar having to worry about a toe doesn't it, but keep on keeping on.
I am a Canadian ex-pat and can't decide if I like the astronomical medical bills here in the US and the next day service or the no medical bills in Canada and the long waits for anything. It's a shame Canada has messed it up so badly ...they had a good system going there when I was there in the 80's and before. 3 kids , no bills ...very nice ...and people never went bankrupt from medical issues.
But this is a whole other thread and I didn't mean to hijack your toe :-) :-) :-)
05-17-2008, 05:41 PM
Never worry about that, there's no formality here. Just respect sharing and caring :) and a wee bit of silly stuff and the odd pity party :lol:
sick n tired
05-17-2008, 09:31 PM
I think that I missed it....what is wrong with your toe? Or rather toenail....
It is the pits that you are having to stay with stinky face and your boss takes the cake. Asking you to miss the appt....is this the same one who is asking you not to go to the sonogram in August? The nerve...
05-21-2008, 02:23 PM
Sits in the Corner,
I know this thread is really not about your toenail, but I can't help wanting to say something about it, before that nut takes it off.
Many of my patients could not afford the expensive antifungal pills or ointments, so an old fashioned doc once advised a patient to prepare a small container of hydrogen peroxide and soak the affected digit (finger or toe) in the liquid for 10 to 15 minutes a day for about a week. Somehow, it kills the germies. I did this for many home care patients, and it really worked for most. Why it did not work for all, I don't know. Why it is not recommended before taking all sorts of drugs or pulling off nails, I don't know. But hydrogen peroxide is cheap, and what the heck, you watch tv or sit and watch the sun set or something every day, right? Coordinate your little soak at that time, and see if it works (well, if you want to try it, that is.) Anyway, had to speak up, so if something rather simple could help you keep that toe for painting, so be it.
05-21-2008, 02:45 PM
Sorry sick n tired
I'm just seeing this post now. Way back when I was dating Mosses :shock: I used to work as a geriatric nursing assistant. I wore cheap shoes, and I brused the big toe nails on both feet.
That seems to be coming back to haunt me now. I have a fungis under my big toe nails in the exact shape of the bruses I had all those years ago. My family doctor put me on a pill that I took for six months and it didn't do a thing. So now she's refered me on to a dermatologist. My family doctor told me that this other doctor will probably choose to remove my nails :shock:
I'm not liking this idea....really not at all.
Thanks for the tip, I'll try anything at this point. I've got the time so why not :)
Problem is ... it's under the central part of the nail....so I'm not sure the peroxide will be able to reach it.
I've been using an anti fungus cream, but it's the same problem...it cant affect under the nail bed.
But I'll certainly give the peroxide a chance as the fungis cream has not been working. I'll let you know how it goes.
05-21-2008, 03:55 PM
Sits_inthe_corner, I hesitate to send this to you, but I will. Nurses are the worst patients, you know. We tend to self diagnose and self treat - doctors are forever getting frustrated because of this. But I have to say, most of the times I have self treated, I did as well as any doctor visit (for minor things, of course).
Anyway, there is another old-fashioned remedy for "blood blisters" - when you smash your toe and blood collects under the nail causing pressure and pain. At the ER, we made a small puncture with a sharp scalple (I know, ewwwww!). Anyhoo, you can do the same to access the fungal area with a sharp needle. Heat it in a flame for a minute then press on the spot - it should puncture a large enough opening to allow the peroxide in. Oh, I wish I could be there to do it for you. I just hate for you to lose the nail without a fight. Basically, him taking it off is to access the fungal area, and as Oluwa implied, he may not take the matrix, so it would then grow back. That is a pretty important point.
You may not want to go as far as this - I guess things like this don't bother me anymore after doing them for a living for so long. I forget how bad the ick factor is for others. But, thought I would throw it out there.
05-21-2008, 04:47 PM
Over the years....I've done alot of things for alot of people. When ever I did something that "needed" doing for a patient and they were up set or nervous I was always very kind and gentle and took my time till they felt ready. And the reason for this is.......................................I'm a big ol chicken.
The thought of putting a hole in my toe nail just gives me the willies. But I sure could put on in your toe nail hahahahahaha.
I'm a wuss it the worst way.
05-23-2008, 08:08 PM
Sits_inthe_Corner, You just gave me the biggest chuckle. I love how you said that you could not put a hole in your nail, but you sure could put one in mine!! What a hoot! Don't worry about being a wuss - my husband is far, far worse. I have to literally chase him down to give his flu shot. He will come up with 1000 excuses to put it off. He donates blood, and I have yet to figure out how he gets himself psyched up to do it.
That is why I almost didn't post that last - I know most people wouldn't or couldn't, but you can't say no to what you haven't had mentioned....
Please keep us updated on your situation - you have generated a thread of interest in your toes now....
Oh, and I hope you are having a great time on your road trip. I am enjoying a quiet weekend at home cooking on the barby and cranking out home-made ice cream. I will have visions of you in your red sunglasses sending signals to Rob across the water, though. What a fun vision.